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scleritis and rheumatoid arthritis
hi I have had rheumatoid arthritis for five years and scleritis for 1.5 years. I recently started imraldi(bio similar to humira), in feb 2024, after building antibodies to cimzia. since then I have noted small improvements in my joints but my eyes continue to be in a constant flare. Any suggestions
hi I have had rheumatoid arthritis for five years and scleritis for 1.5 years. I recently started imraldi(bio similar to humira), in feb 2024, after building antibodies to cimzia. since then I have noted small improvements in my joints but my eyes continue to be in a constant flare. Any suggestions
Jjj24
in
NRAS
17 days ago
Methionine restricted diet for recurring PSA and positive PMSA pet scan w/ 1 bone met
quick to the point. PSMA pet showed 1 L2 small met and some lymph activity. My PSA went from 2.01 to 2.9 in one month. after doing some research on diets and supplements . I found that the keto diet is extremely high in the amino acid methionine and I made it worse trying to reduce my blood pressure
quick to the point. PSMA pet showed 1 L2 small met and some lymph activity. My PSA went from 2.01 to 2.9 in one month. after doing some research on diets and supplements . I found that the keto diet is extremely high in the amino acid methionine and I made it worse trying to reduce my blood pressure
Eieio
in
Advanced Prostate Cancer
18 days ago
blood tests
hi everyone. First time using this site - just wanted to touch base my first blood test results in a while. Doc wants to speak to me next week over phone some lfts look normal - some moderately high- iron levels very high drink around 30 units a week which I know is too much should I be concerned
hi everyone. First time using this site - just wanted to touch base my first blood test results in a while. Doc wants to speak to me next week over phone some lfts look normal - some moderately high- iron levels very high drink around 30 units a week which I know is too much should I be concerned
Rocco987
in
British Liver Trust
20 days ago
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Very high cholesterol is it linked to an under active Thyroid?
I have asked for a blood test and it's come out at 9,5. I have been getting palpitations lately they hay checked my Thyroid and my levels are fine. I am just concerned because I can't understand why it is so high. I know I'm over weight but I don't have a high fat diet and I walk between 3 and 4 miles
I have asked for a blood test and it's come out at 9,5. I have been getting palpitations lately they hay checked my Thyroid and my levels are fine. I am just concerned because I can't understand why it is so high. I know I'm over weight but I don't have a high fat diet and I walk between 3 and 4 miles
Kathy6
in
Thyroid UK
20 days ago
Cialis blues
Severe muscle cramps nighttime in my legs have recently been wrecking my sleep. After reading up, I discovered that pain in legs can be a side effect of tadalafil/ cialis. After quitting, the cramps rapidly receeded and after less than a week no longer appear. I had been taking 5 mg daily for 4-6 months
Severe muscle cramps nighttime in my legs have recently been wrecking my sleep. After reading up, I discovered that pain in legs can be a side effect of tadalafil/ cialis. After quitting, the cramps rapidly receeded and after less than a week no longer appear. I had been taking 5 mg daily for 4-6 months
Purple-Bike
in
Advanced Prostate Cancer
20 days ago
EC 1mg pred??
