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Antihistamine protocol
Hi everyone o have my last transfer next month and wanted to try everything I can as this is my last attempt. I have downregulated for 3 months on zorodex as I have adenomyosis and endo. For the transfer, I will be taking prednisone 10mg twice daily and aspirin 150mg from cd2 and forward. I've also
Hi everyone o have my last transfer next month and wanted to try everything I can as this is my last attempt. I have downregulated for 3 months on zorodex as I have adenomyosis and endo. For the transfer, I will be taking prednisone 10mg twice daily and aspirin 150mg from cd2 and forward. I've also
Norregirl
in
Fertility Network UK
2 months ago
Flare dosage after tapering to zero
Hello everyone, hoping to tap your wisdom. I'm experiencing my first flare (aching neck, shoulders, temples; thankfullyno visual symptoms) since getting off pred in early March 2024. Rheumy on call wants me to take 40mg now as protection against vision loss. I was diagnosed with cranial GCA and PMR
Hello everyone, hoping to tap your wisdom. I'm experiencing my first flare (aching neck, shoulders, temples; thankfullyno visual symptoms) since getting off pred in early March 2024. Rheumy on call wants me to take 40mg now as protection against vision loss. I was diagnosed with cranial GCA and PMR
Optim11
in
PMRGCAuk
2 months ago
Shirt sighted
Can anybody tell me if you are long sighted and have cataracts surgery for long distance you then become short sighted
Can anybody tell me if you are long sighted and have cataracts surgery for long distance you then become short sighted
Janebirch1
in
Glaucoma UK
2 months ago
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adalimumab side effects
Have been on adalimumab 2 weekly injections for nearly 3 months. Have noticed that I am losing an excessive amount of hair each time that I comb my hair. Also, I have been suffering from swollen legs /ankles over the past month without doing very much at all. Have previously needed to stop methotrexate
Have been on adalimumab 2 weekly injections for nearly 3 months. Have noticed that I am losing an excessive amount of hair each time that I comb my hair. Also, I have been suffering from swollen legs /ankles over the past month without doing very much at all. Have previously needed to stop methotrexate
Nannalyn
in
NRAS
2 months ago
Surgery
Hi I'm still on Monopost drops eye pressures 21 and 18. Got dry eyes and meiboman gland dysfunction. I have shallow angles but laser still open.I have primary angle closure but no optic nerve damage. Does any one have blurred vision with dry eyes. I'm having 2 operations soon and I'm so worried I will
Hi I'm still on Monopost drops eye pressures 21 and 18. Got dry eyes and meiboman gland dysfunction. I have shallow angles but laser still open.I have primary angle closure but no optic nerve damage. Does any one have blurred vision with dry eyes. I'm having 2 operations soon and I'm so worried I will
Paula1710
in
Glaucoma UK
2 months ago
augustafolia
I am looking for advice/help in accepting the status quo, ie my sight journey. I lost sight in one eye due to an eye stroke in December 2022. I am scared and concerned incase my other eye is vulnerable. My optitician I went to first time said I had Gluacoma , and because I attend the eye clinic for observation
I am looking for advice/help in accepting the status quo, ie my sight journey. I lost sight in one eye due to an eye stroke in December 2022. I am scared and concerned incase my other eye is vulnerable. My optitician I went to first time said I had Gluacoma , and because I attend the eye clinic for observation
augustafolia
in
Glaucoma UK
2 months ago
Sad unexpected passing of my beloved Brother.
