Experiences with

Tamofen

hi there I have just finished 2 years on piqray plus Fulvestrant injections which were not easy, starting with severe rash and ending with osteonecrosis of the jaw plus never ending diarrhoea in between! So quite glad to be leaving it behind but the question is what to go onto next? Due to progression

Hi- I have been on Tamoxifen for five years- because I had a history of UTIs when I was much younger and was worried about the effects of tamoxifen on bladder and vagina I used local low dose estrogen -Estring or Vagifem depending on what was available - apparently this very localized dose doesn’t affect

I have been on tamoxifen for 7 and a half years now but for some reason for the last 4-5 years I get lots of UTI’s which are unpleasant and painful. My GP and oncologist say it is not related to tamoxifen but I wonder if it is as it blocks the estrogen and decreased estrogen can lead to bladder and

Diagnosis HG3C Ovarian cancer October 2020. Usual combo 3 chemo before debulking 3 after. Some other chemo after that. Then put on Tamoxifen. All well for a while then relapse so back on chemo and then on a drug targeted therapy called Rubraca, that's the short name for it. Was on and off it because

hello, I’m in the UK. Have been on tamoxifen for 6 years after mastectomy, chemo and radiotherapy. I've still not had my 5th year follow up with the oncologist, when I call them they just say “sorry no capacity”. Anyway long story short i came off tamoxifen about 3 months ago as i didn't want to just

Hi I'm new. I had breast cancer in 2011. After the op I had 6 rounds of TAC chemo which included the red devil and had steroids then ten years of tamoxifen then letrozole hormone tablets. A few years ago I had a dexi scan and thought nothing of it. However my GP has recently referred me for another

Hello all, I hope you’re doing well today. I’m about to change medication again. Do any of you know the complete list of estrogen blocker pills or shots that are available? My onc wants me to go on a trial because she says I’ve used them all, but I want to make sure that I really have. I’ve used Faslodex

Hello, I need some help please. I have recently had a couple of bouts of Atrial Fibrillation, May and July. My GP registrar wrote to the endocrinology team to ask for advise because my TSH was 0.02. The endo (who I have never met) has written back and said to halve my dose of T3 from 20mcg to 10mcg

I have a question for tamoxifen users. Not a big deal but I am curious. I am 76 and have been on tamoxifen for a year and a half. I have gray hair - quite long. The hair is thinning but my curiosity is about my hair darkening. It is turning a dark brunette. Just seems kind of weird. Anyone else had that

A sincere thank you to all who responded to my wife’s situation. Your caring and thoughtful answers are greatly appreciated. We saw her oncologist today. She has pathologic fractures of the sternum and one rib. It seems not much can be done other than rest and time to heal. I did request that he consult

Hi everyone, I'm a high school student working on an exciting project to develop an app that provides personalized medication reviews for Tamoxifen. This app will help users understand how Tamoxifen works for people with similar demographics (gender, ethnicity, weight, age). Why Your Input Matters

Am 55 started Tamoxifen a month ago - how are you coping with hot flushes and sexual dysfunctions ? Thanks

Dear Ladies, My worst nightmare came true. I had some indications on CT scan already in January, that something is cooking. In June CA125 was increased to 100 and another scan was done that confirmed more activity incl some new ascites in abdomen and 1,5 cm hyperdensity in liver. We were then a

[i]This recent research paper in Nature is potentially ground-breaking for the understanding of essential mechanisms involved with bone health. It's findings are related to hormonal changes during the start of mid-pregnancy lactation and early newborn nurturing that could possibly lay the foundation

This is an honest question, looking for honest answers - and not judgement. Has anyone considered/actually got clomid or tamoxifen out of desperation from a source other than a clinic? and if you did, did it work and did you have any ill affects from it? I know all the risks of buying online but I

Started transdermal estradiol (0.0375 mg) in November 2023 to counter negative effects of ADT (relugolix and abiraterone) on bone density. Increased the estradiol to 0.075 mg in January 2024 which accelerated my gynecomastia. I asked my MO about using transdermal tamoxifen along with the estradiol to

Seen tthe Oncologist My lump has grown it's now 22mm so the tamoxifen wasn't doing its work. So we are going to try another drug called anastrozole, for two months then back to the Oncologist to see if it worked if it hasn't then look at other options. The tamoxifen has been stopped.

I had my ovaries removed in February 2020 via laparoscopy. I had had laparascopic diathermy and laser treatment for endometriosis in my 20s and 30s, but eventually taking the progesterone only pill meant I had no periods at all which was a massive result for me and I took them until I was 52. Unfortunately

Hi dear ladies, I had CA125 check after 2,5 months and it jumped from 12 to 88 (since debulking surgery in April 2023, it was max 8). I had some minor abnormalities in my scan in Jan. I was so hoping for good news but CA 125 of 88 left me speechless at my oncologist office :( I had CT scan and new

The Oncologist examined me and has decided to send me for a scan to see if the lump has gotten any bigger. If so it could mean Surgery Radiotherapy or drugs, if its shrinking to stay on Tamoxifen and he would see me in months. So I'm just waiting for appointments at the moment Gordon (Redier)