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Update- I no longer take Dipyridamole
I have been meaning to update the group on this. I have stopped taking Dipyridamole for over a month now, closer to two months. I took Dipyridamole for two years. I was nearing the end of my Dipyridamole supply. I was wondering how much it was helping. So I stopped abruptly. Since then I have
I have been meaning to update the group on this. I have stopped taking Dipyridamole for over a month now, closer to two months. I took Dipyridamole for two years. I was nearing the end of my Dipyridamole supply. I was wondering how much it was helping. So I stopped abruptly. Since then I have
WideBody
in
Restless Legs Syndrome
8 months ago
reaction to Spikevax XBB 1.5Moderna
Just want to share that I had the above covid booster on Thursday (2nd May) and it appears to have triggered a lupus flare (in my case, rash, aching joints, splitting headache, extreme fatigue). I normally take prednisolone when I have a flare but feel it would be counter productive to what the vaccination
Just want to share that I had the above covid booster on Thursday (2nd May) and it appears to have triggered a lupus flare (in my case, rash, aching joints, splitting headache, extreme fatigue). I normally take prednisolone when I have a flare but feel it would be counter productive to what the vaccination
Larks0ng
in
LUPUS UK
17 hours ago
Shingles vaccine
Just got a phone call from GP booking me in for my shingles vaccine as I fit the criteria.Has anyone had any experience of the jab. Do I need to ask Rheumatology about changing my tcz infusion times . Thanks , I not after medical advice just whether you personally had to adjust your drip timings. I
Just got a phone call from GP booking me in for my shingles vaccine as I fit the criteria.Has anyone had any experience of the jab. Do I need to ask Rheumatology about changing my tcz infusion times . Thanks , I not after medical advice just whether you personally had to adjust your drip timings. I
allanah
in
NRAS
4 days ago
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do I need the spring Covid shot?
I have had 7 covid shots since the start of Covid. On October 10 of 2023 I received the Moderna bivalent booster, as well as the flu shot and RSV shot. I came down with Covid, for the second time, on March 20 of 2024. First time was April of 2022, I am doing fine now. My wife tells me she received
I have had 7 covid shots since the start of Covid. On October 10 of 2023 I received the Moderna bivalent booster, as well as the flu shot and RSV shot. I came down with Covid, for the second time, on March 20 of 2024. First time was April of 2022, I am doing fine now. My wife tells me she received
Claybuster
in
CLL Support
5 days ago
Shingles vaccine and atrial fibrillation
Hi, My GP is recommending shingles vaccine. I am just concerned if it will cause atrial fibrillation. Any one had shingles vaccines with no adverse effects like atrial fibrillationThanks Padma
Hi, My GP is recommending shingles vaccine. I am just concerned if it will cause atrial fibrillation. Any one had shingles vaccines with no adverse effects like atrial fibrillationThanks Padma
Poluneeru
in
Atrial Fibrillation Support
1 month ago
Influenza A while on W & W,-- the price for not wanting a vaccine
I decided to put my pride and lack of articulate writing skills aside to share a my learning experience . It was in Jan of 23 when I was told over the phone of my CLL Dx. I walked around in a panicky daze. First I went to Mr Google. (BIG MISTAKE !) I started clearing out the house and giving things
I decided to put my pride and lack of articulate writing skills aside to share a my learning experience . It was in Jan of 23 when I was told over the phone of my CLL Dx. I walked around in a panicky daze. First I went to Mr Google. (BIG MISTAKE !) I started clearing out the house and giving things
Sillysand
in
CLL Support
1 month ago
Flu shot debate, I've noticed a decline
My mom is 94 and a sibling took her for a flu shot without my knowledge. I then visited my mom about 10 days later and noticed her blood pressure was up to 198, even while lying down. I took her to immediate care where they brought it down but it continues to stay higher than usual and the cardiologist
My mom is 94 and a sibling took her for a flu shot without my knowledge. I then visited my mom about 10 days later and noticed her blood pressure was up to 198, even while lying down. I took her to immediate care where they brought it down but it continues to stay higher than usual and the cardiologist
GooseEggs
in
Atrial Fibrillation Support
2 months ago
Covid vaccines cut risk of virus-related heart failure and blood clots, study finds
Covid vaccines cut risk of virus-related heart failure and blood clots, study finds https://www.theguardian.com/science/2024/mar/12/covid-vaccines-cut-risk-virus-related-heart-failure-blood-clots-study Researchers say jabs substantially reduce for up to a year the chances of serious cardiovascular complications
Covid vaccines cut risk of virus-related heart failure and blood clots, study finds https://www.theguardian.com/science/2024/mar/12/covid-vaccines-cut-risk-virus-related-heart-failure-blood-clots-study Researchers say jabs substantially reduce for up to a year the chances of serious cardiovascular complications
lankisterguy
Volunteer
in
CLL Support
2 months ago
pneumonia vaccination
I have been told to get my pneumonia jab , i’m not worried about sore arm, but i’m just a bit concerned i might feel poorly after. I didn’t feel poorly after my flu jab or covid booster. Any reassurance would be appreciated. Thank you.
