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New lens in my glasses when they come. xx
Afternoon everyone and how are we all. I am here in my pjs now and resting, I have been and got my eyes tested now it has been four weeks since my cataract surgery. I am having a new lens in my right eye and they have ordered me a new lens for my regular glasses. Then it was a coffee and home as i
Afternoon everyone and how are we all. I am here in my pjs now and resting, I have been and got my eyes tested now it has been four weeks since my cataract surgery. I am having a new lens in my right eye and they have ordered me a new lens for my regular glasses. Then it was a coffee and home as i
sylvi
in
NRAS
3 years ago
JAK2 and TET2
Does anyone else here have this double mutation? After nearly three years of Pegasys my JAK2 has dropped from over 80% to c. 14% but my TET2 has only dropped from 55% to 40%. Got results of my recent BMB and no change in fibrosis, still ‘an increase in thin reticulin, especially in areas of focal clustering
Does anyone else here have this double mutation? After nearly three years of Pegasys my JAK2 has dropped from over 80% to c. 14% but my TET2 has only dropped from 55% to 40%. Got results of my recent BMB and no change in fibrosis, still ‘an increase in thin reticulin, especially in areas of focal clustering
Paul123456
in
MPN Voice
3 years ago
Abatacept swap from pens to syringes.
Has anyone been told their abatacept pen will be changed to an injection syringe? The rheumatology nurse rang today to inform me that due to a world shortage of abatacept pens the providers, forgotten the new name but they were Health care at Home, will be moving people into normal prefilled syringes
Has anyone been told their abatacept pen will be changed to an injection syringe? The rheumatology nurse rang today to inform me that due to a world shortage of abatacept pens the providers, forgotten the new name but they were Health care at Home, will be moving people into normal prefilled syringes
rounder
in
NRAS
3 years ago
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Eye infection every 3-4 Weeks - PA link?
I am now having my 4th eye (both eyes) infection in 5 months. I have been using Chloramphenical 0.5% eye drops for 5 days (4 times a day) it gets rid of it but it recurs approx every 3-4 weeks. Contacted the Drs today who arranged for both eyes to be swapped this afternoon. Could this be linked to PA
I am now having my 4th eye (both eyes) infection in 5 months. I have been using Chloramphenical 0.5% eye drops for 5 days (4 times a day) it gets rid of it but it recurs approx every 3-4 weeks. Contacted the Drs today who arranged for both eyes to be swapped this afternoon. Could this be linked to PA
LJH50
in
Pernicious Anaemia Society
3 years ago
What are your opinions on the case of George Lopez from 2020?
Could the PD community benefit from such cases? I liked the fact that they used a new type of syringe. "“You can’t teleport cells into a brain,” Schweitzer said. You need a needle that delivers the cells to a precise spot and does so without squeezing them. Yet in some previous cell therapies, “more
Could the PD community benefit from such cases? I liked the fact that they used a new type of syringe. "“You can’t teleport cells into a brain,” Schweitzer said. You need a needle that delivers the cells to a precise spot and does so without squeezing them. Yet in some previous cell therapies, “more
Hidden
in
Cure Parkinson's
3 years ago
4th Transfer BFN 💔
Absolutely broken today after our 4th transfer result. It's also 4 months to the day from our surgery for our MMC in August (transfer #3) 😔 That bright white FRER stick is quite terrifying. I think the next step is to take a look at immunes. I assume I don't need an ERA as we did achieve implantation
Absolutely broken today after our 4th transfer result. It's also 4 months to the day from our surgery for our MMC in August (transfer #3) 😔 That bright white FRER stick is quite terrifying. I think the next step is to take a look at immunes. I assume I don't need an ERA as we did achieve implantation
Hoop123
in
Fertility Network UK
3 years ago
I’m back
Hi everyone, Sorry I’ve not been around for some time, I’ve been feeling very poorly just lately. I’ve now got a condition called uveitis, I’ve been feeling very ill, unable to eat much and generally unwell. Yesterday due to severe eye pain I went to emergency eye hospital and it turns out I’ve got uveitis
