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People of HealthUnlocked - COPD: Preparing for a Double Lung Transplant
COVID-19 disproportionately impacted some more than others. Although we were all thrust into uncertainty when the pandemic hit, arguably, those with lung conditions were at the forefront of concern. Today, Bernadette tells us about her story of living with chronic obstructive pulmonary disease (COPD)
COVID-19 disproportionately impacted some more than others. Although we were all thrust into uncertainty when the pandemic hit, arguably, those with lung conditions were at the forefront of concern. Today, Bernadette tells us about her story of living with chronic obstructive pulmonary disease (COPD)
SaskiaHU
HealthUnlocked
in
HealthUnlocked Blog
2 years ago
Gleason 9 CRPC any thoughts out there
64 yr old very active with no other health issues other than Gleason 9 PC RP Jan/2016 followed by Salvage radiation 32 sessions. PSA has bounced around since that time on. Started ADT Zoxidex with Bicalutamide. Bicalutamide failed Jan 2021 switched to Zolidex and Darolutamide still on, but has also
64 yr old very active with no other health issues other than Gleason 9 PC RP Jan/2016 followed by Salvage radiation 32 sessions. PSA has bounced around since that time on. Started ADT Zoxidex with Bicalutamide. Bicalutamide failed Jan 2021 switched to Zolidex and Darolutamide still on, but has also
Bfhahn
in
Advanced Prostate Cancer
2 years ago
Israeli scientists racing to deliver world’s 1st pill-form immunotherapy for cancer
[i]A computer-generated image of the synthetic cancer-fighting molecule developed at Tel Aviv University encountering proteins that inhibit the immune system. After encountering the proteins it reprograms them, to enable the immune system to fight the tumor. (courtesy of Tel Aviv University)[/i]
[i]A computer-generated image of the synthetic cancer-fighting molecule developed at Tel Aviv University encountering proteins that inhibit the immune system. After encountering the proteins it reprograms them, to enable the immune system to fight the tumor. (courtesy of Tel Aviv University)[/i]
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
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mirvetuximab soravtansine
Hi my friends, I’m on my third recurrence and my Dr. is trying to get me approved for mirvetuximab soravtansine treatment. It is a drug that has not been approved yet by the FDA, but is in a stage three clinical trial that looks promising for the near future. Any thoughts? Sonja
Hi my friends, I’m on my third recurrence and my Dr. is trying to get me approved for mirvetuximab soravtansine treatment. It is a drug that has not been approved yet by the FDA, but is in a stage three clinical trial that looks promising for the near future. Any thoughts? Sonja
Louise62
in
My Ovacome
2 years ago
? Experience w/ taking Hydroxychloroquine & ADT simultaneously? If so, issues w/ your heart or other side effects? Clinical Trial or Nubeqa?
I've been considering doing a clinical trial or just starting on Nubeqa. The trial includes a pretty high dosage of hydroxychloroquine (HCQ), along with Metformin and Sirolimus. I'm trying to figure out if the trial/HCQ has a significant chance of causing heart disruptions/issues. I am cautious because
I've been considering doing a clinical trial or just starting on Nubeqa. The trial includes a pretty high dosage of hydroxychloroquine (HCQ), along with Metformin and Sirolimus. I'm trying to figure out if the trial/HCQ has a significant chance of causing heart disruptions/issues. I am cautious because
GeorgeGlass
in
Advanced Prostate Cancer
2 years ago
ARV-110 Experience?
I've been tentatively accepted to Part B of this clinical trial. I'm wondering if anyone out there has experience with the ARV-110 trial. Thanks Gary
I've been tentatively accepted to Part B of this clinical trial. I'm wondering if anyone out there has experience with the ARV-110 trial. Thanks Gary
GDeG
in
Advanced Prostate Cancer
2 years ago
Treatment update-continuing on Jevtana/Carbo combo
After having treatment #7, my PSA went up to 42 from 18 after #6 three weeks prior. Treatment #8 was put off. Subsequent CT and Whole Body Bone Scans indicate no progression of disease from those 2 1/2 months prior. My MO has reminded me that we can't just rely on PSA alone, which could indicate cancer
After having treatment #7, my PSA went up to 42 from 18 after #6 three weeks prior. Treatment #8 was put off. Subsequent CT and Whole Body Bone Scans indicate no progression of disease from those 2 1/2 months prior. My MO has reminded me that we can't just rely on PSA alone, which could indicate cancer
HopingForTheBest1
in
Advanced Prostate Cancer
2 years ago
PI3K inhibitors (idelalisib,copanlisib, duvelisib, parsaclisib, umbralisib, zandelisib, ACP-319) in CLL: where do we go from here?
