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New England Journal of Medicine tweets video about implanted spinal neurostimulator for MSA to treat orthostatic hypotension
"Patients with multiple-system atrophy often have debilitating orthostatic hypotension. An implanted spinal cord stimulator could help to manage this hypotension and related syncope. New research findings are summarized in a short video. " https://twitter.com/Dysautonomia/status/1514920435598700553?s
"Patients with multiple-system atrophy often have debilitating orthostatic hypotension. An implanted spinal cord stimulator could help to manage this hypotension and related syncope. New research findings are summarized in a short video. " https://twitter.com/Dysautonomia/status/1514920435598700553?s
Rhyothemis
in
Multiple System Atrophy Trust
2 years ago
Mindfulness
I have not written for here some time but I have had PMR for about 12 years. When I retired 10 years ago I was under a lot of stress and attended a mindfulness based stress reduction course for 8 weeks. This changed my life! (for the better!). More recently I have been looking at Mindfulness again
I have not written for here some time but I have had PMR for about 12 years. When I retired 10 years ago I was under a lot of stress and attended a mindfulness based stress reduction course for 8 weeks. This changed my life! (for the better!). More recently I have been looking at Mindfulness again
Mike364
in
PMRGCAuk
2 years ago
unsure about diagnosis.
I am 77 and just had spirometry test and been diagnosed with severe COPD. Chest X-ray normal, sputum normal, oxygen 99%., no crackles or wheezing. No breathlessness just morning and evening chesty cough a few times which sometimes means expelling clear phlegm but not always. I have not been prescribed
I am 77 and just had spirometry test and been diagnosed with severe COPD. Chest X-ray normal, sputum normal, oxygen 99%., no crackles or wheezing. No breathlessness just morning and evening chesty cough a few times which sometimes means expelling clear phlegm but not always. I have not been prescribed
Cruise1
in
Lung Conditions Community Forum
2 years ago
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Forever neck pain
I have a spinal fusion about 3 months ago, but I don’t think it’s taken. And so I was wondering if anyone has had bad neck pain.The same as me it was manageable before the op, But now it’s so bad every day , it feels very sore. Thankyou in advance Love tea potxx
I have a spinal fusion about 3 months ago, but I don’t think it’s taken. And so I was wondering if anyone has had bad neck pain.The same as me it was manageable before the op, But now it’s so bad every day , it feels very sore. Thankyou in advance Love tea potxx
Hidden
in
Osteoarthritis Action
2 years ago
My brothers battle is over
Dear friends, It is with extreme sadness that I write this. My youngest brother Bobby at age 58 passed this morning. He fought hard for himself and his family for almost 4 years at stage 4. While he was declining quickly, his passing was unexpected this morning. He kissed his daughter and said
Dear friends, It is with extreme sadness that I write this. My youngest brother Bobby at age 58 passed this morning. He fought hard for himself and his family for almost 4 years at stage 4. While he was declining quickly, his passing was unexpected this morning. He kissed his daughter and said
Faith1111
in
Advanced Prostate Cancer
2 years ago
Meds after spinal fusion
My fusion was 11 weeks ago and I still need an occasional dose of my prescription medication. I have heard that otc meds such as aleve and ibuprofen can interfere with bone grafting, so I have been avoiding them. Surgeon said the otc's were okay to take at this point but I would rather wait until I
