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Lupus re-diagnosis UCTD
Hello All, so when I last posted I had been to the rheumatologist Prof X and told my bloods were not suggestive of lupus but he did not suggest want condition could be the underlying cause of my symptoms. This morning he chose not to see me, instead I saw a very nice female doctor in clinical research
Hello All, so when I last posted I had been to the rheumatologist Prof X and told my bloods were not suggestive of lupus but he did not suggest want condition could be the underlying cause of my symptoms. This morning he chose not to see me, instead I saw a very nice female doctor in clinical research
KeepingUpBeat
in
LUPUS UK
3 months ago
2 weeks post hysterectomy
I was scheduled to have a robotic laparoscopic hysterectomy and some endometriomas and any other endometriosis removed. This was supposed to take no more than two hours and be a day case when the surgeon opened me up he found that the endometriosis was way more widespread than initially thought I had
I was scheduled to have a robotic laparoscopic hysterectomy and some endometriomas and any other endometriosis removed. This was supposed to take no more than two hours and be a day case when the surgeon opened me up he found that the endometriosis was way more widespread than initially thought I had
Esmeisthebest
in
Endometriosis UK
2 months ago
Suboxone/oxy update
After feeling poorly with joint and muscle pain, I decided to go off suboxone and back to oxy as an experiment. Disaster! although before suboxone, I had been easily comfy on 5 mg of oxycodone 2 to 2 times a day (albeit with breakthrough RLS in the middle of the night), this was no longer the case
After feeling poorly with joint and muscle pain, I decided to go off suboxone and back to oxy as an experiment. Disaster! although before suboxone, I had been easily comfy on 5 mg of oxycodone 2 to 2 times a day (albeit with breakthrough RLS in the middle of the night), this was no longer the case
Marlayna67
in
Restless Legs Syndrome
3 months ago
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HGS stage 3b
Has anyone been through similar. I was diagnosed in May 2020 after total hysterectomy bue due to bladder injury in surgery was unable to start chemotherapy due to risk of sepsis. I had 1st reoccurance in sept 2021 and finished carbo/taxol in jan 2022. I have been on Lynparza for 2 years just finished
Has anyone been through similar. I was diagnosed in May 2020 after total hysterectomy bue due to bladder injury in surgery was unable to start chemotherapy due to risk of sepsis. I had 1st reoccurance in sept 2021 and finished carbo/taxol in jan 2022. I have been on Lynparza for 2 years just finished
0151tmac69
in
My Ovacome
3 months ago
Constipation & Deep infiltrating endo any tips?
hi all Had a recent diagnosis of deep infiltrating endo seen to be throughout pelvis, adhered to fallopian tubes, ovaries, rectum and sigmoid colon, got significant issues now with chronic constipation, much worse when on a period, saw my own GP last week who suggested probiotics , about to pick those
hi all Had a recent diagnosis of deep infiltrating endo seen to be throughout pelvis, adhered to fallopian tubes, ovaries, rectum and sigmoid colon, got significant issues now with chronic constipation, much worse when on a period, saw my own GP last week who suggested probiotics , about to pick those
Menopausal7
in
Endometriosis UK
3 months ago
Can a dialysis patient use protein power?
My protein level is low even with the Pro-Stat the kidney center gives to me, Is it ok to use whey protein powder? i mean in it the potassium is 160 mg per serving, Cholesterol is 55mg. I'm a dialysis person.I'm thinking cutting the per serving to half so to decrease the potassium.
My protein level is low even with the Pro-Stat the kidney center gives to me, Is it ok to use whey protein powder? i mean in it the potassium is 160 mg per serving, Cholesterol is 55mg. I'm a dialysis person.I'm thinking cutting the per serving to half so to decrease the potassium.
mingmiley
in
Kidney Dialysis
6 months ago
Thank you for all the support and bye for now
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Poppyg16
in
Endometriosis UK
3 months ago
Anyone have side effects from omenectomy?
