Should I have my ovaries removed? - Endometriosis UK

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Should I have my ovaries removed?

Bunnyrunning profile image
6 Replies

Hi, anyone out there had subtotal hysterectomy and then had ovaries removed at a later date?

Are you pain free now?

How has having a surgical menopause effected you?

I am on a waiting list to have ovaries removed but I’m really unsure if it’s what I want.

Thank you

Bunnyrunning xxx

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Bunnyrunning
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6 Replies
Gardenist profile image
Gardenist

Hi I had a subtotal hysterectomy 4 years ago and I'm wondering the same thing. I find it hard to understand the pros/cons especially if you end up having to take medication that will mimic natural hormones anyway? Sorry not very helpful for you! Did you get given a reason why it would be a good idea?

Bunnyrunning profile image
Bunnyrunning in reply to Gardenist

Hi,

I had subtotal hysterectomy 3 years ago

I have been seeing consultant on and off since then because still experiencing pain.

I saw a new consultant recently who was adamant that having my ovaries removed would relieve my symptoms.

He advised that he would put me on a Hrt that is mainly horse urine based and is known to not encourage Endo to grow back.

I had a course of injections for 18 months along with Tiblone as a Hrt to put me in a chemical menopause.

The benefits were minimal and the side effects pretty rough I found the Tiblone only took the edge off the symptoms.

He has put me on waiting list to have ovaries out but I’m so conflicted because I’m not convinced it will help.

On the other hand I can’t carry on with so much pain it’s really rubbish.

Thanks for replying

Keep in touch xxxx

Gardenist profile image
Gardenist in reply to Bunnyrunning

That's interesting thanks for the info. I have a consultation in 2 weeks to decide what bits to cut out next. It will be op 4. Feels like it's never ending but each one has given me a couple of years relief. You just never know if things will be better or worse the next time x

Bunnyrunning profile image
Bunnyrunning in reply to Gardenist

Hi,

Thanks for your message.

I have a follow up next month to decide

What to do next too.

I think I’ve gone off the idea of the Ovaries out. It feels too final and I don’t really no why cos they give me nothing but bother!

The HRT I mentioned made with Horse urine is called Premarin.

I did some research on it and it seems to be either fantastic for some woman and horrendous for others.

Keep in touch and let me know how you get on at your appointment.

Take care xx

Tranquilwaters profile image
Tranquilwaters in reply to Bunnyrunning

Hello! Oh my goodness - who told you that Premarin won't make Endo. grow back? That's totally wrong! It's an estrogen only HRT, and any unapposed estroden only HRT carries the risk of a possible reoccurrence. If your Consultant told you this, I highly suggest you find another as he obviously doesn't know what he's doing!💜

Perla19 profile image
Perla19

Hey, I had subtotal hysterectomy and bilateral salpingectomy in 2019 and then in July I had both ovaries removed as well. Menopause symptoms have been really tough and I’m still getting on-and-off pelvic pain which is at times as bad as it was before the most recent surgery. Overall I would say I’m better off, so far, but it’s too early to tell for sure I guess and it’s certainly not been plain sailing! I am hoping that things will settle down over the coming months.Don’t know if that’s any help! Hope your consultation went okay. Did you decide to stick with the decision to not have ovaries removed?

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