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Tragic
My lovely 15 years old grandson died this week. He had ingested a very toxic fungus while looking for plant samples in woodland. After feeling unwell and in pain his mum took him to A&E where a scan showed his stomach had a hole in it. He had urgent surgery and thirty percent of his stomach was
My lovely 15 years old grandson died this week. He had ingested a very toxic fungus while looking for plant samples in woodland. After feeling unwell and in pain his mum took him to A&E where a scan showed his stomach had a hole in it. He had urgent surgery and thirty percent of his stomach was
littleloobs
in
Care Community
5 months ago
Ovarian cancer
Hi brave ladys cancer ovarian spead to bowel 2 years ago just after heart valve replacement surgery removed part bowel 6 chemo recurrence recently chemo 4 session's
surgery
hysterectomy omentom removed more bowel left with
stoma
bag devastated how long get over hysterectomy and any one else in this
Hi brave ladys cancer ovarian spead to bowel 2 years ago just after heart valve replacement surgery removed part bowel 6 chemo recurrence recently chemo 4 session's
surgery
hysterectomy omentom removed more bowel left with
stoma
bag devastated how long get over hysterectomy and any one else in this
PaumicB123
in
My Ovacome
5 months ago
horror surgery
Oh no, 6 1:2 hrs and emergency
surgery
later to fit a
stoma
here I am in hospital with multiple drains etc and in agony. My head is in a mess. Has anyone had this happen!?
Oh no, 6 1:2 hrs and emergency
surgery
later to fit a
stoma
here I am in hospital with multiple drains etc and in agony. My head is in a mess. Has anyone had this happen!?
MrsPaddingtonBear
in
Endometriosis UK
11 months ago
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inflammation in eyes
I have an inflammatory eye condition either episcleritis or anterior uveitis. I’ve been on steroid drops for this which have given me cataract. On top of this inhave 2 stoma bags for a perforated bowel ( which triggered the eye inflammation). It’s been a horrendous time and I’ve become very down.
I have an inflammatory eye condition either episcleritis or anterior uveitis. I’ve been on steroid drops for this which have given me cataract. On top of this inhave 2 stoma bags for a perforated bowel ( which triggered the eye inflammation). It’s been a horrendous time and I’ve become very down.
Groundhog
in
NRAS
10 months ago
Surgery etc.
Hi All, I was diagnosed with Stage 4 OC in May 2023 with the cancer migrated into my colon. I had been feeling unwell for 6 months and was assured by my doctor in February that it was acid reflux. This was despite my mentioning I have gynaecological issues in the family. The symptoms were bizarre
Hi All, I was diagnosed with Stage 4 OC in May 2023 with the cancer migrated into my colon. I had been feeling unwell for 6 months and was assured by my doctor in February that it was acid reflux. This was despite my mentioning I have gynaecological issues in the family. The symptoms were bizarre
Leopard2018
in
My Ovacome
6 months ago
Diagnosed DIE of rectum/bladder/ovaries/POD
Hi, 24 and just been diagnosed with DIE of the recum (5cm from opening) and large endo adhesions on uterus, bowel, bladder and ovaries and obliterated pouch of douglas. I haven't seen a consultant yet for surgery options - just wondering if anyone had similar diagnoses and what they went through? I
Hi, 24 and just been diagnosed with DIE of the recum (5cm from opening) and large endo adhesions on uterus, bowel, bladder and ovaries and obliterated pouch of douglas. I haven't seen a consultant yet for surgery options - just wondering if anyone had similar diagnoses and what they went through? I
NevBean
in
Endometriosis UK
6 months ago
urethral constriction
Had chemo and then cystectomy 10 years ago. Last few years, kidney stones then UTIs, until lithotripsy for the stones. But have urethral constriction, so every 4 month I have stents put through my stoma. Has anyone heard of, or had the procedure done for the constriction using Optilume? Supposedly
Had chemo and then cystectomy 10 years ago. Last few years, kidney stones then UTIs, until lithotripsy for the stones. But have urethral constriction, so every 4 month I have stents put through my stoma. Has anyone heard of, or had the procedure done for the constriction using Optilume? Supposedly
Phillip46
in
Kidney Disease
6 months ago
Stoma patient, mucus from anus
I’m seeing mucus from my anus, just this past week. I’ve had a bowel tumour that perforated in April 2023. I’m due my scan on 4th October. I have a stoma and no chemo ? I also have a hernia behind the stoma , awful pain from constant irritation on the skin surrounding the stoma? Some backache too?
I’m seeing mucus from my anus, just this past week. I’ve had a bowel tumour that perforated in April 2023. I’m due my scan on 4th October. I have a stoma and no chemo ? I also have a hernia behind the stoma , awful pain from constant irritation on the skin surrounding the stoma? Some backache too?
shmila19
in
Colon Cancer Connected
11 months ago
Ileostomy problems
Hi everyone, Just wanted to introduce myself and hope that I’m ok to be here to chat and listen to all things ostomy!! I hope that this finds you all well(ish) and happy 😀🙏 I’ve had my Ileostomy now for 16 yrs give or take 2 yrs when I had a reversal with a J-pouch formed. Unfortunately, after 18
Hi everyone, Just wanted to introduce myself and hope that I’m ok to be here to chat and listen to all things ostomy!! I hope that this finds you all well(ish) and happy 😀🙏 I’ve had my Ileostomy now for 16 yrs give or take 2 yrs when I had a reversal with a J-pouch formed. Unfortunately, after 18
SelfSoothe
in
Living with a Stoma
11 months ago
Stoma reversal
While I was waiting for my liver transplant I had an emergency
Stoma
surgery
and had a bag fitted, the surgeon that gave me my first check up for my liver said in about six months or so they will have me back in to reverse the Stoma.
