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Seeking advice about starting my Ovarian Cancer journey
Hello Everyone, Let me say thanks in advance for any and all advice or comments. It is very kind of you to share your stories and opinions. I may not be able to respond right away. Sorry for such a long post. I just want to get all of my info and questions out there. I will update with new information
Hello Everyone, Let me say thanks in advance for any and all advice or comments. It is very kind of you to share your stories and opinions. I may not be able to respond right away. Sorry for such a long post. I just want to get all of my info and questions out there. I will update with new information
Texas_Mom
in
My Ovacome
6 months ago
parp for hrd positive?
hi ladies, I hope you all are doing well and as always I would like to thank everyone in this group for their great continued support throughout the years. To recap - my mom was diagnosed in 2018 - debunking, chemo - second lot of chemo in 2021 and avastin up until 2022 - now she just had a successful
hi ladies, I hope you all are doing well and as always I would like to thank everyone in this group for their great continued support throughout the years. To recap - my mom was diagnosed in 2018 - debunking, chemo - second lot of chemo in 2021 and avastin up until 2022 - now she just had a successful
Lind58
in
My Ovacome
7 months ago
nhs stopping b12 injections
I have heard that nhs are stopping b12 injections due to the work load on surgeries.the nurse said that people will have blood tests and those who are above the level will then go onto oral medication.my concern is if they give you a blood test just after your b12 injection then levels will be high and
I have heard that nhs are stopping b12 injections due to the work load on surgeries.the nurse said that people will have blood tests and those who are above the level will then go onto oral medication.my concern is if they give you a blood test just after your b12 injection then levels will be high and
Triggert5656
in
Pernicious Anaemia Society
4 months ago
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ADT- Low Total Cholesterol- Low Serotonin in the brain = cause of Anxiety and Depression?
I have been experiencing short bursts of anxiety about topics that seem very irrational to me . They come and go in a period of 12-18 hours. I have had about 6 episodes during the last year. In the beginning my "Scout" voice tried to over ride the negative thinking with rational thinking. During the
I have been experiencing short bursts of anxiety about topics that seem very irrational to me . They come and go in a period of 12-18 hours. I have had about 6 episodes during the last year. In the beginning my "Scout" voice tried to over ride the negative thinking with rational thinking. During the
Scout4answers
in
Advanced Prostate Cancer
7 months ago
ET and colon cancer!
Hi Some days ago this video popped in my youtube about link between ET and colon or lung cancer. It said something like around 16% of ET patiens could develop lung or colon cancer. Anyone got some info or insight about this thing. I am diagnosed for 1 year wit JAK2 ET. Platelets are steady in the range
Hi Some days ago this video popped in my youtube about link between ET and colon or lung cancer. It said something like around 16% of ET patiens could develop lung or colon cancer. Anyone got some info or insight about this thing. I am diagnosed for 1 year wit JAK2 ET. Platelets are steady in the range
Myers75
in
MPN Voice
4 months ago
Two recent FDA Approvals
Hi everyone, I just wanted to share about two recent approvals. Sorry for my delaying in posting this. On October 11th the FDA made an approval for those with stage IV NSCLC with a BRAF V600E mutation. Here is a link to read more: https://go2.org/blog/fda-approves-combination-braftovi-and-mektovi-for-metastatic-non-small-cell-lung-cancer-for-individuals-with-a-braf-v600e-mutation
Hi everyone, I just wanted to share about two recent approvals. Sorry for my delaying in posting this. On October 11th the FDA made an approval for those with stage IV NSCLC with a BRAF V600E mutation. Here is a link to read more: https://go2.org/blog/fda-approves-combination-braftovi-and-mektovi-for-metastatic-non-small-cell-lung-cancer-for-individuals-with-a-braf-v600e-mutation
Miranda_GO2
Partner
in
Lung Cancer Support
7 months ago
cancer marker 15-3
My moms marker went up from 163 to 332 . She started her second line treatment about 7 weeks ago after being on Ibrance and Femara for around 2 and half years. She is now on faslodex and anfintor. Does this mean its not working ? And if it’s not will they change both meds or just one of them? Thank
My moms marker went up from 163 to 332 . She started her second line treatment about 7 weeks ago after being on Ibrance and Femara for around 2 and half years. She is now on faslodex and anfintor. Does this mean its not working ? And if it’s not will they change both meds or just one of them? Thank
Flower1513
in
SHARE Metastatic Breast Cancer
7 months ago
Pelvic pain and bloating,
Female aged 78,have suffered for a year with pain bloating and soreness in lower abdomen,have had all the tests,CT scan, gastrostoscopy ,colonoscopy nothing found,also gluten free diet,but pain still occurring the pain seems to come at random the only thing that helps is Amitriptyline,don't know what
Female aged 78,have suffered for a year with pain bloating and soreness in lower abdomen,have had all the tests,CT scan, gastrostoscopy ,colonoscopy nothing found,also gluten free diet,but pain still occurring the pain seems to come at random the only thing that helps is Amitriptyline,don't know what
Lawnmow
in
Pelvic Pain Support Network
4 months ago
Black stools
Hi was wondering if anyone has had black stools when you go to the toilet feeling sick and in a lot of pain in your stomach l have cirrhosis of the liver through medication that I was on .
