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Airport travel with Injections
Can some experienced travellers who use Pegasys give me some advice please. I am travelling this week from the UK to Mexico, and have bought a Disoncare insulin cooler to keep my Pegasys syringes in whilst travelling. I will keep this in my Hand Luggage, but I’m not sure what to do with the needle
Can some experienced travellers who use Pegasys give me some advice please. I am travelling this week from the UK to Mexico, and have bought a Disoncare insulin cooler to keep my Pegasys syringes in whilst travelling. I will keep this in my Hand Luggage, but I’m not sure what to do with the needle
swimswam
in
MPN Voice
5 months ago
Treatment changes - Rituximab?
Finally saw my consultant again last week. Think he was quite surprised at how swollen my hands have become and he said I'd done well to keep going. So am feeling a little more positive, though I'm battling through a lot of pain. The steroid jabs I had in my finger and thumb base seem to have given
Finally saw my consultant again last week. Think he was quite surprised at how swollen my hands have become and he said I'd done well to keep going. So am feeling a little more positive, though I'm battling through a lot of pain. The steroid jabs I had in my finger and thumb base seem to have given
whitedog
in
NRAS
5 months ago
combined therapy help
Hi a little advise if possible: normally levo 125mg and thybon 5mg. A new endo has taken me off thybon to try and work out if I have diabetes inspidius (water balance issues). I think I was slightly too hyper but 3 weeks later and I feel terrible - weight gain, constipation, no apetite. I don’t think
Hi a little advise if possible: normally levo 125mg and thybon 5mg. A new endo has taken me off thybon to try and work out if I have diabetes inspidius (water balance issues). I think I was slightly too hyper but 3 weeks later and I feel terrible - weight gain, constipation, no apetite. I don’t think
DancerLisboa
in
Thyroid UK
5 months ago
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Dry eye following Trabeculectomy
Hello I had a right trabeculectomy nearly 4 months ago & all was well until about a week ago. I have used regular lubricating drops as I have had the same surgery in my left eye that was complicated by uveitis. I have tried a variety of lubricating drops & eventually Theoloz gel was recommended & worked
Hello I had a right trabeculectomy nearly 4 months ago & all was well until about a week ago. I have used regular lubricating drops as I have had the same surgery in my left eye that was complicated by uveitis. I have tried a variety of lubricating drops & eventually Theoloz gel was recommended & worked
Mitziecat
in
Glaucoma UK
5 months ago
Stretching and exercising after cataract ops
Hi! I did skim this site to see if anyone recently asked about my question, but didn't see anything. I have cataract operations on 12 and 19 June (I also have high IOP but generally below 21; I'm astigmatic (which the ops should correct), and a form of strabismus, where my eye muscles don't line
Hi! I did skim this site to see if anyone recently asked about my question, but didn't see anything. I have cataract operations on 12 and 19 June (I also have high IOP but generally below 21; I'm astigmatic (which the ops should correct), and a form of strabismus, where my eye muscles don't line
711debbie
in
Glaucoma UK
5 months ago
NICE: Teprotumumab for treating thyroid eye disease ID 6432 - being scoped
I have just noticed a new NICE guideline has been started. Only a skeleton at present - in the guideline scoping state. It will probably be years before it is completed. It is good that it has been selected for further work but must be devastating for anyone suffering TED to see how far away this (potential
I have just noticed a new NICE guideline has been started. Only a skeleton at present - in the guideline scoping state. It will probably be years before it is completed. It is good that it has been selected for further work but must be devastating for anyone suffering TED to see how far away this (potential
helvella
Thyroid UK
in
Thyroid UK
5 months ago
Frequent styes
I know that this is not a serious symptom, but I was just wondering if anyone else keeps getting styes. I seem to get rid of one and then a week later get another. My eyes are very sore.I do all the recommended things with eye hygiene, changing makeup regularly and heat pad on my lids. Could this be
I know that this is not a serious symptom, but I was just wondering if anyone else keeps getting styes. I seem to get rid of one and then a week later get another. My eyes are very sore.I do all the recommended things with eye hygiene, changing makeup regularly and heat pad on my lids. Could this be
Pippapot
in
MPN Voice
5 months ago
Eye drops
Hello, I would like your advice regarding eye drops. I am very myopic and also have cataracts. I use hyabak often throughout the day but my eyes still feel dry and uncomfortable which I think is making my sight even worse! I’m wondering whether I should try longer lasting eye drops. Any suggestions would
Hello, I would like your advice regarding eye drops. I am very myopic and also have cataracts. I use hyabak often throughout the day but my eyes still feel dry and uncomfortable which I think is making my sight even worse! I’m wondering whether I should try longer lasting eye drops. Any suggestions would
Waddy72
in
Macular Society
5 months ago
Unilateral or bilateral procedure?
