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Mum with low grade ovarian and limited treatment options
Ladies, My Mum was diagnosed nearly seven years ago now with low grade ovarian cancer. Following 9 rounds of chemo (which never worked), she was prescribed Letrozole in 2011. This stopped working late last year and Mum was prescribed Tamoxifen which initially showed positive signs of keeping the cancer
Ladies, My Mum was diagnosed nearly seven years ago now with low grade ovarian cancer. Following 9 rounds of chemo (which never worked), she was prescribed Letrozole in 2011. This stopped working late last year and Mum was prescribed Tamoxifen which initially showed positive signs of keeping the cancer
CharlotteSo_UK
in
My Ovacome
7 years ago
CT Scan results
Saw my oncologist yesterday and he told me that it shows a few spots round my liver and pelvis area. He is keeping me on tamoxifen tablets for now, but putting me back on chemo later in the year. My ca125 as gone up again to 370. I see him again in four weeks time. So was feeling a bit down yesterday
Saw my oncologist yesterday and he told me that it shows a few spots round my liver and pelvis area. He is keeping me on tamoxifen tablets for now, but putting me back on chemo later in the year. My ca125 as gone up again to 370. I see him again in four weeks time. So was feeling a bit down yesterday
Juliette35
in
My Ovacome
7 years ago
New to Ibrance and Fulvestrant
Hi all! I am new here to the site. I was diagnosed Aug. 31 with Stage 4 MBC. I had Stage 1 Breast Cancer 3 years ago which was treated as a lumpectomy and radiation, no chemo. I am still in shock how this could happen, but I am trying my hardest to research and stay positive. I was on Letrozole
Hi all! I am new here to the site. I was diagnosed Aug. 31 with Stage 4 MBC. I had Stage 1 Breast Cancer 3 years ago which was treated as a lumpectomy and radiation, no chemo. I am still in shock how this could happen, but I am trying my hardest to research and stay positive. I was on Letrozole
jstickrod
in
SHARE Metastatic Breast Cancer
7 years ago
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have i got endometriosis
hi there im new to this so bare with me..... for the past year my periods have got heavier and ive been exhausted wanting to sleep a lot back pain also been to the doc about back pain which they have refered me for physio.... doc told me to just keep an eye on it.... ( i had breast cancer in 2015 and
hi there im new to this so bare with me..... for the past year my periods have got heavier and ive been exhausted wanting to sleep a lot back pain also been to the doc about back pain which they have refered me for physio.... doc told me to just keep an eye on it.... ( i had breast cancer in 2015 and
Ke11yey
in
Endometriosis UK
7 years ago
Loss of toe nails
Hi ladies I haven't posted for a while, I have been on Tamoxifen for 4 years, I have all the symptoms ie sore bones / joints /hot flushes / awful sleepless nights/ I have a new problem 2 toe nails of each foot have fell off strange thing is its the same toes on each foot, has anyone else had this
Hi ladies I haven't posted for a while, I have been on Tamoxifen for 4 years, I have all the symptoms ie sore bones / joints /hot flushes / awful sleepless nights/ I have a new problem 2 toe nails of each foot have fell off strange thing is its the same toes on each foot, has anyone else had this
Surviver
in
My Breast Cancer Community
7 years ago
Viewpoint from across the pond
Hi, new here I'm finding the posts very interesting. I was diagnosed with Hashimoto's spring 2016. It started almost immediately after finishing radiation treatment for breast cancer. I've read a lot, and realize the radiation was probably the trigger. Or even the hormones involved in the cancer. Many
Hi, new here I'm finding the posts very interesting. I was diagnosed with Hashimoto's spring 2016. It started almost immediately after finishing radiation treatment for breast cancer. I've read a lot, and realize the radiation was probably the trigger. Or even the hormones involved in the cancer. Many
pritchard40
in
Thyroid UK
7 years ago
Finished treatment and feeling worthless
Hello Ladies A couple of months ago I finished a rollercoaster year of treatment - full mastectomy, chemo, lymph node removal, radiotherapy - and I've just started tamoxifen (10 years). It sounds mad but after the celebrations of finishing it all when I was on a real high, and just when I thought I'd
Hello Ladies A couple of months ago I finished a rollercoaster year of treatment - full mastectomy, chemo, lymph node removal, radiotherapy - and I've just started tamoxifen (10 years). It sounds mad but after the celebrations of finishing it all when I was on a real high, and just when I thought I'd
sashbash
in
My Breast Cancer Community
7 years ago
A little bit of a treatment break
I have been on the LOGS trial for recurrent low grade serous since Feb 2017. My initial response has been very encouraging first off my back pain disappeared, CA125 went down and there was some shrinkage. More recently my CA125 has started to increase and last CT showed a new small site. I have had
I have been on the LOGS trial for recurrent low grade serous since Feb 2017. My initial response has been very encouraging first off my back pain disappeared, CA125 went down and there was some shrinkage. More recently my CA125 has started to increase and last CT showed a new small site. I have had
ScardyCat40
in
My Ovacome
7 years ago
New to site, advice please.