I have recently managed to taper to 4mg which means taking all plain tablets. I have had an increase in indigestion/slight heartburn since doing this. I have 3 questions. Is it possible to get 1mg ec? - I'd be willing to pay (if not ridiculous price) If I take some gaviscon (already take 20mg omeprazole
I have recently managed to taper to 4mg which means taking all plain tablets. I have had an increase in indigestion/slight heartburn since doing this. I have 3 questions. Is it possible to get 1mg ec? - I'd be willing to pay (if not ridiculous price) If I take some gaviscon (already take 20mg omeprazole
LbHH
in
PMRGCAuk
20 days ago
cataract
Hi all, I realise cataracts are commonplace from Steroid use . I’ve had one for years, possibly from a childhood eye injury. It’s now becoming a problem , affecting my sight. It’s Encapsulated, not as straightforward. My main concern is healing. It took a year for my leg to heal. Do you advise
Hi all, I realise cataracts are commonplace from Steroid use . I’ve had one for years, possibly from a childhood eye injury. It’s now becoming a problem , affecting my sight. It’s Encapsulated, not as straightforward. My main concern is healing. It took a year for my leg to heal. Do you advise
Greensleeves
in
PMRGCAuk
21 days ago
stage 4 endo
hi all, I’m 20 and just been diagnosed with stage 4 endo. My endo specialist has given me a couple of options. Either take norethisterone and see how that goes or surgery for excision. I want a family and he said some women can conceive naturally and others need help. I just wondered what other people
hi all, I’m 20 and just been diagnosed with stage 4 endo. My endo specialist has given me a couple of options. Either take norethisterone and see how that goes or surgery for excision. I want a family and he said some women can conceive naturally and others need help. I just wondered what other people
Magsag
in
Endometriosis UK
21 days ago
Floundering
Good morning everybody, I am floundering again I had my first appointment with an NHS rheumatologist after waiting a year. I have previously seen a private one. I have been taking Hydroxy for 10 months but the new Rheumy said my RF had increased so I needed another DMARD as I am unable to take MTX due
Good morning everybody, I am floundering again I had my first appointment with an NHS rheumatologist after waiting a year. I have previously seen a private one. I have been taking Hydroxy for 10 months but the new Rheumy said my RF had increased so I needed another DMARD as I am unable to take MTX due
Wonderfullifeandmore
in
NRAS
21 days ago
Blood in syringe
Hi all Just a quick question to those who self inject please. I've just given myself my peg shot, and when I removed the syringe, I noticed that there was blood inside it even though I didn't pull back the syringe in any way while injecting. I did get a bit of blood collecting on my skin after removing
Hi all Just a quick question to those who self inject please. I've just given myself my peg shot, and when I removed the syringe, I noticed that there was blood inside it even though I didn't pull back the syringe in any way while injecting. I did get a bit of blood collecting on my skin after removing
Skyehope
in
MPN Voice
21 days ago
Update
Hi everyone, I promised to let you know any updates. I went to audiology and ENT yesterday, had a hearing test then seen a specialist nurse then a consultant. I’m afraid I need a cochlear implant, my hearing is very poor now in my left ear, they think the cause is my sensorial hearing loss suddenly just
Hi everyone, I promised to let you know any updates. I went to audiology and ENT yesterday, had a hearing test then seen a specialist nurse then a consultant. I’m afraid I need a cochlear implant, my hearing is very poor now in my left ear, they think the cause is my sensorial hearing loss suddenly just
Numptybrain
in
PMRGCAuk
21 days ago
NHS London statement on Synnovis ransomware cyber attack
I am posting this using the NHS' own website version - it is covered across news sites as well. It seems it is having a major impact on blood tests - which might immediately affect some members. As well as the rest of the impact. [i]
NHS London statement on Synnovis ransomware cyber attack
[
I am posting this using the NHS' own website version - it is covered across news sites as well. It seems it is having a major impact on blood tests - which might immediately affect some members. As well as the rest of the impact. [i]
NHS London statement on Synnovis ransomware cyber attack
[
helvella
Thyroid UK
in
Thyroid UK
22 days ago
Sjrogens discomfort
I have lupus SLE and have Sjrogens. I have been suffering with dry mouth. My full time job is taking care of my mouth. I am most uncomfortable at night. I use everything made by biotene; drink water all day( small sips), suck sugar free candies. Anything works well for anyone?. I stopped coffee and my
