Search
Search
About
Log in
Join
Experiences with
Temodal
Posts
Communities
1,103 public posts
Filter results
Coopersmummy7
Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and finally rushed into hospital Dec.22 with GCAand loss of sight in one eye.Long story short,2 relapses,yo yo ing of f prednisilone,could not tolerate Metho, or leflunomide,and now looks like I will be starting on Tocilzumab.Am
Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and finally rushed into hospital Dec.22 with GCAand loss of sight in one eye.Long story short,2 relapses,yo yo ing of f prednisilone,could not tolerate Metho, or leflunomide,and now looks like I will be starting on Tocilzumab.Am
Angelsmummy
in
PMRGCAuk
5 months ago
Advice please On thyroxine & HRT with abnormal very low oestrogen levels.
Feeling very exhausted of late, more than usual and very achy all over . I have fibromyalgia so symptoms all overlap so difficult to know what issue is causing these symptoms. Last thyroid results in June within range, no change in dose and still on 75mcg thyroxine. GP has since checked my Oestrogen
Feeling very exhausted of late, more than usual and very achy all over . I have fibromyalgia so symptoms all overlap so difficult to know what issue is causing these symptoms. Last thyroid results in June within range, no change in dose and still on 75mcg thyroxine. GP has since checked my Oestrogen
Hidden
in
Thyroid UK
11 months ago
Vasculitus, a promising road ahead- let’s hope so!
https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(24)00094-8/fulltext?dgcid=raven_jbs_aip_email ‘…Biologics have come to the forefront as glucocorticoid-sparing agents. After the seminal GiACTA trial, tocilizumab is now recommended as a first-line therapy for giant cell arteritis in combination
https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(24)00094-8/fulltext?dgcid=raven_jbs_aip_email ‘…Biologics have come to the forefront as glucocorticoid-sparing agents. After the seminal GiACTA trial, tocilizumab is now recommended as a first-line therapy for giant cell arteritis in combination
Exflex
in
PMRGCAuk
6 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Prostrap & dry eye
Hello, I’m on month 5 of prostrap with tibolone whilst I await excision surgery for endometriosis. I’m experiencing the worst dry eye / blepharis. In having to cleanse my eyelids, hot flannel massage, eye rinse, and drops and then eyelid cream multiple times a day and it’s really getting me down.
Hello, I’m on month 5 of prostrap with tibolone whilst I await excision surgery for endometriosis. I’m experiencing the worst dry eye / blepharis. In having to cleanse my eyelids, hot flannel massage, eye rinse, and drops and then eyelid cream multiple times a day and it’s really getting me down.
CrochetCrayola
in
Endometriosis UK
11 months ago
Hypo with CKD & Bradycardia
Him A little about me, 55, female, psoriatic arthritis from a child, treated with biological Cosentxy and Methotrexate. Fatigue/weight gain led to a diagnosis of Fibromyalgia in 2018 after gallbladder removal. I was treated with high dose steroid injections. Over the next 18 months I suffered 12
Him A little about me, 55, female, psoriatic arthritis from a child, treated with biological Cosentxy and Methotrexate. Fatigue/weight gain led to a diagnosis of Fibromyalgia in 2018 after gallbladder removal. I was treated with high dose steroid injections. Over the next 18 months I suffered 12
SimbaT
in
Thyroid UK
1 year ago
Question on PMR and Temporal Arteritis
Does anyone know: would an MRI show Temporal Arteritis or would a person need a biopsy to determine if Temporal Arteritis was present? Asking for a person newly diagnosed with PMR and in the ER dept was told she had Temporal Arteritis. Yesterday she went to the rheumatologist and was told she definitely
Does anyone know: would an MRI show Temporal Arteritis or would a person need a biopsy to determine if Temporal Arteritis was present? Asking for a person newly diagnosed with PMR and in the ER dept was told she had Temporal Arteritis. Yesterday she went to the rheumatologist and was told she definitely
Musiclady18
in
PMRGCAuk
6 months ago
Should my Thyroxine be put down?
