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Tri modality conclusion end of ADT nervous
A long journey.. Lutron , bicalutamide .. from start last year in June .. brachytherapy.. in October… 15 booster LiNac in Dec/Jan .. doctor ..in Japan said can stop hormone treatment but he sort of front loaded the ADT before radiation 5 months.My second opinion initially said to embrace adjuvant ADT
A long journey.. Lutron , bicalutamide .. from start last year in June .. brachytherapy.. in October… 15 booster LiNac in Dec/Jan .. doctor ..in Japan said can stop hormone treatment but he sort of front loaded the ADT before radiation 5 months.My second opinion initially said to embrace adjuvant ADT
Yokohama2023
in
Advanced Prostate Cancer
4 months ago
Proton Treatment - When to start the ADT relative to simulation and CT of the prostate
I am talking to two radiologists who have a strong difference of opinion. One radiologist tells me I should start ADT two months before I do the space OAR, markers and simulation, and then start the radiation. Another doctor tells me I should start the ADT at the same time as I do the space OAR and simulation
I am talking to two radiologists who have a strong difference of opinion. One radiologist tells me I should start ADT two months before I do the space OAR, markers and simulation, and then start the radiation. Another doctor tells me I should start the ADT at the same time as I do the space OAR and simulation
CBRD
in
Advanced Prostate Cancer
4 months ago
NDT uk
Please can someone message me with how to get ndt without prescription in the uk. I’ve been suffering on levo for 12 years and have forgotten what the real me actually feels like it’s been so long. My bloods are in the normal range so my doctor has no concerns but I’m desperate for help. Thank you in
Please can someone message me with how to get ndt without prescription in the uk. I’ve been suffering on levo for 12 years and have forgotten what the real me actually feels like it’s been so long. My bloods are in the normal range so my doctor has no concerns but I’m desperate for help. Thank you in
ckdb
in
Thyroid UK
4 months ago
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N.D.T
Hi , it’s been a while since I posted ! After moving to the uk from the USA where I was prescribed I have been on a roller coaster journey of self medicating with NDT ! I was able to buy the same NDT from the USA until it was recalled and with many other brands . I have been taking the NDT Real Thyroid
Hi , it’s been a while since I posted ! After moving to the uk from the USA where I was prescribed I have been on a roller coaster journey of self medicating with NDT ! I was able to buy the same NDT from the USA until it was recalled and with many other brands . I have been taking the NDT Real Thyroid
Oliva1955
in
Thyroid UK
4 months ago
NDT to T3 & T4 - brands, and how to transition?
I'm wondering how to make the transition from NDT to T3 & T4, specifically how slowly is it best to go and which brands of T3 & T4 are most widely accepted/least likely to cause reactions? I'm assuming I would translate my current dose of 1.75 grain NDT into the equivalent T3 & T4 and start on that?
I'm wondering how to make the transition from NDT to T3 & T4, specifically how slowly is it best to go and which brands of T3 & T4 are most widely accepted/least likely to cause reactions? I'm assuming I would translate my current dose of 1.75 grain NDT into the equivalent T3 & T4 and start on that?
FoggyThinker
in
Thyroid UK
4 months ago
advice, thoughts please, feeling rather desperate?!
hi I only got one response to my recent post which was so kind but no feedback so am trying again as I’m a bit stumped. I’d hoped going on NDT would relieve fibro symptoms and generally help me feel better, and give me more energy, but despite latest test results I don’t feel that much different. Certainly
hi I only got one response to my recent post which was so kind but no feedback so am trying again as I’m a bit stumped. I’d hoped going on NDT would relieve fibro symptoms and generally help me feel better, and give me more energy, but despite latest test results I don’t feel that much different. Certainly
Starseed56
in
Thyroid UK
4 months ago
At what point for scan ?
