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Inherited aggressive pc
Dad diagnosed mid 60s after emergency admittance as he couldn't piss, had prostate removed and radiotherapy, presumably to pelvic area etc. but not sure, he died 15 yrs later with advanced pc. Brother had psa of 10 at age 59 and dre revealed some abnormality, biopsy revealed pc and he had 20 sessions
Dad diagnosed mid 60s after emergency admittance as he couldn't piss, had prostate removed and radiotherapy, presumably to pelvic area etc. but not sure, he died 15 yrs later with advanced pc. Brother had psa of 10 at age 59 and dre revealed some abnormality, biopsy revealed pc and he had 20 sessions
pd63
in
Prostate Cancer Network
10 months ago
RISING PSA 2 YEARS POST EBRT/ADT
Two years post EBRT plus 6 months ADT. Meeting with Oncologist in a few weeks and am wondering what he is going to make of the following PSA progression. Sept 2022 - 0.29 March 2023- 0.56 June 2023 - 0.97 Sept 2023 - 1.77 Testosterone went from near zero post ADT back to 483 in Sept 2022 and
Two years post EBRT plus 6 months ADT. Meeting with Oncologist in a few weeks and am wondering what he is going to make of the following PSA progression. Sept 2022 - 0.29 March 2023- 0.56 June 2023 - 0.97 Sept 2023 - 1.77 Testosterone went from near zero post ADT back to 483 in Sept 2022 and
Waldo13
in
Prostate Cancer Network
10 months ago
Radiation
I had the standard IMRT for my pca back in 2013. I was told it was a lifetime dose. Is that true with the newer forms of radiation treatment? I am faced with starting a six dose regimen of taxotere now since ADT does not seem to be working according to PSMA scans. My psa remains at 1.8 even though the
I had the standard IMRT for my pca back in 2013. I was told it was a lifetime dose. Is that true with the newer forms of radiation treatment? I am faced with starting a six dose regimen of taxotere now since ADT does not seem to be working according to PSMA scans. My psa remains at 1.8 even though the
sillyoyster
in
Advanced Prostate Cancer
10 months ago
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My wife has been a wonderful companion through my diagnosis and recent hospitalization from sepsis due to my 2nd biopsy. She almost lost me but I have returned to vigor and preparing for this journey through radiation and ADT next month. However, because I still work and am at a point where my business
My wife has been a wonderful companion through my diagnosis and recent hospitalization from sepsis due to my 2nd biopsy. She almost lost me but I have returned to vigor and preparing for this journey through radiation and ADT next month. However, because I still work and am at a point where my business
Eadgbe
in
Prostate Cancer Network
10 months ago
T3 brands available on private prescription in the U.K.
Good afternoon everyone, Hope you are all as well as can be. I see a private endocrinologist who prescribes my NDT and T3. Currently, the T3 brand is Thybon Henning - reasonably priced. I keep it on my prescription for ‘emergencies’ because when I transitioned to Thybon from Grossman Cynomel
Good afternoon everyone, Hope you are all as well as can be. I see a private endocrinologist who prescribes my NDT and T3. Currently, the T3 brand is Thybon Henning - reasonably priced. I keep it on my prescription for ‘emergencies’ because when I transitioned to Thybon from Grossman Cynomel
Ihave3kids
in
Thyroid UK
10 months ago
NDT has raised my thyroid anti-bodies. What's next?
