Happy New Year Everyone For anyone who suffers with Trigeminal Neuralgia

[jimeka]

Hi everyone, I have been away for so long but I thought I would share the little bit of information that I have with you for people who suffer with TN, I have TN in my right jaw, it has been so bad that i literally could not talk for 6 weeks, the pain was so severe. There has been many time I have stood in front of all my medications and just wanted to take them all at once because of the pain. My neurologist has given up on me and said there is nothing he can do for me on the NHS. I cannot afford to go private having just lost my husband and had to pay off the mortgage with his pension. So my dentist has been a God send, she sent me to the maxofacial specialist who started a series of injections. He injectected me to begin with, with Lidocaine behind where my wisdom tooth used to be, just to see if he could find the right nerve for my tongue and lower gum. He found it right away. It was great, for 3 hours no pain in my tongue, teeth or gum, and I could talk. Well my daughter actually told me to shut up. Two weeks later I went for another injection, this time with Bupivacaine, the idea is to eventually kill off the nerve . Well I have now had 4 injections. I can now talk, eat and drink. I am not loosing weight any more. The injections really hurt but at the end of the day it’s better than the TN pain. But then I got to thinking is the TN just having a break?

So if anyone else has tried this treatment would you please let me know. I do go to the pain clinic on Friday to see what they have to offer but we will see.

Anyway I see there are lots of new faces so I say hi to all the ones I know and welcome to all the new ones and happy birthday to Morllyn and Amore55 and hi carolek572

[erash]

hi jimeka 🤗 for me gamma knife has worked for more than 15 yrs now 🙏

[jimeka in reply to erash]

Is that an invasive procedure erash? Hope you are doing well 🙏

[erash in reply to jimeka]

Yes and no. It’s basically radiation externally targeted at the trigeminal nerve in the brain. No incisions or excisions.

[jimeka in reply to erash]

Thank you very much 🙏

[bxrmom]

jimeka I'm so sorry you had to go through that but so glad your dentist was able to help you! Maybe a new Neuro is in order? Hugs. Happy New Year, I hope this year is better for you.

[jimeka in reply to bxrmom]

Thank you good to hear from you 🙏

[falalalala]

Hi!

I'm glad to see you and glad you're getting some relief.

[jimeka in reply to falalalala]

Thank you how’s the hip?

[falalalala in reply to jimeka]

Not quite to hula dance level but no pain, tha😀nks

[jimeka in reply to falalalala]

That’s half the battle won then 👍

[falalalala in reply to jimeka]

👍😀

[NorasMom]

It is so good to hear from you! I was just thinking about you this morning, so I'm glad you've found some relief. I hope things are going well in general. We miss you here.

[jimeka in reply to NorasMom]

Thank you very much good to see you are still active 🙏

[lbenmaor]

I am so sorry this is happening to you. I'm glad your dentist is helping. We have missed you.

Leslie

[jimeka in reply to lbenmaor]

Thank you that’s very kind I hope you are in as good a health as you can be 🙏

[carolek572 CommunityAmbassador]

So nice to hear from you, jimeka ! Wish that I could help with your TN. You’re in my prayers. The NHS really stinks, but happy that your dentist can help you. Please post more now that you’re back because so many miss you on the forum! 🤗

[jimeka in reply to carolek572]

Did you get your birthday card? I haven’t heard from you in awhile. Are you ok? 👌

[carolek572 CommunityAmbassador in reply to jimeka]

No, I didn’t get a birthday card from you, jimeka . I have been quiet as of late. I did send you a couple of emails. Glad to hear from you 🤗

[jimeka in reply to carolek572]

i sent a moonpig card full of photos especially for your big day , I thought you were quiet

[carolek572 CommunityAmbassador in reply to jimeka]

Did you send it to my current address in Arizona, jimeka ? It was probably amazing, I am sure! 🤗

[jimeka in reply to carolek572]

Have you moved?

[carolek572 CommunityAmbassador in reply to jimeka]

Yes, I have been in Arizona since November 2021. We sold our MA home of 25 years, bought a house in Tucson. No more bone cold temperatures or snow banks. Instead, we have triple digit temperatures and monsoons. Cannot complain 🤗

[sapphire65]

Hi jimeka, I know what TN is. It is the most horrible pain! I am prescribed Oxcarbazepine and Baclofen for this symptom of MS. This has worked for me since 2015. I hope you find relief soon!

[jimeka in reply to sapphire65]

Unfortunately I am allergic to all the medications that they can prescribe for TN so they are at a loss as to what they can do.