It is with great sadness that i have to write that my Brother passed away, suddenly and unexpected after being admitted to hospital with yet another breathing infection. He was placed into an induced coma 6th October 2019. His history I have written previously. From hospital
It is with great sadness that i have to write that my Brother passed away, suddenly and unexpected after being admitted to hospital with yet another breathing infection. He was placed into an induced coma 6th October 2019. His history I have written previously. From hospital
Twoblu
in
ICUsteps
2 months ago
Questran for Bile Acid Malabsorption
Does anyone know an alternative medication for Questran as there is now unavailability due to supply problems? I am having a bad attack of Bile Acid Malabsorption at the moment and am virtually housebound by it! Any help would be much appreciated 🙏
Does anyone know an alternative medication for Questran as there is now unavailability due to supply problems? I am having a bad attack of Bile Acid Malabsorption at the moment and am virtually housebound by it! Any help would be much appreciated 🙏
laurajn087
in
IBS Network
2 months ago
Sjogrens
Hi I have had many changes to my health/body etc since I last sent a post. I now have Brachia Plexus which places further pressure on the heart...limited capabilities in both arms...Sleeping is a very painful/frightening challenge. From inflamed/painful armpits (more so on the left) which ascerbates
Hi I have had many changes to my health/body etc since I last sent a post. I now have Brachia Plexus which places further pressure on the heart...limited capabilities in both arms...Sleeping is a very painful/frightening challenge. From inflamed/painful armpits (more so on the left) which ascerbates
Heritage1961
in
The Australian Sjögren's Syndrome Association
2 months ago
is yoga ok?
I’ve very recently been diagnosed with glaucoma after losing sight in the top half of my right eye, which has been a real shock. I’ve been going to Yoga and Pilates classes for a number of years, both of which I feel have helped with a back issue and have kept me fit and very active at 67, I’m loath
I’ve very recently been diagnosed with glaucoma after losing sight in the top half of my right eye, which has been a real shock. I’ve been going to Yoga and Pilates classes for a number of years, both of which I feel have helped with a back issue and have kept me fit and very active at 67, I’m loath
Sodalover
in
Glaucoma UK
2 months ago
scleritis and rheumatoid arthritis
hi I have had rheumatoid arthritis for five years and scleritis for 1.5 years. I recently started imraldi(bio similar to humira), in feb 2024, after building antibodies to cimzia. since then I have noted small improvements in my joints but my eyes continue to be in a constant flare. Any suggestions
hi I have had rheumatoid arthritis for five years and scleritis for 1.5 years. I recently started imraldi(bio similar to humira), in feb 2024, after building antibodies to cimzia. since then I have noted small improvements in my joints but my eyes continue to be in a constant flare. Any suggestions
Jjj24
in
NRAS
2 months ago
cataract
Hi all, I realise cataracts are commonplace from Steroid use . I’ve had one for years, possibly from a childhood eye injury. It’s now becoming a problem , affecting my sight. It’s Encapsulated, not as straightforward. My main concern is healing. It took a year for my leg to heal. Do you advise
Hi all, I realise cataracts are commonplace from Steroid use . I’ve had one for years, possibly from a childhood eye injury. It’s now becoming a problem , affecting my sight. It’s Encapsulated, not as straightforward. My main concern is healing. It took a year for my leg to heal. Do you advise
Greensleeves
in
PMRGCAuk
2 months ago
Floundering
Good morning everybody, I am floundering again I had my first appointment with an NHS rheumatologist after waiting a year. I have previously seen a private one. I have been taking Hydroxy for 10 months but the new Rheumy said my RF had increased so I needed another DMARD as I am unable to take MTX due
Good morning everybody, I am floundering again I had my first appointment with an NHS rheumatologist after waiting a year. I have previously seen a private one. I have been taking Hydroxy for 10 months but the new Rheumy said my RF had increased so I needed another DMARD as I am unable to take MTX due
Wonderfullifeandmore
in
NRAS
2 months ago
Blood in syringe
