I'm new to all of this was diagnosed nearly 4 years ago with scleroderma and Raynaud's but in the last 9 months my symptoms have got worse hands turning purple/blue or like a corpse and very very painfully numb my fingers have started to curl when having a attack. Feet turning white and numb with painful pins and needles, chest pains/ tightness, really bad fatigue like having blackouts and not knowing about it till afterwards, troubling swallowing and keeping things down. Last September I was diagnosed with Systemic Sclerosis I`ve had loads of tests done on my heart which showed that part of it isn't working, Lungs and Kidneys are ok, I`m going in for infusion treatment in 3 weeks time along with starting 4 new medications, There is also talk of starting a form of Chemo has anyone else tried this??
All of this is quite overwhelming and scary how quick this condition can take hold and struggling to deal with the whole thing esp my symptoms my mood is up and down emotional 1 minute then angry at myself because I cant control my own body. I`m still trying to work 11 - 16 hours per week to try and keep my mind active.
If anyone can give any tips etc. I would be grateful..