My fusion was 11 weeks ago and I still need an occasional dose of my prescription medication. I have heard that otc meds such as aleve and ibuprofen can interfere with bone grafting, so I have been avoiding them. Surgeon said the otc's were okay to take at this point but I would rather wait until I
Jeaniem130
in
Pain Concern
2 years ago
lungs having hissy fit
Anybody else finding themselves really, really tight and short of breath in last week or two???? I'm assuming pollen & mould spores are to blame( my usual triggers), but breathing is a constant daily battle. My Relvar 184/22 doesn't seem to be doing much, am taking Fexofenadine 180 daytime and montelukast
Anybody else finding themselves really, really tight and short of breath in last week or two???? I'm assuming pollen & mould spores are to blame( my usual triggers), but breathing is a constant daily battle. My Relvar 184/22 doesn't seem to be doing much, am taking Fexofenadine 180 daytime and montelukast
Hidden
in
Lung Conditions Community Forum
2 years ago
Spinal fusion question
Hi. My adult daughter anterior had L5/S1 spinal fusion surgery with instrumentation 3 months ago for excruciating and longstanding pain from a prolapsed disc. She has made fantastic progress and is practically pain free. However she had her 3 month appointment today and after Xray the Consultant said
Hi. My adult daughter anterior had L5/S1 spinal fusion surgery with instrumentation 3 months ago for excruciating and longstanding pain from a prolapsed disc. She has made fantastic progress and is practically pain free. However she had her 3 month appointment today and after Xray the Consultant said
Lunadoo
in
Pain Concern
2 years ago
Face rash/spots and cold sores
Morning all, I have had a 8 week course of Prednisone and now stopped. My face is covered in rash and spots thats really affecting my self esteem and now started with cold sores in corner of my mouth. I don’t want anymore preds due to moon face etc. Can I ask what creams, wash etc you all use to help
Morning all, I have had a 8 week course of Prednisone and now stopped. My face is covered in rash and spots thats really affecting my self esteem and now started with cold sores in corner of my mouth. I don’t want anymore preds due to moon face etc. Can I ask what creams, wash etc you all use to help
LSurtees
in
LUPUS UK
2 years ago
REFLECTIVE RAMBLINGS OF A RETICENTLY RETIRED RUNNER ..Part 1
THANKS The warm responses from so many of you to my
"I HAVE HUNG UP MY RUNNING SHOES”
post https://healthunlocked.com/couchto5k/posts/147942134/i-have-hung-up-my-running-shoes was exactly what I have come to expect from the wonderful supportive membership
THANKS The warm responses from so many of you to my
"I HAVE HUNG UP MY RUNNING SHOES”
post https://healthunlocked.com/couchto5k/posts/147942134/i-have-hung-up-my-running-shoes was exactly what I have come to expect from the wonderful supportive membership
Hidden
Mentor
in
Couch to 5K
2 years ago
Am I over thinking?
It has been many years since my SAH ruptured suddenly & I had emergency coiling, followed by a stent fitted a year later. Although it was traumatic at the time, for both myself & my family, I have been extremely lucky as I survived the 50/50 prognosis & had no physical limitations. It did take a couple
It has been many years since my SAH ruptured suddenly & I had emergency coiling, followed by a stent fitted a year later. Although it was traumatic at the time, for both myself & my family, I have been extremely lucky as I survived the 50/50 prognosis & had no physical limitations. It did take a couple
JHN62
in
Brain Aneurysm Support
2 years ago
Covid at last!