Hello all, I've just had my latest results and my doctor has lowered my Thyroxine from 100mg to 75mg. Does that seem right? I feel very unwell and I'm putting on weight despite suffering from severe nausea, so I am definitely not over-eating. I'm 49-year-old woman who was diagnosed with an underachieve
Hello all, I've just had my latest results and my doctor has lowered my Thyroxine from 100mg to 75mg. Does that seem right? I feel very unwell and I'm putting on weight despite suffering from severe nausea, so I am definitely not over-eating. I'm 49-year-old woman who was diagnosed with an underachieve
Jojozo
in
Thyroid UK
1 year ago
Am I Hypothyroid?
Hi, can anyone give me any feedback on the blood results I have received please? I am nearly 5 years into Surgical Menopause, Ovaries removed. More than likely I have Oestrogen Dominance which could be suppressing thyroid function as my Prolactin is currently very high (975miu/l) and soon to be investigated
Hi, can anyone give me any feedback on the blood results I have received please? I am nearly 5 years into Surgical Menopause, Ovaries removed. More than likely I have Oestrogen Dominance which could be suppressing thyroid function as my Prolactin is currently very high (975miu/l) and soon to be investigated
FrankyBanx
in
Thyroid UK
1 year ago
IVF - First Round Fail
Hello, This is my first time on a forum so please bear with me.. My partner and I have started our IVF journey in September this year; initially the baseline scan was good and AFC count relatively okay so we were excited when the time came to start the injections. We had decided that I was going to
Hello, This is my first time on a forum so please bear with me.. My partner and I have started our IVF journey in September this year; initially the baseline scan was good and AFC count relatively okay so we were excited when the time came to start the injections. We had decided that I was going to
BlueSimba
in
Fertility Network UK
1 year ago
Patients with higher apolipoprotein A-I levels at greater risk for giant cell arteritis
https://www.healio.com/news/rheumatology/20240315/patients-with-higher-apolipoprotein-ai-levels-at-greater-risk-for-giant-cell-arteritis
https://www.healio.com/news/rheumatology/20240315/patients-with-higher-apolipoprotein-ai-levels-at-greater-risk-for-giant-cell-arteritis
perceptual63
in
PMRGCAuk
6 months ago
Tapering
Just a quick question about tapering Prednisolone. I have had GCA since Aug 22. Have tapered down to 5mg but had the beginnings of a flare. My rheumatologist told me to go up to 7.5mg. The flare abated. I then got an infection/virus and on the advice of the rheumatology nurses increased to 10mg for a
Just a quick question about tapering Prednisolone. I have had GCA since Aug 22. Have tapered down to 5mg but had the beginnings of a flare. My rheumatologist told me to go up to 7.5mg. The flare abated. I then got an infection/virus and on the advice of the rheumatology nurses increased to 10mg for a
Noni71
in
PMRGCAuk
7 months ago
Aromatase Inhibitor Use?
Hi, I was diagnosed as Stage 1B Grade 1 - ER/PR+ > 95%. I had the hysterectomy, bilateral oophorectomy etc.... in July. And, i just completed three treatments of brachy therapy. My doctor put me on letrozole for one year. Thoughts?
Hi, I was diagnosed as Stage 1B Grade 1 - ER/PR+ > 95%. I had the hysterectomy, bilateral oophorectomy etc.... in July. And, i just completed three treatments of brachy therapy. My doctor put me on letrozole for one year. Thoughts?