Hi everyone, Sorry I’ve not been around for some time, I’ve been feeling very poorly just lately. I’ve now got a condition called uveitis, I’ve been feeling very ill, unable to eat much and generally unwell. Yesterday due to severe eye pain I went to emergency eye hospital and it turns out I’ve got uveitis
2013mayo
in
PMRGCAuk
3 years ago
Sore eyes and light sensitivity
Hi there, So quick (ish) back story. I have Hashimotos, diagnosed late 2019. Treated with levo slowly increasing to 150mcg daily by March 2021 with various ups and downs in fatigue, dizziness and foot pain in between. Around this time i started experience photosensitivity and sore eyes (my eyes have
Hi there, So quick (ish) back story. I have Hashimotos, diagnosed late 2019. Treated with levo slowly increasing to 150mcg daily by March 2021 with various ups and downs in fatigue, dizziness and foot pain in between. Around this time i started experience photosensitivity and sore eyes (my eyes have
pandacat2
in
Thyroid UK
3 years ago
Pegasys and insomnia
I’m now on a maintenance dose of pegasys. Started pegasys in 2016. In the Early years within 30mins of injecting I felt very tired and experienced a good deep sleep on my injection nights. Over the last year - not every time - maybe 50% of the injections I have difficulty sleeping. I feel relaxed but
I’m now on a maintenance dose of pegasys. Started pegasys in 2016. In the Early years within 30mins of injecting I felt very tired and experienced a good deep sleep on my injection nights. Over the last year - not every time - maybe 50% of the injections I have difficulty sleeping. I feel relaxed but
EleanorPV
in
MPN Voice
3 years ago
Accessing Neuropsychology and trauma therapy
I’m after recommendations please. So we had a neuropsychology report prepared for the criminal case injuries claim which recommends he needs EMDR trauma therapy for PTSD followed by further neuropsychology before he can consider returning to work. He has been on the waiting list for EMDR with a local
I’m after recommendations please. So we had a neuropsychology report prepared for the criminal case injuries claim which recommends he needs EMDR trauma therapy for PTSD followed by further neuropsychology before he can consider returning to work. He has been on the waiting list for EMDR with a local
Hidden
in
Headway
3 years ago
Raynaudscand swollen Herbens nodes
I am 53 years old but started having Raynauds at age 51. My mom has Lupus and systemic vasculitis plus RA. After I have my Raynauds attacks once the. Blood returns my Herbecens nodes on all fingers get really red and swollen. Does this favor scleroderma?
I am 53 years old but started having Raynauds at age 51. My mom has Lupus and systemic vasculitis plus RA. After I have my Raynauds attacks once the. Blood returns my Herbecens nodes on all fingers get really red and swollen. Does this favor scleroderma?
Stormy911
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Weird symptoms
After megaloblastic anemia experience, I started to take B12 pills and three cyanocobalamin injection after sux months my symptoms for megaloblastic anemia improved but since I switched just to cyanocobalamin injection and stopped taking methylcobalamine sublingual and timed release pills I experienced
After megaloblastic anemia experience, I started to take B12 pills and three cyanocobalamin injection after sux months my symptoms for megaloblastic anemia improved but since I switched just to cyanocobalamin injection and stopped taking methylcobalamine sublingual and timed release pills I experienced
Hamayeshguy
in
Pernicious Anaemia Society
3 years ago
I share concerns, I'm sharing some good news!!
I'd been on 40 mg of prednisone and dropped 10mg in October and restarted Actemra. I sure didn't feel great but in early November, my rheumatologist thought we should drop another 10mg....I was nervous and just felt lousy. BUT, the last 3-4 days I have really felt good, I've walked in the house more
I'd been on 40 mg of prednisone and dropped 10mg in October and restarted Actemra. I sure didn't feel great but in early November, my rheumatologist thought we should drop another 10mg....I was nervous and just felt lousy. BUT, the last 3-4 days I have really felt good, I've walked in the house more
Grammy80
in
PMRGCAuk
3 years ago
Charles Bonnet .. Has anyone been diagnosed with Charles bonnet syndrome with relatively good eyesight?
