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thrombotic thrombocytopenic purpura (TTP)
Warriors: Recently, I posted about 1 year side effects. Thank you for all of your responses. My SEs got the best of me and I’m writing from a hospital bed. The current theory is I have TTP, which is associated with hormonal therapy. I wanted to write and see if any of you have had the misfortune
Warriors: Recently, I posted about 1 year side effects. Thank you for all of your responses. My SEs got the best of me and I’m writing from a hospital bed. The current theory is I have TTP, which is associated with hormonal therapy. I wanted to write and see if any of you have had the misfortune
TMcgee
in
Advanced Prostate Cancer
9 months ago
Prostate cancer treatment and IBS
Dear Friends and Sufferers! I've been diagnosed with prostate cancer and have the option of removing the prostate or radiotherapy with or without hormone treatment. Can anyone out there who has experience of these offer advise on their impact on IBS and bowel function? At the moment, I've got IBS looseness
Dear Friends and Sufferers! I've been diagnosed with prostate cancer and have the option of removing the prostate or radiotherapy with or without hormone treatment. Can anyone out there who has experience of these offer advise on their impact on IBS and bowel function? At the moment, I've got IBS looseness
merve1
in
IBS Network
9 months ago
Vit B/Folate Advice Needed Please
Ever since having my jabs in October I felt very ill initially and then I have carried on feeling unwell and so recently I did an advanced thyroid test with Medichecks and realised my thyroid was out of kilter so I've upped my NDT by 1/8 grain (knowing I had some wiggle room). My vitamins all took
Ever since having my jabs in October I felt very ill initially and then I have carried on feeling unwell and so recently I did an advanced thyroid test with Medichecks and realised my thyroid was out of kilter so I've upped my NDT by 1/8 grain (knowing I had some wiggle room). My vitamins all took
Delgor
in
Thyroid UK
9 months ago
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Soy concerns
Hi, I have been focusing on the nutrition posts to improve my diet as I have osteopenia. I am reading a lot of posts and articles saying to incorporate soy. I stay away from soy because of breast cancer risks. I don't have breast cancer but avoid any estrogen enhancing products/medication like hormone
Hi, I have been focusing on the nutrition posts to improve my diet as I have osteopenia. I am reading a lot of posts and articles saying to incorporate soy. I stay away from soy because of breast cancer risks. I don't have breast cancer but avoid any estrogen enhancing products/medication like hormone
Truth-seeker1951
in
Bone Health and Osteoporosis UK
9 months ago
Wildly fluctuating hormone levels, same dose (no Hashi) what’s going on?
Hello there lovely people I need some advice on my latest results as they are very high and differ wildly from my last results, done in May. Done with Monitor my Health I take 4.5 grains of NDT a day, split in 2 doses. Blood results taken in the morning, with leaving 19h between the last dose. I have
Hello there lovely people I need some advice on my latest results as they are very high and differ wildly from my last results, done in May. Done with Monitor my Health I take 4.5 grains of NDT a day, split in 2 doses. Blood results taken in the morning, with leaving 19h between the last dose. I have
PixieElv
in
Thyroid UK
9 months ago
re: newbie
hello all. I am 39 year old mother to 3 children. I have found this group after looking for somewhere to purchase NDT, after having read the stop this thyroid madness book. i had a routine blood test back in july, due to complaints of fatigue/weight not budging and cold toes and hands. To my disbelief
hello all. I am 39 year old mother to 3 children. I have found this group after looking for somewhere to purchase NDT, after having read the stop this thyroid madness book. i had a routine blood test back in july, due to complaints of fatigue/weight not budging and cold toes and hands. To my disbelief
Fakrah
in
Thyroid UK
9 months ago
The importance of training your legs (if you can, of course)
Engaging in fitness activities is considered a standard of care (SOC) for many cancer patients, not only because it enhances overall health but also due to the chemical interactions between muscles and cancer cells. Comprehensive body training is essential, with an emphasis on targeting the body's largest
Engaging in fitness activities is considered a standard of care (SOC) for many cancer patients, not only because it enhances overall health but also due to the chemical interactions between muscles and cancer cells. Comprehensive body training is essential, with an emphasis on targeting the body's largest
Maxone73
in
Advanced Prostate Cancer
9 months ago
Locally Advanced PC - should I accept offer of docetaxel?
