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Sore perineum and vulvar
I have a pudendal nerve entrapment diagnosis of 8 years now but recently the pain from the anal area has now moved to my vaginal area causing really bad pain in vagina, vulva and perineum. I was given hormone cream to insert by gp as she thought it was menopausal symptoms. This didn't work. I revisited
I have a pudendal nerve entrapment diagnosis of 8 years now but recently the pain from the anal area has now moved to my vaginal area causing really bad pain in vagina, vulva and perineum. I was given hormone cream to insert by gp as she thought it was menopausal symptoms. This didn't work. I revisited
hoopwhirl2007
in
Pelvic Pain Support Network
6 months ago
Another cold type virus
Posted in January about respiratory virus which I recovered from about 2 weeks ago. Blow me down, I have a sore throat, runny nose, feel flat and no energy again. This is the 3rd cold/flu type bug I have had in 3 months. Is this due to suppressed immune system or overdoing it or just bad luck? @
Posted in January about respiratory virus which I recovered from about 2 weeks ago. Blow me down, I have a sore throat, runny nose, feel flat and no energy again. This is the 3rd cold/flu type bug I have had in 3 months. Is this due to suppressed immune system or overdoing it or just bad luck? @
EnyaBlue
in
PMRGCAuk
4 months ago
Hair issues
hi I forgot to ask my rheum nurse about my hair. I’m on methotrexate and seems to be ok with no abnormal hair loss but since taking it I haven’t had my hair highlighted . Anybody advice with this ? I have left message on advice line but wondering others people’s experience. Thanks
hi I forgot to ask my rheum nurse about my hair. I’m on methotrexate and seems to be ok with no abnormal hair loss but since taking it I haven’t had my hair highlighted . Anybody advice with this ? I have left message on advice line but wondering others people’s experience. Thanks
Teddyboy17
in
NRAS
7 months ago
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one year olds vaccines
Our grandson aged one is having jabs. I looked up and these are scheduled for one year olds. MMR is a weakened vaccine. Does anyone know if it’s safe to be around him as a immunosuppressed or where to find out in green book please ? Hib/MenC Pneumococcal conjugate vaccine (PCV13) Meningococcal
Our grandson aged one is having jabs. I looked up and these are scheduled for one year olds. MMR is a weakened vaccine. Does anyone know if it’s safe to be around him as a immunosuppressed or where to find out in green book please ? Hib/MenC Pneumococcal conjugate vaccine (PCV13) Meningococcal
Mozart150
in
NRAS
7 months ago
I had b12 injections stopped during covid I’m now getting them again
I was diagnosed with pernicious anemia many years ago I was put on b12 injections,some years later I started experiencing numbness in my left leg burning sensation in my hands was sent to see a neurologist who did MRI scans and told there was degeneration in the nerves in my spine which was due to my
I was diagnosed with pernicious anemia many years ago I was put on b12 injections,some years later I started experiencing numbness in my left leg burning sensation in my hands was sent to see a neurologist who did MRI scans and told there was degeneration in the nerves in my spine which was due to my
bigE20
in
Pernicious Anaemia Society
4 months ago
re:- White blood cell count on steroids
Hi, Recently diagnosed with PMR and having started on 30mg. prednisolone now down to 15 mg in 3 weeks and seem to be doing well. Just had blood tests done and white blood cell count is high 16.4 10*9/L and am rather concerned, although as I understand this is a common side effect of steroids. Any
Hi, Recently diagnosed with PMR and having started on 30mg. prednisolone now down to 15 mg in 3 weeks and seem to be doing well. Just had blood tests done and white blood cell count is high 16.4 10*9/L and am rather concerned, although as I understand this is a common side effect of steroids. Any
gillsky8
in
PMRGCAuk
10 months ago
Weaning off times for Levothyroxine and steroids for BFP - please share? Thank you
Hi Ladies My clinic want to wean me off steroids and levothyroxine (only took as levels elevated by IVF drugs) can you please advise me on the timelines that your clinic used, or times you would recommend based on your personal experience? It’s a bit scary as these drugs helped to get the BFP. Thank
Hi Ladies My clinic want to wean me off steroids and levothyroxine (only took as levels elevated by IVF drugs) can you please advise me on the timelines that your clinic used, or times you would recommend based on your personal experience? It’s a bit scary as these drugs helped to get the BFP. Thank
Eggfreezer2015
in
Fertility Network UK - Pregnancy Support
10 months ago
feeling sick
Hi I’m new to this PMR diagnosis. Is it normal to feel sick and off food ? I’ve been off steroids for a few weeks , but might be put back on them .