While we have never been as spoiled for treatment choice as we are now, PI3K inhibitor safety is being very closely monitored by the FDA. So, it's timely that Sigrid S Skanland and Jennifer R Brown have written a peer-reviewed Haematologica early view paper that discusses [i]"the current status of
While we have never been as spoiled for treatment choice as we are now, PI3K inhibitor safety is being very closely monitored by the FDA. So, it's timely that Sigrid S Skanland and Jennifer R Brown have written a peer-reviewed Haematologica early view paper that discusses [i]"the current status of
CLLerinOz
Administrator
in
CLL Support
2 years ago
I just bought this PEMF therapy mat (pulsed electromagnetic frequency) after learning it treats PD
PEMF is a very interesting therapy that's been around for decades. This is a 2015 study from the NIH https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4562205/ [u]"Conclusions"[/u][i]
"Electromagnetic therapy opens a new avenue for PD treatment.
[/i] [i]Each electromagnetic therapy technique described
PEMF is a very interesting therapy that's been around for decades. This is a 2015 study from the NIH https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4562205/ [u]"Conclusions"[/u][i]
"Electromagnetic therapy opens a new avenue for PD treatment.
[/i] [i]Each electromagnetic therapy technique described
PDWarrior1900
in
Cure Parkinson's
2 years ago
Israeli scientists developing ‘precision’ viruses that kill bowel-harming bacteria
[i]Illustrative image: Viruses, known as phages, infecting bacteria. The Weizmann Institute has developed pages which it says could counter harmful bacteria in the bowel. (libre de droit via iStock by Getty Images)[/i] In peer-reviewed study, Weizmann researchers tout ‘silver bullet’ approach promising
[i]Illustrative image: Viruses, known as phages, infecting bacteria. The Weizmann Institute has developed pages which it says could counter harmful bacteria in the bowel. (libre de droit via iStock by Getty Images)[/i] In peer-reviewed study, Weizmann researchers tout ‘silver bullet’ approach promising
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
AMPLITUDE clinical trial
Having been diagnosed with stage 4 PCa in May this year (see my profile for more details), my CO has suggested it could be worth me participating in the AMPLITUDE trial. This is currently at the stage of taking newly diagnosed metastatic cases like mine who have particular DNA repair defects. I don't
Having been diagnosed with stage 4 PCa in May this year (see my profile for more details), my CO has suggested it could be worth me participating in the AMPLITUDE trial. This is currently at the stage of taking newly diagnosed metastatic cases like mine who have particular DNA repair defects. I don't
Benkaymel
in
Advanced Prostate Cancer
2 years ago
The Constitution of Knowledge (Part 3 of 3)
[u]
Distrust of Institutions
[/u] There has been growing distrust of institutions among lay people, sometimes with good reasons. There were abuses like “p-hacking” that fostered distrust. Until recently, publications did not require authors to be transparent about potential conflicts of interest
[u]
Distrust of Institutions
[/u] There has been growing distrust of institutions among lay people, sometimes with good reasons. There were abuses like “p-hacking” that fostered distrust. Until recently, publications did not require authors to be transparent about potential conflicts of interest
Tall_Allen
in
Prostate Cancer Network
2 years ago
The Constitution of Medical Knowledge (Part 3 of 3)
[u]
Distrust of Institutions
[/u] There has been growing distrust of institutions among lay people, sometimes with good reasons. There were abuses like “p-hacking” that fostered distrust. Until recently, publications did not require authors to be transparent about potential conflicts of interest
[u]
Distrust of Institutions
[/u] There has been growing distrust of institutions among lay people, sometimes with good reasons. There were abuses like “p-hacking” that fostered distrust. Until recently, publications did not require authors to be transparent about potential conflicts of interest
Tall_Allen
in
Advanced Prostate Cancer
2 years ago
New AI approach to Crohn’s disease diagnosis and treatment
[i]The Intel-Sheba team that developed an AI app for diagnosing Crohn’s. Photo by Ohad Falik[/i] Intel and Israel’s largest medical center develop algorithm that scans thousands of digestive system images in 2 minutes for improved prediction. By Abigail Klein Leichman AUGUST 2, 2022 Approximately
[i]The Intel-Sheba team that developed an AI app for diagnosing Crohn’s. Photo by Ohad Falik[/i] Intel and Israel’s largest medical center develop algorithm that scans thousands of digestive system images in 2 minutes for improved prediction. By Abigail Klein Leichman AUGUST 2, 2022 Approximately
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Jarlsberg cheese may help stave off osteoporosis, small study suggests
K2 rides again! Ironically, the day after the dismissive vitamin D article in Forbes (which - as was pointed out - had no mention of K2). [i]
Jarlsberg cheese may help stave off osteoporosis, small study suggests
Jarlsberg is rich in vitamin K2, which has previously been found to improve
K2 rides again! Ironically, the day after the dismissive vitamin D article in Forbes (which - as was pointed out - had no mention of K2). [i]
Jarlsberg cheese may help stave off osteoporosis, small study suggests
Jarlsberg is rich in vitamin K2, which has previously been found to improve
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Finishing line for Pirtobrutinib (Loxo) & Venetoclax combination trial.
