Experiences with

Trigeminal neuralgia

they said every symptom is in line with trigeminal neuralgia.

they said every symptom is in line with trigeminal neuralgia.

I was diagnosed with Trigeminal Neuralgia today and put on 100mg of carbamazepine (Tegretol) which the GP wants to increase gradually. Apart from the horrendous pain, I am worried about carrying on with my job.

Neurologist says is trigeminal neuralgia. She has started me on carbamazepine. Has anyone had this? Can you offer any advice? Thanks!

for those who suffer with trigeminal neuralgia and/or lhermitte's, can you tell me if you know what this is?

I’ve had Trigeminal neuralgia for 2 years and currently take 800mg of Tegretol. Has anyone tried any canaboid treatments in place of Tegretol or other pharmaceutical drugs? I’d prefer to stop using Tegretol as it has some serious side effects.

Is it possible to be medically retired if you have seronegative arthritis and trigeminal neuralgia?

hello everyone, does anyone use an electric toothbrush and they also have trigeminal neuralgia?, I stopped using my electric toothbrush in fear of the pressure causing/triggering the pain. Now I feel as though my teeth are not as clean.

Hello peeps, I’m in terrific pain in my mouth and face, doc thinks could be Trigeminal neuralgia. Honestly feels like Jaw is splitting at hinge. Anyone else on Carbamazapine? It’s lower dose atm but think it’s helping a bit, can anyone comment. I’m in Hell!

having developed Trigeminal Neuralgia in 2023 from the impact of my AN, I started Carbamazepine in Dec 2023. Although this has reduced headaches considerably I’m now left (6months on) with severe motivation issues. I just struggle to do anything other than respond.

having developed Trigeminal Neuralgia in 2023 from the impact of my Acoustic Neuroma, I started Carbamazepine in Dec 2023. Although this has reduced headaches considerably I’m now left (6months on) with severe motivation issues. I just struggle to do anything other than respond.

I have been given two options either to go for the gamma Knife surgery which is a targeted Radiotherpy or to go for surgery to remove it. they feel that surgery would be the best options because if the radiotherpy can cause swelling which can cause me Trigeminal neuralgia which can be very painful and

After many years of suffering with facial neuralgia. I have finally got a diagnosis of Trigeminal Neuralgia (TN). For me this means constant facial pain (migraine earache and toothache all at the same time ) I am told this is a very rare health condition .

I am still 5' 11" and 153 pounds as I have to eat soft stuff to get past the trigeminal neuralgia on both sides of my face, See RRms has it's good side. It is great for dieting. Find the good bits always the good bits. Royce 👍 Be happy and enjoy your day

Neuro ruled out myasthenia and trigeminal neuralgia. I already have an auto-immune desease so i'm not gonna be surprise to have an other one. I just want to know how you were diagnosed because doctor are about to run out of test.

I also get bouts of trigeminal neuralgia. Now I am the first one to tell you not to match symptoms with what you read, but this made me wonder. I will go and see my GP but anyone else out there got experience of Sjorgrens? Thanks. 😊

Recently diagnosed with atypical trigeminal neuralgia, pain on left side of face/eye/head. I also have rheumatoid arthritis which I take methotrexate 20mg once per week for. Does anyone else know anything about this, or what helps, in a lot of pain.

I had been diagnosed with fibromyalgia and chronic fatigue in 2018 and then trigeminal neuralgia in 2020. Most people who ask what's wrong with me give me the "attention seeker" or "yeah yeah" look smile politely and say "aww it must be awful. 😐. Yes it has been awful and so far continues to be.

Hi everyone, I have been away for so long but I thought I would share the little bit of information that I have with you for people who suffer with TN, I have TN in my right jaw, it has been so bad that i literally could not talk for 6 weeks, the pain was so severe. There has been many time I have stood

Hi I am diagnosed with MS Trigeminal Neuralgia and hughes syndrome I also had a stroke in the Pons 3 years ago I had a message from the GP this morning to say I have low B12 and need to have loading doses and they have made me an appointment with the nurse (absolutely no further information other than