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Go-forward Treatment Plan
First of all, I've been an avid reader of this forum over the past 2 years, and wanted to express my gratitude towards the amount of knowledge everyone has been sharing on this site. My father (62 y.o., very healthy) was diagnosed with aggressive PCa (Gleason 9, PSA 58) in Sep 2021, and underwent RALP
First of all, I've been an avid reader of this forum over the past 2 years, and wanted to express my gratitude towards the amount of knowledge everyone has been sharing on this site. My father (62 y.o., very healthy) was diagnosed with aggressive PCa (Gleason 9, PSA 58) in Sep 2021, and underwent RALP
sixmongoos
in
Advanced Prostate Cancer
9 months ago
Supplements that improve brain health
Declining brain health (cognition et al) is a possible SE of LT ADT. I am on a 2 year ADT plan. Here are some supplements I take for various reasons that also are said to have brain-on-LT-ADT health benefits. (Per Dr. Google) Creatine Taurine L Theanine HMB (long chemical name) Exercise (you
Declining brain health (cognition et al) is a possible SE of LT ADT. I am on a 2 year ADT plan. Here are some supplements I take for various reasons that also are said to have brain-on-LT-ADT health benefits. (Per Dr. Google) Creatine Taurine L Theanine HMB (long chemical name) Exercise (you
Derf4223
in
Advanced Prostate Cancer
9 months ago
Former patients of the late Dr Gordon Skinner
This post has two purposes. First, so that everyone knows about the research itself. Second, so that anyone who does feel strongly can make use of the opt-out. While hoping that few, if any, use this opt-out, it is nonetheless right and proper that each and every former patient knows of this opt-out
This post has two purposes. First, so that everyone knows about the research itself. Second, so that anyone who does feel strongly can make use of the opt-out. While hoping that few, if any, use this opt-out, it is nonetheless right and proper that each and every former patient knows of this opt-out
helvella
Thyroid UK
in
Thyroid UK
9 months ago
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What they don't tell you about Androgen Deprivation Therapy (ADT, hormone therapy) unedited version
https://youtu.be/zYWbaEx4x4U What do you want to know about Androgen Deprivation Therapy (ADT, hormone therapy)? Learn from this interview with the massively knowledgeable researcher Richard Wassersug, Ph. D., and his colleague and coauthor, Lauren Walker, Ph.D. And consider clicking the link
https://youtu.be/zYWbaEx4x4U What do you want to know about Androgen Deprivation Therapy (ADT, hormone therapy)? Learn from this interview with the massively knowledgeable researcher Richard Wassersug, Ph. D., and his colleague and coauthor, Lauren Walker, Ph.D. And consider clicking the link
Darryl
Partner
in
Advanced Prostate Cancer
9 months ago
melatonin
hello. I would not recommend high dose melatonin for us who are on ADT and abiraterone. Impairs dexterity and cognitive ability.
hello. I would not recommend high dose melatonin for us who are on ADT and abiraterone. Impairs dexterity and cognitive ability.
Nowhereman9
in
Advanced Prostate Cancer
9 months ago
Psa doubled in less than a month
I had 10 infusions of Doxytaxel. I started reading about the consequences of CDK12 and was concerned that since I have this mutation doxy was not a treatment of choice. After giving time for the PSA to settle I had a test which showed that it doubled in close to 3 months. In preparation for a CT and
I had 10 infusions of Doxytaxel. I started reading about the consequences of CDK12 and was concerned that since I have this mutation doxy was not a treatment of choice. After giving time for the PSA to settle I had a test which showed that it doubled in close to 3 months. In preparation for a CT and
spencoid2
in
Advanced Prostate Cancer
9 months ago
Meridian Viewray is toast. Can Cyberkife machines use MRI the same way?
