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⁹Newbie: can anybody help with local support to me? Surrey/Sussex/South London
Hello! I was diagnosed with UCTD 3 years ago after contracting awful covid. However during routine check-up bloods last month, for the first time, my Rheu picked up positive Lupus screen, ANA, rheumatoid factor alongside others i cant remember. (I have always had a negative autoimmune panel, but high
Hello! I was diagnosed with UCTD 3 years ago after contracting awful covid. However during routine check-up bloods last month, for the first time, my Rheu picked up positive Lupus screen, ANA, rheumatoid factor alongside others i cant remember. (I have always had a negative autoimmune panel, but high
Gm131987
in
LUPUS UK
2 months ago
Thyroid blood test results
I have been on thyroxine since 2017 to treat my underactive thyroid (confirmed Hashimotos).My bloods from this week are in the attached screenshot. I haven't felt like me for many years. I wondered what peples thoughts were on my results?
I have been on thyroxine since 2017 to treat my underactive thyroid (confirmed Hashimotos).My bloods from this week are in the attached screenshot. I haven't felt like me for many years. I wondered what peples thoughts were on my results?
SusieR68
in
Thyroid UK
2 months ago
My brother has advanced Prostate Cancer
I'm here for my brother. He is 55 now. He has diagnosed when he was 54 with advanced prostate cancer that had metastasized to his pelvic bone. He started hormone therapy on October 2022 and then started chemotherapy for 6 sessions from November 2022 till March 2023 and started Nubeqa at the same time
I'm here for my brother. He is 55 now. He has diagnosed when he was 54 with advanced prostate cancer that had metastasized to his pelvic bone. He started hormone therapy on October 2022 and then started chemotherapy for 6 sessions from November 2022 till March 2023 and started Nubeqa at the same time
rasher1
in
Advanced Prostate Cancer
6 months ago
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Starting Abiraterone and predniSONE
Tomorrow morning I take my first dose of Abiraterone (Zytiga) and predniSONE for metastatic castrate resistant prostate cancer. I don't know what kind of side effects I would get. I hope I would tolerate the treatment well. Reaching this stage of my cancer I reflect on my 12 year journey with prostate
Tomorrow morning I take my first dose of Abiraterone (Zytiga) and predniSONE for metastatic castrate resistant prostate cancer. I don't know what kind of side effects I would get. I hope I would tolerate the treatment well. Reaching this stage of my cancer I reflect on my 12 year journey with prostate
dac500
in
Advanced Prostate Cancer
6 months ago
New NICE guidelines
On the Pernicious Anaemia Society forum, there is a new thread re the newly released NICE guidelines for Pernicious Anaemia/B12 Deficiency Diagnosis and Treatment in Over 16s [i]
New NICE guidelines
[/i] https://healthunlocked.com/pasoc/posts/150619728/new-nice-guidelines Within that thread,
On the Pernicious Anaemia Society forum, there is a new thread re the newly released NICE guidelines for Pernicious Anaemia/B12 Deficiency Diagnosis and Treatment in Over 16s [i]
New NICE guidelines
[/i] https://healthunlocked.com/pasoc/posts/150619728/new-nice-guidelines Within that thread,
helvella
Thyroid UK
in
Thyroid UK
2 months ago
NICE guideline on B12 Deficiency diagnosis and monitoring in over 16s
The Vitamin B12 Deficiency Guideline in Over 16's has been published.
What does this mean for those with Pernicious Anaemia whether formally diagnosed or not?
What does it mean with those struggling to get sufficiently frequent treatment for their B12 deficiency?
What does
The Vitamin B12 Deficiency Guideline in Over 16's has been published.
What does this mean for those with Pernicious Anaemia whether formally diagnosed or not?
What does it mean with those struggling to get sufficiently frequent treatment for their B12 deficiency?
What does
PAScomms
in
Pernicious Anaemia Society
2 months ago
Legal Advice?
