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Tricuspid valve disease
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Valve replacement
hellooo, I am 25 years old and due to have valve replacement surgery at some point (not sure when, just waiting for the right time) I have Truncus Arteriosus and had valve replacement surgery when I was a baby but haven’t needed one just yet since. My question is… I am currently always tired. Not
hellooo, I am 25 years old and due to have valve replacement surgery at some point (not sure when, just waiting for the right time) I have Truncus Arteriosus and had valve replacement surgery when I was a baby but haven’t needed one just yet since. My question is… I am currently always tired. Not
Laraa473
in
British Heart Foundation
1 year ago
Retacrit Shots
I’m posting this in hopes it may help other MPN sufferers. In early December, 2023, I saw my longstanding oncologist of 20 years. My labs showed 7.2 hemoglobin I was weak and tired. He sent me to a hematologist at Emory Hospital in Atlanta. The new doctor tested me for my EPO level. Mine barely registered
I’m posting this in hopes it may help other MPN sufferers. In early December, 2023, I saw my longstanding oncologist of 20 years. My labs showed 7.2 hemoglobin I was weak and tired. He sent me to a hematologist at Emory Hospital in Atlanta. The new doctor tested me for my EPO level. Mine barely registered
Bippers
in
MPN Voice
5 months ago
taking Urso
I know some of you have already read the comments on the FB page. The subject of taking Urso, even though it causes so many side effects and ‘doesn’t keep me from dying’, has been brought up. I feel in my heart I need to offer my thoughts. I have been taking Urso for over 35 years. I had PBC for 20
I know some of you have already read the comments on the FB page. The subject of taking Urso, even though it causes so many side effects and ‘doesn’t keep me from dying’, has been brought up. I feel in my heart I need to offer my thoughts. I have been taking Urso for over 35 years. I had PBC for 20
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
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Latest Private Test
Hi there, I'm still waiting on a telephone app with my GP, but my new private antibody test results have come back. I get these done myself as we know GP's and the Endo situation is pretty poor for most of us, as our symptoms often get dismissed. The last endo appt said I may be at risk of developing
Hi there, I'm still waiting on a telephone app with my GP, but my new private antibody test results have come back. I get these done myself as we know GP's and the Endo situation is pretty poor for most of us, as our symptoms often get dismissed. The last endo appt said I may be at risk of developing
Ciri
in
Thyroid UK
5 months ago
Which treatment option best for recurrent oligo?
In addition to SBRT for the two mets that make me join the happy recurrent crowd, what would be my best treatment option? I have had no SOC medication for 2.5 years. My T is 4 European scale 110 US scale. 1 Only ADT for seven months. This is what MO recommends, besides SBRT, since stronger/longer
In addition to SBRT for the two mets that make me join the happy recurrent crowd, what would be my best treatment option? I have had no SOC medication for 2.5 years. My T is 4 European scale 110 US scale. 1 Only ADT for seven months. This is what MO recommends, besides SBRT, since stronger/longer
Purple-Bike
in
Advanced Prostate Cancer
5 months ago
kidney blood test questions
I just had a routine blood test. I won’t be able to see the doctor for answers until Friday and I’m worried and scared. My eGFR numbers dropped from 95 to 44 in one year. My Creatinine numbers are high and my cholesterol numbers also shot way up. I have no symptoms. Has anyone else had such a change
I just had a routine blood test. I won’t be able to see the doctor for answers until Friday and I’m worried and scared. My eGFR numbers dropped from 95 to 44 in one year. My Creatinine numbers are high and my cholesterol numbers also shot way up. I have no symptoms. Has anyone else had such a change
Firemoon
in
Early CKD Support
5 months ago
Travel insurance