Hi was wondering if anyone has had black stools when you go to the toilet feeling sick and in a lot of pain in your stomach l have cirrhosis of the liver through medication that I was on .
Petrina_gmfc
in
British Liver Trust
6 months ago
Colonoscopy report
Hi folks, I had my colonoscopy this morning, no sedation, didn't even need gas and air. Hopefully this will reassure those of you waiting for one. The prep wasn't as bad as last time. Maybe they've improved things since then. I didn't mind the taste of the Moviprep, though it was too sweet and because
Hi folks, I had my colonoscopy this morning, no sedation, didn't even need gas and air. Hopefully this will reassure those of you waiting for one. The prep wasn't as bad as last time. Maybe they've improved things since then. I didn't mind the taste of the Moviprep, though it was too sweet and because
Broseley
in
PMRGCAuk
4 months ago
Statins - get informed and know the risks
This is my take on things - my personal experience and that of people I have met, known and loved (family members). If you are being pushed to take statins I would advise people to read up and consider risks before deciding to go on statins.. AND IT IS your decision. There’s loads of literature,
This is my take on things - my personal experience and that of people I have met, known and loved (family members). If you are being pushed to take statins I would advise people to read up and consider risks before deciding to go on statins.. AND IT IS your decision. There’s loads of literature,
Charlie-Farley
in
Thyroid UK
1 year ago
Not where I expected to be
Hello to all, After my recent dx...shock...I decided to read other posts before I shared my story. I appreciate hearing about the travelling and CTGirl1962 mentioned handling this like a chronic illness... I have been a breast cancer survivor since 2010. That year my birthday present was having a
Hello to all, After my recent dx...shock...I decided to read other posts before I shared my story. I appreciate hearing about the travelling and CTGirl1962 mentioned handling this like a chronic illness... I have been a breast cancer survivor since 2010. That year my birthday present was having a
Hoehn
in
SHARE Metastatic Breast Cancer
7 months ago
concerns
Hi I am a 31 year old. This year I started having vag. discharge , cramps and stomach issues , among other symptoms and was found by ob to have a 12 cm ovarian cystoma. This was removed and has not come back. I was referred to GI because months later I still have stomach issues. I have had constipation
Hi I am a 31 year old. This year I started having vag. discharge , cramps and stomach issues , among other symptoms and was found by ob to have a 12 cm ovarian cystoma. This was removed and has not come back. I was referred to GI because months later I still have stomach issues. I have had constipation
Momofthree33
in
Colon Cancer Connected
4 months ago
Update - friend with bronchogenic adenocarcinoma
Hello all, Thanks again for your replies to my original post as a newbie for a friend. She saw her rad/onc today and the PET results are encouraging! No cancer showed up outside the lungs. He recommends she see a thoracic surgeon for her 5 cm mass (golf-tennis ball size) to see if she is a candidate
Hello all, Thanks again for your replies to my original post as a newbie for a friend. She saw her rad/onc today and the PET results are encouraging! No cancer showed up outside the lungs. He recommends she see a thoracic surgeon for her 5 cm mass (golf-tennis ball size) to see if she is a candidate
marcyh
in
Lung Cancer Support
7 months ago
Annoyed!