Hi. Currently just had # 4 chemo. Live in Canada so PSMA has never been done . Bone scan and CT scan. I'm wondering at what point it would be good to get a scan ( they already said it would probably be a CT scan as that's all we have in my province and eventually another bone scan which He has to fly
Hi. Currently just had # 4 chemo. Live in Canada so PSMA has never been done . Bone scan and CT scan. I'm wondering at what point it would be good to get a scan ( they already said it would probably be a CT scan as that's all we have in my province and eventually another bone scan which He has to fly
positive-thinking
in
Advanced Prostate Cancer
4 months ago
Lupus and Radiotherapy
Hi everyone ; I have SLE and APS and take Warfarin ; this has been my situation for around 25 years. I was diagnosed with Prostate cancer around sixteen months ago and have been on Hormone therapy for fourteen months. I was offered Radiotherapy around nine months ago , but due to the possible side
Hi everyone ; I have SLE and APS and take Warfarin ; this has been my situation for around 25 years. I was diagnosed with Prostate cancer around sixteen months ago and have been on Hormone therapy for fourteen months. I was offered Radiotherapy around nine months ago , but due to the possible side
jamesroybuck
in
LUPUS UK
4 months ago
MO recommendations at Mayo, Moffitt?
Hello - After 7 months of ADT (Lupron/abi) my MOs are not offering anything but continuation until my PSA fails, so I'd like to network more; so please let me know whom you think are the best at these two places. Thanks in advance.
Hello - After 7 months of ADT (Lupron/abi) my MOs are not offering anything but continuation until my PSA fails, so I'd like to network more; so please let me know whom you think are the best at these two places. Thanks in advance.
jackwfrench
in
Advanced Prostate Cancer
4 months ago
Which Estrogen Patch dose to use?
This plot shows the median serum estrogen (E2) concentration (in pg/mL) versus total Weekly Estrogen patch dose (mg/wk) from five different references ranging from 2000 to 2019. The data set from Smith et. al (2019) is for castrate-resistant prostate cancer men (CRPC), who are not taking ADT. Overall
This plot shows the median serum estrogen (E2) concentration (in pg/mL) versus total Weekly Estrogen patch dose (mg/wk) from five different references ranging from 2000 to 2019. The data set from Smith et. al (2019) is for castrate-resistant prostate cancer men (CRPC), who are not taking ADT. Overall
janebob99
in
Prostate Cancer Network
4 months ago
Advice on hormonal treatment?
hi all, 10 days post-lap here. Unfortunately ended up losing my left ovary and tube - had 4 endometriomas on it, 1 of which was 8cm, and this was all adhered to my rectum. So the surgeon said it needed to come out. I’m waiting for a post-op appointment but the consultant said the endo will likely come
hi all, 10 days post-lap here. Unfortunately ended up losing my left ovary and tube - had 4 endometriomas on it, 1 of which was 8cm, and this was all adhered to my rectum. So the surgeon said it needed to come out. I’m waiting for a post-op appointment but the consultant said the endo will likely come
Apprentice_Hag
in
Endometriosis UK
4 months ago
Question in Preparation for pBAT
For those who have experience with BAT: I’m getting ready to start my first 30 day cycle of pBAT this week. But I have a concern about my high SHBG (sex hormone binding globulin) level, which is 79 nmol/L. With Eligard ADT in the background, my pBAT program calls for 8 injections of T propionate
For those who have experience with BAT: I’m getting ready to start my first 30 day cycle of pBAT this week. But I have a concern about my high SHBG (sex hormone binding globulin) level, which is 79 nmol/L. With Eligard ADT in the background, my pBAT program calls for 8 injections of T propionate
Ichthus316
in
Fight Prostate Cancer
4 months ago
Similar question to Ezzedine. PSA rising
March 19 I was diagnosed with Gleason 9 prostate cancer. PSA was 0.9 (it turns out I have a non secreting prostate. I had 37 sessions of EBRT and 3 years zoladex. Whilst under ADT and for 1 year after ADT conclusion my PSA was 0.01 (indecipherable) Then a year ago my PSA was 0.02, then 0.03 and last
March 19 I was diagnosed with Gleason 9 prostate cancer. PSA was 0.9 (it turns out I have a non secreting prostate. I had 37 sessions of EBRT and 3 years zoladex. Whilst under ADT and for 1 year after ADT conclusion my PSA was 0.01 (indecipherable) Then a year ago my PSA was 0.02, then 0.03 and last
arry4424
in
Prostate Cancer Network
4 months ago
Thyroid s
Hi all. I need to buy NDT. I was on erfa a while ago. When I take Levo, I get calf pain so can’t really take it. Thanks.