Hi all Just a quick question to those who self inject please. I've just given myself my peg shot, and when I removed the syringe, I noticed that there was blood inside it even though I didn't pull back the syringe in any way while injecting. I did get a bit of blood collecting on my skin after removing
Hi all Just a quick question to those who self inject please. I've just given myself my peg shot, and when I removed the syringe, I noticed that there was blood inside it even though I didn't pull back the syringe in any way while injecting. I did get a bit of blood collecting on my skin after removing
Skyehope
in
MPN Voice
2 months ago
Sjrogens discomfort
I have lupus SLE and have Sjrogens. I have been suffering with dry mouth. My full time job is taking care of my mouth. I am most uncomfortable at night. I use everything made by biotene; drink water all day( small sips), suck sugar free candies. Anything works well for anyone?. I stopped coffee and my
I have lupus SLE and have Sjrogens. I have been suffering with dry mouth. My full time job is taking care of my mouth. I am most uncomfortable at night. I use everything made by biotene; drink water all day( small sips), suck sugar free candies. Anything works well for anyone?. I stopped coffee and my
Love2fish2
in
The Australian Sjögren's Syndrome Association
2 months ago
GCA and Elevation
I have had PMR for 5 years and was diagnosed with GCA in September of 2023. I presently am on 4mg of prednisone. I am feeling good and continue to be pretty active and just turned 70 year old. I walk at least 3 miles a day, bike long distances and kayak. I plan on taking a hike up to 10,000 feet
I have had PMR for 5 years and was diagnosed with GCA in September of 2023. I presently am on 4mg of prednisone. I am feeling good and continue to be pretty active and just turned 70 year old. I walk at least 3 miles a day, bike long distances and kayak. I plan on taking a hike up to 10,000 feet
Mooreby
in
PMRGCAuk
2 months ago
b 1 Therapy
Hello fellow readers. My name is Sakina. I am soo confused about the b1 therapy. I have been taking b1 sublingual 100 mg three times in a week under the tongue for quite a while l, but have noticed no difference. So now I am taking 100mgs of Thiamine Mononitrate. Which is better Thiamine Hydrochloride
Hello fellow readers. My name is Sakina. I am soo confused about the b1 therapy. I have been taking b1 sublingual 100 mg three times in a week under the tongue for quite a while l, but have noticed no difference. So now I am taking 100mgs of Thiamine Mononitrate. Which is better Thiamine Hydrochloride
Springbreak
in
Cure Parkinson's
3 months ago
Safe eye makeup
I'm a 69 y/o female taking Lumigan eye drops for dx of Glaucoma suspect and IOP (took Latanoprost drops previously but my pressure was increasing a bit so changed drops). My pressures have been pretty consistent at 17 in both eyes, so I feel pretty lucky right now. I had a S/P LPI procedure in 2012 (
I'm a 69 y/o female taking Lumigan eye drops for dx of Glaucoma suspect and IOP (took Latanoprost drops previously but my pressure was increasing a bit so changed drops). My pressures have been pretty consistent at 17 in both eyes, so I feel pretty lucky right now. I had a S/P LPI procedure in 2012 (
Marocean
in
Glaucoma UK
3 months ago
Eye Supplement Concern
Eye doctor highly recommended taking supplement Preservision. I cleared with hematology re peginterferon but after buying it, researching ingredients and checking interactions am concerned. Twice a day ingredients: C = 250 mg, E = 90 mg, zinc= 40 mg, copper = 1 mg, Lutein = 5 mg. Except Lutein,
Eye doctor highly recommended taking supplement Preservision. I cleared with hematology re peginterferon but after buying it, researching ingredients and checking interactions am concerned. Twice a day ingredients: C = 250 mg, E = 90 mg, zinc= 40 mg, copper = 1 mg, Lutein = 5 mg. Except Lutein,
Mishie14
in
MPN Voice
3 months ago
Mixed messages
Does anyone have glaucoma and also suffer with migraines auras . I have both ,taking drops for the glaucoma, but just paracetamol for the migraines.?My neurologist won't treat them unless I have more than 5 Attacks a month. I am getting 2/3 . Wondering how you cope, as I am getting a bit depressed
Does anyone have glaucoma and also suffer with migraines auras . I have both ,taking drops for the glaucoma, but just paracetamol for the migraines.?My neurologist won't treat them unless I have more than 5 Attacks a month. I am getting 2/3 . Wondering how you cope, as I am getting a bit depressed
Lancashirelass07
in
Glaucoma UK
3 months ago
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