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Diagnosed with stage 3b Rectal Cancer in July 21. Chemo / Radiotherapy for 5 weeks in October 21 and APR with permanent colostomy on December 21. Thankfully am still NED 18 months later. One of my symptoms was lower back pain which was really painful but this eased up after the op as it was obvious
Diagnosed with stage 3b Rectal Cancer in July 21. Chemo / Radiotherapy for 5 weeks in October 21 and APR with permanent colostomy on December 21. Thankfully am still NED 18 months later. One of my symptoms was lower back pain which was really painful but this eased up after the op as it was obvious
divvykev
in
Pelvic Radiation Disease Association
8 months ago
My wonderful mum
I wanted to let you know that after almost 5 years of fighting this awful disease, my wonderful mum has passed away. Me and my family are absolutely devastated. She fought to the very end. It was a peaceful ending. my brother and I were holding each hand, repeating how much we loved her, and then she
I wanted to let you know that after almost 5 years of fighting this awful disease, my wonderful mum has passed away. Me and my family are absolutely devastated. She fought to the very end. It was a peaceful ending. my brother and I were holding each hand, repeating how much we loved her, and then she
N-A-58
in
My Ovacome
8 months ago
diverticulitis incontinence
Diverticulitis hot of nowhere. I fell down the stairs, was life flighted to UH main Campus, and had multiple Harkin’s procedures. Gutted thrice, like a catfish. I’ll be with ostomy for rest of my life. It’s been 40 days. Weak as a kitten I’m just in to rehab but still draining. They equipped me
Diverticulitis hot of nowhere. I fell down the stairs, was life flighted to UH main Campus, and had multiple Harkin’s procedures. Gutted thrice, like a catfish. I’ll be with ostomy for rest of my life. It’s been 40 days. Weak as a kitten I’m just in to rehab but still draining. They equipped me
kreg001
in
Advanced Prostate Cancer
5 days ago
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Bowel or endometrioma pain?
Hi I'm hoping someone can shed a bit of light on my pain. I have endo in lots of places in POD on ligaments and my bowel.I also have a 5cm endometrioma. I am down for surgery for hysterectomy as I have adenomyosis and endo extraction. I've opted out of a bowel resection as the waiting list is longer
Hi I'm hoping someone can shed a bit of light on my pain. I have endo in lots of places in POD on ligaments and my bowel.I also have a 5cm endometrioma. I am down for surgery for hysterectomy as I have adenomyosis and endo extraction. I've opted out of a bowel resection as the waiting list is longer
Loveneige
in
Endometriosis UK
16 days ago
Tragic
My lovely 15 years old grandson died this week. He had ingested a very toxic fungus while looking for plant samples in woodland. After feeling unwell and in pain his mum took him to A&E where a scan showed his stomach had a hole in it. He had urgent surgery and thirty percent of his stomach was
My lovely 15 years old grandson died this week. He had ingested a very toxic fungus while looking for plant samples in woodland. After feeling unwell and in pain his mum took him to A&E where a scan showed his stomach had a hole in it. He had urgent surgery and thirty percent of his stomach was
littleloobs
in
Care Community
2 months ago
Surgery etc.