Just was unenrolled in a Phase I clinical trial using the Meridian Viewray machine at Dana Farber. Meridian went belly-up in the summer, and the hospital (Brigham and Women’s in Boston) will cease using that machine in October 25th. Looking for substitutes. Thinking that Cyberknife machines can also
Just was unenrolled in a Phase I clinical trial using the Meridian Viewray machine at Dana Farber. Meridian went belly-up in the summer, and the hospital (Brigham and Women’s in Boston) will cease using that machine in October 25th. Looking for substitutes. Thinking that Cyberknife machines can also
Cancer2x
in
Advanced Prostate Cancer
9 months ago
Thyroid medication update
So presently taking 60 NDT and 25 t4 synthroid. I couldn't tolerate 90 ndt so my doctor gave me 25 t4 as a slower release and doesn't hit as hard as ndt. So it seems this addition of t4 has helped me. My sleep is better, my eyebrows filling in more, the few pounds I was holding onto seem to have dropped
So presently taking 60 NDT and 25 t4 synthroid. I couldn't tolerate 90 ndt so my doctor gave me 25 t4 as a slower release and doesn't hit as hard as ndt. So it seems this addition of t4 has helped me. My sleep is better, my eyebrows filling in more, the few pounds I was holding onto seem to have dropped
Nora3
in
Thyroid UK
9 months ago
I got some doubts about the know-how of my oncologist
I met with my oncologist last Friday and either I am confused or she is. I am open for both scenario. :) This post is sort of a follow-up on another I did back in August: https://healthunlocked.com/advanced-prostate-cancer/posts/149892314/need-help-in-understanding-psa-level-recurrence-after-treatment
I met with my oncologist last Friday and either I am confused or she is. I am open for both scenario. :) This post is sort of a follow-up on another I did back in August: https://healthunlocked.com/advanced-prostate-cancer/posts/149892314/need-help-in-understanding-psa-level-recurrence-after-treatment
Mascouche
in
Advanced Prostate Cancer
9 months ago
Urinary bother; is Flomax a solution?
SBRT plus ADT for 12 months after clean PSMA and 3+4, 4+3, and 4+4. Still up peeing 3 times a night after 4.5 months post radiation. (Down from 8 times). Does anyone know if Flomax will help? Or are there other solutions? I don’t want to take flomax if i don’t have yo as it screws with BP, but i will
SBRT plus ADT for 12 months after clean PSMA and 3+4, 4+3, and 4+4. Still up peeing 3 times a night after 4.5 months post radiation. (Down from 8 times). Does anyone know if Flomax will help? Or are there other solutions? I don’t want to take flomax if i don’t have yo as it screws with BP, but i will
Photographerhere
in
Prostate Cancer Network
9 months ago
1st PSA Post SBRT + ADT: A Bounce?
I had a diagnosis of Gleason 3+4, probable ECE; Decipher .63. Received 5 Fraction SBRT at MSKCC (Dr. Zelefsky) in early January of this year. 6 months of ADT (Orgovyx) ended May 23, 2023. At the end of ADT, my PSA was <0.05 and Testosterone was 4. My first PSA Test was last Wednesday at Penn Medicine
I had a diagnosis of Gleason 3+4, probable ECE; Decipher .63. Received 5 Fraction SBRT at MSKCC (Dr. Zelefsky) in early January of this year. 6 months of ADT (Orgovyx) ended May 23, 2023. At the end of ADT, my PSA was <0.05 and Testosterone was 4. My first PSA Test was last Wednesday at Penn Medicine
Longrunner
in
Prostate Cancer Network
9 months ago
My story of my 23 year battle with Pca.
I have decided to share this with the group because yesterday a guy shared his fear. In no way should you take any of this as a suggestion for treatment or refusal of treatment. I was diagnosed with Pca Gleason 3+3 July 13 2000 ar the age of 49. When the Dr. gave me the results I started sweating profusely
I have decided to share this with the group because yesterday a guy shared his fear. In no way should you take any of this as a suggestion for treatment or refusal of treatment. I was diagnosed with Pca Gleason 3+3 July 13 2000 ar the age of 49. When the Dr. gave me the results I started sweating profusely
Professorgary
in
Advanced Prostate Cancer
9 months ago
I am livid, confused , worried and scared as hell that my ORGOVYX -ADT symptoms are mine for life.