Hi everyone, I’m after some advice. I’ve decided to have a preventative total hysterectomy with salpingo-oopherectomy (one ovary is already gone with my OC tumor - I’m one year NED so far). I also have endometriosis too, so I’m hoping this helps stop that pain too. My procedure, together with a hernia
Hi everyone, I’m after some advice. I’ve decided to have a preventative total hysterectomy with salpingo-oopherectomy (one ovary is already gone with my OC tumor - I’m one year NED so far). I also have endometriosis too, so I’m hoping this helps stop that pain too. My procedure, together with a hernia
Hailun
in
My Ovacome
3 months ago
Total hysterectomy with oopherectomy recovery advice needed please!
Hi all, it’s been about 3 years since I wrote into this group. Back then I was considering having a hysterectomy to help relive the symptoms of severe endo. I still couldn’t decide so I decided to wait and see how I felt in a few years. Well, life had other plans. I got stage 3 ovarian cancer at 40
Hi all, it’s been about 3 years since I wrote into this group. Back then I was considering having a hysterectomy to help relive the symptoms of severe endo. I still couldn’t decide so I decided to wait and see how I felt in a few years. Well, life had other plans. I got stage 3 ovarian cancer at 40
Hailun
in
Endometriosis UK
3 months ago
adalimumab and supplements
hi, I’m starting with the above drug. Can I still take bodybuilding, protein, supplements, such as whey protein, and creatine? Also, before I start, should I get vaccinated for shingles and pneumococcal? Cheers Tony
hi, I’m starting with the above drug. Can I still take bodybuilding, protein, supplements, such as whey protein, and creatine? Also, before I start, should I get vaccinated for shingles and pneumococcal? Cheers Tony
Tonym182
in
Crohn's and Colitis Support
6 months ago
Mounjaro
I’ve been off the Verity boards for over 10 years but I find myself needing new advice as I continue my PCOS life. A lot has happened. I had cancer and a total hysterectomy so I’m experiencing the menopause and PCOS stage. I’ve managed to maintain my weight through constant careful eating but any gains
I’ve been off the Verity boards for over 10 years but I find myself needing new advice as I continue my PCOS life. A lot has happened. I had cancer and a total hysterectomy so I’m experiencing the menopause and PCOS stage. I’ve managed to maintain my weight through constant careful eating but any gains
Lennysanders-gould
in
PCOS UK (Verity)
4 months ago
Recently had stoma
I was diagnosed 2 years ago stage 4 high serious ovarian part bowel removed and 6 sessions chemo lived normal 18months then recurrence and more chemo then total hysterectomy omentom removed and shock when I woke I had stoma that is pernament finding it hard deal with and see consultant next week
I was diagnosed 2 years ago stage 4 high serious ovarian part bowel removed and 6 sessions chemo lived normal 18months then recurrence and more chemo then total hysterectomy omentom removed and shock when I woke I had stoma that is pernament finding it hard deal with and see consultant next week
PaumicB123
in
Living with a Stoma
4 months ago
bleeding 3 years after total hysterectomy
Hello guys , has anyone experienced this at all ? I had total hysterectomy in 2021 out my cervix and uterus taken out . The two ovaries were left because it was stuck to bladder and would cause more complications since bladder specialist wasn’t in the room . I was put on triptorelin on and off till last
Hello guys , has anyone experienced this at all ? I had total hysterectomy in 2021 out my cervix and uterus taken out . The two ovaries were left because it was stuck to bladder and would cause more complications since bladder specialist wasn’t in the room . I was put on triptorelin on and off till last
Fela1113
in
Endometriosis UK
4 months ago
Recovering well
Some of you may recall I was going in for a total hysterectomy. I am 10 days post op, doing well and the lupus seems to be behaving itself. Bloods were all good but as many of you will agree, they are not always a good indicator. Talking of blood, having a complete nightmare trying to get my INR back
Some of you may recall I was going in for a total hysterectomy. I am 10 days post op, doing well and the lupus seems to be behaving itself. Bloods were all good but as many of you will agree, they are not always a good indicator. Talking of blood, having a complete nightmare trying to get my INR back
Sher78
in
LUPUS UK
4 months ago
Hormonal therapy ?