Hi All, I was diagnosed with Stage 4 OC in May 2023 with the cancer migrated into my colon. I had been feeling unwell for 6 months and was assured by my doctor in February that it was acid reflux. This was despite my mentioning I have gynaecological issues in the family. The symptoms were bizarre
Hi All, I was diagnosed with Stage 4 OC in May 2023 with the cancer migrated into my colon. I had been feeling unwell for 6 months and was assured by my doctor in February that it was acid reflux. This was despite my mentioning I have gynaecological issues in the family. The symptoms were bizarre
Leopard2018
in
My Ovacome
2 months ago
Ovarian cancer
Hi brave ladys cancer ovarian spead to bowel 2 years ago just after heart valve replacement surgery removed part bowel 6 chemo recurrence recently chemo 4 session's
surgery
hysterectomy omentom removed more bowel left with
stoma
bag devastated how long get over hysterectomy and any one else in this
Hi brave ladys cancer ovarian spead to bowel 2 years ago just after heart valve replacement surgery removed part bowel 6 chemo recurrence recently chemo 4 session's
surgery
hysterectomy omentom removed more bowel left with
stoma
bag devastated how long get over hysterectomy and any one else in this
PaumicB123
in
My Ovacome
2 months ago
Diagnosed DIE of rectum/bladder/ovaries/POD
Hi, 24 and just been diagnosed with DIE of the recum (5cm from opening) and large endo adhesions on uterus, bowel, bladder and ovaries and obliterated pouch of douglas. I haven't seen a consultant yet for surgery options - just wondering if anyone had similar diagnoses and what they went through? I
Hi, 24 and just been diagnosed with DIE of the recum (5cm from opening) and large endo adhesions on uterus, bowel, bladder and ovaries and obliterated pouch of douglas. I haven't seen a consultant yet for surgery options - just wondering if anyone had similar diagnoses and what they went through? I
NevBean
in
Endometriosis UK
2 months ago
urethral constriction
Had chemo and then cystectomy 10 years ago. Last few years, kidney stones then UTIs, until lithotripsy for the stones. But have urethral constriction, so every 4 month I have stents put through my stoma. Has anyone heard of, or had the procedure done for the constriction using Optilume? Supposedly
Had chemo and then cystectomy 10 years ago. Last few years, kidney stones then UTIs, until lithotripsy for the stones. But have urethral constriction, so every 4 month I have stents put through my stoma. Has anyone heard of, or had the procedure done for the constriction using Optilume? Supposedly
Phillip46
in
Kidney Disease
2 months ago
Bowel endo surgery
So they have still not removed any nodules as they want the colorectal surgeons to supervise as i may need a
stoma
. So the next
surgery
will be my third operation. I am 28 right now and I am not in a relationship/not sure if i want kids (but would like the option).
So they have still not removed any nodules as they want the colorectal surgeons to supervise as i may need a
stoma
. So the next
surgery
will be my third operation. I am 28 right now and I am not in a relationship/not sure if i want kids (but would like the option).
anonnads
in
Endometriosis UK
11 months ago
Help please
I don't really have a question just a plea for help. My story is very complicated and to go through everything would be too much for you all to read. After appalling treatment through West Herts Trust. I was told after emergency surgery that I had stage 4 Endo and it was in my bowel. Ovary with an Endo
I don't really have a question just a plea for help. My story is very complicated and to go through everything would be too much for you all to read. After appalling treatment through West Herts Trust. I was told after emergency surgery that I had stage 4 Endo and it was in my bowel. Ovary with an Endo
Liseann
in
Endometriosis UK
4 months ago
grade 5 reflux with a neurogenic bladder
my son (now 8 months old) was diagnosed with a grade 5 reflux along with a neurogenic bladder post his mcu and cystoscopy which were performed when he was almost a month old, after a life threatening episode of sepsis. The reflux situation caused urine to build up in the kidneys, so much so that one
my son (now 8 months old) was diagnosed with a grade 5 reflux along with a neurogenic bladder post his mcu and cystoscopy which were performed when he was almost a month old, after a life threatening episode of sepsis. The reflux situation caused urine to build up in the kidneys, so much so that one
Anxiousmom97
in
Parents of Children with Kidney Disease
9 months ago
stomach bug ?
I’ve been vomiting and feeling nauseous for a few days . Lots of liquid output and noises from stoma . I have no pain or cramps so I don’t think it’s a blockage. Any ideas whet I should do or take ? Thanks
I’ve been vomiting and feeling nauseous for a few days . Lots of liquid output and noises from stoma . I have no pain or cramps so I don’t think it’s a blockage. Any ideas whet I should do or take ? Thanks
Lmcn
in
Living with a Stoma
10 months ago
Can I opt for a removal of colon stump?
