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Facial rash
Hi Ladies looking for a little advice I'm now on weekly taxol with avastin every 3 weeks, first cycle of taxol is complete, not finding it too hard, a little shortness of breath, my major concern is I have facial flushing with an angry rash, my team have given me steroids to take for two days after infusion
Hi Ladies looking for a little advice I'm now on weekly taxol with avastin every 3 weeks, first cycle of taxol is complete, not finding it too hard, a little shortness of breath, my major concern is I have facial flushing with an angry rash, my team have given me steroids to take for two days after infusion
Lorent
in
My Ovacome
4 years ago
Hi all I am taking sotalol and apixiban and atorvistatin but have back pain and hip pain unrelated to the tablets I’ve been taking ibruffen
Which are helping but been advised not to because they could disrupt the tablets I am on can anyone advise me please
Which are helping but been advised not to because they could disrupt the tablets I am on can anyone advise me please
Trevor86
in
British Heart Foundation
4 years ago
Gemcitabine (Gemzar) - Your experience??
Exhausted usefulness of Ibrance/Faslodex. Experienced heart issues on 1st treatment of Xeloda, and onc says not wise to try again. So, knowing I react poorly to Taxol, he’s recommending gemcitabine infusions. Reading paper specifics are one thing- hearing your experiences are quite another. I’d be grateful
Exhausted usefulness of Ibrance/Faslodex. Experienced heart issues on 1st treatment of Xeloda, and onc says not wise to try again. So, knowing I react poorly to Taxol, he’s recommending gemcitabine infusions. Reading paper specifics are one thing- hearing your experiences are quite another. I’d be grateful
4thTimesTheCharm
in
SHARE Metastatic Breast Cancer
4 years ago
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Can anybody relate ?????
Stage 4 clear cell ovarian cancer !!!!latest scan Showed steady until December 2019 doing weekly taxol !!! Seen growth growing in scan there not sure too we’re Stopped weekly taxol on doctors ordered Rise in ca 125. Can’t move legs Was doing fine until stopped taxol now scared it metates to the
Stage 4 clear cell ovarian cancer !!!!latest scan Showed steady until December 2019 doing weekly taxol !!! Seen growth growing in scan there not sure too we’re Stopped weekly taxol on doctors ordered Rise in ca 125. Can’t move legs Was doing fine until stopped taxol now scared it metates to the
Waterhead
in
SHARE Ovarian Cancer Support
4 years ago
Sun sensitivity
Am probably about to go on Taxol but I like to sit outside and go on the sea. My list of side effects does not list sun sensitivity but I have read on the net that it can be a problem. Did anyone suffer from sun sensitivity with it? What form does it take? Can you sit in the sun with a high factor sunscreen
Am probably about to go on Taxol but I like to sit outside and go on the sea. My list of side effects does not list sun sensitivity but I have read on the net that it can be a problem. Did anyone suffer from sun sensitivity with it? What form does it take? Can you sit in the sun with a high factor sunscreen
juliamillen
in
My Ovacome
4 years ago
Getting bloods done prior to chemo
Hello everyone I hope you are as well as you can be, My care as now been transferred 60 miles away which is really inconvenient because my local hospital is 5mins away.Anyway I have to deal with it ,unfortunately the new hospital is in another health authority which adds to the complexities. I am stating
Hello everyone I hope you are as well as you can be, My care as now been transferred 60 miles away which is really inconvenient because my local hospital is 5mins away.Anyway I have to deal with it ,unfortunately the new hospital is in another health authority which adds to the complexities. I am stating
dryden1
in
My Ovacome
4 years ago
chemo Cycle 4
Restarted Chemo after surgery this week, with Cabo, Taxol and Avastin followed by filgrastim injection 24 hours later. Chemo session 8 hours so a long day on my own with the nurses and FaceTime etc but we coped very well considering. Just waiting for side effects to kick in (if any). CA125 down to 35
Restarted Chemo after surgery this week, with Cabo, Taxol and Avastin followed by filgrastim injection 24 hours later. Chemo session 8 hours so a long day on my own with the nurses and FaceTime etc but we coped very well considering. Just waiting for side effects to kick in (if any). CA125 down to 35
Jack1066
in
My Ovacome
4 years ago
Ablation or not? Help!!
