Life Post Hysterectomy : So I had an... - Endometriosis UK

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Life Post Hysterectomy

Endo_Phoenix profile image
5 Replies

So I had an abdominal hysterectomy with oophorectomy on the 1st of July. I am 6 weeks post-op. Pain on or around the wound is much better though its still a bit sore and hurts if Im sitting too long. Endopain is gone so far 🤞🤞 Struggling big time with energy levels. Have started transitioning back to work gradually with 5 to 6 hours 3 times a week. I am totally burnt out when I get home. Experiencing frequent headaches. Struggling with constant fatigue, achy body as if I have fever, insomnia, dryness on skin and eyes, dry mouth despite of drinking atleast 2 litres of water along with other fluids, bad hairfall.. I suppose my body is still in a shock. But how long does it take?? When will I feel fine?? I think I underestimated the procedure 😔

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Endo_Phoenix
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Gardenist profile image
Gardenist

Not to alarm you but it took 9 months for me to feel myself again. I had really bad fatigue especially. I think I just crashed. A friend bounced back in 8 weeks. Everyone is different! My advice would be listen to your body and try to do a little more when you can e.g walks and nice things fir yourself and take the time that you need to rest when you need to. Easier said than done sometimes I know. Seeing a sports physio also really helped me too as my core was really destabilised from the operation. That was nearly 5 years ago now and a distant memory. Although at the time it dragged on so long I thought I'd never get back to normal.Hope you start to feel better soon x

Endo_Phoenix profile image
Endo_Phoenix in reply toGardenist

Thank you so much for sharing your experience! Did you have the procedure because of endometriosis? How is that now? Did you take HRTs? Im really scared of a relapse 😑

Gardenist profile image
Gardenist in reply toEndo_Phoenix

Hi yes for endo & adenomyosis. I still have my ovaries as I was advised to because of my age of 37 at the time. So I'm no help on the HRT front. But now 5 years later I'm needing further surgery so that might be coming up. Not yet sure which bits will come out next! I was completely pain free for about 3 years but with hormones still raging endo is a problem again. More painful than before but for a shorter time each 'month'. Was still the best thing for me though as my periods were unmanageable.

Endo_Phoenix profile image
Endo_Phoenix in reply toGardenist

I am really sorry to hear that. I really truely wish you all the best and wish you a speedy recovery. Please keep us posted x

Perla19 profile image
Perla19

Hiya, I am in a similar boat. I had oophorectomy in mid-July (I’d already had hysterectomy in 2019 but pain came back) and am struggling with similar symptoms. Like you I am worried about taking HRT. I’ve also had pelvic pain - similar to what I had pre-surgery - on and off, and the last couple of days have been particularly bad 😕How are you doing now? Are things any better? Hope so!

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