Search
Search
About
Log in
Join
Experiences with
Takayasu arteritis
Posts
Communities
4,939 public posts
Filter results
Psoriatic Arthritis, Light bulb moment ๐ก or not?
Hi :) I have suffered with plaque Psoriasis since the age of 12 (onset = Trauma related due to being hit by a car at that age & fracturing my pelvis ) (im now 50 years old) My skin Psoriasis has very fortunately been under control for over a year now, since finding out I was vitD deficient & treatment
Hi :) I have suffered with plaque Psoriasis since the age of 12 (onset = Trauma related due to being hit by a car at that age & fracturing my pelvis ) (im now 50 years old) My skin Psoriasis has very fortunately been under control for over a year now, since finding out I was vitD deficient & treatment
Flora_Fauna
in
Beyond Psoriasis
1 year ago
omega 3 supplement and methotrexate
Hello to you all . I am newly diagnosed with rheumatoid arthritis and am due to start methotrexate in a couple of days. I am a vegetarian and take an omega 3 supplement. Will it be a problem taking the omega 3 supplement and methotrexate? Any advice much appreciated and thanks.
Hello to you all . I am newly diagnosed with rheumatoid arthritis and am due to start methotrexate in a couple of days. I am a vegetarian and take an omega 3 supplement. Will it be a problem taking the omega 3 supplement and methotrexate? Any advice much appreciated and thanks.
Syniad
in
PMRGCAuk
1 year ago
Hot flashes?
Am having ever more hot flashes and sweating around my neck over last several months. Could it be the steroids? In the distant past, was relying on welbutrin for depression but got hot flashes and changed to escatolepram. In the last few years I started taking a small dose of welbutrin in addition
Am having ever more hot flashes and sweating around my neck over last several months. Could it be the steroids? In the distant past, was relying on welbutrin for depression but got hot flashes and changed to escatolepram. In the last few years I started taking a small dose of welbutrin in addition
Merryfield
in
PMRGCAuk
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Can you 'demand' Tocilizumab for GCA?
I was diagnosed with PMR in January 23, responded well to steroids (15mg) but quickly developed GCA symptoms (severe headache pain, blurred vision and jaw claudication) when these were reduced to 12.5mg after 3 weeks and 'normal' CRP/ESR tests. I was referred to Ambulatory care but an ultrasound showed
I was diagnosed with PMR in January 23, responded well to steroids (15mg) but quickly developed GCA symptoms (severe headache pain, blurred vision and jaw claudication) when these were reduced to 12.5mg after 3 weeks and 'normal' CRP/ESR tests. I was referred to Ambulatory care but an ultrasound showed
tweety_pie
in
PMRGCAuk
1 year ago
Tocilizumab
Hi. Has anyone had Tocilizumab injections for pmr? I've been looking at recent research which seems to suggest favourable outcomes for pmr sufferers who have problems tapering prednisolone.
Hi. Has anyone had Tocilizumab injections for pmr? I've been looking at recent research which seems to suggest favourable outcomes for pmr sufferers who have problems tapering prednisolone.
BlueMozart
in
PMRGCAuk
1 year ago
NRAS Live: The importance of exercise when living with inflammatory arthritis
Tune in on tomorrow at 7pm and join Clare Jacklin (NRAS CEO), Will Gregory (Consultant Physiotherapist and Clinical Governance Lead Rheumatology Directorate) in conversation with Jess Swallow, Ayesha Ahmad, Ailsa Bosworth and Katy Pieris who will all share their experiences of exercise while living
Tune in on tomorrow at 7pm and join Clare Jacklin (NRAS CEO), Will Gregory (Consultant Physiotherapist and Clinical Governance Lead Rheumatology Directorate) in conversation with Jess Swallow, Ayesha Ahmad, Ailsa Bosworth and Katy Pieris who will all share their experiences of exercise while living
Aribah-NRAS
NRAS
in
NRAS
1 year ago
Was I wise