I was recently referred by my optician as slight differences were noted since last year’s appointment. My referral outcome letter says my optician was “…… querying cupping of the left eye in particular “ and ends with “… Disc ocular coherence topography shows suspicious optic disc on the left side in
I was recently referred by my optician as slight differences were noted since last year’s appointment. My referral outcome letter says my optician was “…… querying cupping of the left eye in particular “ and ends with “… Disc ocular coherence topography shows suspicious optic disc on the left side in
GreyhoundFriend
in
Glaucoma UK
5 months ago
Low eye pressure
I have Normal Tension Glaucoma and had a Deep Scleretomy operation on my right eye 18 months ago ( I believe this is a similar operation to a trab, the aim being to lower the pressure) and I have a bleb under my eyelid. Immediately after surgery the pressure dropped to 3 but gradually over eight months
I have Normal Tension Glaucoma and had a Deep Scleretomy operation on my right eye 18 months ago ( I believe this is a similar operation to a trab, the aim being to lower the pressure) and I have a bleb under my eyelid. Immediately after surgery the pressure dropped to 3 but gradually over eight months
Ella59
in
Glaucoma UK
5 months ago
onset of symptoms after shot
Hi All, Does anyone experience quick onset of symptoms after injecting? My feet and hands go numb and I get dizzy and nauseous. Sometimes I get arm twitching floaters in my eyes dry eyes and mouth and feels like I’m going to faint . The symptoms do pass after awhile but it definitely is happening after
Hi All, Does anyone experience quick onset of symptoms after injecting? My feet and hands go numb and I get dizzy and nauseous. Sometimes I get arm twitching floaters in my eyes dry eyes and mouth and feels like I’m going to faint . The symptoms do pass after awhile but it definitely is happening after
Jjjmmm
in
Pernicious Anaemia Society
5 months ago
A few questions about being a. ‘Glaucoma suspect’
Hi, first post for me. I’ve been reading your messages since February and they have been very helpful so thank you all!! This is the rather longwinded background: My husband was picked up at a routine eye test as having some changes suggestive of glaucoma. He was seen pretty quickly (within 2-3 weeks
Hi, first post for me. I’ve been reading your messages since February and they have been very helpful so thank you all!! This is the rather longwinded background: My husband was picked up at a routine eye test as having some changes suggestive of glaucoma. He was seen pretty quickly (within 2-3 weeks
NCFCfan
in
Glaucoma UK
5 months ago
CLL - Leukemia Cutis
Hello everyone. CLL Dx 2002, unmutated, Trisomy12, Notch 1. O+I 2 years, Off meds 2 years (heart surgery), WBC has been slowly rising ove4r the past 4 or 5 months, but I was never at MRD. A biopsy of a "rash" on my scalp shows Leukemia Cutis - most likely CLL related. Has anyone else had this? How
Hello everyone. CLL Dx 2002, unmutated, Trisomy12, Notch 1. O+I 2 years, Off meds 2 years (heart surgery), WBC has been slowly rising ove4r the past 4 or 5 months, but I was never at MRD. A biopsy of a "rash" on my scalp shows Leukemia Cutis - most likely CLL related. Has anyone else had this? How
misterbee
in
CLL Support
6 months ago
wk7run3(revisited)
wow!! That wind!! I lay awake last night listening to it blow people’s recycling up and down the street and thought to myself “ I probably won’t run”. Then this morning the forecast said it was gonna die down so I ate breakfast and let that go down and then ran. I would have run yesterday but I do
wow!! That wind!! I lay awake last night listening to it blow people’s recycling up and down the street and thought to myself “ I probably won’t run”. Then this morning the forecast said it was gonna die down so I ate breakfast and let that go down and then ran. I would have run yesterday but I do
limberlou
Graduate
in
Couch to 5K
6 months ago
Does Maxidex steroid add to Pred dose?