Hi All, As I just made a post with my update on NDT (good T3 and T4 levels, but TSH is 0.017, so too low), I received my latest anti-bodies results. And they went up! I've heard some people shared how their anti-bodies went up as well on NDT. Yes, I'm on a gluten-free, whole food diet, been on
Hi All, As I just made a post with my update on NDT (good T3 and T4 levels, but TSH is 0.017, so too low), I received my latest anti-bodies results. And they went up! I've heard some people shared how their anti-bodies went up as well on NDT. Yes, I'm on a gluten-free, whole food diet, been on
Juliet_22
in
Thyroid UK
10 months ago
Taken off NDT
Hi there, my friend who has been well on NDT for many years now, has been taken off it by the endo who says he is no longer able to prescribe it. She has been given Liothyronine but is not well on it, and told her 'levels' are fine. She wants to look into getting a private prescription, but from my research
Hi there, my friend who has been well on NDT for many years now, has been taken off it by the endo who says he is no longer able to prescribe it. She has been given Liothyronine but is not well on it, and told her 'levels' are fine. She wants to look into getting a private prescription, but from my research
FifiJules
in
Thyroid UK
10 months ago
What TSH level is too low on NDT + low sodium
Hi All, I switched to NDT 6 weeks ago and have been dialing in my dose. I take Erfa NDT. I raised it up to 1 3/4 tablets, and have just tested my thyroid. I've read a lot of discussions here about NDT and TSH and from what I understand, from this big study when TSH gets lower than 0.3, it increases
Hi All, I switched to NDT 6 weeks ago and have been dialing in my dose. I take Erfa NDT. I raised it up to 1 3/4 tablets, and have just tested my thyroid. I've read a lot of discussions here about NDT and TSH and from what I understand, from this big study when TSH gets lower than 0.3, it increases
Juliet_22
in
Thyroid UK
10 months ago
Questions about protocol changes regarding ADT from 2nd opinion.
I was diagnosed with PC about 2 months ago. I received a 2nd opinion from John's Hopkins today and all cores had a different (slightly lower) Gleason scores than my local testing gave. However I do have the evidence of adenocarcinoma in the prostate and am starting on this road through RT (with an OAR
I was diagnosed with PC about 2 months ago. I received a 2nd opinion from John's Hopkins today and all cores had a different (slightly lower) Gleason scores than my local testing gave. However I do have the evidence of adenocarcinoma in the prostate and am starting on this road through RT (with an OAR
Eadgbe
in
Prostate Cancer Network
10 months ago
Progression
My Oncologist says that after 4+ years of ADT, I am showing signs of castrative resistance. He also said that I am currently Low volume, low PSA Oligmatistic. Can someone translate. I had a PSMA scan a couple of weeks ago and the Radiation Oncologist said that I had a positive response. Thanks
My Oncologist says that after 4+ years of ADT, I am showing signs of castrative resistance. He also said that I am currently Low volume, low PSA Oligmatistic. Can someone translate. I had a PSMA scan a couple of weeks ago and the Radiation Oncologist said that I had a positive response. Thanks
NDJIM
in
Advanced Prostate Cancer
10 months ago
Can I get Armour Thyroid or NDT from Crete without a prescription? Can I get it with a private prescription if not?
Hi everyone, I have been on Armour Thyroid for 22 years , I’m now 44. I was originally trialed on levothyroxine but there was absolutely no improvement, I was severely ill from a teenager, bed ridden with chronic pain and it was only when I was put on Armour Thyroid in my early 20s that I started to
Hi everyone, I have been on Armour Thyroid for 22 years , I’m now 44. I was originally trialed on levothyroxine but there was absolutely no improvement, I was severely ill from a teenager, bed ridden with chronic pain and it was only when I was put on Armour Thyroid in my early 20s that I started to
ScooterNoden79
in
Thyroid UK
10 months ago
ndt source
Is it possible please for someone to message me. I am wanting to purchase some NDT. Probably not Armour as too expensive,
Is it possible please for someone to message me. I am wanting to purchase some NDT. Probably not Armour as too expensive,
1lolabear
in
Thyroid UK
10 months ago
Armpits? Yeah, armpits.
18 months ADT and my armpit hair has slowly, but finally, gone 😫.True, it's not a dramatic loss compared to the sacred memory of a hard erection! But a symptom is a symptom, and they all seem to have complications. After the hair had mostly become a memory, I started having a strange sensation in there
18 months ADT and my armpit hair has slowly, but finally, gone 😫.True, it's not a dramatic loss compared to the sacred memory of a hard erection! But a symptom is a symptom, and they all seem to have complications. After the hair had mostly become a memory, I started having a strange sensation in there
Lewellen
in
Advanced Prostate Cancer
10 months ago
ndt am/pm
Hi, I am starting my ndt with a 1/4 of a grain am and pm on a slow build. I wanted to know if ndt is best taken both morning and afternoon or can I take just morning? Fitting it around an Emory stomach in the afternoon is a bit tricky.