Morning all, I’ve been on the waiting list for a year for an ablation and I have been offered an appointment this Friday to have it done. I think I’m getting cold feet now partly because of going into hospital whilst Covid is still about and also because I am dealing okay with my AF. I have four or five
Morning all, I’ve been on the waiting list for a year for an ablation and I have been offered an appointment this Friday to have it done. I think I’m getting cold feet now partly because of going into hospital whilst Covid is still about and also because I am dealing okay with my AF. I have four or five
Poppy128
in
British Heart Foundation
4 years ago
Taxol ovarian cancer
So the back of my throat is bleeding through! On taxol! Had this on other treatments! Anyone experienced this! Gargling with all sorts! Could it be low platelets? 🙄 just another Thing to deal with along with bowels farts you name it ! Talk about pushing you to the limit! God give me a break 🙏
So the back of my throat is bleeding through! On taxol! Had this on other treatments! Anyone experienced this! Gargling with all sorts! Could it be low platelets? 🙄 just another Thing to deal with along with bowels farts you name it ! Talk about pushing you to the limit! God give me a break 🙏
jools53
in
My Ovacome
4 years ago
What do you know about the side effects from taking Sotalol?
I have AF and the cardiologist prescribed Sotalol because of my abnormal heart beat. It made me fell like my heart was beating really fast but it wasn't, I had major shortness of breadth. Has anyone had similiar side effects from taking this drug?
I have AF and the cardiologist prescribed Sotalol because of my abnormal heart beat. It made me fell like my heart was beating really fast but it wasn't, I had major shortness of breadth. Has anyone had similiar side effects from taking this drug?
tk5518
in
AF Association
4 years ago
Long term survival
Dear ladies, At a time of questioning in my journey with this disease. What I really wish to determine is how many ladies with advanced disease (Stage 1V ) had surgery following diagnosis. Are there people who have had no surgery with long term survival? It’s quite hard to establish whether you are
Dear ladies, At a time of questioning in my journey with this disease. What I really wish to determine is how many ladies with advanced disease (Stage 1V ) had surgery following diagnosis. Are there people who have had no surgery with long term survival? It’s quite hard to establish whether you are
Rankij11
in
My Ovacome
4 years ago
Thoughts on clinical trial
Hi everyone I am received the consent form for the trial and I'm trying to make an informed decision as to whether I should still do this. It is called the bracelet study and is Phase 2. I am due to start my first treatment June 10th if I decide to go this route. I'm not too concerned about the first
Hi everyone I am received the consent form for the trial and I'm trying to make an informed decision as to whether I should still do this. It is called the bracelet study and is Phase 2. I am due to start my first treatment June 10th if I decide to go this route. I'm not too concerned about the first
Wolverine19
in
SHARE Metastatic Breast Cancer
4 years ago
Currently on Avastin. Hands seizing up badly and Painful stiff shoulders. Anyone had the same?
Hello ladies, I hope you are all managing to keep safe during this time, and all have your grocery and medication deliveries sorted! I had 6 x taxol and carbo wich finished in December 2019. I've been having Avastin since my 2nd chemo infusion. Avastin is continuing but I've had to postpone #13 infusion
Hello ladies, I hope you are all managing to keep safe during this time, and all have your grocery and medication deliveries sorted! I had 6 x taxol and carbo wich finished in December 2019. I've been having Avastin since my 2nd chemo infusion. Avastin is continuing but I've had to postpone #13 infusion
Meridian14
in
My Ovacome
4 years ago
Excessive Ectopics?