I had a new lens fitted on 2 April and have to use Dexamethasomex or Maxidex four times a day. Does this add to my total steroid intake with the Pred. Am on 10 mg after a flare and trying to get back to 7.5 as soon as possible. I also have a preventative asthma inhaler which is a steroid presumably
I had a new lens fitted on 2 April and have to use Dexamethasomex or Maxidex four times a day. Does this add to my total steroid intake with the Pred. Am on 10 mg after a flare and trying to get back to 7.5 as soon as possible. I also have a preventative asthma inhaler which is a steroid presumably
Motida
in
PMRGCAuk
6 months ago
Kerfufalmelodious
I was diagnosed as having PMR 12 months ago and was started on 15mg Prednisone which was changed to 20mg after a consultation with my Rheumatologist. I then gradually reduced my dose slowly down to 7.5. mg a day. My rheumatologist Is now tapering my with 7.5 and 6 mg every other day for 2 months the
I was diagnosed as having PMR 12 months ago and was started on 15mg Prednisone which was changed to 20mg after a consultation with my Rheumatologist. I then gradually reduced my dose slowly down to 7.5. mg a day. My rheumatologist Is now tapering my with 7.5 and 6 mg every other day for 2 months the
Kerfufalmelodious
in
PMRGCAuk
6 months ago
Weight Training
Hi, After some advice or thoughts really. I have glaucoma in one eye, damage already done, had a couple of surgeries to help with pressure (MIGS) and am now 6 months removed from that last one. Is like to start building muscle as I am not getting younger (49 at the moment) and have read conflicting
Hi, After some advice or thoughts really. I have glaucoma in one eye, damage already done, had a couple of surgeries to help with pressure (MIGS) and am now 6 months removed from that last one. Is like to start building muscle as I am not getting younger (49 at the moment) and have read conflicting
Jeffvader
in
Glaucoma UK
6 months ago
Spirulina and Chlorella
Hi, i was diagnosed with Rheumatoid arthritis 5 years ago and I'm on methotrexate and hydroxycloroquine. I'm was hoping to start taking spirulina and chlorella as they have so many health benefits but I not sure of any drug interactions. I've tried Google but I'm getting conflicting advice, some say
Hi, i was diagnosed with Rheumatoid arthritis 5 years ago and I'm on methotrexate and hydroxycloroquine. I'm was hoping to start taking spirulina and chlorella as they have so many health benefits but I not sure of any drug interactions. I've tried Google but I'm getting conflicting advice, some say
Maple1981
in
NRAS
6 months ago
DVLA vision test
I am past 70 so needed to apply for license renewal. I know I have glaucoma in one eye so when I filled out the form online I ticked the box for eye conditions. I’m pretty certain that one of the questions was one or both eyes, I ticked one eye only. Few week later got the dreaded DVLA letter. This surprised
I am past 70 so needed to apply for license renewal. I know I have glaucoma in one eye so when I filled out the form online I ticked the box for eye conditions. I’m pretty certain that one of the questions was one or both eyes, I ticked one eye only. Few week later got the dreaded DVLA letter. This surprised
BadRob
in
Glaucoma UK
6 months ago
Drops affecting eyelashes
I'm 41, had a combined trab & lens replacement in right eye 2 years ago and just lens replacement in left eye a few months later. Now the only drops I take are Dorzolamide timolol in the left eye, twice a day.I switched to the preservative free drops a few months ago but I think it's negatively affecting
I'm 41, had a combined trab & lens replacement in right eye 2 years ago and just lens replacement in left eye a few months later. Now the only drops I take are Dorzolamide timolol in the left eye, twice a day.I switched to the preservative free drops a few months ago but I think it's negatively affecting
LyndseyMoo
in
Glaucoma UK
6 months ago
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