Hi All, Although this post is not MS-related, I wanted to reach out to my MSAA Community for their input. Perhaps someone here can point me in the right direction, as I don't really have the money to hire an attorney. Unfortunately, this situation doesn't lend itself to any "free advice and/or attorneys
Hi All, Although this post is not MS-related, I wanted to reach out to my MSAA Community for their input. Perhaps someone here can point me in the right direction, as I don't really have the money to hire an attorney. Unfortunately, this situation doesn't lend itself to any "free advice and/or attorneys
DM0329
in
My MSAA Community
6 months ago
Research Lounge FREE Online Event: Does knowledge of liver scarring affect drinking behaviour?
Does knowing the effects of alcohol on your liver change your drinking?
Researchers have been looking at how people's drinking behaviours may change when they know that alcohol is damaging their liver. They have some interesting and thought-provoking results to share with you on:
Wednesday
Does knowing the effects of alcohol on your liver change your drinking?
Researchers have been looking at how people's drinking behaviours may change when they know that alcohol is damaging their liver. They have some interesting and thought-provoking results to share with you on:
Wednesday
BritishLiverTrust1
Partner
in
British Liver Trust
6 months ago
atypical trigeminal neuralgia
Recently diagnosed with atypical trigeminal neuralgia, pain on left side of face/eye/head. I also have rheumatoid arthritis which I take methotrexate 20mg once per week for. Does anyone else know anything about this, or what helps, in a lot of pain.
Recently diagnosed with atypical trigeminal neuralgia, pain on left side of face/eye/head. I also have rheumatoid arthritis which I take methotrexate 20mg once per week for. Does anyone else know anything about this, or what helps, in a lot of pain.
PurpleDuckie
in
PMRGCAuk
2 months ago
Multiple mechanisms to clear a-synuclein with natural substances (in mice).
For informational purposes only Alpha Synuclein 1. INTRODUCTION: There are no effective treatments nor drugs available to modify disease progression
For informational purposes only Alpha Synuclein 1. INTRODUCTION: There are no effective treatments nor drugs available to modify disease progression
House2
in
Cure Parkinson's
6 months ago
Scientists have discovered a new cause of Parkinsons disease
https://scitechdaily.com/scientists-have-discovered-a-new-cause-of-parkinsons-disease/ A major discovery sheds light on the underlying mechanisms of Parkinson’s disease, opening the door for novel therapeutic approaches down the line. Until recently, our understanding of Parkinson’s disease has been
https://scitechdaily.com/scientists-have-discovered-a-new-cause-of-parkinsons-disease/ A major discovery sheds light on the underlying mechanisms of Parkinson’s disease, opening the door for novel therapeutic approaches down the line. Until recently, our understanding of Parkinson’s disease has been
NextStage
in
Cure Parkinson's
6 months ago
Newly Diagnosed
Hello, I’m new to this forum and was only diagnosed with SLE in late December. I’ve also got secondary triple positive antiphospholipid antibodies. I’m 26 and I’ve always lived a very active/outgoing lifestyle and have always tried to be healthy so it I’m finding it all a bit difficult to process.
Hello, I’m new to this forum and was only diagnosed with SLE in late December. I’ve also got secondary triple positive antiphospholipid antibodies. I’m 26 and I’ve always lived a very active/outgoing lifestyle and have always tried to be healthy so it I’m finding it all a bit difficult to process.
ChloeScotland
in
LUPUS UK
2 months ago
Heavy legs and low energy feeling
My recent thyroid results showed a below range T3, and I have been having trouble with a brand of thyroxine and feeling generally unwell as previously posted with some helpful advice. But, I have a feeling of heavy legs and low energy and wondered whether when the T3 is low it can cause this? I am
My recent thyroid results showed a below range T3, and I have been having trouble with a brand of thyroxine and feeling generally unwell as previously posted with some helpful advice. But, I have a feeling of heavy legs and low energy and wondered whether when the T3 is low it can cause this? I am
Sailing14
in
Thyroid UK
6 months ago
Do you live with advanced liver disease? Are you interested in attending an in-person workshop in Bristol or Liverpool this month?