Hi all. I need to buy NDT. I was on erfa a while ago. When I take Levo, I get calf pain so can’t really take it. Thanks.
Lei9g
in
Thyroid UK
4 months ago
RT with ADT Relogolix (Orgovyx) vs Enzalutamide (Xtandi) Side Effect Differences?
There may not be a lot of people that can offer anecdotal reports on both as monotherapies but the reason I ask is some studies in the last 3 years are showing administration of Xtandi during Radiotherapy has shown outcomes as good as if not better than RT + ADT. https://www.sciencedirect.com/science
There may not be a lot of people that can offer anecdotal reports on both as monotherapies but the reason I ask is some studies in the last 3 years are showing administration of Xtandi during Radiotherapy has shown outcomes as good as if not better than RT + ADT. https://www.sciencedirect.com/science
jazj
in
Advanced Prostate Cancer
4 months ago
endocrinologist
hello Does anyone know of a good endocrinologist in the UK who’s open to prescribing NDT please? Reasonably priced with a holistic understanding of health. I’ve always had the thought that I might feel better on something else than levothyroxine only. Took NDT years ago and felt much better, also
hello Does anyone know of a good endocrinologist in the UK who’s open to prescribing NDT please? Reasonably priced with a holistic understanding of health. I’ve always had the thought that I might feel better on something else than levothyroxine only. Took NDT years ago and felt much better, also
Sonicfairydust
in
Thyroid UK
4 months ago
Is there such a thing as too fast of a recovery of T on iADT 🫨
After 2 years of ADT, I decided against continuing on that for life and to initiate iADT. Otherwise known as "taking a vacation".I am now 10 weeks without ADT, and my testosterone is already at 104. My questions this time are for others here who have had a similarly quick return of testosterone. I
After 2 years of ADT, I decided against continuing on that for life and to initiate iADT. Otherwise known as "taking a vacation".I am now 10 weeks without ADT, and my testosterone is already at 104. My questions this time are for others here who have had a similarly quick return of testosterone. I
Lewellen
in
Advanced Prostate Cancer
4 months ago
How many estrogen patches should I use?
I had a nice breakthrough today. 😀 I collected all of the available data on the number of estrogen patches that the studies have used, and plotted the measured serum estradiol level versus total milligrams of estrogen used every week. I was pleasantly surprised when all five of the data points
I had a nice breakthrough today. 😀 I collected all of the available data on the number of estrogen patches that the studies have used, and plotted the measured serum estradiol level versus total milligrams of estrogen used every week. I was pleasantly surprised when all five of the data points
janebob99
in
Advanced Prostate Cancer
4 months ago
How many estrogen patches to use?
I had a nice breakthrough today. 😀 I collected all of the available data on the number of estrogen patches that the studies have used, and plotted the measured serum estradiol level versus total milligrams of estrogen used every week. I was pleasantly surprised when all five of the data points
I had a nice breakthrough today. 😀 I collected all of the available data on the number of estrogen patches that the studies have used, and plotted the measured serum estradiol level versus total milligrams of estrogen used every week. I was pleasantly surprised when all five of the data points
janebob99
in
Prostate Cancer Network
4 months ago
How Off Would Blood Levels Be If Tested Without Fasting Beforehand?
Hiya. I would appreciate thoughts on this. This morning I had to go for an Inflammatory Marker Blood test for something which isn't related to thyroid issues. Unknown to me, my GP had requested a thyroid blood test anyway so I wasn't prepared by fasting from my meds the day before, and I took a multivitamin
Hiya. I would appreciate thoughts on this. This morning I had to go for an Inflammatory Marker Blood test for something which isn't related to thyroid issues. Unknown to me, my GP had requested a thyroid blood test anyway so I wasn't prepared by fasting from my meds the day before, and I took a multivitamin
MindfulMoments
in
Thyroid UK
4 months ago
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