Experiences with

Stem cell and bone marrow transplants

Hello my name is Kristel and my daughter Leah has been on pd since she was 5 days old !!! She has also had open heart surgery She does pd Dialysis At home everyday We are still waiting for transplant We have a page for on face book called Leah storms journey to a kidney transplant

Hi all I have Primary APS which has led to bilaterally renal vein thrombosis and renal failure. I was fortunate to have a kidney transplant from my husband in 2000 which continues to function well. I also have psoriatic arthritis. My key issue is fairly severe ongoing weightloss - I've had full GI investigations

My kidney transplant was 1 and 1/2years ago ALL has been great. However this past week they discovered that I had been tested positive fot the CMV virus and immediately put on the Valcyte Drug. Can anyone help me with your experience with this?

Hello all, been a while since I’ve been on, well had my appointment with my Gen and my GFR is at 18 with high creatinine level, just got my 3 rd blood pressure pill and baking Soda pills, tests are gonna start now for a kidney transplant, hoping for a match from my youngest daughter for a live donor,

I was diagnosed with alcohol related liver disease (cirrhosis) in Sep 2016. I went through the normal process of tests at my local hospital and then got referred to Kings for assessment. I was accepted in Nov 2017 and had a transplant in Dec 2018. My main symptoms were fatigue, lack of strength, asities

With this stupid sciatica keeping me up all hours, I thought I'd mention something that might be of interest and even more to fellow COPD sufferers, and especially for those who might be seeking lung transplants. I have a neighbor who had a transplant not long ago. Maybe two years? I'm not really sure

Those of you who received a liver transplant over the past 12 or so years, may well have met with some of the Liver transplant Support Group volunteers either on ward 726 or even at the transplant assessment clinic. Some of you may recall Mr Alan Hyde who has been working on the ward as a Volunteer for

I was at a meeting last night with the Liver transplant Support Group at the QE. One of the items of discussion, involved the new liver transplant perfusion machine which was licensed for use back in January of this year. It has since been realised that although this machine is a wonderful piece or kit

hello I am Yenedith I am 16 and I am new here . I am stuck in a spiral .I want help Im just scared to be told you don't need it or you're lying or you just want attention.I am drowning with conflicts hitting me left and right in the face one after another I JUST NEED A BREAK.My stomach is slowly getting

I was wondering what exercise recommendations any of you might have as I'm having trouble figuring out what to do to build up my strength and endurance to the point it was before :) -a 17 year old deceased donor kidney transplant recipient

Hello, I wanted to introduce myself, i am new to this group and it is my first post. I am awaiting a lung transplant and just got on the waiting list a couple of weeks ago. Life has been a bit tough at the moment, i am on oxygen 24/7 and even doing the smallest tasks seem so difficult for me… I am on

I am a post liver transplant recipient. I got Cryptococcus in February. When oral meds didn't work, I did two months of amphotericin infusions and had VATS surgery to remove three of the eight nodules that were in my lung. I am wondering if anyone else has had this and what is your story with it? Thanks

I only know her through being a Member of a Transplant Forum, Chantel, has just had her Double Lung Transplant. Join me in wishing her a Speedy and Good recovery. Get Well very Soon Chantel, Love & Healing Words from our Forum. Carolina XXX

I am new here...and i am a kidney transplant recipent..[:

An update from yesterday’s post.well I’m realising that it takes a further amount of hospital visits and juggling of medication in particular prograf after a liver transplant before you can say your out of the woods finally.although some may not have any issues.so I’m in the hospital in the amazing countess

Hello, everyone. I have questions about being prepared for a kidney transplant. I feel completely unprepared and do not know what questions to ask my transplant coordinator. I have been on dialysis for five years. I have a potential donor who is well into the evaluation process at my transplant center

My brother is only 28 years old and he was diagnose with kidney failure and recommended for kidney transplant.. he is too young for that he has many dreams to full fill and as her sister i want him to continue his life.. I`m searching for help for his transplant because we are poor and we cant afford

I wanted to give those of you who 'know' me an update of where I'm at but for those who don't know of my MPN story I was diagnosed PMF 2006, had a Stem Cell Transplant in 2015 and am still feeling the effects of severe Graft Versus Host Disease (a reaction to the new cells) .

My consultant is now suggesting an allogeneic stem cell transplant. Does anyone here have direct experience of this type of transplant? I read conflicting advice. I am worried about the impact of a transplant on the body longterm, and the risk of secondary cancers.

What a crazy time! I have been poorly with a nasty virus for three weeks and had two weeks off work (most unlike me), luckily I’m not the poorly person in our household. Meanwhile, my very sick partner who is on oxygen 24 hours a day and still manages to work for a living , trudges on! I Woke up