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GCA - kidney problem
Hi All warriors. Diagnosed with GCA July, 2023. Put on 60 mg now tapered down to l7mg (Dec. 2023). All symptoms under control at this time. My last blood work showed my Creatinine at 104 and GFR at 45. This showed a mild to moderate decrease in kidney function. As a result I had a kidney/bladder
Hi All warriors. Diagnosed with GCA July, 2023. Put on 60 mg now tapered down to l7mg (Dec. 2023). All symptoms under control at this time. My last blood work showed my Creatinine at 104 and GFR at 45. This showed a mild to moderate decrease in kidney function. As a result I had a kidney/bladder
Groda
in
PMRGCAuk
7 months ago
Some good news
I was told on the fifth of December that my ultrasound scan had picked up three small suspicious lesions, and that what they saw was suggestive of cirrhosis, portal vein hypertension and varices. I immediately quit alcohol, eating cannabis and otc sleeping remedies. I radically changed my diet and began
I was told on the fifth of December that my ultrasound scan had picked up three small suspicious lesions, and that what they saw was suggestive of cirrhosis, portal vein hypertension and varices. I immediately quit alcohol, eating cannabis and otc sleeping remedies. I radically changed my diet and began
Ruthless247
in
British Liver Trust
7 months ago
Ventricular ectopic runs
Just been to the GP over the palpitations I've been having for a year or so and he said they are (from the way I described them to him) "ventricular ectopic runs" and I'm wondering what this community has to say about them...? They do feel ectopic as I get a 'missed' beat followed by a bigger one and
Just been to the GP over the palpitations I've been having for a year or so and he said they are (from the way I described them to him) "ventricular ectopic runs" and I'm wondering what this community has to say about them...? They do feel ectopic as I get a 'missed' beat followed by a bigger one and
stoneyhouse
in
Atrial Fibrillation Support
3 months ago
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Prolactin high
Been seeing an Endocrinologist privately as after 45 week wait still no appointment on the nhs. After a couple of blood test was tested for prolactin and it came up high Serum prolactin level 1117 mIU/L. Does anyone else make have this issue is it connected to thyroxine? Now back with GP as can’t afford
Been seeing an Endocrinologist privately as after 45 week wait still no appointment on the nhs. After a couple of blood test was tested for prolactin and it came up high Serum prolactin level 1117 mIU/L. Does anyone else make have this issue is it connected to thyroxine? Now back with GP as can’t afford
Jimmy69
in
Thyroid UK
7 months ago
May - Vasculitis awareness month
May - Day 3 #vasculitis awareness month. Granulomatosis of Polyangiitis or GPA (former Wegener's) is an ANCA assosiated vasculitis and can be severe, even fatal if not treated early and correctly. Nothing is more empowering than #patient stories. This is Emma's story. To donate to #VasculitisUK
May - Day 3 #vasculitis awareness month. Granulomatosis of Polyangiitis or GPA (former Wegener's) is an ANCA assosiated vasculitis and can be severe, even fatal if not treated early and correctly. Nothing is more empowering than #patient stories. This is Emma's story. To donate to #VasculitisUK
zoe69
Vasculitis UK
in
Vasculitis UK
3 months ago
frustrated
another frustrating night…intermittent heart palpitations from 5-530 pm and then more from 11pm until 1245am…nothing fast but all skipping, like every other beat to every 20th beat….had bad day at work as I am an er nurse….wondering if that cause the arrhythmia today….im currently on no medications and
another frustrating night…intermittent heart palpitations from 5-530 pm and then more from 11pm until 1245am…nothing fast but all skipping, like every other beat to every 20th beat….had bad day at work as I am an er nurse….wondering if that cause the arrhythmia today….im currently on no medications and
Rdiehl01
in
Atrial Fibrillation Support
3 months ago
Flecainide (again)
Very interesting post by FraserB earlier. My problem is the opposite. Cardiologist raised my dose to 100mg x2 per day after being on 50mg x2 per day for a year and a half. After the third dose of the 100mg 2 hours before bed I felt terrible. The 2nd dose in morning I felt good with no reaction. Was worried
Very interesting post by FraserB earlier. My problem is the opposite. Cardiologist raised my dose to 100mg x2 per day after being on 50mg x2 per day for a year and a half. After the third dose of the 100mg 2 hours before bed I felt terrible. The 2nd dose in morning I felt good with no reaction. Was worried
Afibtastic
in
Atrial Fibrillation Support
3 months ago
Eliquis and AF symptoms
Hi all, I've been following the posts on this forum and have received helpful feedback re blood thinners and AF. I was recently diagnosed with AF and was put on Eliquis, which I've not yet started because of what I heard about the side effects. I have bradycardia and experience flutters and lightheadedness
Hi all, I've been following the posts on this forum and have received helpful feedback re blood thinners and AF. I was recently diagnosed with AF and was put on Eliquis, which I've not yet started because of what I heard about the side effects. I have bradycardia and experience flutters and lightheadedness
Calypso76
in
Atrial Fibrillation Support
3 months ago
Bedranol
I have been prescribed Bedranol ( propranolol hydrochloride) for my anxiety. Just to use as and when I feel anxious . Has anyone else used this beta blocker ? I suffer from IBS - D and I’m worried it might cause diarrhoea. This would defeat the object of taking it completely!
