Can anybody relate ?????: Stage 4 clear... - SHARE Ovarian Can...

SHARE Ovarian Cancer Support

2,759 members981 posts

Can anybody relate ?????

Waterhead profile image
3 Replies

Stage 4 clear cell ovarian cancer !!!!latest scan Showed steady until December 2019 doing weekly taxol !!!

Seen growth growing in scan there not sure too we’re

Stopped weekly taxol on doctors ordered

Rise in ca 125. Can’t move legs

Was doing fine until stopped taxol now scared it metates to the brain

Don’t know what the hell there doing ,

Really pissed 😡 and nothing I can do

Anyone have anything similar or stupid like this let me know ????

This sucks????

Written by
Waterhead profile image
Waterhead
To view profiles and participate in discussions please or .
Read more about...
3 Replies
Neona profile image
Neona

I have clear cell stage 3c and am in UK. Chemo didn’t work for me at all. I went to London for a second opinion and was immediately put on a clinical trial. The drug is an ATR inhibitor called AZD 6738 and I have been on this trial fir the last 2 1/2 years . Tumours have shrunk from total of 13.6 cm to 6.5 cm and one of the liver tumours has gone. There are other ATR inhibitors too but I don’t know their names. Maybe worth asking. A friend with clear cell has recently started on the same drug and her first scan results were good.

Waterhead profile image
Waterhead in reply to Neona

Asked doctors no one as heard of this one in Canada or they have it here

Thanks

SDlady profile image
SDlady

Ask your doctors about a clinical trial. Is there one available ? I hope you get some answers soon. These ladies on this forum know a lot and have been through a lot. They are helping me. Hugs to you.

You may also like...

Stage 3c OC, ca125 rising slowly

she had weekly infusions of carbo/taxol from December 2017 to April 2018. Treatments were stopped...

Anyone else have this happen?

Hi. I have clear cell ovarian cancer, the fun one. I have had the hysterectomy, oopherotomy...

Allergic Reaction to Carboplatin

next options going to be? I have my first scan in two weeks, since debulking surgery and chemo, so...

Stage IV cancer recurrence

September although my CA125 was rising from 15 to 559. In December my PET scan came back showing...

My ovarian cancer story thus far

distention I was diagnosed with stage 3c ov did chemo 3 rounds Carbo/Taxol total debulking then 3...