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Kesimpta
Hello, Hope everyone is ok and enjoying some sunshine. Over in the UK we aren't blessed with too much, but at the moment it is very fine :-) Anyhow, I moved over from Tecfidera to Ksimpta around 4 months ago after a particularly nasty relapse last year, and wondered if anyone else has done the same
Hello, Hope everyone is ok and enjoying some sunshine. Over in the UK we aren't blessed with too much, but at the moment it is very fine :-) Anyhow, I moved over from Tecfidera to Ksimpta around 4 months ago after a particularly nasty relapse last year, and wondered if anyone else has done the same
Jasperdoo
in
My MSAA Community
4 months ago
itch left upper back
a while back someone posted the name of a condition relating to autoimmune illnesses where you have itching on your upper back, left hand side, no rash. It sometimes accompanies autoimmune illnesses. I use Sarna lotion which is what I seem to recall the poster using as well. Anyone remember the name
a while back someone posted the name of a condition relating to autoimmune illnesses where you have itching on your upper back, left hand side, no rash. It sometimes accompanies autoimmune illnesses. I use Sarna lotion which is what I seem to recall the poster using as well. Anyone remember the name
Twopies
in
PMRGCAuk
4 months ago
Antibiotics for UTI symptoms
I suspect I have endometriosis after years of painful periods, painful sex and occasional bloating. My symptoms were menstruation specific. The last 2 years I have been almost been symptom free (for some unknown reason) but since Feb I have been having the classic tugging pain from my upper abdomen down
I suspect I have endometriosis after years of painful periods, painful sex and occasional bloating. My symptoms were menstruation specific. The last 2 years I have been almost been symptom free (for some unknown reason) but since Feb I have been having the classic tugging pain from my upper abdomen down
Mint_all_day
in
Endometriosis UK
4 months ago
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Shingles and Ruxolitinib
I note that on the Blood Cancer web site is states that [i]Aciclovir is an anti-viral medication that prevents shingles, which can be a side effect of Ruxolitinib.[/i] [i]If you’re on Ruxolitinib, you have to be careful about your skin,[/i] I was told to be aware and careful of my skin when taking
I note that on the Blood Cancer web site is states that [i]Aciclovir is an anti-viral medication that prevents shingles, which can be a side effect of Ruxolitinib.[/i] [i]If you’re on Ruxolitinib, you have to be careful about your skin,[/i] I was told to be aware and careful of my skin when taking
nanmc
in
MPN Voice
4 months ago
update after Drs app.
saw the Dr who did listen to chest etc. and looked in throat for thrush symptons. He gave me a sputum jar for if it happens again in the next few days ,he wants mr to see the Asthma Nurse ( not much hope there) if it happens again he will send me to see a consult. He also asked who had prescribed the
saw the Dr who did listen to chest etc. and looked in throat for thrush symptons. He gave me a sputum jar for if it happens again in the next few days ,he wants mr to see the Asthma Nurse ( not much hope there) if it happens again he will send me to see a consult. He also asked who had prescribed the
MrsP70
in
Lung Conditions Community Forum
4 months ago
Cold immersion therapy for PC?
Has anyone had experience with using cold immersion, either ice baths or cold showers, to support recovery and treatment side effects?
Has anyone had experience with using cold immersion, either ice baths or cold showers, to support recovery and treatment side effects?
7OaksTom
in
Advanced Prostate Cancer
4 months ago
interstitial cystitis
Hi all So lovely to be part of this community I have had lots of very good advice over the years ! was just wondering does anyone suffer from this with IBS as it’s very difficult to decipher whether you have a kidney infection or this interstitial cystitis ! I have had several attacks over the last
Hi all So lovely to be part of this community I have had lots of very good advice over the years ! was just wondering does anyone suffer from this with IBS as it’s very difficult to decipher whether you have a kidney infection or this interstitial cystitis ! I have had several attacks over the last
Mascot68
in
IBS Network
3 months ago
Flare up after op
Hi, I had a knee arthroscopy around 12 days ago and my arthritis has flared up, mostly in the affected knee. I left it for a while in case it was just the op effects but pretty sure now that it is arthritis. Also my calf muscle has seized up, can that flare up too? Tried ringing hospital but their helpline
Hi, I had a knee arthroscopy around 12 days ago and my arthritis has flared up, mostly in the affected knee. I left it for a while in case it was just the op effects but pretty sure now that it is arthritis. Also my calf muscle has seized up, can that flare up too? Tried ringing hospital but their helpline
Fluffontoast
in
NRAS
4 days ago
Very painful steroid injection
Hello! I wanted some advice or to hear there’s light at the end of this miserable tunnel I have been getting steroid injections for the last 10 years into my toes and my thumbs. I have just had to move house and the packing put my hands into a lot of pain. So the doctor put steroids into my thumbs and
Hello! I wanted some advice or to hear there’s light at the end of this miserable tunnel I have been getting steroid injections for the last 10 years into my toes and my thumbs. I have just had to move house and the packing put my hands into a lot of pain. So the doctor put steroids into my thumbs and
Tonkie
in
NRAS
6 days ago
warning!! Long post
Thank goodness I’m a stubborn Taurine!! My rheumatology department has been stripped of staff… When I was first was diagnosed my treatment was amazing. i had a rheumatologist . A designated nurse who knew me by name easily contactable and never left me to suffer. A helpline everyday with immediate
Thank goodness I’m a stubborn Taurine!! My rheumatology department has been stripped of staff… When I was first was diagnosed my treatment was amazing. i had a rheumatologist . A designated nurse who knew me by name easily contactable and never left me to suffer. A helpline everyday with immediate
J1707-
in
NRAS
8 days ago
Osteoperosis
I have been having steroid injections in my thumbs due to osteo arthritis and wondered if these were OK to continue having as I now have osteoperosis?
