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📣 TAKE PART 📣 Are you a patient that has participated in a DCT or Hybrid Clinical Trial?
Are you a patient that has participated in a DCT or Hybrid Clinical Trial? These are trials with at-home elements, such as at-home monitoring, telemedicine visits, or home health visits. If so, we would love to speak with you! Please email: recruitment@healthivibe.com
Are you a patient that has participated in a DCT or Hybrid Clinical Trial? These are trials with at-home elements, such as at-home monitoring, telemedicine visits, or home health visits. If so, we would love to speak with you! Please email: recruitment@healthivibe.com
AnnaHU
HealthUnlocked
in
Research Opportunities
1 year ago
EVUSHELD PHASE II. A unique opportunity
I have recently attended Clatterbridge Hospital in Liverpool to participate in the latest Evusheld trial. The trial will take one year to complete and will require further visits throughout that time. Evusheld does not depend on a healthy immune system to generate protective immunity. And while approved
I have recently attended Clatterbridge Hospital in Liverpool to participate in the latest Evusheld trial. The trial will take one year to complete and will require further visits throughout that time. Evusheld does not depend on a healthy immune system to generate protective immunity. And while approved
BooBoo39
Volunteer
in
Vasculitis UK
1 year ago
Melatonin stirs up Tinnitus
All the literature nearly universally says that melatonin is good for tinnitus based on clinical trials and personal experiences Tinnitus UK is not particularly supportive of melatonin I must be an outlier as melatonin really stirs my tinnitus up Just wondering if anyone else considers melatonin
All the literature nearly universally says that melatonin is good for tinnitus based on clinical trials and personal experiences Tinnitus UK is not particularly supportive of melatonin I must be an outlier as melatonin really stirs my tinnitus up Just wondering if anyone else considers melatonin
DR650SE
in
Tinnitus UK
1 year ago
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Recruit yourself in stem cell trial and grab the opportunity
If you are in the Houston area please spread the word that we are still recruiting for a clinical trial using adult stem cells for the treatment of #LongCovid. We need to finish this trial asap. Many are in need of a solution. Thank you! https://www.hopebio.org/Study?Name=HBPCOVID02
If you are in the Houston area please spread the word that we are still recruiting for a clinical trial using adult stem cells for the treatment of #LongCovid. We need to finish this trial asap. Many are in need of a solution. Thank you! https://www.hopebio.org/Study?Name=HBPCOVID02
Farooqji
in
Cure Parkinson's
1 year ago
INFORMATION ABOUT CLINICAL TRIALS
The Brain Tumour Charity has recently updated the information on clinical trials on their website. It now provides a lot more detail and links; if anyone is interested in finding information about clinical trials, I recommend considering using this as a starting point. Wishing you all an excellent
The Brain Tumour Charity has recently updated the information on clinical trials on their website. It now provides a lot more detail and links; if anyone is interested in finding information about clinical trials, I recommend considering using this as a starting point. Wishing you all an excellent
Tansi75
in
Glioblastoma Support
1 year ago
Suspecting ADHD and struggling
I feel so lost and would love guidance from this lovely community. I've struggled with and sought professional treatment for depression, anxiety, and dissociation. I've never been told by a person prescribing me meds or giving me therapy to get evaluated fully. I've been given psychotropics, SSRIs, SNRIs
I feel so lost and would love guidance from this lovely community. I've struggled with and sought professional treatment for depression, anxiety, and dissociation. I've never been told by a person prescribing me meds or giving me therapy to get evaluated fully. I've been given psychotropics, SSRIs, SNRIs
BigBlueHouse
in
CHADD's Adult ADHD Support
1 year ago
Cue1: £120k Innovate UK boost for Charco’s wearable Parkinson’s device
The 24-month project will focus on Charco’s CUE1 – a wearable device to alleviate the symptoms of Parkinson’s. The scope of the project includes testing the CUE1’s feasibility, assessing its tolerability and effect on clinical outcome measures, assessing optimal stimulation settings and positioning
The 24-month project will focus on Charco’s CUE1 – a wearable device to alleviate the symptoms of Parkinson’s. The scope of the project includes testing the CUE1’s feasibility, assessing its tolerability and effect on clinical outcome measures, assessing optimal stimulation settings and positioning
Farooqji
in
Cure Parkinson's
1 year ago
Ac-225 results and next steps
My husband traveled to Turkey mid-January to receive Ac-225 after Pluvicto failed. In spite of high PSMA uptake and no discordance, treatment failed as the widespread disease burden was too great. His liver mets in particular has grown exponentially since August when it was first seen immediately prior
My husband traveled to Turkey mid-January to receive Ac-225 after Pluvicto failed. In spite of high PSMA uptake and no discordance, treatment failed as the widespread disease burden was too great. His liver mets in particular has grown exponentially since August when it was first seen immediately prior
leebeth
in
Advanced Prostate Cancer
1 year ago
clinical trial for gene therapy
my doctor ask me if I would be interested in going into phase 3 clinical trials for macular degeneration gene therapy. Has anyone on this forum been in a clinical trial or what is your opinion?
my doctor ask me if I would be interested in going into phase 3 clinical trials for macular degeneration gene therapy. Has anyone on this forum been in a clinical trial or what is your opinion?
Slattery
in
Macular Society
1 year ago
Human Betaretrovirus and PBC - can antiretrovirals fix us?
Hello all What do people think please about the research on PBC as an infectious disease and the potential of antiretroviral drugs? There was a flurry of reports back in 2015/6 identifying persistent betaretrovirus in people with PBC and then some small clinical trials of antiretroviral drugs.