Hi all, any advice on this from you lovely people? Had ablation end of January and I've been recovering well until yesterday, just a few short runs of Af, less than a minute, no ectopics. Early on Saturday morning i started getting lots of ectopics, mostly 2 normal beats then a pause or 2 normal beats
Hi all, any advice on this from you lovely people? Had ablation end of January and I've been recovering well until yesterday, just a few short runs of Af, less than a minute, no ectopics. Early on Saturday morning i started getting lots of ectopics, mostly 2 normal beats then a pause or 2 normal beats
Ecki
in
AF Association
4 years ago
Update to liver Mets and other issues from scan
I saw my doctor today. This is another one of those times when I like to tell people I wouldn't wish breast cancer on anyone but it's very interesting with all of its twists and turns. So I was supposed to go on one clinical trial but that will not start for probably a couple of months. My options were
I saw my doctor today. This is another one of those times when I like to tell people I wouldn't wish breast cancer on anyone but it's very interesting with all of its twists and turns. So I was supposed to go on one clinical trial but that will not start for probably a couple of months. My options were
Wolverine19
in
SHARE Metastatic Breast Cancer
4 years ago
XELODA
Anyone have problems on Xeloda? I feel I have lost my life . I sleep a lot during the day, fall over a lot. Have terrible tummy troubles. Can’t get out for much of a walk as all toilets are closed. Hands and feet better since one week off one week off. Wish I was back on taxol but not allowed until November
Anyone have problems on Xeloda? I feel I have lost my life . I sleep a lot during the day, fall over a lot. Have terrible tummy troubles. Can’t get out for much of a walk as all toilets are closed. Hands and feet better since one week off one week off. Wish I was back on taxol but not allowed until November
BangorBelle56
in
SHARE Metastatic Breast Cancer
4 years ago
Increased dose making my feel weird
I've been taking 80mg sotalol twice a day for several months but still getting atrial fibrillation making me feel like I'm going to pass out. Very scarey but last week in hospital had my evening dose increased to 120mg. This is making me feel very woozy, light headed etc. Will these symptoms settle down
I've been taking 80mg sotalol twice a day for several months but still getting atrial fibrillation making me feel like I'm going to pass out. Very scarey but last week in hospital had my evening dose increased to 120mg. This is making me feel very woozy, light headed etc. Will these symptoms settle down
Patsywoo
in
AF Association
4 years ago
Carboplatin
I am fortunate enough to be 2 years out from stage 3 ovarian cancer. I did receive very aggressive weekly treatment with Carboplatin and taxol and I wanted to stop treatment right from the beginning due to difficult to manage side effects ie needing blood and plasma transfusions, neuropathy, loss of
I am fortunate enough to be 2 years out from stage 3 ovarian cancer. I did receive very aggressive weekly treatment with Carboplatin and taxol and I wanted to stop treatment right from the beginning due to difficult to manage side effects ie needing blood and plasma transfusions, neuropathy, loss of
Mele2222
in
SHARE Ovarian Cancer Support
4 years ago
Side effect: Nail bed pain, darkening and lifting
Has anyone experienced this painful horrific side effect?? I am on Taxol (one more round to go thank God) and I am experiencing this. None have lifted yet but it feels like its on its way to doing so. Even typing this post is painful.
Has anyone experienced this painful horrific side effect?? I am on Taxol (one more round to go thank God) and I am experiencing this. None have lifted yet but it feels like its on its way to doing so. Even typing this post is painful.
Dancer1000
in
SHARE Metastatic Breast Cancer
4 years ago
Can’t Seem to Tolerate Any Drugs!
Hi again, Just an update & a question. I started Sotalol on Sunday and after having chest pain, shortness of breath & a pulse of 42 for the past 2 nights, I called my GP this morning who sent me to A&E. Had ECG, X-ray & bloods. They eventually let me home after stopping the Sotalol, and giving me
Hi again, Just an update & a question. I started Sotalol on Sunday and after having chest pain, shortness of breath & a pulse of 42 for the past 2 nights, I called my GP this morning who sent me to A&E. Had ECG, X-ray & bloods. They eventually let me home after stopping the Sotalol, and giving me
Apple88
in
AF Association
4 years ago
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