Experiences with

Stoma surgery

Hi All, I was diagnosed with Stage 4 OC in May 2023 with the cancer migrated into my colon. I had been feeling unwell for 6 months and was assured by my doctor in February that it was acid reflux. This was despite my mentioning I have gynaecological issues in the family. The symptoms were bizarre

Hi, 24 and just been diagnosed with DIE of the recum (5cm from opening) and large endo adhesions on uterus, bowel, bladder and ovaries and obliterated pouch of douglas. I haven't seen a consultant yet for surgery options - just wondering if anyone had similar diagnoses and what they went through? I

Had chemo and then cystectomy 10 years ago. Last few years, kidney stones then UTIs, until lithotripsy for the stones. But have urethral constriction, so every 4 month I have stents put through my stoma. Has anyone heard of, or had the procedure done for the constriction using Optilume? Supposedly

I have an inflammatory eye condition either episcleritis or anterior uveitis. I’ve been on steroid drops for this which have given me cataract. On top of this inhave 2 stoma bags for a perforated bowel ( which triggered the eye inflammation). It’s been a horrendous time and I’ve become very down.

Oh no, 6 1:2 hrs and emergency surgery later to fit a stoma here I am in hospital with multiple drains etc and in agony. My head is in a mess. Has anyone had this happen!?

I don't really have a question just a plea for help. My story is very complicated and to go through everything would be too much for you all to read. After appalling treatment through West Herts Trust. I was told after emergency surgery that I had stage 4 Endo and it was in my bowel. Ovary with an Endo

I’m seeing mucus from my anus, just this past week. I’ve had a bowel tumour that perforated in April 2023. I’m due my scan on 4th October. I have a stoma and no chemo ? I also have a hernia behind the stoma , awful pain from constant irritation on the skin surrounding the stoma? Some backache too?

Hi everyone, Just wanted to introduce myself and hope that I’m ok to be here to chat and listen to all things ostomy!! I hope that this finds you all well(ish) and happy 😀🙏 I’ve had my Ileostomy now for 16 yrs give or take 2 yrs when I had a reversal with a J-pouch formed. Unfortunately, after 18

this is probably a complicated question, but I’m looking for advice on how to be active and stay active well fighting this cancer. I am 52 years old and up until less than a year ago, I had been very active, running a few miles or riding a stationary bike, several times a week and also lifting weights

I'm hoping to hear some stories and gain an insight into how some of you have experienced the Merina Coil after surgery. I was diagnosed with endometriosis earlier this year, and had surgery to remove from my uterus, and colon - as well as removing my appendix which had a mucocele due to a blockage

Hi all, I had a bilateral mastectomy 4 years ago and have had a recurrence. I've had surgery to remove the involved lymph nodes, have been on monthly Fulvestrant injections and take Kisqali. I'm going to be starting 6 weeks of radiation by the end of the month and I am totally petrified of it

My cycle got cancelled today. I'm feeling a bit (lot) down about it. We did back to back cycles with the view to freeze. I'm due to get my fallopian tubes removed around December/ Jan time - I don't yet have a date as this is on the NHS and I was put on the list in July as urgent. Last month we did our

I had a serious heart attack 6 months ago (referred to as a widow maker) I had emergency surgery to fit a stent. Now 6 months on I am still experiencing almost constant chest pain probably better described as chest discomfort. I have been back to A&E who have done blood tests and ECG's and they assure

Hi all, First post on here just looking for advice! I had my first diagnostic laparoscopy yesterday and was told that no endo was found. I am in disbelief and I am so upset I feel so invalidated as I was convinced I had endo. All that was found on my surgical notes was 'sigmoid adhesions of

Good morning all. I had a Triple Heart Bypass and Mitral Valve Repair and now have also been diagnosed with Heart Failure. Before my surgery I had a Laminectomy for Severe Spinal Stenosis. Unfortunately this failed so after a couple of months I was back to square one with my pain with the added complication

hi everyone, it’s been a while. After 3 failed cycles and one endo and cyst surgery my AMH has become too low. Anyone ever had donor cycle with endo and cyst and it worked ?

Evening all, I've posted a couple of times in the last few weeks as seem to feel worse on Tibolone and trying to make sense of it all! I've been on Tibolone for three weeks. I've just had my 6th Decapeptyl injection. I'm in a lot of discomfort where I'd usually have endo pain ( bladder, cervix, urethra

on Oct 24, I got home from hospital, post neck fusion surgery, and fell down hard. No injury, just big bruise on elbow. Wearing rigid neck collar, so neck surgery survived with no problem. It’s been 7 days since cervical vertebrae fusion, and I’m having increasing pain in upper back and hip joints

Hello warriors!! Can people tell me how long you have been waiting for surgery on the NHS please, whether that be for excision surgery, hysterectomy or both? If you have had these surgeries already how long did it take you to finally have the surgery? Many thanks.

Further on from my last post I am going in the wrong direction. I had increased my pred to 15 mgs for 6 weeks as per my GP direction. Unfortunately it didn’t really touch my pain and stiffness and then 3 days ago I had a flare in that my neck, shoulder and shoulder blade have become extremely painful