Hello everybody, my first post I joined approximately about six months ago after my husband was diagnosed with cirrhosis, early May 2023 He is now doing very well 🙏I have certainly learned so much from everybody’s contributions and I am very appreciative of that so thank you to everybody. I did
Hello everybody, my first post I joined approximately about six months ago after my husband was diagnosed with cirrhosis, early May 2023 He is now doing very well 🙏I have certainly learned so much from everybody’s contributions and I am very appreciative of that so thank you to everybody. I did
Miraclesdohappen1958
in
British Liver Trust
5 months ago
Imperial College Help please
Hi, further to my last post - thank you all so much - my GP and Renal Consultant are in agreement that I see a rheumatologist as well as continuing to see my renal Consultant. A few people and Vasculitis UK recommended Imperial College as I believe they have a Vasculitis Centre there? I think I've had
Hi, further to my last post - thank you all so much - my GP and Renal Consultant are in agreement that I see a rheumatologist as well as continuing to see my renal Consultant. A few people and Vasculitis UK recommended Imperial College as I believe they have a Vasculitis Centre there? I think I've had
Daisyboodle
in
Vasculitis UK
5 months ago
cortisol test
hi, I have had a thyroid test done by blue horizon, the morning cortisol has come back at 310. I have read that they investigate anything lower than 450, is this the case? What should I do? It was finger prick, I have not done a 4 point Saliva test thanks matty
hi, I have had a thyroid test done by blue horizon, the morning cortisol has come back at 310. I have read that they investigate anything lower than 450, is this the case? What should I do? It was finger prick, I have not done a 4 point Saliva test thanks matty
Mattydonald
in
PMRGCAuk
5 months ago
PSA update
DX Nov 2020. PSA 960 high volume metastatic. Lowest PSA nadir 0.1 Aug 2022. Slowly rising Nov. 2023 was 0.21, Feb 2024 0.41....Doubling time 3.1 months . On Lupron and 1000 mg Abiraterone with 0.5 Dexamethasone . Darn.
DX Nov 2020. PSA 960 high volume metastatic. Lowest PSA nadir 0.1 Aug 2022. Slowly rising Nov. 2023 was 0.21, Feb 2024 0.41....Doubling time 3.1 months . On Lupron and 1000 mg Abiraterone with 0.5 Dexamethasone . Darn.
wolverine11
in
Advanced Prostate Cancer
5 months ago
Stabbing pains
I’m in the middle of all my tests - looks like I have (perhaps) fibrosis F2/F3 and severe fatty liver. And some mild portal gastropathy. However it’s a pain in the upper abdomen that’s confusing me. It’s mostly a stabbing sharp pain and sometimes it actually makes me itch - not like on the skin, but
I’m in the middle of all my tests - looks like I have (perhaps) fibrosis F2/F3 and severe fatty liver. And some mild portal gastropathy. However it’s a pain in the upper abdomen that’s confusing me. It’s mostly a stabbing sharp pain and sometimes it actually makes me itch - not like on the skin, but
Jaxxy8
in
British Liver Trust
5 months ago
Pluvicto still working well
Am coming to my fifth injection and I see I neglected to post my results after #3 & #4 so they are here, too. So far: Aug 16: PSA
99.7
Aug 21: Pluvicto
#1
Sep 11: PSA
106
Sep 28: PSA
91.8
Oct 05: Pluvicto
#2
Oct 25: PSA
57.8
Nov
Am coming to my fifth injection and I see I neglected to post my results after #3 & #4 so they are here, too. So far: Aug 16: PSA
99.7
Aug 21: Pluvicto
#1
Sep 11: PSA
106
Sep 28: PSA
91.8
Oct 05: Pluvicto
#2
Oct 25: PSA
57.8
Nov
Miccoman
in
Advanced Prostate Cancer
5 months ago
Humorous/informative videos on prostate cancer
…at least I hope so. I’ve been documenting “My Journey With Prostate Cancer” in hopes of amusing myself and others. Please don’t watch if you think humor is verboten in regards to cancer. https://youtube.com/playlist?list=PLnTvlPIMC_V3Otqe-SUGyufm4STqY3wYa&si=bLnPUuDrOrWXPkAN
…at least I hope so. I’ve been documenting “My Journey With Prostate Cancer” in hopes of amusing myself and others. Please don’t watch if you think humor is verboten in regards to cancer. https://youtube.com/playlist?list=PLnTvlPIMC_V3Otqe-SUGyufm4STqY3wYa&si=bLnPUuDrOrWXPkAN
Caldonia
in
Advanced Prostate Cancer
5 months ago
Symptoms of advanced liver disease
