Some advice?

[LongLife8888]

My partner is currently 59 years old with a efgr of 20 , this is rapidly declining , his creatine is 288 and potassium is high , he is currently experiencing severe gout and trouble urinating , and a stinging sensation , he's on prednisone but the gout isn't clearing this time hes had it for over a week now and the trouble urinating and the stinging is all new , the specialist said his kidneys were declining rapidly , he's always tired and nodding off , they prescribed allopurinol which he is to scared to take since that's what started the flare , iam aware this stops after time but how long does it take with the allopurinol?

Also looking a Dialysis , would peridyalysis PD at home sorry for my spelling give him more energy or make him feel well at least for the remainder of his life , he wants to be at home while doing this , I know you can do one in your sleep also , I'm new to this world I didn't know he would decline so quickly

[Bassetmommer NKF Ambassador]

I take allopurinol and have for years. He needs to figure out what to do for dialysis and get it in place. It takes some time, and he has to get a tube put in. Yes, you can do PD at night but every night. I do home, but I do home hemo...with a fsitula in the arm Not for the weak of heart. If he doesn't figure out what to do, he could crash and need a catheter which is really not a good thing.

[LongLife8888 in reply to Bassetmommer]

Hi there , thankyou for letting me know ,is it it wise for him to start thinking about dialysis now? He hides things from me so I don't worry. So it takes some time for them to set it all up?

what is the criteria for different types of dialysis choices? I'm sorry , I really have no Idea what to expect. I just know he wants something that's going to give him some energy back.

I'm sorry you are going through this , will the allopurinol help his kidney function also or just the gout?

[Pisces49]

uloric is easier on the kidney and really helps foot.

[Pisces49 in reply to Pisces49]

Gout

[LongLife8888 in reply to Pisces49]

Ill look that up , thankyou! he has previous triple bypass so I'm not sure if they are being careful in all areas

[Pisces49]

gout

[Tashathedog in reply to Pisces49]

a UTI? My husband is eGFR of 11-12 % and doesn’t experience those problems. We’re just trying to keep him stable trying Jardiance (not funded in NZ so costs $100 every four weeks). Worth it if it works. Blood test in a week then Dr. I’ll post results.

[Pisces49 in reply to Tashathedog]

I will pray for you

[LongLife8888 in reply to Pisces49]

Thankyou , I will also pray for you!

[LongLife8888 in reply to Pisces49]

Im really sorry to hear of your husbands condition , its so scary. Im not familiar with Jardiance. It was a UTI and I think there was an infection in his joint. its happening weekly now these flares. let me know how you get on. I will keep you and your husband in my prayers. he must be exhausted with it all

[IslandPKD]

I also took allopurinol for years. Is your partner trying to follow a kidney friendly diet ?? And drinking enough water ?? I know it may sound like simple advice but it really can make a difference. My nephrologist had me sign up for the Deceased Donor List when my GFR was at 20. Glad that you are advocating on your partners behalf.

Best wishes ❤️

[LongLife8888 in reply to IslandPKD]

Im sorry to hear of your condition, he does try to stick with keto but he eats sourdough bread and jam a lot and thinks animal fat is good. you tube can give some bad advice sometimes , not suited for late stage 4 ckd. I wish you all the best and hope things go well. this is such a cruel disease and hard to watch him fade away like this

[WildIris]

The gout diet is similar to the kidney diet (luckily). Lots of fruits and veggies and water, no fatty meats, careful with seafoods, as you probably already know. Lose weight if you need to. Much sympathy to your partner, gout is very painful. Sometimes one or two low eGFR numbers can go back up, when the stress is over and hope rises again. Your partner is lucky to have you in his corner.

[LongLife8888 in reply to WildIris]

Thankyou , yes he does try and follow the keto diet , he seems to think animal fat is good? I didn't agree with that. are there any supplements that are good?