I have been told to get my pneumonia jab , i’m not worried about sore arm, but i’m just a bit concerned i might feel poorly after. I didn’t feel poorly after my flu jab or covid booster. Any reassurance would be appreciated. Thank you.
Collie4
in
Lung Conditions Community Forum
2 months ago
Waiting time after initial diagnosis
HiHow long on average is the wait after GP referral to Cardiology department? Was diagnosed in Sept 2023 whilst attending a flu jab appointment. Have not heard anything since, have tried chasing the hospital but unable to speak to anyone. TIA
HiHow long on average is the wait after GP referral to Cardiology department? Was diagnosed in Sept 2023 whilst attending a flu jab appointment. Have not heard anything since, have tried chasing the hospital but unable to speak to anyone. TIA
Maxted
in
British Heart Foundation
3 months ago
Skin Rash
Can receiving Covid-19 and Flu vaccines at the same time be a cause of skin rash for CLL patient? (I remember reading something in that effect last fall). I would appreciate your input. thanks
Can receiving Covid-19 and Flu vaccines at the same time be a cause of skin rash for CLL patient? (I remember reading something in that effect last fall). I would appreciate your input. thanks
Champlain
in
CLL Support
3 months ago
Started my grandmother on TTFD
I am my grandmother's primary care taker. I recently learned about HDT and decided to try it on her. Every morning I videotape her eating, which I will use to see if her condition gets better or worse over time. She is 87, having parkinson's for at least 25 years. In the last year her on-state dyskinesia
I am my grandmother's primary care taker. I recently learned about HDT and decided to try it on her. Every morning I videotape her eating, which I will use to see if her condition gets better or worse over time. She is 87, having parkinson's for at least 25 years. In the last year her on-state dyskinesia
philipmurray
in
Cure Parkinson's
10 months ago
Shingles vaccine… bad reaction
Last Thursday I had the Shingles vaccine, 1st dose. I immediately had a sore arm, painful really and that continued into the weekend. I also felt generally unwell, completely out of kilter and dizzy/ nauseous at times, runny nose and a bit of a cough. Then a red hot swollen rash appeared on Sunday
Last Thursday I had the Shingles vaccine, 1st dose. I immediately had a sore arm, painful really and that continued into the weekend. I also felt generally unwell, completely out of kilter and dizzy/ nauseous at times, runny nose and a bit of a cough. Then a red hot swollen rash appeared on Sunday
Brushwork
in
NRAS
3 months ago
Should I wait to start my Low Dose Naltrexone (LDN) for the first time if I’ve had a Covid or annual Flu vaccine?
Should I wait to start my Low Dose Naltrexone (LDN) for the first time if I’ve had a Covid or annual Flu vaccine? Answered by Pharmacist Stephen Dickson, LDN Specialist https://youtu.be/KjUKG5O28WA?si=GdB1rjXWdmr5zZ0b
Should I wait to start my Low Dose Naltrexone (LDN) for the first time if I’ve had a Covid or annual Flu vaccine? Answered by Pharmacist Stephen Dickson, LDN Specialist https://youtu.be/KjUKG5O28WA?si=GdB1rjXWdmr5zZ0b
Shewulf
Administrator
in
LDN Research Trust
3 months ago
Has anyone heard of Parsonage Turner Syndrome? Out of interest.