The British Liver Trust are working with UK CLIF, a dynamic new network of clinicians, patients, carers/relatives and researchers coming together over our shared interest to improve research and clinical outcomes for people with chronic liver failure. Cases of liver disease are rising alarmingly and
The British Liver Trust are working with UK CLIF, a dynamic new network of clinicians, patients, carers/relatives and researchers coming together over our shared interest to improve research and clinical outcomes for people with chronic liver failure. Cases of liver disease are rising alarmingly and
BritishLiverTrust1
Partner
in
British Liver Trust
6 months ago
Lupus Diagnosis
I haven't been online for some times, perhaps years. I don't think I have posted since losing my Mum in August 2021 and then I lost my Dad last year June. My health, not surprisingly, has been all over the place and under the following hospital departments: Lupus Rheumatology, General Rheumatology -
I haven't been online for some times, perhaps years. I don't think I have posted since losing my Mum in August 2021 and then I lost my Dad last year June. My health, not surprisingly, has been all over the place and under the following hospital departments: Lupus Rheumatology, General Rheumatology -
KeepingUpBeat
in
LUPUS UK
2 months ago
Any readers?
Would really appreciate recommendation for books linking autoimmune disease and trauma. Somebody I care about wants to read about it. Thank you. 😊
Would really appreciate recommendation for books linking autoimmune disease and trauma. Somebody I care about wants to read about it. Thank you. 😊
Pawsedagain
in
Thyroid UK
2 months ago
PSMA pet scan negative
My PSA was 0.1 on july 17th and 0.3 on Oct 16th. PSMA scan was done on Nov 7th but was negative. Am I safe to assume there must be some prostate cancer cell present that are not showing up on the scan? I am meeting with my MO at Dana Farber next week Any suggestions moving forward? I appreciate the
My PSA was 0.1 on july 17th and 0.3 on Oct 16th. PSMA scan was done on Nov 7th but was negative. Am I safe to assume there must be some prostate cancer cell present that are not showing up on the scan? I am meeting with my MO at Dana Farber next week Any suggestions moving forward? I appreciate the
Rfs1975
in
Advanced Prostate Cancer
6 months ago
Obesity Associated With Faster MS Disease Progression
[i]
Obesity in multiple sclerosis (MS) was tied to faster worsening of disability and an increased risk of physical, psychological, and cognitive decline, a prospective cohort study showed.
[/i] [i]
[/i]
https://www.medpagetoday.com/meetingcoverage/actrims/108992?xid=nl_mpt_DHE_2024-03
[i]
Obesity in multiple sclerosis (MS) was tied to faster worsening of disability and an increased risk of physical, psychological, and cognitive decline, a prospective cohort study showed.
[/i] [i]
[/i]
https://www.medpagetoday.com/meetingcoverage/actrims/108992?xid=nl_mpt_DHE_2024-03
BettysMom
in
My MSAA Community
2 months ago
New study indicates that taxifolin "could" reduce chronic inflammation, promote healthy aging and improve healthspan of lupus sufferers.
[i]Linda May-Zhang, PhD, VP Innovation at Blue California and an author on the study told Longevity.Technology that taxifolin shows promise in addressing oxidative stress and alleviating lupus symptoms by inhibiting NETosis. Photographs courtesy of Ramadan Ali and Linda May-Zhang[/i] New study indicates
[i]Linda May-Zhang, PhD, VP Innovation at Blue California and an author on the study told Longevity.Technology that taxifolin shows promise in addressing oxidative stress and alleviating lupus symptoms by inhibiting NETosis. Photographs courtesy of Ramadan Ali and Linda May-Zhang[/i] New study indicates
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 months ago
Rhupus
I have rhupus which is lupus and severe rheumatoid. arthritis having both and it being aggressive there r only 1% to 2% in the world that ever have both I guess I was just the lucky one lol unfortunately this is the most painful disease in the world you get never get over less your bones hurt so bad
I have rhupus which is lupus and severe rheumatoid. arthritis having both and it being aggressive there r only 1% to 2% in the world that ever have both I guess I was just the lucky one lol unfortunately this is the most painful disease in the world you get never get over less your bones hurt so bad
Buglove22
in
LUpus Patients Understanding and Support
2 months ago
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