Currently on 3.5mg. Rheumatoid arthritis has shown itself in both hands and is very painful. GP said 'I could give you a steroid injection but I don't expect you want that'. I said not - the word 'steroid' frightened me as I am afraid it will be play havoc with the Pred. Was I right to reject his offer
Currently on 3.5mg. Rheumatoid arthritis has shown itself in both hands and is very painful. GP said 'I could give you a steroid injection but I don't expect you want that'. I said not - the word 'steroid' frightened me as I am afraid it will be play havoc with the Pred. Was I right to reject his offer
ChinaWuntoo
in
PMRGCAuk
1 year ago
Palindromic Rheumatoid Arthritis
Hi. New to the site. I am now of pension age and have had Palindromic Rheumatoid Arthritis for over 30 years and never come across anyone else with it. Is there anyone out there with the same condition Cheers 35395
Hi. New to the site. I am now of pension age and have had Palindromic Rheumatoid Arthritis for over 30 years and never come across anyone else with it. Is there anyone out there with the same condition Cheers 35395
35395
in
NRAS
1 year ago
Polymyligia rheaumatica
Started with P MR in December started treatment with 30mgs of prednisalone January ,then dropped down to 20mg prednisalone, then 15mg, this is when I saw consultant who asked me to drop prednisalone by 2 and a half every three weeks tried this ,I couldn't to painful so I've dropped it by one ,I am now
Started with P MR in December started treatment with 30mgs of prednisalone January ,then dropped down to 20mg prednisalone, then 15mg, this is when I saw consultant who asked me to drop prednisalone by 2 and a half every three weeks tried this ,I couldn't to painful so I've dropped it by one ,I am now
Alice70
in
PMRGCAuk
1 year ago
5 talented performers with RA
As Award season comes to a close, we wanted to praise 5 amazing performers who have been transparent and open about their Rheumatoid Arthritis diagnosis๐ Read our latest blog post ๐ https://nras.org.uk/resource/5-talented-performers-with-ra/
As Award season comes to a close, we wanted to praise 5 amazing performers who have been transparent and open about their Rheumatoid Arthritis diagnosis๐ Read our latest blog post ๐ https://nras.org.uk/resource/5-talented-performers-with-ra/
Aribah-NRAS
NRAS
in
NRAS
1 year ago
Strange sensation.
I have various spinal problems including arthritis, spondylolisthesis and spinal stenosis. A few days ago I started experiencing a feeling like a heart beat in my lower back .This is becoming more frequent.Has anyone else experienced this and what was the cause?
I have various spinal problems including arthritis, spondylolisthesis and spinal stenosis. A few days ago I started experiencing a feeling like a heart beat in my lower back .This is becoming more frequent.Has anyone else experienced this and what was the cause?
stormcloud
in
Arthritis Action
1 year ago
Arthritis friendly carseat??
I'm in need of a car seat that I can unclip easily. I have zero strength or grip in my hands now and unclipping a car seat is difficult and I'm finding myself avoiding going out. My child is 2. Anyone know of any arthritis friendly car seats please?
I'm in need of a car seat that I can unclip easily. I have zero strength or grip in my hands now and unclipping a car seat is difficult and I'm finding myself avoiding going out. My child is 2. Anyone know of any arthritis friendly car seats please?
RAat13
in
NRAS
1 year ago
i am here to help arthritis end
i here have arthritis bad case can people give me advice tanku ๐๐๐๐๐คช๐คช๐๐๐๐ฎ๐๐๐ต๐ค ๐ฅณ๐๐๏ธ๐ ๐๏ธ๐ต๐ฑโโ๏ธ๐จโ๐ฆฒ๐ฉโ๐ฆฐ๐ฆธ๐ง๐ณโโ๏ธ๐ฆธโโ๏ธ๐งโโ๏ธ๐ง๐จโ๐ฆฏ๐งโโ๏ธ๐คนโโ๏ธ๐ฉโโค๏ธโ๐ฉ๐จโโค๏ธโ๐จ๐ช๐ฉโโค๏ธโ๐โ๐จ๐ตโโ๏ธ๐ฏ๏ธ๐ฏ๐๐๐๐ฆ๐๐๏ธ๐ ๐ฝ๐ฃ๐๐๐๐๐๐๏ธ๐๐งง๐งง๐พ๐ ๐ฆ๐ผ๐ฝ๐ฌ๐๏ธ๐งญ๐๐๐๐ ๐๐๐ฆฝ๐๐๐ช๐๐๐ ๐๐ฆผ๐๐๐ฃ๐ โ๏ธ๐๐๐ง๐๐ง๐ช๏ธ
i here have arthritis bad case can people give me advice tanku ๐๐๐๐๐คช๐คช๐๐๐๐ฎ๐๐๐ต๐ค ๐ฅณ๐๐๏ธ๐ ๐๏ธ๐ต๐ฑโโ๏ธ๐จโ๐ฆฒ๐ฉโ๐ฆฐ๐ฆธ๐ง๐ณโโ๏ธ๐ฆธโโ๏ธ๐งโโ๏ธ๐ง๐จโ๐ฆฏ๐งโโ๏ธ๐คนโโ๏ธ๐ฉโโค๏ธโ๐ฉ๐จโโค๏ธโ๐จ๐ช๐ฉโโค๏ธโ๐โ๐จ๐ตโโ๏ธ๐ฏ๏ธ๐ฏ๐๐๐๐ฆ๐๐๏ธ๐ ๐ฝ๐ฃ๐๐๐๐๐๐๏ธ๐๐งง๐งง๐พ๐ ๐ฆ๐ผ๐ฝ๐ฌ๐๏ธ๐งญ๐๐๐๐ ๐๐๐ฆฝ๐๐๐ช๐๐๐ ๐๐ฆผ๐๐๐ฃ๐ โ๏ธ๐๐๐ง๐๐ง๐ช๏ธ
laladays
in
Arthritis Action
1 year ago
Can I take naproxen short term while on low dose of methotrexate?