[FelineFandom146]

Hello: Welcome and thanks for advocating for your partner. I had gout attacks for years before eventually breaking down and starting Allopurinol 100mg once daily. I was afraid of the painful flares that would come with beginning Allopurinol, and they did come but once they came, they also went. In a year now, I've only had one gout attack. Allopurinol and other Xanthine oxidase inhibitors works by reducing the production of uric acid in the body. High Uric Acid causes gout flares. Diets don't always work, as in my case. These medicines cause gout flares at first due to attacking any Tophi or Uric Acid Crystals in your body. As the pieces break down they shift, which causes the flares. After the excess pieces are gone, this medicine keeps your Uric Acid down. But one must start the Allopurinol to get the benetis. Uroloic is another med in this class but is know to cause heart attacks, so most Nephrologists are cautioning with that one and using Allopurinol, which has been around for decades and works. Wishing you encouragement and best wishes. Hope this helps.

[LongLife8888 in reply to FelineFandom146]

Thankyou so much , He has had a triple bypass and stents put in the past so they are very careful with prescribing. His gout has only just gone , I'm trying to encourage him to take the alopurinol , the doctor said to wait until attack is over. I can see this kind of pain is terrible for anyone and its frustrating for him. He is afraid to take it like you said. but the benefits will be much better for him. May I ask what you efgr is ?

[FelineFandom146 in reply to LongLife8888]

According to my Neprhologist and what I've read, you take the allorpurinol every day, one pill, but when you get a Flare, stop it and instead take Colchine, a medication proven to work for bringing down the flare and pain. It is a anti-inflammatory but safe for kidneys, as long as you don't over do it. It can be toxic, even fatal if too much builds up in your system. Consult your Nephrologist and Cardiologist, but the trick is to take the Allopurinol pill every day for prevention against gout flares. Once you start a gout flare, stop it and take Colchine until the pain subsides completely or until you experience diarrhea, whichever comes first. Note: there are differing views on this. I started on Allupurinol 100mg a day and now I'm down to 50mg a day. I only had a mild flare once in over a year now, which is better than 3 to 4 flares a year before I began the Allupurinol. Allopurinol cuts down the Uric Acid in your system. Too much Uric Acid causes gout flares. Ironically, some people have high Uric Acid and no gout attacks and some with low Uric Acid get gout attacks. They simply don't know why. FYI: My eGFR was 10.9 in Dec. 24 and is now as of this month 14.4. Hope your husband gets stronger and recovers fully. Tell him I get the fear over taking Allopurinol. I didn't want to begin the medication either due to the fear of the painful gout! But, yes the flares return for a while and it is painful. Only those who experience gout can truly understand it. But, there is a light at the end of the tunnel. Eventually, depending on how much tophi aka uric acid crystals are in your body, the attacks will get fewer and less intense until no more. FYI: Before I broke down and began taking Allopurinol I expercienced gout attacks in both my big toes, middle toes, arches, ankles, wrist, thumb and even my elbow. Not all at once though. Thank God. I had two Nephrologists put it to me bluntly and I researched it, too. I research everything because physicians do make errors. If you ignore your gout attacks, they just longer and more severe and come on more often. They can lead to kidney stones and irrervisbile damage to our kidneys. I don't think I have to say anything more. Further, I just read in Nephrology Times that if someone wants to get a kidney transplant and has uncontrolled gout, that person won't be eligible to get a transplant until the gout is resolved. Here are a couple of useful links for you I wish you both the best and sending you encouragement. Stay strong. Stay safe. Hope this info helps....

mayoclinic.org/diseases-con...

This one may be og particular interest to you and your husband:

docwirenews.com/post/effect...

[NilsB]

Dear LongLife8888

I take allopurinol almost daily to control uric acid. If you suspect that allopurinol caused this problem in the first place, you need to consult a doctor as taking it may make things worse. For me personally, I can say that it seems to work to keep Uric Acid levels down and is much less expensive than the alternate drug proposed by one doctor. Here in Thailand, 10 pills of 100mg each costs 10 Baht, USD 0.30 or so.

[LongLife8888 in reply to NilsB]

thankyou for your advice , his gout has only just stopped so I'm trying to encourage him to take the allopurinol now , they may do a low dose of prednisone along with it