Hi warriors, I've just had my results from my MDT meeting. I've got to have a consent/discussion consultation and another with a bowel consultation incase I need a stoma.
My question is, does anyone have a time scale of when they got surgery after the MDT meeting. I'm under Cambridge team.
Thankyou 🤗
Hey i am curently waiting for surgery wth gynae and colotrectal it was 3 to 4 months to see colorectal but once the mdt was done seen within a month.I have stage 4 endo pcos adenomyosis fibroids frozen pelvis ? Need A bowel resection just on a fate for it which seems like forever.....
Can I ask, what has your experience at cambridge been like? I've opted to go elsewhere after struggles there, but I am curious what your wait times have been from referral to being on surgery wait list.
My experience has been good in general. I've seen 2 consultants whom vary in their opinions but at the end of the day its my choice on what I want or don't want done.I had an mri in Feb 23 a consultant appointment in May 23. I opted for surgery in May 23 and am still waiting. So its taken a year to get an MDT meeting.
Ahhh interesting! I had an MRI in May 21, consultant appt in Dec 22, second MRI in Dec 22 second consultant appt in Nov 23 and not heard anything else.... so opted to go for a different centre. Absolutely yes it's your choice, I've also experienced different opinions from different places, but think because of my age one place is very fertility focused and the other very much me focused if that makes sense! I think also like you having pcos, adenomyosis, severe endo with bowel involvement makes the whole process longer and more complicated. I hope you get your date soon and all goes well!
Oh it sounds like it was even slower for you then. I also have adenomyosis a endo cyst and endo everywhere.
One said defo need a bowel resection, one said yes I do but it depends on how it affects my life etc and I can opt out of that bit.
The other person said I couldn't opt out and also he wanted to take both ovaries where the other (lady) one said she would keep one Overy if its still unaffected by endo.
Now after the MDT meeting they are saying a disc segmentation for the bowel!
Perhaps they came to a compromise over it lol!
The lady consultant said if I opted out of the bowel bit it would cut the waiting time down as it only needs one surgeon. That's another reason I chose to opt out of bowel surgery.
It's a horrible long wait isn't it. I hope you are getting the treatment you need.
Hi, I waited 10months and was classed as urgent as I had a 10cm mass around the kidney ureter .My bowel was attached to cervix needed disection and resection . Bladder was stretched .He said my anatomy was completely distorted . I rang every month and got to a point were I couldn’t function , I complained to Pals and got my appointment within 2 weeks . It was last June and recovery been good . Hope you can get through the process quicker and you have a speedy recovery . X
Oh wow thats a long time. Im glad youre sorted now. 😳 I am also quite an advanced case of endo/adenomyosis. I'm finding it hard to function non a day to day basis. It's horrible that we have to fight to be heard. 😔
It really is, I’ve had Endo since I was 17 lost count of operations .I knew something was wrong when I was hit with so many symptoms at once ,I told them it had wide spread,I also had adenomyosis,nodules cysts,adhesions.I said to my consultant it’s not a surprise my operations were every 4 years ,never being checked on,once you’re done they drop you into the abyss and have to start all over again,when symptoms return.I am 49 now inthe MTD I had a total hysterectomy bilateral oopherectomy ,so now I’m on a watch list for 3 years and if I mention discomfort he jumps at me and says well it can’t be Endo now 😡.No matter what stage we all are ,we all have the same useless derogatory replies..I really wish you well ,I completely sympathise with what point you are at and I do hope you’re services are better than the North.
I sound very much like you. I've suffered with painful periods from day one. Thought it was normal until I got pain elsewhere. I knew I had endo but did nothing about it as i had a daughter to raise by myself. I'm 50 now and thought they would fob me off woth the your going to go through menopause soon so go away! Now it's debilitating. I work 3 short days a week and just manage to function with homelife.
I just want my uterus out endometrioma out and see what they do with my bowel.
Sorry im waffling on. Think the MDT meeting has made it all real again. 😔
mine was 3 months im in next friday
How long from pre op to surgery?
How long were your symptoms relieved after surgery?
grade 4 endo pouch of Douglas 