Hi I’m new to this PMR diagnosis. Is it normal to feel sick and off food ? I’ve been off steroids for a few weeks , but might be put back on them .
TedTheMaineCoon
in
PMRGCAuk
10 months ago
what next?
Hello, I was diagnosed with exercise induced asthma in Jan 2022 and since then have tried various inhalers. I’m currently on Luforbec using the MART regime, so twice a day as standard and then when needed before exercise. I’ve also been taking Montelukast for the last six months. However my asthma still
Hello, I was diagnosed with exercise induced asthma in Jan 2022 and since then have tried various inhalers. I’m currently on Luforbec using the MART regime, so twice a day as standard and then when needed before exercise. I’ve also been taking Montelukast for the last six months. However my asthma still
Rosewren
in
Asthma Community Forum
4 months ago
stomach acid
I don't understand this stomach acid 'thing'. I take a proton pump inhibitor for high stomach acid but people insist that as you get older you're stomach acid reduce. I'm 79. Also that doctors erroneously mistake low stomach acid for high!! What is going on? Any thoughts
I don't understand this stomach acid 'thing'. I take a proton pump inhibitor for high stomach acid but people insist that as you get older you're stomach acid reduce. I'm 79. Also that doctors erroneously mistake low stomach acid for high!! What is going on? Any thoughts
fiftyone
in
Thyroid UK
7 months ago
Infusion
Fractured left humorous currently, previous fractured wrist and previous fractured foot, all left side, all due to falls. Am on 3.5mgs down from 15mgs May2022, dexascan levels good, rhuemt appt last week, she said because of being on steroids and a fracture I should have an infusion. Anyone had this,
Fractured left humorous currently, previous fractured wrist and previous fractured foot, all left side, all due to falls. Am on 3.5mgs down from 15mgs May2022, dexascan levels good, rhuemt appt last week, she said because of being on steroids and a fracture I should have an infusion. Anyone had this,
456again
in
PMRGCAuk
10 months ago
Should I wait to start my Low Dose Naltrexone (LDN) for the first time if I’ve had a Covid or annual Flu vaccine?
Should I wait to start my Low Dose Naltrexone (LDN) for the first time if I’ve had a Covid or annual Flu vaccine? Answered by Pharmacist Stephen Dickson, LDN Specialist https://youtu.be/KjUKG5O28WA?si=GdB1rjXWdmr5zZ0b
Should I wait to start my Low Dose Naltrexone (LDN) for the first time if I’ve had a Covid or annual Flu vaccine? Answered by Pharmacist Stephen Dickson, LDN Specialist https://youtu.be/KjUKG5O28WA?si=GdB1rjXWdmr5zZ0b
Shewulf
Administrator
in
LDN Research Trust
4 months ago
MS heart disease etc sleeping solid
On an MS flare after month of covid.... i realized how strong i was previous to covid to now flat on floor. It seems true deep sleep is so important. Restoring the muscles....downloading the brain from stresses , Has anyone created thier space for sleep and how? Basically i live in my bed/room so im
On an MS flare after month of covid.... i realized how strong i was previous to covid to now flat on floor. It seems true deep sleep is so important. Restoring the muscles....downloading the brain from stresses , Has anyone created thier space for sleep and how? Basically i live in my bed/room so im
jackiesj
in
Anxiety and Depression Support
4 months ago
Covid Strikes Again!