Hi Everyone, after long waiting period, I have finally got my first hepatologist appointment after 8 months from now. After this appointment he will refer me for a fibro scan. I am afraid if I have advanced liver disease it will be worst. I do have itchy palms and feet. dull ache in abdomen and I am
Hi Everyone, after long waiting period, I have finally got my first hepatologist appointment after 8 months from now. After this appointment he will refer me for a fibro scan. I am afraid if I have advanced liver disease it will be worst. I do have itchy palms and feet. dull ache in abdomen and I am
SShally
in
British Liver Trust
5 months ago
Rising PSA
Year 7… No prostate. Clear everything in 2017 … but 6 months after surgery rising PSA. Casodex/Lupron/39 Rounds Radiation. Presently on Lupron/Nubeqa PSA rising PSMA Scan Clear CT scan with Contrast today plus Fractionated Blood Biopsy. PSA 10.8 Waiting on CT results but Dr. Aggarwal wants
Year 7… No prostate. Clear everything in 2017 … but 6 months after surgery rising PSA. Casodex/Lupron/39 Rounds Radiation. Presently on Lupron/Nubeqa PSA rising PSMA Scan Clear CT scan with Contrast today plus Fractionated Blood Biopsy. PSA 10.8 Waiting on CT results but Dr. Aggarwal wants
JolleySprings
in
Advanced Prostate Cancer
5 months ago
Rising PSA on ADT
Prostatectomy 2015, Gleason 4 + 3. 31 external radiation tx, ADT (Zoladex) 2015-17, post nadir Oct 2017 rising PSA until Jan 2022. Degarelix for 8 months. Two months after end of Degarelix PSA rising rapidly (doubling time 5 weeks). Started ADT (Zoladex) Feb 2023. By Oct PSA 0.40 ug/L, Dec 0.43 ug
Prostatectomy 2015, Gleason 4 + 3. 31 external radiation tx, ADT (Zoladex) 2015-17, post nadir Oct 2017 rising PSA until Jan 2022. Degarelix for 8 months. Two months after end of Degarelix PSA rising rapidly (doubling time 5 weeks). Started ADT (Zoladex) Feb 2023. By Oct PSA 0.40 ug/L, Dec 0.43 ug
MGBman
in
Advanced Prostate Cancer
5 months ago
Taking antihistamine with cirrhosis
I am suffering from pet allergy and would like to take antihistamines.. which over the counter are safe with cirrhosis? Are there any other suggestions to relieve the symptoms. All blood work are within normal range and living a normal healthy life, obviously no alcohol.
I am suffering from pet allergy and would like to take antihistamines.. which over the counter are safe with cirrhosis? Are there any other suggestions to relieve the symptoms. All blood work are within normal range and living a normal healthy life, obviously no alcohol.
Male47
in
British Liver Trust
5 months ago
cranberry powder?
Has anyone used cranberry powder rather than tablets for uti prevention? I’ve had the all clear for mum to take it but she will struggle with the big tabs so looking for a powder equivalent. I may also go down the D mannose route but as that can cause diarrhoea am holding off…….diarrhoea led to a nasty
Has anyone used cranberry powder rather than tablets for uti prevention? I’ve had the all clear for mum to take it but she will struggle with the big tabs so looking for a powder equivalent. I may also go down the D mannose route but as that can cause diarrhoea am holding off…….diarrhoea led to a nasty
RT18
in
PMRGCAuk
5 months ago
Echinacea
Does anyone know if its safe to take Echinacea tablets when taking Rivoraxaban .I've had cold after cold and a very annoying cough on and off for a few weeks now and thought this might boost my immunity. TIA
Does anyone know if its safe to take Echinacea tablets when taking Rivoraxaban .I've had cold after cold and a very annoying cough on and off for a few weeks now and thought this might boost my immunity. TIA
Ladypaula
in
AF Association
5 months ago
NHS Targeted Lung Check
Hi folks . . . those smokers or ex smokers on here may be aware of this screening programme currently being rolled out. Apparently the scan can ID a number of incidental issues including Liver Lesions which I believe are not usually related to alcohol consumption. However, might they also detect Fatty
Hi folks . . . those smokers or ex smokers on here may be aware of this screening programme currently being rolled out. Apparently the scan can ID a number of incidental issues including Liver Lesions which I believe are not usually related to alcohol consumption. However, might they also detect Fatty
HouseHead
in
British Liver Trust
5 months ago
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