[Morllyn]

Thanks for the Happy Birthday wishes!😊

I am sorry to hear about your TN! 🙁 I hope that the shots keep working. Take care of yourself love 🧡

[jimeka in reply to Morllyn]

Hope you had a nice birthday and you are keeping well 🙏

[mrsmike]

So glad to hear from you! But I do wish it wasn't under these circumstances. Glad to hear that you are feeling better and pray all the treatments were a fix and not a break. Be well and let us know how you are doing. ❤️

[jimeka in reply to mrsmike]

Thank you and it’s nice to see that you’re still around 🙏

[Mollyabigail]

Jimeka! How wonderful to hear from you. I think of you often. So sorry for the pain you endured. I hope you get lasting relief! Let us know how you are doing, occasionally! 😘

[jimeka in reply to Mollyabigail]

We will see what this pain clinic has to say on Friday . How are you doing? 🙏

[Mollyabigail in reply to jimeka]

Progressing somewhat, but wearing a Cionic neural sleeve now. Oh goodness, it's good to hear from you. I was worried! Check in when you can. You are missed.

[jimeka in reply to Mollyabigail]

What on earth is one of those?

[Mollyabigail in reply to jimeka]

cionic.com/neuralsleeveNot sure why they call it a 'sleeve', since it goes on your leg. 😅

[CynthiaS]

So glad to hear from you Jimeka!! Glad you are getting some relief and Happy New Year!!!!

[jimeka in reply to CynthiaS]

How are things with you? 🙏

[CynthiaS in reply to jimeka]

Caretaker for my mamma born 10 Nov 1938 in Genova Italia she remembers singing in German to the soldiers who invaded Italy . They gave her chocolate flour cheese different things. I say all this to let you know speaks Genovis different Italian spoken onlybin Genova, no one but my son understands. May get some relief Sunday with my son and his family. Trying not to to burn out. Keeping faithful. Blessings Cynthia S

[jimeka in reply to CynthiaS]

Must be hard work for you but quite rewarding at times

[CynthiaS in reply to jimeka]

Yesssssss!! I enjoy having my mum and I am really going to miss her when the time comes.

[CatsandCars]

Jimeka, I'm so sorry. That sounds like a nightmare. I pray that you will find continued relief. 🙏

[jimeka in reply to CatsandCars]

Thank you 🙏

[Jer29-11]

Awww, so nice to hear from you, but I’m sorry for what you’re going through. Praying you’ll get permanent relief from the injections 🙏🏻

[jimeka in reply to Jer29-11]

Thank you all prayers are appreciated 🙏

[cindyrn68]

Jimeka! So happy to see you! I wish you the greatest benefit possible from your injections.

[jimeka in reply to cindyrn68]

Thank you 🙏

[goatgal]

It's so good to hear your voice on the forum again. We've missed you!

[jimeka in reply to goatgal]

Hey get cleaning. No time for chatting 🤣😂

[ms23]

So wonderful to hear from you! I’m so glad you are getting some relief. I hope things continue to get better for you all around. You have been missed!

[jimeka in reply to ms23]

Thank you very much that’s very kind of you to say 🙏

[Greentime]

Unimaginable. 🤗

[mrsmike9]

I'm so glad you are back! Your pain sounds horrible! Give your dentist a star for finding someone who could help. And with that guy trying to kill the nerve...I can't imagine how painful the treatment must be! Hopefully it is killed off so you don't need treatment and have no pain.

[jimeka in reply to mrsmike9]

My sister has taken me a couple of times and she is now 73, grey haired, attractive, retired doctor, she has researched this TN a lot for me so when I go for an appointment she comes in with me but it’s quite funny because it’s like watching a tennis match with the ball being passed from player to player, my sister and the consultant are talking jargon and I am sat there waiting for the injection. The last time I went my daughter took me and it was so, so painful, he had run out of the proper size needles and all he had left was the Botox ones so he used one of those, never again, I was sat in the chair but I was like a ballerina up on my toes , he stuck the needle in 6 times but he knew he had hurt me because he couldn’t say goodbye. Hopefully the pain clinic will have some answers tomorrow 🙏 How’s the family doing and how’s the granddaughter?

[mrsmike9 in reply to jimeka]

I tried to send a photo and it must have overloaded the system! Well, I took a screen shot of what I wrote. Skip the reference to the photo!

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[Kitsey]

It’s so wonderful to hear from you! I’m grateful that you’re getting relief at last. May it continue so that you are pain free. Happy 2025! May it be a much better year for you 😊🙏

[jimeka in reply to Kitsey]

Thank you and may 2025 be good to us all. 🙏

[Helpmeup]

Hi jimeka, so nice to see your name pop up! Sorry you are dealing with these very painful issues. Living with pain is physically, mentally and emotionally exhausting. I am glad you are getting some relief from those injections. Hope things keep improving for you. Sending a hug. 🤗🤗🤗

[jimeka in reply to Helpmeup]

As you know living with pain is challenging, sending a hug back 🤗💐

[starlight5]

Happy New Year! jimeka Thank you for sharing your experience with TN. You have been missed 🤗

[jimeka in reply to starlight5]

Thank you nice to see such familiar faces 🙏🦋

[kycmary]

Hi Jimeka it has been awhile glad to see you back. Hope you are doing well.

I too lost my husband. He died last april, after spending 1 month in the hospital fighting pneumonia.