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Systemic sclerosis
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SUDDEN increase in Sed rate, or erythrocyte sedimentation rate (ESR)
Hello, I want to thank everyone that shared their personal insights replying to my post "ANCA MPO and
Systemic
sclerosis
positive - Sudden ESR 93". Your comments are invaluable and I appreciate every word. Thank you, This post is focused on ESR.
Hello, I want to thank everyone that shared their personal insights replying to my post "ANCA MPO and
Systemic
sclerosis
positive - Sudden ESR 93". Your comments are invaluable and I appreciate every word. Thank you, This post is focused on ESR.
irishponies
in
PMRGCAuk
2 years ago
Sed rate, or erythrocyte sedimentation rate (ESR) SUDDEN increase
Hello, I want to thank everyone that shared their personal insights replying to my post "ANCA MPO and
Systemic
sclerosis
positive - Sudden ESR 93". Your comments are invaluable and I appreciate every word. Thank you, This post is focused on ESR.
Hello, I want to thank everyone that shared their personal insights replying to my post "ANCA MPO and
Systemic
sclerosis
positive - Sudden ESR 93". Your comments are invaluable and I appreciate every word. Thank you, This post is focused on ESR.
irishponies
in
Vasculitis UK
2 years ago
Struggling big time
Unfortunately I also caught covid in hospital and I already have other illnesses - Chronic Migraine, Fibromyalgia, Asthma and
Systemic
Sclerosis
. I spent 2 wks in High Dependancy ward, apart from the last 3 days when I was isolated for having Covid.
Unfortunately I also caught covid in hospital and I already have other illnesses - Chronic Migraine, Fibromyalgia, Asthma and
Systemic
Sclerosis
. I spent 2 wks in High Dependancy ward, apart from the last 3 days when I was isolated for having Covid.
Hidden
in
Encephalitis International
2 years ago
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Incidence, prevalence, and co-occurrence of autoimmune disorders over time and by age, sex, and socioeconomic status
Autoimmune disorders were commonly associated with each other, particularly Sjögren's syndrome,
systemic
lupus erythematosus, and
systemic
sclerosis
.
Autoimmune disorders were commonly associated with each other, particularly Sjögren's syndrome,
systemic
lupus erythematosus, and
systemic
sclerosis
.
helvella
Thyroid UK
in
Thyroid UK
1 year ago
How long does a diagnosis take ? Help in Limbo
This seems a very long time to be doing nothing else to find out what’s going on with me I haven’t had an official diagnosis for either, when he first wrote to my GP he put probably fibromyalgia due to several tender spots and suspected
Systemic
sclerosis
.
This seems a very long time to be doing nothing else to find out what’s going on with me I haven’t had an official diagnosis for either, when he first wrote to my GP he put probably fibromyalgia due to several tender spots and suspected
Systemic
sclerosis
.
Buttsy
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Early signs of skin involvement?
Hi all, recently diagnosed in April 2022 with diffuse
systemic
sclerosis
. Raynauds since 2020, Telangiectasias and scl70 +ve. No organ involvement at baseline. I'm interested in if you do have skin involvement (of the hands ideally), how this presents itself in the very early stages.
Hi all, recently diagnosed in April 2022 with diffuse
systemic
sclerosis
. Raynauds since 2020, Telangiectasias and scl70 +ve. No organ involvement at baseline. I'm interested in if you do have skin involvement (of the hands ideally), how this presents itself in the very early stages.
Nw6London
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Systemic sclerosis diagnosis for hubby after 2 years
Systemic
sclerosis
. We're now waiting for a follow up appointment with rheumatology. All this time, he's had no treatment except some pills for his facial rash and lumps and some pills for his Reynauds that didn't work . GP thought it was POTS. I thought it was lupus.
Systemic
sclerosis
. We're now waiting for a follow up appointment with rheumatology. All this time, he's had no treatment except some pills for his facial rash and lumps and some pills for his Reynauds that didn't work . GP thought it was POTS. I thought it was lupus.
Broseley
in
PMRGCAuk
2 years ago
PPMS...
~No l dont have this, but we never do posts on PPMS. (I have been told🤣)~ ~Please Let Me Know What Your Thoughts Are!~ Per... https://my.clevelandclinic.org/health/diseases/14202-primary-progressive-multiple-sclerosis-ppms What is primary progressive multiple sclerosis? Multiple sclerosis (MS)
~No l dont have this, but we never do posts on PPMS. (I have been told🤣)~ ~Please Let Me Know What Your Thoughts Are!~ Per... https://my.clevelandclinic.org/health/diseases/14202-primary-progressive-multiple-sclerosis-ppms What is primary progressive multiple sclerosis? Multiple sclerosis (MS)
Jesmcd2
CommunityAmbassador
in
My MSAA Community
2 years ago
IV placement in hands when you have Scleroderma & Raynaud's
Hello, I am undergoing Rituxan infusions for ANCA vasculitis,
systemic
sclerosis
(scleroderma) & mixed connective tissue disorder. The IV is in place an average of 6 to 8 hours. Rheumatologist & dermatologist told me NOT to have IV placement in my hands due to high gangrene/ulcer/etc. risk.