Hi I'm UK based, new to Health Unlocked and just starting to get to grips with the chats. I was diagnosed August '23 with locally advanced PV. Spread has occurred to a seminal vesicle and, very slightly, to a pelvic lymph node (Oncologist called it 'subtle') Gleason of 4+5. I immediately embarked
Hi I'm UK based, new to Health Unlocked and just starting to get to grips with the chats. I was diagnosed August '23 with locally advanced PV. Spread has occurred to a seminal vesicle and, very slightly, to a pelvic lymph node (Oncologist called it 'subtle') Gleason of 4+5. I immediately embarked
TsarskoMomche
in
Advanced Prostate Cancer
9 months ago
Androstenedione & Frailty
New study from Spain [1]. For many years, I used a product that probably contained DES (diethylstilbestrol) - perhaps 1 mg? My QoL was very good. When I eventually migrated to 3 mg DES - plus a shot of testosterone cypionate every 3 months - I began to feel frail. The new study associates high
New study from Spain [1]. For many years, I used a product that probably contained DES (diethylstilbestrol) - perhaps 1 mg? My QoL was very good. When I eventually migrated to 3 mg DES - plus a shot of testosterone cypionate every 3 months - I began to feel frail. The new study associates high
pca2004
in
Fight Prostate Cancer
9 months ago
Would love help with my results
Hi there! I’d love some feedback on my most recent results. I started NDT (Erfa) treatment in February 2023. These are my results on two doses (90 mcg in the morning and 60 mcg in the afternoon). TSH 0.02 mU/L Reference Range: 0.27 to 4.20 mU/L Free T3 5.4 Reference Range: 3.1 to 6.8 pmol/L T4 Total
Hi there! I’d love some feedback on my most recent results. I started NDT (Erfa) treatment in February 2023. These are my results on two doses (90 mcg in the morning and 60 mcg in the afternoon). TSH 0.02 mU/L Reference Range: 0.27 to 4.20 mU/L Free T3 5.4 Reference Range: 3.1 to 6.8 pmol/L T4 Total
The-Wasp
in
Thyroid UK
9 months ago
USA changes status of NDT products. Their 'Grandfathered' status is to be removed.
All NDT products status will be changed from natural to biological and as such will have to go through the same rigorous process as is expected of other biologic drugs. They must comply with this and be approved by 2029 to continue. In addition the FDA has given permission to individual state to ban
All NDT products status will be changed from natural to biological and as such will have to go through the same rigorous process as is expected of other biologic drugs. They must comply with this and be approved by 2029 to continue. In addition the FDA has given permission to individual state to ban
waveylines
in
Thyroid UK
9 months ago
Where do I go for alternative to continuous ADT?
I am 63 yrs old and was diagnosed in March '23 with mHSPC, w/ multiple mets in lungs, bones and lymph glands. Began triplet therapy in April: Eligard shot every 3 months, Nubequa daily, and 6 rounds of docetaxel. SE's have been mild. I want to an alternative to continuous ADT, whether its IADT, BAT
I am 63 yrs old and was diagnosed in March '23 with mHSPC, w/ multiple mets in lungs, bones and lymph glands. Began triplet therapy in April: Eligard shot every 3 months, Nubequa daily, and 6 rounds of docetaxel. SE's have been mild. I want to an alternative to continuous ADT, whether its IADT, BAT
Forest1160
in
Fight Prostate Cancer
9 months ago
NDT Users - Split Dosing
If you use NDT and you dose it twice a day, how much of a gap do you leave between the two doses? And how do you determine how much to take in the first dose and how much in the second? I've tried once a day and it doesn't work for me. I run out of steam. I've tried three times a day, 8 hours apart
If you use NDT and you dose it twice a day, how much of a gap do you leave between the two doses? And how do you determine how much to take in the first dose and how much in the second? I've tried once a day and it doesn't work for me. I run out of steam. I've tried three times a day, 8 hours apart
FancyPants54
in
Thyroid UK
9 months ago
Intravenous Iron, oxidative stress and vitamin E and selenium
