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Has anyone been diagnosed for PMR under 50 that didn't have inflammatory markers in their bloods?
I was diagnosed with Fibromyalgia by Rheumatology late last September after the usual tick boxes had been ticked It started with waking one night with numbness in my fingers three years ago and progressed to pain and stiffness lasting hours on waking, poor sleep, having to dig my heel in to the mattress
I was diagnosed with Fibromyalgia by Rheumatology late last September after the usual tick boxes had been ticked It started with waking one night with numbness in my fingers three years ago and progressed to pain and stiffness lasting hours on waking, poor sleep, having to dig my heel in to the mattress
Northernnugget
in
PMRGCAuk
2 years ago
Steroid tapering
Has anyone else had severe side effects when reducing their steroid dose? I was on 5mg prednisolone a day for at least seven months and reduced to 4mg a week ago. Feeling very unwell especially overnight which is the furthest point in any 24 hours from taking the steroids. I realise there will be a delay
Has anyone else had severe side effects when reducing their steroid dose? I was on 5mg prednisolone a day for at least seven months and reduced to 4mg a week ago. Feeling very unwell especially overnight which is the furthest point in any 24 hours from taking the steroids. I realise there will be a delay
Ambrosian
in
British Liver Trust
2 years ago
Temperature and inflammation
I developed PMR around 18 months ago, and have been on prednisolone for 14 months. Like others, I would like to taper down and get off the steroids as soon as physically possible, which has resulted in some undershoots and having to bob back up to higher doses. During that time, I had several blood
I developed PMR around 18 months ago, and have been on prednisolone for 14 months. Like others, I would like to taper down and get off the steroids as soon as physically possible, which has resulted in some undershoots and having to bob back up to higher doses. During that time, I had several blood
PRL1957
in
PMRGCAuk
2 years ago
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RETURNING MEMBER 'Hi'
Hi all I am a returning member to healthunlocked & would like some advice please.I have had copd since 2004/5 & managed it well. Except for the dreaded 'flare ups' & having to take the 'Rescue Pk' of steroids & anti/bi it hasn't really limited me. So, other than my daily inhaler (and rescue pk as &
Hi all I am a returning member to healthunlocked & would like some advice please.I have had copd since 2004/5 & managed it well. Except for the dreaded 'flare ups' & having to take the 'Rescue Pk' of steroids & anti/bi it hasn't really limited me. So, other than my daily inhaler (and rescue pk as &
PteW43
in
Lung Conditions Community Forum
2 years ago
Anybody complained about GP?
Tried to get a rescue pack of steroids - rang 111 and had it sent through to my pharmacy.Told I couldn't have them without an appointment which is next week - this is despite me having a steroid emergency card and my GP having a copy of my asthma action plan. I have eosiniphilic asthma and I am currently
Tried to get a rescue pack of steroids - rang 111 and had it sent through to my pharmacy.Told I couldn't have them without an appointment which is next week - this is despite me having a steroid emergency card and my GP having a copy of my asthma action plan. I have eosiniphilic asthma and I am currently
Madbiker1
in
Asthma Community Forum
2 years ago
pain in shoulders and legs
I was on Prednisolone from October 2021 until a week ago. Reducing dose, 1 mg a day for the last month. For 2 months I have had very painful shoulders and my legs are very stiff and achy especially right at the top. If I sit for any length of time I am very stiff and can hardly walk. The pain is
I was on Prednisolone from October 2021 until a week ago. Reducing dose, 1 mg a day for the last month. For 2 months I have had very painful shoulders and my legs are very stiff and achy especially right at the top. If I sit for any length of time I am very stiff and can hardly walk. The pain is
Calypsocat
in
PMRGCAuk
2 years ago
Newbie to the group.
