Search
Search
About
Log in
Join
Experiences with
Systemic sclerosis
Posts
Communities
370 public posts
Filter results
University of Cambridge research survey
This includes diseases such as Rheumatoid Arthritis (RA) and other inflammatory arthritis, lupus, Sjögren's, undifferentiated (UCTD) or mixed (MCTD) connective tissue disease,
systemic
sclerosis
, PMR, Inflammatory muscle diseases, and vasculitis.
This includes diseases such as Rheumatoid Arthritis (RA) and other inflammatory arthritis, lupus, Sjögren's, undifferentiated (UCTD) or mixed (MCTD) connective tissue disease,
systemic
sclerosis
, PMR, Inflammatory muscle diseases, and vasculitis.
Jo-Goode
Administrator
in
Myositis UK
2 years ago
Please take part in this patient survey from the University of Cambridge if you haven't already!
This includes diseases such as Rheumatoid Arthritis (RA) and other inflammatory arthritis, lupus, Sjögren's, undifferentiated (UCTD) or mixed (MCTD) connective tissue disease,
systemic
sclerosis
, PMR, Inflammatory muscle diseases, and vasculitis.
This includes diseases such as Rheumatoid Arthritis (RA) and other inflammatory arthritis, lupus, Sjögren's, undifferentiated (UCTD) or mixed (MCTD) connective tissue disease,
systemic
sclerosis
, PMR, Inflammatory muscle diseases, and vasculitis.
Chanpreet_Walia
LUPUS UK
in
LUPUS UK
2 years ago
Rheumatology patient survey from the University of Cambridge and patient groups
This includes diseases such as Rheumatoid Arthritis (RA) and other inflammatory arthritis, lupus, Sjögren's, undifferentiated (UCTD) or mixed (MCTD) connective tissue disease,
systemic
sclerosis
, PMR, Inflammatory muscle diseases, and vasculitis. - Participants from all countries are welcome The survey
This includes diseases such as Rheumatoid Arthritis (RA) and other inflammatory arthritis, lupus, Sjögren's, undifferentiated (UCTD) or mixed (MCTD) connective tissue disease,
systemic
sclerosis
, PMR, Inflammatory muscle diseases, and vasculitis. - Participants from all countries are welcome The survey
Chanpreet_Walia
LUPUS UK
in
LUPUS UK
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
FDA Clears New Antibody Test to Help in SLE Diagnosis
Food and Drug Administration (FDA) cleared the new antibody test, along with a second Thermo blood test, called EliA RNA Pol III, for the diagnosis of
systemic
sclerosis
(SSc).
Food and Drug Administration (FDA) cleared the new antibody test, along with a second Thermo blood test, called EliA RNA Pol III, for the diagnosis of
systemic
sclerosis
(SSc).
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
FDA Clears New Antibody Test to Help in SLE Diagnosis
Food and Drug Administration (FDA) cleared the new antibody test, along with a second Thermo blood test, called EliA RNA Pol III, for the diagnosis of
systemic
sclerosis
(SSc).
Food and Drug Administration (FDA) cleared the new antibody test, along with a second Thermo blood test, called EliA RNA Pol III, for the diagnosis of
systemic
sclerosis
(SSc).
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Electric wheelchair
I am a patient of
systemic
sclerosis
. My disease has made me disabled; it is mainly affecting my leg and feet; I am struggling with walking, so I am thinking to buy an electric wheelchair.
I am a patient of
systemic
sclerosis
. My disease has made me disabled; it is mainly affecting my leg and feet; I am struggling with walking, so I am thinking to buy an electric wheelchair.
missgreat_19
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Systemic sclerosis
There aren't enough rheumatologists or therapy options for chronic illnesses like
systemic
sclerosis
in my country. So I'm considering having my treatment in the United Kingdom while also studying.
There aren't enough rheumatologists or therapy options for chronic illnesses like
systemic
sclerosis
in my country. So I'm considering having my treatment in the United Kingdom while also studying.
Lo1234
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
FDA Clears New Antibody Test to Help in SLE Diagnosis
Food and Drug Administration (FDA) cleared the new antibody test, along with a second Thermo blood test, called EliA RNA Pol III, for the diagnosis of
systemic
sclerosis
(SSc).
Food and Drug Administration (FDA) cleared the new antibody test, along with a second Thermo blood test, called EliA RNA Pol III, for the diagnosis of
systemic
sclerosis
(SSc).
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Best foundation for telangiectasia?
I was diagnosed with
systemic
sclerosis
3 years ago. I know it seems trivial with all the other things we have to deal with but the redness on my face gets me down sometimes and I wondered if anyone has found the holy grail of cover up’s . I’m using double wear at the moment. Thank you 😀
I was diagnosed with
systemic
sclerosis
3 years ago. I know it seems trivial with all the other things we have to deal with but the redness on my face gets me down sometimes and I wondered if anyone has found the holy grail of cover up’s . I’m using double wear at the moment. Thank you 😀
Helenlouise40
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Pelvic prolapse connection to Systemic Sclerosis?
I have recently suffered from a pelvic prolapse and wondered if any one else had had the same experience and been told it was caused by Sysyemic Sclerosis connective tissue damage?
I have recently suffered from a pelvic prolapse and wondered if any one else had had the same experience and been told it was caused by Sysyemic Sclerosis connective tissue damage?