I have been reading about the possibility that some people may experience oxidative stress with intravenous iron therapy. I thought this article was interesting as it states that vitamin E and selenium are powerful antioxidants that can somewhat mitigate this problem. I would not suggest synthetic
I have been reading about the possibility that some people may experience oxidative stress with intravenous iron therapy. I thought this article was interesting as it states that vitamin E and selenium are powerful antioxidants that can somewhat mitigate this problem. I would not suggest synthetic
Goldy700
in
Restless Legs Syndrome
9 months ago
Reliable Genuine Source T3 Please
I'm gearing up for my obligatory annual NHS thyroid blood test in early December,however I did a MMH test in early October. My results then were TSH 0.01 FT4 21.4 (12-22) FT3 5.2 (3.1-6.8) This was on 200mcgs of Levo, I'm prescribed 150mcgs but had plenty spare to play around with. I have never
I'm gearing up for my obligatory annual NHS thyroid blood test in early December,however I did a MMH test in early October. My results then were TSH 0.01 FT4 21.4 (12-22) FT3 5.2 (3.1-6.8) This was on 200mcgs of Levo, I'm prescribed 150mcgs but had plenty spare to play around with. I have never
Sparklingsunshine
in
Thyroid UK
9 months ago
still have stomach issues
hi, I went private regarding my thyroid nearly a year ago now. Before going to this private thyroid clinic I was on 50 mg of levothyroxine. I suffered from gastro problems, constant reflux, burning stomach, constipation. Also severe coldness, tiredness. After checking my levels the private doctor put
hi, I went private regarding my thyroid nearly a year ago now. Before going to this private thyroid clinic I was on 50 mg of levothyroxine. I suffered from gastro problems, constant reflux, burning stomach, constipation. Also severe coldness, tiredness. After checking my levels the private doctor put
Bigfraz76
in
Thyroid UK
9 months ago
Husband has passed
Well, group, sad news from our house. Pete has passed on. He seemed to be doing quite well with ADT treatment Lupron/ea 3 months, plus bone shot, and Abiraderone 250 mg daily for 2 1/2 yrs. Had all the terrible side effects you all experience. On no medication other than that. No other illnesses.
Well, group, sad news from our house. Pete has passed on. He seemed to be doing quite well with ADT treatment Lupron/ea 3 months, plus bone shot, and Abiraderone 250 mg daily for 2 1/2 yrs. Had all the terrible side effects you all experience. On no medication other than that. No other illnesses.
Hidden
in
Advanced Prostate Cancer
9 months ago
How do I source NDT
Hello, does anyone know where I can get NDT from in the UK, a reliable internet source? Xx
Hello, does anyone know where I can get NDT from in the UK, a reliable internet source? Xx
Sammy333
in
Thyroid UK
9 months ago
Happy Gobble Day
Hello, Hello, been visiting for 7 months first post…I’m a foreigner in Japan with prostate cancer … quite a journey … not that great at Japanese … which makes everything a bit more difficult .. on top of that I broke my finger 4 weeks ago so a bit difficult to type so I’ll keep this short.. appreciate
Hello, Hello, been visiting for 7 months first post…I’m a foreigner in Japan with prostate cancer … quite a journey … not that great at Japanese … which makes everything a bit more difficult .. on top of that I broke my finger 4 weeks ago so a bit difficult to type so I’ll keep this short.. appreciate
Yokohama2023
in
Advanced Prostate Cancer
9 months ago
Long time member advice required on recent thyroid blood test after starting HRT.
I’m just after some advice on my recent blood test I had taken myself. I know the drill no levo 24 hours before. NDT gap of 8 hours. Vitamins stoped week before My test was taken at the same time as all other blood test 7.10am. I always stick to this routine to ensure consistency. I decided to take
I’m just after some advice on my recent blood test I had taken myself. I know the drill no levo 24 hours before. NDT gap of 8 hours. Vitamins stoped week before My test was taken at the same time as all other blood test 7.10am. I always stick to this routine to ensure consistency. I decided to take
Peanut31
in
Thyroid UK
9 months ago
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