Hi......I recently discovered this site and wanted to say how pleased I have. It is so useful to have advice from those in similar situation and is very reassuring to read some good news stories. Most of all everyone is so incredibly supportive. I am 43 and was diagnosed with stage 3c oca & had extensive
Hi......I recently discovered this site and wanted to say how pleased I have. It is so useful to have advice from those in similar situation and is very reassuring to read some good news stories. Most of all everyone is so incredibly supportive. I am 43 and was diagnosed with stage 3c oca & had extensive
Jo-Jo1-UK
in
My Ovacome
7 years ago
Lobsided tummy
Hi everyone, does tamoxifen put weight on, only asking because since I have been on these tablets I have put weight on round my bum and tummy. Also one side of my tum is slightly bigger than the other. Also put weight on, on my legs. I don't have any pain, I am having ct scan next Tuesday, but just wondering
Hi everyone, does tamoxifen put weight on, only asking because since I have been on these tablets I have put weight on round my bum and tummy. Also one side of my tum is slightly bigger than the other. Also put weight on, on my legs. I don't have any pain, I am having ct scan next Tuesday, but just wondering
Juliette35
in
My Ovacome
7 years ago
Response to hot flashes and chills
Hi there! I'm currently taking tamoxifen and luprin as hormone therapy for my metastatic breast cancer. I don't really have a solution but I do experience the same symptoms. I feel as though they seem to worsen with stress. For me, these symptoms and side effect are so much better to deal with than
Hi there! I'm currently taking tamoxifen and luprin as hormone therapy for my metastatic breast cancer. I don't really have a solution but I do experience the same symptoms. I feel as though they seem to worsen with stress. For me, these symptoms and side effect are so much better to deal with than
lynzer
in
SHARE Metastatic Breast Cancer
7 years ago
Metastatic BC
I'm 34 years old pre-menopausal mother of 2 kids and was diagnosed with metastatic breast cancer(stage IV) on initial diagnosis, with mets to Lungs, Liver and Bones. The biopsy indicated HER2 3+, PR-negative, ER-poor. I have undergone 6 cycles of TCHP(chemo+canmab+perjeta) and two cycles of canmab
I'm 34 years old pre-menopausal mother of 2 kids and was diagnosed with metastatic breast cancer(stage IV) on initial diagnosis, with mets to Lungs, Liver and Bones. The biopsy indicated HER2 3+, PR-negative, ER-poor. I have undergone 6 cycles of TCHP(chemo+canmab+perjeta) and two cycles of canmab
mbcfrom2017
in
Breast Cancer India
7 years ago
New to group
Hello. My name is Geri. I am a soon to be 64 year old female. I had breast cancer in 1997 and had a lumpectomy, radiation, and chemo. Seven out of 25 lymph nodes we're cancerous at that time. I was in a clinical study for tamoxifen at that time. For two years prior to MBC diagnosis I thought I had
Hello. My name is Geri. I am a soon to be 64 year old female. I had breast cancer in 1997 and had a lumpectomy, radiation, and chemo. Seven out of 25 lymph nodes we're cancerous at that time. I was in a clinical study for tamoxifen at that time. For two years prior to MBC diagnosis I thought I had
gerisplace
in
SHARE Metastatic Breast Cancer
7 years ago
New to this site.