I had my second bout of covid just last week. However this time I was mentally ready. My immune systems in tip top shape with the now very healthy diet I eat, full of vitamins and minerals that my body needs. It was mild, with me having a mild temperature for a day and a runny nose for a week. One
I had my second bout of covid just last week. However this time I was mentally ready. My immune systems in tip top shape with the now very healthy diet I eat, full of vitamins and minerals that my body needs. It was mild, with me having a mild temperature for a day and a runny nose for a week. One
natswright
in
Lung Conditions Community Forum
4 months ago
Back again!!
I have been on here a few times and Jools and Sue saved my sanity! Other's have also been so kind so, thank you...again! I do have another question which I'm sure Jools and Sue can help me with. The 20 mcg Buprenorphine patch has helped my RLS hugely though I know it's lurking but I can now sleep which
I have been on here a few times and Jools and Sue saved my sanity! Other's have also been so kind so, thank you...again! I do have another question which I'm sure Jools and Sue can help me with. The 20 mcg Buprenorphine patch has helped my RLS hugely though I know it's lurking but I can now sleep which
Danni54
in
Restless Legs Syndrome
3 months ago
Home at last!
After 2 months (!) in hospital I finally got home on Friday. My hands were very stiff one day, the next I couldn't move them at all. That was very scary. They decided I had a virus, which took a week to get over, then I caught another - I had high temperature and a very phlegmy chest. They also put
After 2 months (!) in hospital I finally got home on Friday. My hands were very stiff one day, the next I couldn't move them at all. That was very scary. They decided I had a virus, which took a week to get over, then I caught another - I had high temperature and a very phlegmy chest. They also put
Kit10
in
My MSAA Community
4 months ago
Travel vaccinations
I’m travelling to Bali in April and been recommended to have Typhoid, Tetanus and Hepatitis A boosters. Has anyone experienced any issues following these vaccinations please? Currently on 0.5mg Pred and no intention of reducing further until after the holiday!
I’m travelling to Bali in April and been recommended to have Typhoid, Tetanus and Hepatitis A boosters. Has anyone experienced any issues following these vaccinations please? Currently on 0.5mg Pred and no intention of reducing further until after the holiday!
Dorothy61
in
PMRGCAuk
4 months ago
Covid and Uk free tests
Hi I have Covid again after being negative from the first bout 3 weeks again! Haven’t been anywhere so don’t know how its reared its head again, waiting on Respiratory Team to contact me again. In the UK we can get free tests with CLL, anyone got the free ones from the Chemist and what do we need to
Hi I have Covid again after being negative from the first bout 3 weeks again! Haven’t been anywhere so don’t know how its reared its head again, waiting on Respiratory Team to contact me again. In the UK we can get free tests with CLL, anyone got the free ones from the Chemist and what do we need to
uide3095
in
CLL Support
4 months ago
Isolated
I originally had an Ent appointment . Then all of a sudden I have an autoimmune disease and multiple tests and treatments. I'm on steroids that gave immediate side effects I'm taking loads of tablets every day. Every letter that comes through my door has NHS written on it. I'm physically disfigured.
I originally had an Ent appointment . Then all of a sudden I have an autoimmune disease and multiple tests and treatments. I'm on steroids that gave immediate side effects I'm taking loads of tablets every day. Every letter that comes through my door has NHS written on it. I'm physically disfigured.
Ellamaye
in
Vasculitis UK
10 months ago
COVID survivors may be at a greater risk of developing Parkinson’s–like symptoms, researchers warn. What to know to protect your health
COVID survivors may be at a greater risk of developing Parkinson’s disease–like symptoms, researchers warn. What you need to know to protect your health
https://finance.yahoo.com/news/covid-survivors-may-greater-risk-170451040.html "The virus was able to infect cells from all the aforementioned
COVID survivors may be at a greater risk of developing Parkinson’s disease–like symptoms, researchers warn. What you need to know to protect your health
https://finance.yahoo.com/news/covid-survivors-may-greater-risk-170451040.html "The virus was able to infect cells from all the aforementioned
Bolt_Upright
in
Cure Parkinson's
4 months ago
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