I have just completed the 2 year combination clinical trial with Pirtobrutinib and Venetoclax - I think a small study of us in Australia. ( Also worldwide) This has resulted in no detectable cancer in my blood and lymph nodes- woohoo! My last Bone Marrow test showed just outside the non detectable parameter
I have just completed the 2 year combination clinical trial with Pirtobrutinib and Venetoclax - I think a small study of us in Australia. ( Also worldwide) This has resulted in no detectable cancer in my blood and lymph nodes- woohoo! My last Bone Marrow test showed just outside the non detectable parameter
Billarina
in
CLL Support
2 years ago
Good news to share!
After radical prostatectomy, chemo clinical trial, and radiation during 2001-2002, I watched my psa do its long slow climb. I began Lupron injections about five years ago. The number dropped to about 0.84, then began another long slow climb. After a PSMA PET scan revealed that there were "no distant
After radical prostatectomy, chemo clinical trial, and radiation during 2001-2002, I watched my psa do its long slow climb. I began Lupron injections about five years ago. The number dropped to about 0.84, then began another long slow climb. After a PSMA PET scan revealed that there were "no distant
Okay4now
in
Prostate Cancer Network
2 years ago
Anavex Announces First Entire Clinical Alzheimer's Gene Pathway Data of ANAVEX®2-73 at AAIC 2022 (both Alzheimer's and Parkinson's disease)
https://www.benzinga.com/pressreleases/22/07/g28280412/anavex-announces-first-entire-clinical-alzheimers-gene-pathway-data-of-anavex-2-73-at-aaic-2022 Expression levels of pathological dysregulated neurodegenerative genes of both Alzheimer's and Parkinson's disease were significantly restored by the
https://www.benzinga.com/pressreleases/22/07/g28280412/anavex-announces-first-entire-clinical-alzheimers-gene-pathway-data-of-anavex-2-73-at-aaic-2022 Expression levels of pathological dysregulated neurodegenerative genes of both Alzheimer's and Parkinson's disease were significantly restored by the
Hidden
in
Cure Parkinson's
2 years ago
The Constitution of Medical Knowledge (Part 1 of 3)
Patients are often confused by seemingly conflicting findings of studies, or equally good doctors recommending different treatment plans. How are we to decide? Medical science is a process created by a “reality-based community” to help decide such questions. Science isn’t just hypothesis-testing with
Patients are often confused by seemingly conflicting findings of studies, or equally good doctors recommending different treatment plans. How are we to decide? Medical science is a process created by a “reality-based community” to help decide such questions. Science isn’t just hypothesis-testing with
Tall_Allen
in
Prostate Cancer Network
2 years ago
The Constitution of Medical Knowledge (part 1 of 3)
Patients are often confused by seemingly conflicting findings of studies, or equally good doctors recommending different treatment plans. How are we to decide? Medical science is a process created by a “reality-based community” to help decide such questions. Science isn’t just hypothesis-testing with
Patients are often confused by seemingly conflicting findings of studies, or equally good doctors recommending different treatment plans. How are we to decide? Medical science is a process created by a “reality-based community” to help decide such questions. Science isn’t just hypothesis-testing with
Tall_Allen
in
Advanced Prostate Cancer
2 years ago
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