Hello, I am undergoing Rituxan infusions for ANCA vasculitis,
systemic
sclerosis
(scleroderma) & mixed connective tissue disorder. The IV is in place an average of 6 to 8 hours. Rheumatologist & dermatologist told me NOT to have IV placement in my hands due to high gangrene/ulcer/etc. risk.
irishponies
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Diagnosis at last for hubby
Systemic
sclerosis
. We're now waiting for a follow up appointment with rheumatology. All this time, he's had no treatment except some pills for his facial rash and lumps and some pills for his Raynauds that didn't work . GP thought it was POTS. I thought it was lupus.
Systemic
sclerosis
. We're now waiting for a follow up appointment with rheumatology. All this time, he's had no treatment except some pills for his facial rash and lumps and some pills for his Raynauds that didn't work . GP thought it was POTS. I thought it was lupus.
Broseley
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Fasting before home test.
She has recently been diagnosed with
Systemic
Sclerosis
which is also causing overlapping symptoms. 6 years ago she had to have Nissan fundalplication as the sphincter in her stomach had stopped working.
She has recently been diagnosed with
Systemic
Sclerosis
which is also causing overlapping symptoms. 6 years ago she had to have Nissan fundalplication as the sphincter in her stomach had stopped working.
Horsecrazylady79
in
Thyroid UK
2 years ago
IFN-1 levels before treatment may be biomarker of SLE activity: Study
Among these patients were 20 with rheumatoid arthritis (RA), 21 with
systemic
sclerosis
(SSc), and 18 with microscopic polyangiitis (MPA), as well as 33 healthy individuals.
Among these patients were 20 with rheumatoid arthritis (RA), 21 with
systemic
sclerosis
(SSc), and 18 with microscopic polyangiitis (MPA), as well as 33 healthy individuals.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Micofenolat Mofetil
hello everyone, I have been diagnosed with progressive
systemic
sclerosis
. And I’ve been recommended to take micofenolat mofetil (2g/day) as my scleroderma now progressed to lungs - peripheral stage. Anyone on same treatment ? I’m curious about similar cases.
hello everyone, I have been diagnosed with progressive
systemic
sclerosis
. And I’ve been recommended to take micofenolat mofetil (2g/day) as my scleroderma now progressed to lungs - peripheral stage. Anyone on same treatment ? I’m curious about similar cases.
FelixFelicis
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Anyone have experience with a Rituxan IV Infiltration?
She was unaware of the effects of a Rituxan infiltration on an ANCA vasculitis/
systemic
sclerosis
patient. She phoned my primary care physician to discuss.
She was unaware of the effects of a Rituxan infiltration on an ANCA vasculitis/
systemic
sclerosis
patient. She phoned my primary care physician to discuss.
irishponies
in
Vasculitis UK
2 years ago
Is anyone following the antibiotic protocol for systemic sclerosis/scleroderma?
Treatments
Treatments
arisaig22
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
recent biopsy
I have learnt that scleroderma is a umberella term and there is
systemic
sclerosis
and localised scleroderma. I am really worried about my localised scleroderma turning into the
systemic
sclerosis
, is this something that could potentially happen in the future?
I have learnt that scleroderma is a umberella term and there is
systemic
sclerosis
and localised scleroderma. I am really worried about my localised scleroderma turning into the
systemic
sclerosis
, is this something that could potentially happen in the future?
QueenBee1989
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Scientists hail autoimmune disease therapy breakthrough - implications for CLL patients?
These include rheumatoid arthritis, myositis and
systemic
sclerosis
. But also diseases like multiple sclerosis may be very responsive to CAR T-cell treatment.”
These include rheumatoid arthritis, myositis and
systemic
sclerosis
. But also diseases like multiple sclerosis may be very responsive to CAR T-cell treatment.”
bennevisplace
in
CLL Support
2 years ago
Fecal Microbiota Transplantation (FMT) For PD And Much Much More
Systemic
Sclerosis
35. Ankylosing Spondylitis 36.
Systemic
Sclerosis
35. Ankylosing Spondylitis 36.
chartist
in
Cure Parkinson's
1 year ago
An injection of iloprost and rituximab for systemic sclerosis Raynaud's phenomenon
Has anyone received an injection of iloprost and rituximab? After it is received, is there any improvement noticed? Also does insurance cover these 2 medicine?
Has anyone received an injection of iloprost and rituximab? After it is received, is there any improvement noticed? Also does insurance cover these 2 medicine?
Lo1234
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Reflux recovery after antibiotics
I have limited
systemic
sclerosis
. For years I have had very bad reflux and investigations have revealed oesophagitis (now controlled by PPI s), a Schatzki ring, hiatus hernia. Manometry last year showed completely absent peristalsis in the oesophagus and an ineffective lower sphincter.
I have limited
systemic
sclerosis
. For years I have had very bad reflux and investigations have revealed oesophagitis (now controlled by PPI s), a Schatzki ring, hiatus hernia. Manometry last year showed completely absent peristalsis in the oesophagus and an ineffective lower sphincter.
cowhide
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
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