Morning all!Quick backdrop: I'm getting very frustrated ! I had an ablation for AF and Flutter in June 2022. No flutter since. A couple of known AF episodes few months apart ( both identifiable reasons) My EP keeps us on flecanide etc until review. Review done 6 /7months later. Due to the recent ( at
Morning all!Quick backdrop: I'm getting very frustrated ! I had an ablation for AF and Flutter in June 2022. No flutter since. A couple of known AF episodes few months apart ( both identifiable reasons) My EP keeps us on flecanide etc until review. Review done 6 /7months later. Due to the recent ( at
wilsond
in
AF Association
4 months ago
Ferritin levels decreased despite iron supplement
Hello In November I did a Monitor My Health Anaemia test, which showed: HB133g/L (normal) Ferritin 27ug/L (normal) TSAT 18% (normal) Active B12 47pmmol/L (normal) Folate 20ug/L (normal) In December my TSH at the GP was 1.01 (0.27 -4.2) Monitor My Health was TSH 1.19 (0.27-4.2) FT4 17 )12 -
Hello In November I did a Monitor My Health Anaemia test, which showed: HB133g/L (normal) Ferritin 27ug/L (normal) TSAT 18% (normal) Active B12 47pmmol/L (normal) Folate 20ug/L (normal) In December my TSH at the GP was 1.01 (0.27 -4.2) Monitor My Health was TSH 1.19 (0.27-4.2) FT4 17 )12 -
Amtired
in
Thyroid UK
4 months ago
Blood Results
Hi. Please can someone look at my bloods and give an opinion regarding medication. The blood tests date from February 23 (at the top of the picture) to June 22. Currently I take 50 mcg Levothyroxine and 15 mcg Liothyronine - split 10 mcg in the morning and 5 mcg in the afternoon. My Endo says I am
Hi. Please can someone look at my bloods and give an opinion regarding medication. The blood tests date from February 23 (at the top of the picture) to June 22. Currently I take 50 mcg Levothyroxine and 15 mcg Liothyronine - split 10 mcg in the morning and 5 mcg in the afternoon. My Endo says I am
Simba53
in
Thyroid UK
1 year ago
stomach acid
happy new year everyone I was diagnosed with PA approx 9yrs ago with some atrophic gastritis and metaplasia (I think) I also have arthritis in my knees/hips I SI every 7 to 10 days Im 56 and I’m fairly fit and active so I know I’m lucky compared to some what I’m confused about is stomach acid.
happy new year everyone I was diagnosed with PA approx 9yrs ago with some atrophic gastritis and metaplasia (I think) I also have arthritis in my knees/hips I SI every 7 to 10 days Im 56 and I’m fairly fit and active so I know I’m lucky compared to some what I’m confused about is stomach acid.
lifegems
in
Pernicious Anaemia Society
4 months ago
looking for reassurance or advice
Hello warriors, After exactly 2 years of happily dropping PSA numbers on triplet therapy, my husbands PSA went up this month from .91. To .94 I know MO will say to wait for 3 months of rising PSA before we should panic, but that’s easy for him to say… looking for reassurance as we wait for next months
Hello warriors, After exactly 2 years of happily dropping PSA numbers on triplet therapy, my husbands PSA went up this month from .91. To .94 I know MO will say to wait for 3 months of rising PSA before we should panic, but that’s easy for him to say… looking for reassurance as we wait for next months
Bspouse
in
Advanced Prostate Cancer
7 months ago
Does this look like a malar rash? Would it be seen as one by a doctor, do you think?
I have had joint pain and tiredness for the last six years. This last year it has got significantly worse and although I am overweight, the pain is felt in my fingers and elbows sometimes. My heel and ankle are also badly affected. The fatigue is debilitating. I have also developed digestive issues
I have had joint pain and tiredness for the last six years. This last year it has got significantly worse and although I am overweight, the pain is felt in my fingers and elbows sometimes. My heel and ankle are also badly affected. The fatigue is debilitating. I have also developed digestive issues
Fluffymella
in
LUPUS UK
3 months ago
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