While I was waiting for my liver transplant I had an emergency
Stoma
surgery
and had a bag fitted, the surgeon that gave me my first check up for my liver said in about six months or so they will have me back in to reverse the Stoma.
Dogbot
in
Living with a Stoma
1 year ago
Anyone with endo going through IVF/DEIVF?
Or even
stoma
surgery
?
Or even
stoma
surgery
?
Stagefourendo
in
Endometriosis UK
1 year ago
Help please
I don't really have a question just a plea for help. My story is very complicated and to go through everything would be too much for you all to read. After appalling treatment through West Herts Trust. I was told after emergency surgery that I had stage 4 Endo and it was in my bowel. Ovary with an Endo
I don't really have a question just a plea for help. My story is very complicated and to go through everything would be too much for you all to read. After appalling treatment through West Herts Trust. I was told after emergency surgery that I had stage 4 Endo and it was in my bowel. Ovary with an Endo
Liseann
in
Endometriosis UK
8 months ago
Looking for answers
Diagnosed with stage 3b Rectal Cancer in July 21. Chemo / Radiotherapy for 5 weeks in October 21 and APR with permanent colostomy on December 21. Thankfully am still NED 18 months later. One of my symptoms was lower back pain which was really painful but this eased up after the op as it was obvious
Diagnosed with stage 3b Rectal Cancer in July 21. Chemo / Radiotherapy for 5 weeks in October 21 and APR with permanent colostomy on December 21. Thankfully am still NED 18 months later. One of my symptoms was lower back pain which was really painful but this eased up after the op as it was obvious
divvykev
in
Pelvic Radiation Disease Association
1 year ago
My wonderful mum
I wanted to let you know that after almost 5 years of fighting this awful disease, my wonderful mum has passed away. Me and my family are absolutely devastated. She fought to the very end. It was a peaceful ending. my brother and I were holding each hand, repeating how much we loved her, and then she
I wanted to let you know that after almost 5 years of fighting this awful disease, my wonderful mum has passed away. Me and my family are absolutely devastated. She fought to the very end. It was a peaceful ending. my brother and I were holding each hand, repeating how much we loved her, and then she
N-A-58
in
My Ovacome
1 year ago
Can’t decide
I have significant stage 4 endometriosis and adenomyosis for which I’ve had multiple surgeries including two excision and removal of left ovary and both tubes. Since my last excision I’ve been in pain every day which is now much worse as the disease returns within months of surgery even when excised
I have significant stage 4 endometriosis and adenomyosis for which I’ve had multiple surgeries including two excision and removal of left ovary and both tubes. Since my last excision I’ve been in pain every day which is now much worse as the disease returns within months of surgery even when excised
Lily1986
in
Endometriosis UK
9 months ago
Advice for operation
Hi All,I'm scheduled for my debulking surgery next week, I've been told to expect to be in hospital for 7-10 and will almost certainly have a stoma. Does anyone have any advice for me on what to take to hospital, and how to manage those first few days after the op? Any food to avoid, and any food recommended
Hi All,I'm scheduled for my debulking surgery next week, I've been told to expect to be in hospital for 7-10 and will almost certainly have a stoma. Does anyone have any advice for me on what to take to hospital, and how to manage those first few days after the op? Any food to avoid, and any food recommended
LovemyJackRussell
in
My Ovacome
8 months ago
ileostomy surgery recovery
Hi, I have had my ileostomy 3 weeks today and whilst I love having the ileostomy my digestive system has gone into meltdown I have terrible cramps I was dealing with very high out put for weeks even following the white diet etc the stoma nurses put me on Imodium which does help but it feels like my
Hi, I have had my ileostomy 3 weeks today and whilst I love having the ileostomy my digestive system has gone into meltdown I have terrible cramps I was dealing with very high out put for weeks even following the white diet etc the stoma nurses put me on Imodium which does help but it feels like my
MyStar86
in
Living with a Stoma
9 months ago
grade 5 reflux with a neurogenic bladder
my son (now 8 months old) was diagnosed with a grade 5 reflux along with a neurogenic bladder post his mcu and cystoscopy which were performed when he was almost a month old, after a life threatening episode of sepsis. The reflux situation caused urine to build up in the kidneys, so much so that one
my son (now 8 months old) was diagnosed with a grade 5 reflux along with a neurogenic bladder post his mcu and cystoscopy which were performed when he was almost a month old, after a life threatening episode of sepsis. The reflux situation caused urine to build up in the kidneys, so much so that one
Anxiousmom97
in
Parents of Children with Kidney Disease
1 year ago
stomach bug ?
I’ve been vomiting and feeling nauseous for a few days . Lots of liquid output and noises from stoma . I have no pain or cramps so I don’t think it’s a blockage. Any ideas whet I should do or take ? Thanks
I’ve been vomiting and feeling nauseous for a few days . Lots of liquid output and noises from stoma . I have no pain or cramps so I don’t think it’s a blockage. Any ideas whet I should do or take ? Thanks
Lmcn
in
Living with a Stoma
1 year ago
Bowel endo surgery
So they have still not removed any nodules as they want the colorectal surgeons to supervise as i may need a
stoma
. So the next
surgery
will be my third operation. I am 28 right now and I am not in a relationship/not sure if i want kids (but would like the option).
So they have still not removed any nodules as they want the colorectal surgeons to supervise as i may need a
stoma
. So the next
surgery
will be my third operation. I am 28 right now and I am not in a relationship/not sure if i want kids (but would like the option).
anonnads
in
Endometriosis UK
1 year ago
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