Now that I have a colostomy, I actually love it! Two years ago, I had a rectal prolapse. Doctor removed about a foot of my colon and I was left incontinent. Then, it prolapsed again and was sent to another doctor who fixed the prolapse through laparoscopy. I was still incontinent. I actually had
Now that I have a colostomy, I actually love it! Two years ago, I had a rectal prolapse. Doctor removed about a foot of my colon and I was left incontinent. Then, it prolapsed again and was sent to another doctor who fixed the prolapse through laparoscopy. I was still incontinent. I actually had
DesertDeuces
in
Living with a Stoma
10 months ago
Can’t decide
I have significant stage 4 endometriosis and adenomyosis for which I’ve had multiple surgeries including two excision and removal of left ovary and both tubes. Since my last excision I’ve been in pain every day which is now much worse as the disease returns within months of surgery even when excised
I have significant stage 4 endometriosis and adenomyosis for which I’ve had multiple surgeries including two excision and removal of left ovary and both tubes. Since my last excision I’ve been in pain every day which is now much worse as the disease returns within months of surgery even when excised
Lily1986
in
Endometriosis UK
5 months ago
ileostomy surgery recovery
Hi, I have had my ileostomy 3 weeks today and whilst I love having the ileostomy my digestive system has gone into meltdown I have terrible cramps I was dealing with very high out put for weeks even following the white diet etc the stoma nurses put me on Imodium which does help but it feels like my
Hi, I have had my ileostomy 3 weeks today and whilst I love having the ileostomy my digestive system has gone into meltdown I have terrible cramps I was dealing with very high out put for weeks even following the white diet etc the stoma nurses put me on Imodium which does help but it feels like my
MyStar86
in
Living with a Stoma
6 months ago
Advice for operation
Hi All,I'm scheduled for my debulking surgery next week, I've been told to expect to be in hospital for 7-10 and will almost certainly have a stoma. Does anyone have any advice for me on what to take to hospital, and how to manage those first few days after the op? Any food to avoid, and any food recommended
Hi All,I'm scheduled for my debulking surgery next week, I've been told to expect to be in hospital for 7-10 and will almost certainly have a stoma. Does anyone have any advice for me on what to take to hospital, and how to manage those first few days after the op? Any food to avoid, and any food recommended
LovemyJackRussell
in
My Ovacome
5 months ago
The Stoma Begining
I’ve had prior Cancers like Bowell Cancer, Stage3 Testicular Cancer which are in remission and then Bladder Cancer. It was cleared but I was having Cystoscopies every 3mths to ensure the Bladder Cancer hadn’t returned. But what happened the last one which was in February my Urologist found the Bladder
I’ve had prior Cancers like Bowell Cancer, Stage3 Testicular Cancer which are in remission and then Bladder Cancer. It was cleared but I was having Cystoscopies every 3mths to ensure the Bladder Cancer hadn’t returned. But what happened the last one which was in February my Urologist found the Bladder
Clarence2
in
Living with a Stoma
10 months ago
scleroderma and faecal incontinence
morning. I’m struggling with this at the moment and it’s limiting me to what I can do. I’ve seen a surgeon recently who mentioned a stoma as a last resort but I’m not sure about it. I’m not suitable for a rectal stimulator. I’m using pads and loperamide but wondered if anyone else has a similar problem
morning. I’m struggling with this at the moment and it’s limiting me to what I can do. I’ve seen a surgeon recently who mentioned a stoma as a last resort but I’m not sure about it. I’m not suitable for a rectal stimulator. I’m using pads and loperamide but wondered if anyone else has a similar problem
anne1
in
Scleroderma & Raynaud's UK (SRUK)
11 months ago
What's on at Ovacome next week (week commencing 3 April 2023)?
Sarah is also trained to deliver classes to those who have had
stoma
surgery
. Sarah has a
stoma
herself, and offers specialist knowledge of abdominal
surgery
and rehab. Sarah will offer different exercises to suit different needs and fitness levels.
Sarah is also trained to deliver classes to those who have had
stoma
surgery
. Sarah has a
stoma
herself, and offers specialist knowledge of abdominal
surgery
and rehab. Sarah will offer different exercises to suit different needs and fitness levels.
OvacomeSupport
My Ovacome Team
in
My Ovacome
1 year ago
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