I have been prescribed Bedranol ( propranolol hydrochloride) for my anxiety. Just to use as and when I feel anxious . Has anyone else used this beta blocker ? I suffer from IBS - D and I’m worried it might cause diarrhoea. This would defeat the object of taking it completely!
Jess54
in
IBS Network
3 months ago
Peginterferon and platelets
I started taking peginterferon 45 mg in November 2023 with a platelet count of 860. Since then, my bloods have been checked monthly, and my dose gradually increased. On Monday I will start 180 mg, alternating the dose weekly with 135 mg for a month, as my platelet count is now 665 and my Haematologist
I started taking peginterferon 45 mg in November 2023 with a platelet count of 860. Since then, my bloods have been checked monthly, and my dose gradually increased. On Monday I will start 180 mg, alternating the dose weekly with 135 mg for a month, as my platelet count is now 665 and my Haematologist
Lyndjs
in
MPN Voice
3 months ago
Decipher this cholesterol reading please
I know there are plenty of knowledgeable people reading these posts so can you decipher this please Chol 3.5 mmol/L, LDL , HDL 1.78 mmol/L,Chol:HDL ratio , Tri 0.51 mmol/L. I don’t understand this. I’m guessing my cholesterol reading is 3.5, but what are HDL and LDL readings individually?
I know there are plenty of knowledgeable people reading these posts so can you decipher this please Chol 3.5 mmol/L, LDL , HDL 1.78 mmol/L,Chol:HDL ratio , Tri 0.51 mmol/L. I don’t understand this. I’m guessing my cholesterol reading is 3.5, but what are HDL and LDL readings individually?
IsleofWight1
in
LUPUS UK
3 months ago
Post Cardioversion advice
After 4 ‘failed’ ablations, I yesterday had a cardioversion for atrial tachycardia. I went back into NSR after only one shock on the lowest setting and my EP was pleased with how the procedure went. Does anyone have any advice about how I can try to stay in sinus? I know it’s a bit of a lottery but
After 4 ‘failed’ ablations, I yesterday had a cardioversion for atrial tachycardia. I went back into NSR after only one shock on the lowest setting and my EP was pleased with how the procedure went. Does anyone have any advice about how I can try to stay in sinus? I know it’s a bit of a lottery but
frankiec5
in
Atrial Fibrillation Support
3 months ago
Vasculitis Awarenes Month
May is vasculitis awareness month. Microscopic Polyangiitis (MPA) is inflammation of the small and sometimes medium sized blood vessels. It usually affects the renal function and/or lungs. Get a glimpse of Gemma's journey with MPA vasculitis. If you would like to donate to Vasculitis UK, please
May is vasculitis awareness month. Microscopic Polyangiitis (MPA) is inflammation of the small and sometimes medium sized blood vessels. It usually affects the renal function and/or lungs. Get a glimpse of Gemma's journey with MPA vasculitis. If you would like to donate to Vasculitis UK, please
zoe69
Vasculitis UK
in
Vasculitis UK
3 months ago
IBD symptoms with no diagnosis
I was just diagnosed with IBS 6 months ago, before my 40th birthday. It started with persistent constipation, bloating and cramping that led to a colonoscopy. Since my mother has Crohn's, I expected the same diagnoses, but instead I got an all clear from the GI doctors. The months that followed put my
I was just diagnosed with IBS 6 months ago, before my 40th birthday. It started with persistent constipation, bloating and cramping that led to a colonoscopy. Since my mother has Crohn's, I expected the same diagnoses, but instead I got an all clear from the GI doctors. The months that followed put my
JQLA
in
IBS Network
7 months ago
Darolutamide failing after 2 years. Any success if I switch to Xandi or Zytiga or do I need to move to Pluvicto.