Hello , I was diagnosed with PMR in September 2012 . I had returned from holiday , had my annual flu jab and noticed awful stiffness in my arms and hips whilst at Yoga . It increased to agonising electric shock pains , from shoulders downwards , my biceps would almost spasm and go hard , the pain
Hello , I was diagnosed with PMR in September 2012 . I had returned from holiday , had my annual flu jab and noticed awful stiffness in my arms and hips whilst at Yoga . It increased to agonising electric shock pains , from shoulders downwards , my biceps would almost spasm and go hard , the pain
Greensleeves
in
PMRGCAuk
3 months ago
Good resources regarding vagal AFIB?
Does anyone have any good resources (articles, YouTube videos) directed to vagally-mediated AFIB (the type that occurs after a large meal or while sleeping)? I believe my AFIB was triggered by endurance athletics (I used to do long bike rides and probably overdid it and stressed my body too much).
Does anyone have any good resources (articles, YouTube videos) directed to vagally-mediated AFIB (the type that occurs after a large meal or while sleeping)? I believe my AFIB was triggered by endurance athletics (I used to do long bike rides and probably overdid it and stressed my body too much).
dw98611
in
AF Association
10 months ago
Sharing my experience of having the flu with Parkinson's...
Hi everyone. I just wanted to share my experience of combining a severe flu with my Parkinson's symptoms. I've had Parkinson's for six years and I'm generally doing relatively well. But recently, I caught a severe flu while traveling in Italy with my wife and it made my symptoms much worse, with massive
Hi everyone. I just wanted to share my experience of combining a severe flu with my Parkinson's symptoms. I've had Parkinson's for six years and I'm generally doing relatively well. But recently, I caught a severe flu while traveling in Italy with my wife and it made my symptoms much worse, with massive
Michel0220
in
Cure Parkinson's
3 months ago
Trapped nerve/ shoulder pain
last July I was diagnosed with low b12, I started on a series of 6 injections before starting on a three monthly top up regime. In that time I also received my annual flu vaccination and most recent covid jab. in December 2023 I started having numbness in three fingers, index, middle and ring and
last July I was diagnosed with low b12, I started on a series of 6 injections before starting on a three monthly top up regime. In that time I also received my annual flu vaccination and most recent covid jab. in December 2023 I started having numbness in three fingers, index, middle and ring and
J200george
in
Pernicious Anaemia Society
3 months ago
Issues with travel insurance
Apologies for the long post. In 2014 I was diagnosed with a hole in the heart, this was repaired December 2014, after a couple of months started with heart rate and rhythm issues, AF, flutter and AVNRT, these were finally sorted with a. Ablation in 2016, very few episodes for the last 7 years, took Bisoprolol
Apologies for the long post. In 2014 I was diagnosed with a hole in the heart, this was repaired December 2014, after a couple of months started with heart rate and rhythm issues, AF, flutter and AVNRT, these were finally sorted with a. Ablation in 2016, very few episodes for the last 7 years, took Bisoprolol
mear1957
in
AF Association
3 months ago
Is enteric Prednisone available in France? Does anyone know? Flare!!
Hi my drama with foot and ankle pain has developed into. PMR story. My rheumatologist sent me to a foot ankle doc he trusts who was very thorough and listened to both of us. First doc:?MRI showed only mild Achilles Tendinitis but that was Diagnosis. Rheumie said not where most pain is. Couldn’t do
Hi my drama with foot and ankle pain has developed into. PMR story. My rheumatologist sent me to a foot ankle doc he trusts who was very thorough and listened to both of us. First doc:?MRI showed only mild Achilles Tendinitis but that was Diagnosis. Rheumie said not where most pain is. Couldn’t do
bluegirl7
in
PMRGCAuk
4 months ago
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