Hello, I wanted to share my story so that it may help someone here. My diagnosis was confirmed 12/10 two days before Christmas. Originally was stage II, had a lumpectomy, one positive lymph node, then another surgery to get clean margins. Before starting treatment I had a scan and they found a small
Hello, I wanted to share my story so that it may help someone here. My diagnosis was confirmed 12/10 two days before Christmas. Originally was stage II, had a lumpectomy, one positive lymph node, then another surgery to get clean margins. Before starting treatment I had a scan and they found a small
Slow4417
in
SHARE Metastatic Breast Cancer
7 years ago
Good News thank you for your support
Hello ladies A month ago I wrote that I was scared as my first annual check up was approaching Last year I underwent a lumpectomy, radiotherapy and have been taking tamoxifen Last week I had my mammogram and after a tense week waiting for the results yesterday I saw my oncologist As far as she is concerned
Hello ladies A month ago I wrote that I was scared as my first annual check up was approaching Last year I underwent a lumpectomy, radiotherapy and have been taking tamoxifen Last week I had my mammogram and after a tense week waiting for the results yesterday I saw my oncologist As far as she is concerned
lizzyHZ
in
My Breast Cancer Community
7 years ago
Terrrible aches in legs
Hi there. After 5 years on Tamoxifen, and being 55 now post-menopausal, I switched to Anastrozole a few months ago together with Alendronic Acid (as I found out I also had osteoporosis). I was initially really pleased not have that unpleasant 'simmering' feeling I endured throughout the 5 years on Tamoxifen
Hi there. After 5 years on Tamoxifen, and being 55 now post-menopausal, I switched to Anastrozole a few months ago together with Alendronic Acid (as I found out I also had osteoporosis). I was initially really pleased not have that unpleasant 'simmering' feeling I endured throughout the 5 years on Tamoxifen
blue_sky1
in
My Breast Cancer Community
7 years ago
Anyone here taking Raloxifene?
Research, research, research. I'm not currently forcing myself to take hormone therapy - as research seems to only be "within one year" - not the within "6 wks" that my doc suggested. Hmm. Why 6 wks? After 6 wks (post chemo, post radiation), we start to feel "normal" and may choose to NOT take any
Research, research, research. I'm not currently forcing myself to take hormone therapy - as research seems to only be "within one year" - not the within "6 wks" that my doc suggested. Hmm. Why 6 wks? After 6 wks (post chemo, post radiation), we start to feel "normal" and may choose to NOT take any
Lula16
in
My Breast Cancer Community
7 years ago
Metastatic breast cancer and Ovarian cancet
My mom was diagnosed with metastatic breast cancer to bones in 2014 and was taking tamoxifen . She then had a new primary ovarian cancer in 2015 for which she had surgery IP chemo and IV chemo. Her cancet has now progressed all the bone leison has increased in size and there are new leison in her liver
My mom was diagnosed with metastatic breast cancer to bones in 2014 and was taking tamoxifen . She then had a new primary ovarian cancer in 2015 for which she had surgery IP chemo and IV chemo. Her cancet has now progressed all the bone leison has increased in size and there are new leison in her liver
checddd
in
Breast Cancer India
7 years ago
Hi everyone, I'm new here
Here's a little about me. Been trying for a baby for over 3 years now, I was diagnosed with PCOS and was put on tamoxifen to help ovulation. Just been through 3 goes of IUI just waiting to see if last go has worked but not feeling very positive. Next step is ivf so just wanted to see if anyone else has
Here's a little about me. Been trying for a baby for over 3 years now, I was diagnosed with PCOS and was put on tamoxifen to help ovulation. Just been through 3 goes of IUI just waiting to see if last go has worked but not feeling very positive. Next step is ivf so just wanted to see if anyone else has
Crabapple_88
in
Fertility Network UK
7 years ago
Tamoxifen and flying?
Haha, just realised you might all think I'm going to discuss a new side effect of tamoxifen from my title!! sorry its not so exciting. Im going on a 4.5 hour flight in 10 days and wondered if anyone had any experience of airports i.e tamoxifen or whether you were advised to stop taking it before you
Haha, just realised you might all think I'm going to discuss a new side effect of tamoxifen from my title!! sorry its not so exciting. Im going on a 4.5 hour flight in 10 days and wondered if anyone had any experience of airports i.e tamoxifen or whether you were advised to stop taking it before you
Hidden
in
My Breast Cancer Community
7 years ago
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