Dx 2018. PSA 16. Been on Orgovyx. Started Second line (Darolutamide) two years ago when PSA started to rise. PSA rose over the [u]last 5 months[/u] from 0.021 (August) to 0.48 I had a few bone mets and several lymph nodes when dx. Trying to find other treatments since I'm running out of Standard
Dx 2018. PSA 16. Been on Orgovyx. Started Second line (Darolutamide) two years ago when PSA started to rise. PSA rose over the [u]last 5 months[/u] from 0.021 (August) to 0.48 I had a few bone mets and several lymph nodes when dx. Trying to find other treatments since I'm running out of Standard
Longterm101
in
Advanced Prostate Cancer
7 months ago
Lopressor
Persistent Permanent Afib. Any alternative to Lopressor??? Titrating to control heart rate 100mgm twice a day too much which is my Cardiologists goal 100mgm in am and 50mgm in pm too much. 50 in am and 50 in pm not enough. Was fine on 25/25 but that was when I was in NSR after cardioversion for
Persistent Permanent Afib. Any alternative to Lopressor??? Titrating to control heart rate 100mgm twice a day too much which is my Cardiologists goal 100mgm in am and 50mgm in pm too much. 50 in am and 50 in pm not enough. Was fine on 25/25 but that was when I was in NSR after cardioversion for
farewelltoarms
in
Atrial Fibrillation Support
3 months ago
Overall Survival With [177]Lu-PSMA-617 vs Cabazitaxel in Metastatic Castration-Resistant Prostate Cancer
The Lancet Oncology TAKE-HOME MESSAGE TheraP was a phase II trial that compared the efficacy of radioligand therapy with 177Lu-PSMA-617 with that of cabazitaxel in patients with metastatic castration-resistant prostate cancer who had previously received docetaxel. After a median follow-up of 35.7 months
The Lancet Oncology TAKE-HOME MESSAGE TheraP was a phase II trial that compared the efficacy of radioligand therapy with 177Lu-PSMA-617 with that of cabazitaxel in patients with metastatic castration-resistant prostate cancer who had previously received docetaxel. After a median follow-up of 35.7 months
Magnus1964
in
Advanced Prostate Cancer
7 months ago
Criteria for "my ADT has stopped working and we have to move to another"
Hello - So my third post ADT initiation (Lupron+Abi) PSA test is coming up and since it was <.1 six weeks ago, I asked how the criteria of “has stopped working” works -to my Hopkins MO and I got this - “We want to declare a therapy no longer effective when PSA is clearly going up. We look for 0.3
Hello - So my third post ADT initiation (Lupron+Abi) PSA test is coming up and since it was <.1 six weeks ago, I asked how the criteria of “has stopped working” works -to my Hopkins MO and I got this - “We want to declare a therapy no longer effective when PSA is clearly going up. We look for 0.3
jackwfrench
in
Advanced Prostate Cancer
7 months ago
Parkinson’s and vagal nerve stimulation, promising human studies.
RESULTS: PD patients showed instable gait with insufficient range of motion during usual walking. [u]
Active taVNS improved gait characteristics including step length, stride velocity, stride length, and step length variability compared with sham taVNS after completion of the 7-day therapy.
[/u]
RESULTS: PD patients showed instable gait with insufficient range of motion during usual walking. [u]
Active taVNS improved gait characteristics including step length, stride velocity, stride length, and step length variability compared with sham taVNS after completion of the 7-day therapy.
[/u]
House2
in
Cure Parkinson's
7 months ago
Pork, Autoimmune Disease, and Parkinson's?
So... I have posted on my belief that PD is an autoimmune disease before: Is Parkinson's Disease an Autoimmune Disorder? https://healthunlocked.com/cure-parkinsons/posts/147142599/is-parkinson-s-disease-an-autoimmune-disorder And... (surprisingly) I have not posted on the fact that the only meat I
So... I have posted on my belief that PD is an autoimmune disease before: Is Parkinson's Disease an Autoimmune Disorder? https://healthunlocked.com/cure-parkinsons/posts/147142599/is-parkinson-s-disease-an-autoimmune-disorder And... (surprisingly) I have not posted on the fact that the only meat I
Bolt_Upright
in
Cure Parkinson's
4 months ago
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