Rheumatology patient survey from the University of Cambridge and patient groups

[Chanpreet_Walia]

Please take part in the rheumatology patient survey from the University of Cambridge and patient groups. The survey asks about your medical relationships, disease symptoms and mental health.

In order to be a part of this study you will need to meet the following criteria:

- Be aged 18 or over.

- Be diagnosed with an autoimmune rheumatological disease. This includes diseases such as Rheumatoid Arthritis (RA) and other inflammatory arthritis, lupus, Sjögren's, undifferentiated (UCTD) or mixed (MCTD) connective tissue disease, systemic sclerosis, PMR, Inflammatory muscle diseases, and vasculitis.

- Participants from all countries are welcome

The survey should take around 20-40 minutes to complete (you can pause or stop at any time).

LUPUS UK are supporting this study as it will raise awareness about the areas most important to you and where more support may be needed.

Learn more about the study and complete the survey at bit.ly/inspire_patients

If you have any questions, please contact the lead researcher (Melanie) at [e-mail]

Many thanks for your help!

[CSLO]

Completed Chanpreet. Thanks for posting.

[CecilyParsley]

Done thank you Chanpreet 🙂

[MelanieSloan]

Thanks very much for sharing Chanpreet and for everyone who has completed so far.

It's a rare opportunity to get voices heard and hopefully much more understanding of the challenges faced so do please complete if you have time/energy.

Thank you everyone

[Krazykat26]

All done👍💜🌈😽😽xx

[Chanpreet_Walia LUPUS UK]

Thank you to everyone, who has taken part so far! 💜

[MelanieSloan]

Thank you everyone who has completed. We now have over 600 surveys completed which is great!

200 of those are from people with lupus but we really need about double this number to be able to make an impact on the clinicians and policy makers about the challenges of lupus (and related diseases like UCTD and sjogrens etc).

So if you haven't yet completed and have some energy please do complete the survey (link in Chanpreet's post) if you'd like to.

Thank you

[Kildonan in reply to MelanieSloan]

Thank you Chanpreet, duly completed (thought-provoking survey) and I wish the researchers lots of luck and thanks. I will be very interested in their findings. Thank you for signposting. 🤞🙏🤞