I thought 20 tx imrt & 4 mos of Orgovyx from all the docs I talked to secured a pretty good chance of crushing my cancer AND a real good chance of having my T come back to Normal after " 4 mos". "
"
T " should be back to normal within the same time you were on the drug " that was the wishy
I thought 20 tx imrt & 4 mos of Orgovyx from all the docs I talked to secured a pretty good chance of crushing my cancer AND a real good chance of having my T come back to Normal after " 4 mos". "
"
T " should be back to normal within the same time you were on the drug " that was the wishy
JWS13
in
Advanced Prostate Cancer
9 months ago
T4 over range yet again due to side effect of Amiodarone. I have no thyroid, am on 25mcg levo daily now. In a dilemma
Hi all I am aware that most people on this site will have little knowledge about the drug Amiodarone so here is a brief account of what it is used for and it's potential side effects that can alter conversion of thyroid medication such as levo or NDT so pushing levels either up or down. It can also effect
Hi all I am aware that most people on this site will have little knowledge about the drug Amiodarone so here is a brief account of what it is used for and it's potential side effects that can alter conversion of thyroid medication such as levo or NDT so pushing levels either up or down. It can also effect
DizzyD
in
Thyroid UK
9 months ago
Results on new test
I have just had the new test offered by Monitor My Health which I think is good value for money. My thyroid tests were good. I am on 2.5 grain of NDT so my TSH is suppressed. TSH .01 (.27 - 4.2) T4 20.3 (12 - 22) T3 5.9 (2.1 - 6.8) I'm not sure whether I need to be higher in some of
I have just had the new test offered by Monitor My Health which I think is good value for money. My thyroid tests were good. I am on 2.5 grain of NDT so my TSH is suppressed. TSH .01 (.27 - 4.2) T4 20.3 (12 - 22) T3 5.9 (2.1 - 6.8) I'm not sure whether I need to be higher in some of
dottyb09
in
Thyroid UK
9 months ago
Vitamin and mineral deficiencies/Thyroid dysfunction.. Chicken or Egg?
Before I spend my hard earned money on going to a private ENDO because the NHS is failing me I wanted to ask what you all thought about the problem of iron deficiency and vitamin D deficiency and how this relates to underactive thyroid . I read a lot here about how these vitamins should be optimal for
Before I spend my hard earned money on going to a private ENDO because the NHS is failing me I wanted to ask what you all thought about the problem of iron deficiency and vitamin D deficiency and how this relates to underactive thyroid . I read a lot here about how these vitamins should be optimal for
doingitfordad
in
Thyroid UK
9 months ago
Genuine NDT source please
I'm starting again slightly differently 🤭 Could people please pm me with their trusted sources of genuine NDT please? Usual story - I've had several clueless GPs, cant get a referral for love nor money as my results don't warrant it, tsh only of course because symptoms are put down to stress and a
I'm starting again slightly differently 🤭 Could people please pm me with their trusted sources of genuine NDT please? Usual story - I've had several clueless GPs, cant get a referral for love nor money as my results don't warrant it, tsh only of course because symptoms are put down to stress and a
Morbidmoggy
in
Thyroid UK
9 months ago
ADT (Lupron) and creatine?
57 yo Swede here. Diagnosed nine months ago 4+3. I am on Lupron after RALP (unclear margins) and 35 times ERBT. I do serious weight training and supplement with Whey protein. I am curious about creatine supplement. intake. Is it safe? I have not read anything against, but nothing that makes me feel totally
57 yo Swede here. Diagnosed nine months ago 4+3. I am on Lupron after RALP (unclear margins) and 35 times ERBT. I do serious weight training and supplement with Whey protein. I am curious about creatine supplement. intake. Is it safe? I have not read anything against, but nothing that makes me feel totally
Gs-rider
in
Advanced Prostate Cancer
9 months ago
Blood Test Results! Can Anyone Interpret?
I went for a routine blood test today & I've just had the results posted already! I've never been able to read blood results - can someone help me Please.I had my Thyroid fully removed in 2008. I was Poisoned by Thyroxin! I'm on T3 Only. Recently I've found I feel a lot better on NDT Only. Six weeks
I went for a routine blood test today & I've just had the results posted already! I've never been able to read blood results - can someone help me Please.I had my Thyroid fully removed in 2008. I was Poisoned by Thyroxin! I'm on T3 Only. Recently I've found I feel a lot better on NDT Only. Six weeks
Lily905
in
Thyroid UK
9 months ago
Hypofractionated SBRT for Prostate,local and distant nodes
Hi all I am happy with my MO and treatment at Kaiser, 3 months on Lupron then added abiraterone 1 month ago. Responsive PSA, started at 300, after 1 month 33 after 3 months 1. I’m oligometastatic with local and retropineal lymph nodes. 2nd opinion from UCSF Medical oncologist suggested I do prostate
Hi all I am happy with my MO and treatment at Kaiser, 3 months on Lupron then added abiraterone 1 month ago. Responsive PSA, started at 300, after 1 month 33 after 3 months 1. I’m oligometastatic with local and retropineal lymph nodes. 2nd opinion from UCSF Medical oncologist suggested I do prostate
pj1121
in
Advanced Prostate Cancer
9 months ago
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