relap
in
SHARE Uterine Cancer Support
1 year ago
Aortitis
I was diagnosed with non cranial Giant Cell Arteritis in September last year. So far I haven't managed to find anyone else with this condition because most people have the temporal version with the headaches.Mine is Aortitis which apparently is rare. I'd love to share experiences with someone else
I was diagnosed with non cranial Giant Cell Arteritis in September last year. So far I haven't managed to find anyone else with this condition because most people have the temporal version with the headaches.Mine is Aortitis which apparently is rare. I'd love to share experiences with someone else
Dance62
in
PMRGCAuk
7 months ago
New and blue
Hi everyone. (and my mind goes blank on what to write...) I started exploring a possibly neurodivergent mind over a year ago and although I feel a bit more knowledgeable, I am no less lost. It's pretty unhelpful that traits of ADHD, Autism and HSP overlap but here I am. At this point I think I might
Hi everyone. (and my mind goes blank on what to write...) I started exploring a possibly neurodivergent mind over a year ago and although I feel a bit more knowledgeable, I am no less lost. It's pretty unhelpful that traits of ADHD, Autism and HSP overlap but here I am. At this point I think I might
starsallover
in
CHADD's Adult ADHD Support
1 year ago
Pirtobrutinib triple trial Cycle 7 update
Hi, ya'll! I'm now finishing up Cycle 8 of: [i]
Time-limited Triplet Combination of Pirtobrutinib, Venetoclax, and Obinutuzumab for Patients With Treatment-naïve Chronic Lymphocytic Leukemia (CLL) or Richter Transformation (RT)
[/i] at M.D. Anderson in Houston, TX. https://clinicaltrials.gov
Hi, ya'll! I'm now finishing up Cycle 8 of: [i]
Time-limited Triplet Combination of Pirtobrutinib, Venetoclax, and Obinutuzumab for Patients With Treatment-naïve Chronic Lymphocytic Leukemia (CLL) or Richter Transformation (RT)
[/i] at M.D. Anderson in Houston, TX. https://clinicaltrials.gov
SeymourB
in
CLL Support
1 year ago
Diagnosis ????
Hi everyone. My name is Rose, I have a history of autoimmune disease..sle, sgraves disease and previous stage 4 endometriosis and bowel adhesions with multiple polypoid ovarian tumours. Previous hysterectomy and salpingo oopherectomy with excision of endometriosis.I have suffered with bowel issues
Hi everyone. My name is Rose, I have a history of autoimmune disease..sle, sgraves disease and previous stage 4 endometriosis and bowel adhesions with multiple polypoid ovarian tumours. Previous hysterectomy and salpingo oopherectomy with excision of endometriosis.I have suffered with bowel issues
Redrose81
in
Crohn's and Colitis Support
1 year ago
Will I be able to Radiate Prostate Bed Fossa, mass is abutting rectum and bladder?
After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node Removal on 03/14/2023 Only 8 Lymph Nodes Removed, according to operating urologist surgeon that is what he saw to remove I brought onto my team a second Medical Oncologist from Cancer
After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node Removal on 03/14/2023 Only 8 Lymph Nodes Removed, according to operating urologist surgeon that is what he saw to remove I brought onto my team a second Medical Oncologist from Cancer
Shorehousejam
in
Fight Prostate Cancer
11 months ago
Bummed, PSA went up 0.08 in a Week! Am I failing ADT?
Ok being dramatic Rising PSA? So damn soon? 15 months in Gleason 8/9 Low Volume High Grade History Dx 07/01/2022 Firamagon @28 days Zytiga with prednisone daily Metformin 500 mg daily Completed 6 Sessions of Docetaxel by 01/06/2023 Davinci RP w/ PLNR surgery 03/14/2023 No Supplements
Ok being dramatic Rising PSA? So damn soon? 15 months in Gleason 8/9 Low Volume High Grade History Dx 07/01/2022 Firamagon @28 days Zytiga with prednisone daily Metformin 500 mg daily Completed 6 Sessions of Docetaxel by 01/06/2023 Davinci RP w/ PLNR surgery 03/14/2023 No Supplements
Shorehousejam
in
Advanced Prostate Cancer
11 months ago
Shocked and confused about gallbladder result
I apologize for how long this may end up...I am confused and in absolute panic (I also have serious health anxiety): Over the past nearly two years, I've had an enlarged liver with fatty infiltration, jaundice, weight loss, etc...and my gallbladder has had stones and a adenoma which had not changed
I apologize for how long this may end up...I am confused and in absolute panic (I also have serious health anxiety): Over the past nearly two years, I've had an enlarged liver with fatty infiltration, jaundice, weight loss, etc...and my gallbladder has had stones and a adenoma which had not changed
SerenityFirefly
in
British Liver Trust
1 year ago
PSA Rising Dx 06/2022 PSA 864.42 to 01/2023 <0.06 now no longer undetectable, I won’t see DR until next month, What will the Dr do?
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Shorehousejam
in
Advanced Prostate Cancer
11 months ago
1
...
4
5
6
...
56
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
Endometriosis UK
278 results
PMRGCAuk
195 results
My Ovacome
116 results
View top 10 communities
Sort by
Most Relevant
Newest