Some advice?

[LongLife8888]

My partner is currently 59 years old with a efgr of 20 , this is rapidly declining , his creatine is 288 and potassium is high , he is currently experiencing severe gout and trouble urinating , and a stinging sensation , he's on prednisone but the gout isn't clearing this time hes had it for over a week now and the trouble urinating and the stinging is all new , the specialist said his kidneys were declining rapidly , he's always tired and nodding off , they prescribed allopurinol which he is to scared to take since that's what started the flare , iam aware this stops after time but how long does it take with the allopurinol?

Also looking a Dialysis , would peridyalysis PD at home sorry for my spelling give him more energy or make him feel well at least for the remainder of his life , he wants to be at home while doing this , I know you can do one in your sleep also , I'm new to this world I didn't know he would decline so quickly

[Bassetmommer NKF Ambassador]

I take allopurinol and have for years. He needs to figure out what to do for dialysis and get it in place. It takes some time, and he has to get a tube put in. Yes, you can do PD at night but every night. I do home, but I do home hemo...with a fsitula in the arm Not for the weak of heart. If he doesn't figure out what to do, he could crash and need a catheter which is really not a good thing.

[Pisces49]

uloric is easier on the kidney and really helps foot.

[Pisces49 in reply to Pisces49]

Gout

[Pisces49]

gout

[Tashathedog in reply to Pisces49]

a UTI? My husband is eGFR of 11-12 % and doesn’t experience those problems. We’re just trying to keep him stable trying Jardiance (not funded in NZ so costs $100 every four weeks). Worth it if it works. Blood test in a week then Dr. I’ll post results.

[Pisces49 in reply to Tashathedog]

I will pray for you

[IslandPKD]

I also took allopurinol for years. Is your partner trying to follow a kidney friendly diet ?? And drinking enough water ?? I know it may sound like simple advice but it really can make a difference. My nephrologist had me sign up for the Deceased Donor List when my GFR was at 20. Glad that you are advocating on your partners behalf.

Best wishes ❤️

[WildIris]

The gout diet is similar to the kidney diet (luckily). Lots of fruits and veggies and water, no fatty meats, careful with seafoods, as you probably already know. Lose weight if you need to. Much sympathy to your partner, gout is very painful. Sometimes one or two low eGFR numbers can go back up, when the stress is over and hope rises again. Your partner is lucky to have you in his corner.

[FelineFandom146]

Hello: Welcome and thanks for advocating for your partner. I had gout attacks for years before eventually breaking down and starting Allopurinol 100mg once daily. I was afraid of the painful flares that would come with beginning Allopurinol, and they did come but once they came, they also went. In a year now, I've only had one gout attack. Allopurinol and other Xanthine oxidase inhibitors works by reducing the production of uric acid in the body. High Uric Acid causes gout flares. Diets don't always work, as in my case. These medicines cause gout flares at first due to attacking any Tophi or Uric Acid Crystals in your body. As the pieces break down they shift, which causes the flares. After the excess pieces are gone, this medicine keeps your Uric Acid down. But one must start the Allopurinol to get the benetis. Uroloic is another med in this class but is know to cause heart attacks, so most Nephrologists are cautioning with that one and using Allopurinol, which has been around for decades and works. Wishing you encouragement and best wishes. Hope this helps.