Hi, I am starting my ndt with a 1/4 of a grain am and pm on a slow build. I wanted to know if ndt is best taken both morning and afternoon or can I take just morning? Fitting it around an Emory stomach in the afternoon is a bit tricky.
TheresaGreen1967
in
Thyroid UK
10 months ago
Help getting Thybon Henning in France
I have been trying to get better for nearly a year now. I was on Thyroid s NDT for over seven years and felt very well. All that changed last Sept when the NDT changed and my FT3 dropped from over 6 to 2 I started falling over. When I had a blood test it confirmed it. I have Levo and T3 Cynomel prescribed
I have been trying to get better for nearly a year now. I was on Thyroid s NDT for over seven years and felt very well. All that changed last Sept when the NDT changed and my FT3 dropped from over 6 to 2 I started falling over. When I had a blood test it confirmed it. I have Levo and T3 Cynomel prescribed
Brightness14
in
Thyroid UK
10 months ago
Timing of NDT doses
I will be switching from Levothyroxine to NDT in the next few weeks. How do people manage to eat if we need to split the dose into 2 separate times, and leave 2 hours either side of taking an NDT dose, particularly avoiding magnesium, calcium and iron? So for example 9am breakfast followed by supplements
I will be switching from Levothyroxine to NDT in the next few weeks. How do people manage to eat if we need to split the dose into 2 separate times, and leave 2 hours either side of taking an NDT dose, particularly avoiding magnesium, calcium and iron? So for example 9am breakfast followed by supplements
Magpie5
in
Thyroid UK
10 months ago
Surgical Castration ?
I have been on Eligard for two months. Prior to starting ADT my Triglycerides were 100 (May 2023). After only two months of Eligard they are thru the roof (495). Since I have metastatic PC they tell me that I will be on ADT for life. I am considering surgical orchiectomy since there are fewer metabolic
I have been on Eligard for two months. Prior to starting ADT my Triglycerides were 100 (May 2023). After only two months of Eligard they are thru the roof (495). Since I have metastatic PC they tell me that I will be on ADT for life. I am considering surgical orchiectomy since there are fewer metabolic
Bigmaristuff
in
Advanced Prostate Cancer
10 months ago
ADT or not?
Hi, i have Stage 4 PCA, Gleason 5+4 so I am on Degaralix and Enzalutamide. I tend to refer to this treatment as ADT as shorthand because to my mind they both reduce testosterone. I wonder if I’m misusing ADT or does it matter?
Hi, i have Stage 4 PCA, Gleason 5+4 so I am on Degaralix and Enzalutamide. I tend to refer to this treatment as ADT as shorthand because to my mind they both reduce testosterone. I wonder if I’m misusing ADT or does it matter?
FortyWinks
in
Advanced Prostate Cancer
10 months ago
UserName Change Search Link
I just changed my username name from the impersonal "JHMX" to "JohnInTheMiddle". Among other things I liked the TV show Malcolm in the Middle. And when I signed up it was in that kind of crazy time of DX that many people here will recognize. But as I become familiar with the stories and exploration here
I just changed my username name from the impersonal "JHMX" to "JohnInTheMiddle". Among other things I liked the TV show Malcolm in the Middle. And when I signed up it was in that kind of crazy time of DX that many people here will recognize. But as I become familiar with the stories and exploration here
JohnInTheMiddle
in
Advanced Prostate Cancer
10 months ago
ADT duration data measures
odd query but when reading studies and research on ADT duration they refer to months or years - I am curious as the implants are often prescribed monthly or 3 monthly but that actually means 4 weekly or 12 weekly with such ADT as goserelin - so are the studies that say 4, 6, 18, 24, 36 months referring
odd query but when reading studies and research on ADT duration they refer to months or years - I am curious as the implants are often prescribed monthly or 3 monthly but that actually means 4 weekly or 12 weekly with such ADT as goserelin - so are the studies that say 4, 6, 18, 24, 36 months referring
SimMartin
in
Advanced Prostate Cancer
10 months ago
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