Hi all, I’m new to the group although 6 months in on a PMR diagnosis. My symptoms started in April 2020 2 months after as knee injury, both my shoulders at first, I couldn’t even get a cup off the side, couldn’t lay on my side or touch my shoulders. I thought that it was over use. My GP prescribed
Hi all, I’m new to the group although 6 months in on a PMR diagnosis. My symptoms started in April 2020 2 months after as knee injury, both my shoulders at first, I couldn’t even get a cup off the side, couldn’t lay on my side or touch my shoulders. I thought that it was over use. My GP prescribed
Binnie49
in
PMRGCAuk
1 year ago
Abatacept week 5 feeling awful in a flare
So Ive done my 5th abatacept inject sunday, jab making me really really tired and some nausea and stomach pains but not unbearable but the last 3 week I am losing range of movement especially in my wrist movement is painful and resticted now i can't push on my hands to get up for example, that 90" wrist
So Ive done my 5th abatacept inject sunday, jab making me really really tired and some nausea and stomach pains but not unbearable but the last 3 week I am losing range of movement especially in my wrist movement is painful and resticted now i can't push on my hands to get up for example, that 90" wrist
Alicepirate
in
NRAS
2 years ago
Week 5 completed…and all is right with the World.
Well, what a glorious week …Spring like. Sun shining, birds singing their Spring songs and the very first Spring flowers popping their heads above frosted soil. These are what my Grandad called ‘borrowed days’ for as sure as eggs we will pay them back, with interest, before the real Spring arrives
Well, what a glorious week …Spring like. Sun shining, birds singing their Spring songs and the very first Spring flowers popping their heads above frosted soil. These are what my Grandad called ‘borrowed days’ for as sure as eggs we will pay them back, with interest, before the real Spring arrives
Pm3eak
Graduate
in
Couch to 5K
2 years ago
conjunctivitis
i have had a bruise in the corner of my right eye for nearly week,it has now made my eye blood shot ,but as i use steroids and dry eye drops in my eyes after having transplants to both eyes 3yrs ago would i still be able to have over the counter eye drops or see my gp.
i have had a bruise in the corner of my right eye for nearly week,it has now made my eye blood shot ,but as i use steroids and dry eye drops in my eyes after having transplants to both eyes 3yrs ago would i still be able to have over the counter eye drops or see my gp.
jackiect71
in
Lung Conditions Community Forum
2 years ago
Sharp pain below right breast under ribs. PMR? Steroids?
Anybody with PMR have sharp intermittent pain under rib cage under right breast? I am worried about what it might be. On steroids, bp meds, statin. ..two diabetes and two depression meds as well as nexium and vita d. And my son died xmas ‘22 and I cry every day. I had a mammogram within last
Anybody with PMR have sharp intermittent pain under rib cage under right breast? I am worried about what it might be. On steroids, bp meds, statin. ..two diabetes and two depression meds as well as nexium and vita d. And my son died xmas ‘22 and I cry every day. I had a mammogram within last
Merryfield
in
PMRGCAuk
2 years ago
MS Hug
I don't know if this is a MS Hug or not but I feel like I have a band around my ribs that is squeezing me. I have hurt all the way through from my back to my chest. I also have tenderness in my abdomen. I have just finished a round of steroids because of a flare caused by COVID and a secondary infection
I don't know if this is a MS Hug or not but I feel like I have a band around my ribs that is squeezing me. I have hurt all the way through from my back to my chest. I also have tenderness in my abdomen. I have just finished a round of steroids because of a flare caused by COVID and a secondary infection
cljones
in
My MSAA Community
2 years ago
Covid action plan, antivirals, steroids etc
Hi all -- I apologize for the frequent posts recently. May I ask whether your GP/Consultant gave you a covid action plan, or if this is available online? I.e. what to do in different scenarios, when (and whom) to ask for antivirals, when to start taking high steroids etc? Several of my colleagues
Hi all -- I apologize for the frequent posts recently. May I ask whether your GP/Consultant gave you a covid action plan, or if this is available online? I.e. what to do in different scenarios, when (and whom) to ask for antivirals, when to start taking high steroids etc? Several of my colleagues
runcyclexcski
in
Asthma Community Forum
2 years ago
complete medial and minimus gluteal tears.
