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Skin tightening
I have a diagnosis of limited cutaneous
systemic
sclerosis
, which was diagnosed about 3 years ago have been relatively ok until recently, when I started to develop problems with my oesophagus.
I have a diagnosis of limited cutaneous
systemic
sclerosis
, which was diagnosed about 3 years ago have been relatively ok until recently, when I started to develop problems with my oesophagus.
LittleMissH
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Any advise or information please
A lovely person from
systemic
sclerosis
told me about it I have overlap connective tissue disease. I have really bad raynaulds with it. I have also been told I have IGM anticardiolipin antibody positive. I'm not sure what that means.
A lovely person from
systemic
sclerosis
told me about it I have overlap connective tissue disease. I have really bad raynaulds with it. I have also been told I have IGM anticardiolipin antibody positive. I'm not sure what that means.
Sami13
in
Hughes Syndrome APS Forum
7 years ago
Underactive symptoms but high t4? Help!
Hi all, Wondering if anyone can assist me, since Christmas I have felt like my thyroid has gone rogue, I have put on a stone, fatigue has returned, brain fog, constipation, floaters in my eyes on some days and crystal clear vision on others, muscle ache and tenderness, anxiety, itchy scalp, dry skin
Hi all, Wondering if anyone can assist me, since Christmas I have felt like my thyroid has gone rogue, I have put on a stone, fatigue has returned, brain fog, constipation, floaters in my eyes on some days and crystal clear vision on others, muscle ache and tenderness, anxiety, itchy scalp, dry skin
Missdee666
in
Thyroid UK
7 years ago
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Feeling very alone
With my main problem being circulation and limited
systemic
sclerosis
. I'm starting on methotrexate tomorrow along with the bag or drugs I brought home from the hospital. I feel so scared and lost. I don't know what to do about work. I don't know who to talk to.
With my main problem being circulation and limited
systemic
sclerosis
. I'm starting on methotrexate tomorrow along with the bag or drugs I brought home from the hospital. I feel so scared and lost. I don't know what to do about work. I don't know who to talk to.
Sami13
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Lesions in nose?
I have Limited Cutaneous
Systemic
Sclerosis
--about 5 years now. Just curious--does anyone else have the issue of little lesions on mucosa inside nose?
I have Limited Cutaneous
Systemic
Sclerosis
--about 5 years now. Just curious--does anyone else have the issue of little lesions on mucosa inside nose?
pallinurse
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
New to all of this,,
Last September I was diagnosed with
Systemic
Sclerosis
I`ve had loads of tests done on my heart which showed that part of it isn't working, Lungs and Kidneys are ok, I`m going in for infusion treatment in 3 weeks time along with starting 4 new medications, There is also talk of starting a form of Chemo
Last September I was diagnosed with
Systemic
Sclerosis
I`ve had loads of tests done on my heart which showed that part of it isn't working, Lungs and Kidneys are ok, I`m going in for infusion treatment in 3 weeks time along with starting 4 new medications, There is also talk of starting a form of Chemo
kel87
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Request for information please!
I'm 54 and have a diagnosis of
Systemic
Sclerosis
(scleroderma) and also ulcerative colitis. All part of the lovely auto immune group of conditions... However, recently I have been getting burning type head and neck aches, mostly starting at the back of my head and working upwards.
I'm 54 and have a diagnosis of
Systemic
Sclerosis
(scleroderma) and also ulcerative colitis. All part of the lovely auto immune group of conditions... However, recently I have been getting burning type head and neck aches, mostly starting at the back of my head and working upwards.
JenniferClaireA
in
PMRGCAuk
8 years ago
Gangrene tip of index finger and thumb, any help PLEASE
Hi, just recently diagnosed with Limited Cutaneous
Systemic
Sclerosis
, have been referred to the Royal Free. Have had a very negative few months from Nov with gangrene in fingertip and now thumb as well.
Hi, just recently diagnosed with Limited Cutaneous
Systemic
Sclerosis
, have been referred to the Royal Free. Have had a very negative few months from Nov with gangrene in fingertip and now thumb as well.
Skip13
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Blood works advice
I have been told I have
systemic
sclerosis
(crest). But my recent bloods also show some other things going on. Can anyone help me understand them. I'm waiting to see prof Denton at the royal free London.
I have been told I have
systemic
sclerosis
(crest). But my recent bloods also show some other things going on. Can anyone help me understand them. I'm waiting to see prof Denton at the royal free London.
Sami13
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Systemic Scleroderma aka Systemic Sclerosis
I was diagnosed this past June. I've had emotional ups and downs and I'm learning to cope with changes... very mental disease... has anyone has IVIG TReatment? What was the outcome? How long in treatment?