I have been having steroid injections in my thumbs due to osteo arthritis and wondered if these were OK to continue having as I now have osteoperosis?
healthrls
in
Restless Legs Syndrome
9 days ago
Incomplete Behcets?!
So, my question is, has anyone on here been diagnosed with incomplete Behcets?! At my 2nd CoE appointment at Liverpool in July, I was! They are saying that as I don't fulfill the ISG 1990 criteria (I have 2 out of three symptoms), that they cannot diagnose me properly. However, under the ICBD criteria
So, my question is, has anyone on here been diagnosed with incomplete Behcets?! At my 2nd CoE appointment at Liverpool in July, I was! They are saying that as I don't fulfill the ISG 1990 criteria (I have 2 out of three symptoms), that they cannot diagnose me properly. However, under the ICBD criteria
TigerLily42
in
Behçet's UK
12 days ago
Steroid injection for knee pain
Hi I have recently been told that I need a knee replacement, but because I have had 3 stents in a blocked artery, I will have to wait 6 months for the OP! I am in quite a bit of pain and this is very dibilating, I cannot walk very far at all. I was wondering if I could have a steroid injection for the
Hi I have recently been told that I need a knee replacement, but because I have had 3 stents in a blocked artery, I will have to wait 6 months for the OP! I am in quite a bit of pain and this is very dibilating, I cannot walk very far at all. I was wondering if I could have a steroid injection for the
Bowser1966
in
Osteoarthritis Action
15 days ago
Getting help from Rheumatology Team?
My husband has RA and is on Tocilizumab. However he picked up hepatitis E while still on methotrexate, then was changed to biologics as the methotrexate wasn't sufficiently controlling the RA. Since then his ALT has gone up and he had a liver biopsy showing Non alcoholic fatty liver. They have cut the
My husband has RA and is on Tocilizumab. However he picked up hepatitis E while still on methotrexate, then was changed to biologics as the methotrexate wasn't sufficiently controlling the RA. Since then his ALT has gone up and he had a liver biopsy showing Non alcoholic fatty liver. They have cut the
strongmouse
in
NRAS
15 days ago
As if MS wasn't enough, I have osteoporosis
HelloAs if MS wasn't enough, I now have osteoporosis. Which could be why I fell and broke my shoulder in December. My primary doctor has put me on boniva. So again I am afraid to take it. Side effects just don't sound l ike fun . I am only 53. I am taking vitamin D and eating 2 tums daily for
HelloAs if MS wasn't enough, I now have osteoporosis. Which could be why I fell and broke my shoulder in December. My primary doctor has put me on boniva. So again I am afraid to take it. Side effects just don't sound l ike fun . I am only 53. I am taking vitamin D and eating 2 tums daily for
jkdavid99
in
My MSAA Community
5 months ago
Mast cell activation syndrome is there a link?
Hubby has always had serious allergic reactions from a child and had to have steroid injections in summer as a teen. Is it related? This week the dog has come down with a lump that has tested positive for mast cell tumour. My son also has chronic hayfever and panic attack and anxiety. what is happening
Hubby has always had serious allergic reactions from a child and had to have steroid injections in summer as a teen. Is it related? This week the dog has come down with a lump that has tested positive for mast cell tumour. My son also has chronic hayfever and panic attack and anxiety. what is happening
LAJ12345
in
Cure Parkinson's
19 days ago
Trigger finger
Is it okay to have a steroid injection when you have ckd stage 3
Is it okay to have a steroid injection when you have ckd stage 3
bevgt
in
Early CKD Support
20 days ago
Hello! Another Newbie, and my story so far...
Hi all, A brief introduction, and potted history of why I'm here! Sorry if it's a long read - I'll try to condense it! I have posted a bit of Facebook recently (so you may recognise my story), but was told that the PAS forum was the mnost reliable, and I've now joined the PAS! Have had various diverse
Hi all, A brief introduction, and potted history of why I'm here! Sorry if it's a long read - I'll try to condense it! I have posted a bit of Facebook recently (so you may recognise my story), but was told that the PAS forum was the mnost reliable, and I've now joined the PAS! Have had various diverse
Laverdista
in
Pernicious Anaemia Society
20 days ago
Itch Relief?
While vacationing last winter, I developed an unbearable itch on my feet. They felt like they were on fire and I was itching so hard I was afraid I’d tear the skin off. I grabbed some aloe vera (for sunburn) and rubbed it on my feet. Instant relief. Certainly easier than jumping in the shower! Hope
While vacationing last winter, I developed an unbearable itch on my feet. They felt like they were on fire and I was itching so hard I was afraid I’d tear the skin off. I grabbed some aloe vera (for sunburn) and rubbed it on my feet. Instant relief. Certainly easier than jumping in the shower! Hope
ILik3Pizza
in
PBC Foundation
5 months ago
Swollen red cheek andslight jaw pain on one side.
My friend was diagnosed 6 weeks ago with PMR and GCA. Great improvement on steroids. Yesterday she had slight jaw pain and this morning her face is red and swollen. Could this be a flare. She is on 20mg per day of prednisolone.
My friend was diagnosed 6 weeks ago with PMR and GCA. Great improvement on steroids. Yesterday she had slight jaw pain and this morning her face is red and swollen. Could this be a flare. She is on 20mg per day of prednisolone.
BleatingsheepMAA
in
PMRGCAuk
5 months ago
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