I have lupus SLE and have Sjrogens. I have been suffering with dry mouth. My full time job is taking care of my mouth. I am most uncomfortable at night. I use everything made by biotene; drink water all day( small sips), suck sugar free candies. Anything works well for anyone?. I stopped coffee and my
Love2fish2
in
The Australian Sjögren's Syndrome Association
22 days ago
GCA and Elevation
I have had PMR for 5 years and was diagnosed with GCA in September of 2023. I presently am on 4mg of prednisone. I am feeling good and continue to be pretty active and just turned 70 year old. I walk at least 3 miles a day, bike long distances and kayak. I plan on taking a hike up to 10,000 feet
I have had PMR for 5 years and was diagnosed with GCA in September of 2023. I presently am on 4mg of prednisone. I am feeling good and continue to be pretty active and just turned 70 year old. I walk at least 3 miles a day, bike long distances and kayak. I plan on taking a hike up to 10,000 feet
Mooreby
in
PMRGCAuk
22 days ago
Safe eye makeup
I'm a 69 y/o female taking Lumigan eye drops for dx of Glaucoma suspect and IOP (took Latanoprost drops previously but my pressure was increasing a bit so changed drops). My pressures have been pretty consistent at 17 in both eyes, so I feel pretty lucky right now. I had a S/P LPI procedure in 2012 (
I'm a 69 y/o female taking Lumigan eye drops for dx of Glaucoma suspect and IOP (took Latanoprost drops previously but my pressure was increasing a bit so changed drops). My pressures have been pretty consistent at 17 in both eyes, so I feel pretty lucky right now. I had a S/P LPI procedure in 2012 (
Marocean
in
Glaucoma UK
23 days ago
diagnosis
Hi all, I’m new here just wanted to come somewhere for a bit of support! I haven’t yet been formally diagnosed, my consultant ‘suspects’ Endometriosis and the next step is a Laparoscopy. Has anyone else been through the wringer trying to get seen? It’s taken me years to get this far and I’m emotionally
Hi all, I’m new here just wanted to come somewhere for a bit of support! I haven’t yet been formally diagnosed, my consultant ‘suspects’ Endometriosis and the next step is a Laparoscopy. Has anyone else been through the wringer trying to get seen? It’s taken me years to get this far and I’m emotionally
DogLady91
in
Endometriosis UK
23 days ago
Looking for advice to deal with pain and stiffness related to AIH.
I was recently signposted as this may be my diagnosis by a GP and I'm awaiting a consultant appointment with Rheumatology as appose to a liver specialist despite me questioning this. I have no inflammation markers on my bloods but I do on my antibodies and smooth muscle blood counts which his why it's
I was recently signposted as this may be my diagnosis by a GP and I'm awaiting a consultant appointment with Rheumatology as appose to a liver specialist despite me questioning this. I have no inflammation markers on my bloods but I do on my antibodies and smooth muscle blood counts which his why it's
PeterStewart
in
British Liver Trust
23 days ago
Had doctors appointment this morning sigh
Had to see my doctor this morning they heard back from the neurologist. I thought they had written to the neurologist about me trying Targinact instead they asked him what he would suggest he has come back with …wait for it. .,.sinemetI told the doctor no no no and explained why. She was a really lovely
Had to see my doctor this morning they heard back from the neurologist. I thought they had written to the neurologist about me trying Targinact instead they asked him what he would suggest he has come back with …wait for it. .,.sinemetI told the doctor no no no and explained why. She was a really lovely
Elisse3
in
Restless Legs Syndrome
23 days ago
feeling desperate.
Ok so I am hopefully going to be starting injecting every other day soon (possibly end of this week), but can’t just yet and I don’t know how to cope. I ain’t sleeping, I am peeing loads and have terrible bladder pain. Dr Klein says this does happen to some people. But I have also started seeing things
Ok so I am hopefully going to be starting injecting every other day soon (possibly end of this week), but can’t just yet and I don’t know how to cope. I ain’t sleeping, I am peeing loads and have terrible bladder pain. Dr Klein says this does happen to some people. But I have also started seeing things
Gobbozoid
in
Pernicious Anaemia Society
23 days ago
Fatigue
My challenge is that around the same time i was diagnosed with Pmr i was experiencing mobility issues which resulted in a hip replacement followed by a year later by a knee replacement on the opposite leg which I am now 6 month post op . I am not sure if my fatigue on effort is normal after the joint
My challenge is that around the same time i was diagnosed with Pmr i was experiencing mobility issues which resulted in a hip replacement followed by a year later by a knee replacement on the opposite leg which I am now 6 month post op . I am not sure if my fatigue on effort is normal after the joint
Ritz02
in
PMRGCAuk
24 days ago
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