SKivell
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Keyboards for weak fingers - any recommendations?
I already have an ergonomic keyboard which is not that firm, but my little fingers have always been on the weak side, and now have osteoarthritis in the top joint in addition to my limited
systemic
sclerosis
.
I already have an ergonomic keyboard which is not that firm, but my little fingers have always been on the weak side, and now have osteoarthritis in the top joint in addition to my limited
systemic
sclerosis
.
Poppy221
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
The Microbiome and Immune-Related Diseases
https://www.ifm.org/news-insights/gut-role-microbiome-immune-diseases/ The intestinal microbiome is also implicated as a triggering or mediating factor in Grave’s disease, Hashimoto’s thyroiditis, multiple
sclerosis
, type 1 diabetes,
systemic
lupus erythematosus, and psoriasis.
https://www.ifm.org/news-insights/gut-role-microbiome-immune-diseases/ The intestinal microbiome is also implicated as a triggering or mediating factor in Grave’s disease, Hashimoto’s thyroiditis, multiple
sclerosis
, type 1 diabetes,
systemic
lupus erythematosus, and psoriasis.
ling
in
Thyroid UK
2 years ago
Pulmonary function tests
Hi My mum has
systemic
sclerosis
which has a massive impact on her lungs and breathing. She’s now in her third year without having the normal pulmonary function tests and she feels her breathing has got significantly worse in that time.
Hi My mum has
systemic
sclerosis
which has a massive impact on her lungs and breathing. She’s now in her third year without having the normal pulmonary function tests and she feels her breathing has got significantly worse in that time.
Ajack
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Systemic sclerosis with Reynauds
I have recently been diagnosed with atrial flutter and been out on apixiban to prevent blood clots, due to have a cardio conversion. Can anyone tell me if they have experienced of this. I have lung fibrosis and Scleroderma with Reynaldo so feeling overwhelmed by yet another thing to take on. Any thoughts
I have recently been diagnosed with atrial flutter and been out on apixiban to prevent blood clots, due to have a cardio conversion. Can anyone tell me if they have experienced of this. I have lung fibrosis and Scleroderma with Reynaldo so feeling overwhelmed by yet another thing to take on. Any thoughts
eletra
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Guillain-Barré Syndrome after PCa Diagnosis... Anyone?
,
systemic
sclerosis
, Goodpasture syndrome, giant cell arteritis, thromboangitis obliterans, arteritis obliterans, and Kawasaki disease[/i]."
,
systemic
sclerosis
, Goodpasture syndrome, giant cell arteritis, thromboangitis obliterans, arteritis obliterans, and Kawasaki disease[/i]."
pjoshea13
in
Advanced Prostate Cancer
3 years ago
Pneumococcal vaccine and 5 year booster
Just interested to find out if others with limited
systemic
sclerosis
(taking mycophenolate) have a 5 year booster for their pneumococcal vaccine. Thanks.
Just interested to find out if others with limited
systemic
sclerosis
(taking mycophenolate) have a 5 year booster for their pneumococcal vaccine. Thanks.
cowhide
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Ra
It turns out I don't have RA I have mixed convective tissue With limited cutaneous
systemic
sclerosis
scleroderma and pulmonary hypertension
It turns out I don't have RA I have mixed convective tissue With limited cutaneous
systemic
sclerosis
scleroderma and pulmonary hypertension
chockers
in
NRAS
3 years ago
Systemic sclerosis
I have limited cutaneous
systemic
sclerosis
, but my doctor told me that my condition is overlapping and would progress to diffuse
systemic
sclerosis
. My pheripheral veins in both hands and feet are damaged. It's difficult to get veins open and extract blood.
I have limited cutaneous
systemic
sclerosis
, but my doctor told me that my condition is overlapping and would progress to diffuse
systemic
sclerosis
. My pheripheral veins in both hands and feet are damaged. It's difficult to get veins open and extract blood.
Lo1234
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Feeling a little bit lost
Hi all. First time posting and I'm not really sure what I want to get out of this post I just feel so lost and confused. I have been living with fibromyalgia for 3 years diagnosed but probably for many years previous so chronic pain is no new thing for me. I went on the hormonal coil in January 2020
Hi all. First time posting and I'm not really sure what I want to get out of this post I just feel so lost and confused. I have been living with fibromyalgia for 3 years diagnosed but probably for many years previous so chronic pain is no new thing for me. I went on the hormonal coil in January 2020
Bookobssessed
in
Endometriosis UK
3 years ago
Rituximab and Systemic Sclerosis
Hi, just wondered if anyone has large calcium deposits ( I have one approx 9 x 6x 5 cm) associated with
systemic
sclerosis
and been given rituximab infusions to help reduce? If so, how were you afterwards and any success with the treatment?
Hi, just wondered if anyone has large calcium deposits ( I have one approx 9 x 6x 5 cm) associated with
systemic
sclerosis
and been given rituximab infusions to help reduce? If so, how were you afterwards and any success with the treatment?
Eden1234
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
1
...
4
5
6
...
19
Next page
10
Filter results
Clear filters
Posted in
All communities
Scleroderma & Raynaud's UK (SRUK)
258 results
Endometriosis UK
19 results
Thyroid UK
15 results
View top 10 communities
Sort by
Most Relevant
Newest