I have inflammatory arthritis. After a recent virus I have very painful hip joints.I am on 15mg methotrexate weekly Can I take naproxen short term to help with inflammation? My ESR reading is high
I have inflammatory arthritis. After a recent virus I have very painful hip joints.I am on 15mg methotrexate weekly Can I take naproxen short term to help with inflammation? My ESR reading is high
Argyle103
in
NRAS
1 year ago
Pain and rheumatoid arthritis
Has anyone had a stiff neck wih rheumatoid arthritis for the last week my neck has been stiff at the moment I have a flare in my hands and shoulders,
Has anyone had a stiff neck wih rheumatoid arthritis for the last week my neck has been stiff at the moment I have a flare in my hands and shoulders,
Indersisive71
in
NRAS
1 year ago
Very sore and swollen hands. Is it possible I now have rheumatoid arthritis?
Hello ๐ ๐ I have really sore hands. Particularly thumb/wrist joint on both hands and swollen little finger on right hand. Three or four finger joint too. My GP has done blood tests over several years and said it Osteoarthritis, not rheumatoid. Over the past 3 months I have had a couple of episodes
Hello ๐ ๐ I have really sore hands. Particularly thumb/wrist joint on both hands and swollen little finger on right hand. Three or four finger joint too. My GP has done blood tests over several years and said it Osteoarthritis, not rheumatoid. Over the past 3 months I have had a couple of episodes
W3ndy2159
in
NRAS
1 year ago
Versus arthritis leaflet on steroids and PMR
I picked up a leaflet/booklet from Versus Arthritis about Steroid tablets in a hospital the other day and I think it would be useful particularly to those new to PMR/taking steroids. An updated new version is available free to download or you can order a free paper copy from them via their website.
I picked up a leaflet/booklet from Versus Arthritis about Steroid tablets in a hospital the other day and I think it would be useful particularly to those new to PMR/taking steroids. An updated new version is available free to download or you can order a free paper copy from them via their website.
tangocharlie
in
PMRGCAuk
1 year ago
help please ๐
how do u deal with fatigue i have no energy and rheumatologist is more interested in blaming it on everything but rheumatoid
how do u deal with fatigue i have no energy and rheumatologist is more interested in blaming it on everything but rheumatoid
Hidden
in
NRAS
1 year ago
No Rheumatologist currently available ๐
Bit of a rant but need to get it off my chest . You couldnโt believe what I was told when I called my help line to ask for advice after a major flare up , ( both my knees where so swollen I couldnโt walk ) , firstly the help line is now closed permanently and e-mail is the only contact method I have
Bit of a rant but need to get it off my chest . You couldnโt believe what I was told when I called my help line to ask for advice after a major flare up , ( both my knees where so swollen I couldnโt walk ) , firstly the help line is now closed permanently and e-mail is the only contact method I have
Gaz227
in
PMRGCAuk
1 year ago
Free webinar Mon 20th at 2pm - 3.30pm -Promise of Personalised Medicine for RA
Join a patient-focused online talk by Professor Costantino Pitzalis about the exciting new research at EMR! The New 3TR Trials - The Promise of Personalised Medicine for Rheumatoid Arthritis; Mon 20th Mar 2023 2-3.30pm (UK time) https://eventbrite.co.uk/.../the-new-3tr-trials-the... #PrecisionMedicine
Join a patient-focused online talk by Professor Costantino Pitzalis about the exciting new research at EMR! The New 3TR Trials - The Promise of Personalised Medicine for Rheumatoid Arthritis; Mon 20th Mar 2023 2-3.30pm (UK time) https://eventbrite.co.uk/.../the-new-3tr-trials-the... #PrecisionMedicine
Clare-NRAS
NRAS
in
NRAS
1 year ago
1
...
21
22
23
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
NRAS
1916 results
PMRGCAuk
580 results
Arthritis Action
515 results
View top 10 communities
Sort by
Most Relevant
Newest