I’m currently booked in to have my gluteal tears repaired. I told the surgeon I had PMR but he didn’t seem very interested. I’m just worried whether my shoulders and other hip will withstand the 6 weeks on crutches required. Also is there any evidence that the tears are caused by taking pred. im currently
I’m currently booked in to have my gluteal tears repaired. I told the surgeon I had PMR but he didn’t seem very interested. I’m just worried whether my shoulders and other hip will withstand the 6 weeks on crutches required. Also is there any evidence that the tears are caused by taking pred. im currently
Sumojo
in
PMRGCAuk
1 year ago
Ibuprofen and steroids.
I would like to thank everyone very much for their response and useful advice about my question about Ibuprofen and my nerve pain. Thank goodness for this forum.
I would like to thank everyone very much for their response and useful advice about my question about Ibuprofen and my nerve pain. Thank goodness for this forum.
Washingup
in
PMRGCAuk
2 years ago
Controlling PMR with diet
Does anyone have info on trying to control PMR with diet? I am newly diagnosed but before taking the decision to use steroids (which freaks me out after reading some of the experiences people have had on here) I’d like to see if I can reduce my inflammation and symptoms by tweaking my diet and using
Does anyone have info on trying to control PMR with diet? I am newly diagnosed but before taking the decision to use steroids (which freaks me out after reading some of the experiences people have had on here) I’d like to see if I can reduce my inflammation and symptoms by tweaking my diet and using
Lclmlbls
in
PMRGCAuk
2 years ago
surgery or not
Hello everyone. As I have shared before my husband has a mets tumor on his spine at T9 around the front and some soft tissue was involved. He completed 5 treatments of radiation. He started lupron one week ago. He was in so much pain for a month. MO and the neurosurgeon treated him with several rounds
Hello everyone. As I have shared before my husband has a mets tumor on his spine at T9 around the front and some soft tissue was involved. He completed 5 treatments of radiation. He started lupron one week ago. He was in so much pain for a month. MO and the neurosurgeon treated him with several rounds
Granica4818
in
Advanced Prostate Cancer
2 years ago
EGPA Diagnosis today
Hi I'm a 24 M and have been diagnosed with EGPA today after 2 weeks in hospital. Started with shortness of breath and arm pain, got bought in for a Active TB looking lung from Xray and high Esophilias in blood. Kidney health was deteriorating so idea was to put me on Steroids ASAP prior to diagnosis
Hi I'm a 24 M and have been diagnosed with EGPA today after 2 weeks in hospital. Started with shortness of breath and arm pain, got bought in for a Active TB looking lung from Xray and high Esophilias in blood. Kidney health was deteriorating so idea was to put me on Steroids ASAP prior to diagnosis
s8lomon
in
Vasculitis UK
2 years ago
long awaited rheumy appointment
nearly a year, then appt just 15 minutes long…was booked as a 45 mins appt. Nobody went in before me, I was only one in waiting room, & I saw him go into his room 5 mins before my appt time. I then waited 35 minutes. He seemed angry because I’d been given a new patient appt when I’d been seen twice before
nearly a year, then appt just 15 minutes long…was booked as a 45 mins appt. Nobody went in before me, I was only one in waiting room, & I saw him go into his room 5 mins before my appt time. I then waited 35 minutes. He seemed angry because I’d been given a new patient appt when I’d been seen twice before
Pixix
in
PMRGCAuk
1 year ago
Steroids and Ibuprofen
I am currently on 7mg pred for PMR. I am also suffering from a trapped nerve in my back which I have had for six weeks now which has been VERY painful. My doctor has said under no circumstances to take any medication containing ibuprofen because of my steroids. Paracetomol does nothing to relieve
I am currently on 7mg pred for PMR. I am also suffering from a trapped nerve in my back which I have had for six weeks now which has been VERY painful. My doctor has said under no circumstances to take any medication containing ibuprofen because of my steroids. Paracetomol does nothing to relieve
Washingup
in
PMRGCAuk
2 years ago
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