It all started each time I woke up I would see a huge black blob.. Blind spot in my vision which quickly disappeared upon blinking. This can also be bright white as it fades. Few months later again in the night.. Alongside the usual blob I started to see letters! Numbers! Patterns! I thought I was
It all started each time I woke up I would see a huge black blob.. Blind spot in my vision which quickly disappeared upon blinking. This can also be bright white as it fades. Few months later again in the night.. Alongside the usual blob I started to see letters! Numbers! Patterns! I thought I was
Giro26
in
Macular Society
3 years ago
Has anyone else experienced olfactory hallucinations? Phantosmia?
Im wondering if anyone else has experienced this. I’m really struggling to deal with this FND or whatever it is. Tonight I was laying in bed falling asleep to a Netflix show and I kept getting, in my right nostril, a really foul sewage like smell. I obviously got up smelled my bedding smelled my clothes
Im wondering if anyone else has experienced this. I’m really struggling to deal with this FND or whatever it is. Tonight I was laying in bed falling asleep to a Netflix show and I kept getting, in my right nostril, a really foul sewage like smell. I obviously got up smelled my bedding smelled my clothes
seamuspg
in
Functional Neurological Disorder - FND Hope
3 years ago
Feeling despondent - cataract surgery after trab
My partner developed steroid-induced glaucoma (another and long story) in his left eye and had trab surgery last December. He also developed a cataract while on this journey. Last Friday he had cataract surgery. The next day he could read the eye chart after having very little vision in that eye all
My partner developed steroid-induced glaucoma (another and long story) in his left eye and had trab surgery last December. He also developed a cataract while on this journey. Last Friday he had cataract surgery. The next day he could read the eye chart after having very little vision in that eye all
Calam1ty
in
Glaucoma UK
3 years ago
Any experience/advice re drug storage (TCZ) when electricity off & no fridge due to power cut please?
My first post, be kind, I’m maybe just overthinking…. Does anyone have experience/advice on Drug storage when Electricity goes off so that biological injections aren’t rendered unusable please? Power cuts happen regularly during winter as we live in a village ‘in the sticks’ or the ‘wilds of wannee’
My first post, be kind, I’m maybe just overthinking…. Does anyone have experience/advice on Drug storage when Electricity goes off so that biological injections aren’t rendered unusable please? Power cuts happen regularly during winter as we live in a village ‘in the sticks’ or the ‘wilds of wannee’
Erikaknitssocks
in
NRAS
3 years ago
Besremi versus Pegasys
This question was raised by Flynn2107 months ago. I looked into it and replied there but it seems worth a new post with the recent FDA approval. PEG and Ropeg (Besremi) use polyethylene glycol (PEG) to control the release of the INF molecule. The earliest INFs had less of a control element and more
This question was raised by Flynn2107 months ago. I looked into it and replied there but it seems worth a new post with the recent FDA approval. PEG and Ropeg (Besremi) use polyethylene glycol (PEG) to control the release of the INF molecule. The earliest INFs had less of a control element and more
EPguy
in
MPN Voice
3 years ago
Myopic Degeneration
26 years old Diagnosed with Myopic Degneration, I was told that I have Mild Posterior Staphylomas I tend to see flashes a lot and have constant floaters (which I was seeing those for 2 years but I gotten worst) what I really want to know is what to expect? My retina Specialist tells me it’s rare that
26 years old Diagnosed with Myopic Degneration, I was told that I have Mild Posterior Staphylomas I tend to see flashes a lot and have constant floaters (which I was seeing those for 2 years but I gotten worst) what I really want to know is what to expect? My retina Specialist tells me it’s rare that
myopiaisdangerous
in
Macular Society
3 years ago
HSP and alport syndrome
Hello, I was diagnosed 5 years ago as an adult with HSP and associated kidney damage (I was sick for a good 5 years prior to this). I've recently moved house and got a.new consultant who on reviewing my file wants me tested for alport syndrome. Has anyone else with HSP had this done? I'm not sure if
Hello, I was diagnosed 5 years ago as an adult with HSP and associated kidney damage (I was sick for a good 5 years prior to this). I've recently moved house and got a.new consultant who on reviewing my file wants me tested for alport syndrome. Has anyone else with HSP had this done? I'm not sure if
kc4t
in
Vasculitis UK
3 years ago
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