I was diagnosed this past June. I've had emotional ups and downs and I'm learning to cope with changes... very mental disease... has anyone has IVIG TReatment? What was the outcome? How long in treatment?
Marinav
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Eosinophilic fasciitis
I was told almost 4 years ago that I had Diffuse
Systemic
Cutaneous
Sclerosis
and that I was at the 'severe' end of the scale. Now there's a new theory that I may have Eosinophilic Fasciitis and that it may well be an overlapping of the two.
I was told almost 4 years ago that I had Diffuse
Systemic
Cutaneous
Sclerosis
and that I was at the 'severe' end of the scale. Now there's a new theory that I may have Eosinophilic Fasciitis and that it may well be an overlapping of the two.
Hidden
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Limited ss and fatigue
I was diagnosed with limited
systemic
sclerosis
18months ago. Does anyone else find that this illness makes them tired? I can't find anything in the fact sheets.
I was diagnosed with limited
systemic
sclerosis
18months ago. Does anyone else find that this illness makes them tired? I can't find anything in the fact sheets.
Evess
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Sore fingers with Raynauds
I've recently been diagnosed with
systemic
sclerosis
which was a bit of a shock but I remain grateful that I have succembed in my mid-50s rather than when the children were young and needed carrying which I couldn't now do!
I've recently been diagnosed with
systemic
sclerosis
which was a bit of a shock but I remain grateful that I have succembed in my mid-50s rather than when the children were young and needed carrying which I couldn't now do!
sussej
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Sjogrens syndrome and chronic sinusitis/retention cysts link?
I have been diagnosed in the recent past with an undifferentiated connective tissue disorder, including reynauds, polyarthralgia, ANA's and sicca, as well as most of the symptoms (but not yet a full diagnosis) of Sjogrens syndrome and limited
systemic
sclerosis
.
I have been diagnosed in the recent past with an undifferentiated connective tissue disorder, including reynauds, polyarthralgia, ANA's and sicca, as well as most of the symptoms (but not yet a full diagnosis) of Sjogrens syndrome and limited
systemic
sclerosis
.
Croft1987
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Life insurance...
I was diagnosised with secondary Reynaud's and Progressive
Systemic
Sclerosis
last year, so have a feeling this might not be that straightforward! I'm after any recommendations you may have: any insurers to try/avoid? Any advice generally on approaching/explaining would be really useful to read.
I was diagnosised with secondary Reynaud's and Progressive
Systemic
Sclerosis
last year, so have a feeling this might not be that straightforward! I'm after any recommendations you may have: any insurers to try/avoid? Any advice generally on approaching/explaining would be really useful to read.
Bean82
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Learning to live with Systemic Sclerosis
Hello everyone - I'm new to this site and look forward to chatting with you.
Hello everyone - I'm new to this site and look forward to chatting with you.
GGhere
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
New to all this
Hi there, My mum has been diagnosed with
systemic
sclerosis
and has recently moved to Taunton to be nearer family. Are there any local support groups or meet ups in this area? Many thanks.
Hi there, My mum has been diagnosed with
systemic
sclerosis
and has recently moved to Taunton to be nearer family. Are there any local support groups or meet ups in this area? Many thanks.
rmdh
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
NEGATIVE ENA
Does that mean I don't actually have
Systemic
Sclerosis
? and I have something else? I definitely have Raynauds but could that be all ? Despite all the symptoms of pain in every joint; blisters on fingers that come and go; and Telangiectasia I wonder what is happening to me as also very tired.
Does that mean I don't actually have
Systemic
Sclerosis
? and I have something else? I definitely have Raynauds but could that be all ? Despite all the symptoms of pain in every joint; blisters on fingers that come and go; and Telangiectasia I wonder what is happening to me as also very tired.
Hidden
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Help feeling very lost
I have just got my bloods back and it show a positive ANA it's 1/640 I also have abnormal centromere the blood test says 'associated with limited cutaneous
systemic
sclerosis
' I have problems with my chest for a while.
I have just got my bloods back and it show a positive ANA it's 1/640 I also have abnormal centromere the blood test says 'associated with limited cutaneous
systemic
sclerosis
' I have problems with my chest for a while.
Sami13
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Chronic fatigue
Hi all I am 27 years old and been diagnosed with mild endo for a year. The pain since the lap has subsided as I have the hormonal coil and barely have a period but recently it has come back with a vengeance and my flares up are getting worse. I have just started a new high profile job and have been tired
Hi all I am 27 years old and been diagnosed with mild endo for a year. The pain since the lap has subsided as I have the hormonal coil and barely have a period but recently it has come back with a vengeance and my flares up are getting worse. I have just started a new high profile job and have been tired
flossy24
in
Endometriosis UK
8 years ago
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