Hi, I was diagnosed with extended DCIS with ER+, PR+.I had a total mastectomy with a diep flap 2 weeks ago, My surgeon referred me to medical oncology for hormonal therapy. I am curious do I still need hormonal therapy as I already had a mastectomy, as far as cancer recurrence and preventing cancer
Hi, I was diagnosed with extended DCIS with ER+, PR+.I had a total mastectomy with a diep flap 2 weeks ago, My surgeon referred me to medical oncology for hormonal therapy. I am curious do I still need hormonal therapy as I already had a mastectomy, as far as cancer recurrence and preventing cancer
Rarlod
in
SHARE Breast Cancer Support
4 months ago
I’m confused 😕
Isn’t the serum C reactive protein meant to be raised when we have an autoimmune disease like hashimotos? mine isn’t 🤔 Or is it just the TPO that is raised? Thanks in advance for any help with this…
Isn’t the serum C reactive protein meant to be raised when we have an autoimmune disease like hashimotos? mine isn’t 🤔 Or is it just the TPO that is raised? Thanks in advance for any help with this…
ThyroidObsessed
in
Thyroid UK
5 months ago
Fear about upcoming surgery
Good Evening all hope you are well I am having a total hysterectomy on Tuesday 12th March Suffer from endometriosis and I had fluid in my cervix that the consultant hadn't seen before. Did a hysteroscopy DNC and took a bit of my cervix away More fluid further up inside me the could not get to Sent
Good Evening all hope you are well I am having a total hysterectomy on Tuesday 12th March Suffer from endometriosis and I had fluid in my cervix that the consultant hadn't seen before. Did a hysteroscopy DNC and took a bit of my cervix away More fluid further up inside me the could not get to Sent
harryhonda25
in
Menopause and Perimenopause Support
4 months ago
Spotting - ovarian cancer
I have stage IIIb ovarian clear cell, and I had my first chemo infusion 10 days ago. I've just started to feel a little better after all the side effects. A worrisome new symptom has come up today (Sunday), which was a little spotting when I went pee. I had a total hysterectomy in September, and I can't
I have stage IIIb ovarian clear cell, and I had my first chemo infusion 10 days ago. I've just started to feel a little better after all the side effects. A worrisome new symptom has come up today (Sunday), which was a little spotting when I went pee. I had a total hysterectomy in September, and I can't
Susi3
in
SHARE Ovarian Cancer Support
4 months ago
frustrated and frightened
This is not a question, and sorry very long so don’t feel you need to read, just feel I need to connect with those who understand. I was due to have a total hysterectomy, bowel resection and excision of any endo on Monday at a BSGE centre and have been cancelled last minute due to the junior doctors
This is not a question, and sorry very long so don’t feel you need to read, just feel I need to connect with those who understand. I was due to have a total hysterectomy, bowel resection and excision of any endo on Monday at a BSGE centre and have been cancelled last minute due to the junior doctors
Poppyg16
in
Endometriosis UK
5 months ago
An Eventful January Update - Pacemaker Delayed
Hello, I could sense trouble brewing last Friday when one of my knees became inflamed to the point I could barely walk over the weekend. All the signs are that it's gout, first time for my knee and it hurt's like hell. Had the replacement Pacemaker Pre-op this morning, INR was at 4.4, when the Consultant
Hello, I could sense trouble brewing last Friday when one of my knees became inflamed to the point I could barely walk over the weekend. All the signs are that it's gout, first time for my knee and it hurt's like hell. Had the replacement Pacemaker Pre-op this morning, INR was at 4.4, when the Consultant
Hidden
in
British Heart Foundation
6 months ago
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