Hello all What do people think please about the research on PBC as an infectious disease and the potential of antiretroviral drugs? There was a flurry of reports back in 2015/6 identifying persistent betaretrovirus in people with PBC and then some small clinical trials of antiretroviral drugs.
Wilderswimmer
in
PBC Foundation
1 year ago
Clinical Trials for Mushrooms
I have been taking mushroom supplements for years based on my own research (with my oncologist's knowledge) and I think it has helped me continue to remain hormone sensitive, though I really can't know. [u]Study published by International Journal of Cancer:[/u] https://www.ncbi.nlm.nih.gov/pmc/articles
I have been taking mushroom supplements for years based on my own research (with my oncologist's knowledge) and I think it has helped me continue to remain hormone sensitive, though I really can't know. [u]Study published by International Journal of Cancer:[/u] https://www.ncbi.nlm.nih.gov/pmc/articles
dmt1121
in
Advanced Prostate Cancer
1 year ago
Sulforaphane, Acrolein, and Parkinson's
I spend a fair amount of time re-researching things I have researched previously. With my bad memory, frequently I think I am finding something new when I am not. I just came across (again) an article on Acrolein and Parkinson's and remembered that a Broccoli Sprout beverage can clear Acrolein and
I spend a fair amount of time re-researching things I have researched previously. With my bad memory, frequently I think I am finding something new when I am not. I just came across (again) an article on Acrolein and Parkinson's and remembered that a Broccoli Sprout beverage can clear Acrolein and
Bolt_Upright
in
Cure Parkinson's
1 year ago
📚 Research 101: What do I have to do in a clinical trial?
The activities involved in a clinical trial are different for each trial. Before a trial starts, an independent regulatory body looks at the benefits and risks to make sure they are appropriate and makes sure that there is no unnecessary harm or discomfort for participants before it starts. Once the
The activities involved in a clinical trial are different for each trial. Before a trial starts, an independent regulatory body looks at the benefits and risks to make sure they are appropriate and makes sure that there is no unnecessary harm or discomfort for participants before it starts. Once the
AnnaHU
HealthUnlocked
in
Research Opportunities
1 year ago
Information on clinical trial of large doses of B12?
Someone wrote on this site about a clinical trial of B12 being given in large doses and that it was promising. I can not find the post nor can I find a report from the study. If someone happens to be able to point me toward it that would be appreciated.
Someone wrote on this site about a clinical trial of B12 being given in large doses and that it was promising. I can not find the post nor can I find a report from the study. If someone happens to be able to point me toward it that would be appreciated.
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
clinical trial RBN-2397-19-001
Any thoughts on RBN 2397 an oral PARP7 inhibitor? Husband is out of options so considering this trial. Thank you for your input.
Any thoughts on RBN 2397 an oral PARP7 inhibitor? Husband is out of options so considering this trial. Thank you for your input.
Cynthgob
in
Advanced Prostate Cancer
1 year ago
BAT in Argentina
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9934967/ Results A total of 21 asymptomatic patients with mCRPC were included. There was a median of two lines before BAT, with nine patients (42.8%) receiving three or more lines, and 13 patients (61.9%) receiving chemotherapy previously. Previous lines
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9934967/ Results A total of 21 asymptomatic patients with mCRPC were included. There was a median of two lines before BAT, with nine patients (42.8%) receiving three or more lines, and 13 patients (61.9%) receiving chemotherapy previously. Previous lines
pjoshea13
in
Fight Prostate Cancer
1 year ago
A shared story of SCA3
Bill Moore & his daughter Jessica Oberlin, two members of NAF, recently shared their stories of living with SCA3 as part of a feature for the Critical Path to Therapeutics for the Ataxias (CPTA). The CPTA aims to optimize clinical trials for inherited Ataxias. Impact stories like theirs can help researchers
Bill Moore & his daughter Jessica Oberlin, two members of NAF, recently shared their stories of living with SCA3 as part of a feature for the Critical Path to Therapeutics for the Ataxias (CPTA). The CPTA aims to optimize clinical trials for inherited Ataxias. Impact stories like theirs can help researchers
wobblybee
in
Ataxia UK
1 year ago
Supporting Children Suffering from Narcolepsy
This week, we hear from FACES of Narcolepsy founder Erin Carey's - this is a truly inspiring story of love, support and fearless devotion. -------- I created FACES of Narcolepsy in 2017 when I joined forces with four other moms from across the U.S. to fill a need in the pediatric narcolepsy community
This week, we hear from FACES of Narcolepsy founder Erin Carey's - this is a truly inspiring story of love, support and fearless devotion. -------- I created FACES of Narcolepsy in 2017 when I joined forces with four other moms from across the U.S. to fill a need in the pediatric narcolepsy community
SaskiaHU
HealthUnlocked
in
HealthUnlocked Blog
1 year ago
KEYNOTE-B96 Clinical trial
Hello, ladies. Is anyone on the KEYNOTE-B96? It's weekly Taxol plus Avastin plus Pembrolizumab/Placebo for platinum-resistant recurrent ovarian cancer.
Hello, ladies. Is anyone on the KEYNOTE-B96? It's weekly Taxol plus Avastin plus Pembrolizumab/Placebo for platinum-resistant recurrent ovarian cancer.
Vilinew
in
My Ovacome
1 year ago
ORION -4
Wondering has anybody out there being offered the chance to do the clinical trial for a new drug called Inclisiran. It may be the answer to lower LDL cholesterol. I have been offered the chance and took up the offer anything to help.?
Wondering has anybody out there being offered the chance to do the clinical trial for a new drug called Inclisiran. It may be the answer to lower LDL cholesterol. I have been offered the chance and took up the offer anything to help.?
Sizzlerman
in
British Heart Foundation
1 year ago
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