After avoiding covid for the last 27 months ( including a period at the beginning when we were marooned in the Maldives after lock down descended so quickly) we finally went on a three times postponed Danube river cruise and....first wife then I tested positive on our return to the UK. Even though the
After avoiding covid for the last 27 months ( including a period at the beginning when we were marooned in the Maldives after lock down descended so quickly) we finally went on a three times postponed Danube river cruise and....first wife then I tested positive on our return to the UK. Even though the
richardp
in
CLL Support
2 years ago
Reducing levothyroxine and taking HRT
I would appreciate some thoughts on whether I should reduce my Levothyroxine from 125 daily to 125 x Mon-Fri and 100 x Sat/Sun to bring TSH up a little bit. GP has agreed to this and started me on HRT patch (Evorel Conti 50) to see if that helps with the aches and pains as she thinks thyroid is treated
I would appreciate some thoughts on whether I should reduce my Levothyroxine from 125 daily to 125 x Mon-Fri and 100 x Sat/Sun to bring TSH up a little bit. GP has agreed to this and started me on HRT patch (Evorel Conti 50) to see if that helps with the aches and pains as she thinks thyroid is treated
Pooky1
in
Thyroid UK
2 years ago
Mannitol and sense of Taste/Smell
Mannitol was once quite a popular great white hope against PD, but only ever really seemed to benefit perhaps 1 in 5 at best. It did really seem to benefit me though. Given how cheap it is it is always worth a punt (I know big pharma study found no benefit, but we will agree to differ on how believable
Mannitol was once quite a popular great white hope against PD, but only ever really seemed to benefit perhaps 1 in 5 at best. It did really seem to benefit me though. Given how cheap it is it is always worth a punt (I know big pharma study found no benefit, but we will agree to differ on how believable
alexask
in
Cure Parkinson's
2 years ago
Video spinal cord stimulation and PD
https://youtu.be/iMtzq3UxhTY
https://youtu.be/iMtzq3UxhTY
House2
in
Cure Parkinson's
3 years ago
After years of doctors, trials, tests, meds etc. it is time to rest and flow with the current
After almost 4 years of posting here I have found it most difficult to write this. My wonderful 57 year old brother Bob has entered Hospice 3 weeks ago. Unfortunately these last three months have been one setback after another. Emergency spinal surgery leaving him struggling to walk, a permanent indwelling
After almost 4 years of posting here I have found it most difficult to write this. My wonderful 57 year old brother Bob has entered Hospice 3 weeks ago. Unfortunately these last three months have been one setback after another. Emergency spinal surgery leaving him struggling to walk, a permanent indwelling
Faith1111
in
Advanced Prostate Cancer
2 years ago
New blood work advice please
Hello everyone, Hope you are all keeping well. So I was diagnosed with Graves in April of this year after symptoms of high heart rate/palpitations, nervousness and heat intolerance. I was placed onto 20mg Carbimazole and Propanolol. My blood work is in the photos, first bloods were on diagnoses 14/
Hello everyone, Hope you are all keeping well. So I was diagnosed with Graves in April of this year after symptoms of high heart rate/palpitations, nervousness and heat intolerance. I was placed onto 20mg Carbimazole and Propanolol. My blood work is in the photos, first bloods were on diagnoses 14/
Pjd94
in
Thyroid UK
2 years ago
RLS Medication Recommendations
I have 2
spinal
cord
injuries
resulting in neuropathy in both feet and my right leg. My leg jerks uncontrollably throughout the day and night resulting in a terrible quality of life. I can't sleep, and then can't work at my computer during the day.
I have 2
spinal
cord
injuries
resulting in neuropathy in both feet and my right leg. My leg jerks uncontrollably throughout the day and night resulting in a terrible quality of life. I can't sleep, and then can't work at my computer during the day.
vertices
in
Restless Legs Syndrome
3 years ago
Has anyone seen the Freeze the fear series on the BBC
Hi I had sever back pain yesterday and out of desperation for something to watch I put Freeze the fear with Wim Hoff on the iplayer. This is not my usual fare but it pricked my interest because I have had a long struggle with autoimmune disease and having had read articles about exposure to extreme cold
Hi I had sever back pain yesterday and out of desperation for something to watch I put Freeze the fear with Wim Hoff on the iplayer. This is not my usual fare but it pricked my interest because I have had a long struggle with autoimmune disease and having had read articles about exposure to extreme cold
Hiibilly
in
PMRGCAuk
2 years ago
Trying to figure it all out?
I am 40 in a few days time and I need to figure out what's wrong with me. I had spinal surgery about 6 yrs ago and ever since then I have suffered tingling in both my hands and feet, pain in my knees, hips, neck and shoulders. I dont really sleep anymore because the pain in my body keeps me awake. I
I am 40 in a few days time and I need to figure out what's wrong with me. I had spinal surgery about 6 yrs ago and ever since then I have suffered tingling in both my hands and feet, pain in my knees, hips, neck and shoulders. I dont really sleep anymore because the pain in my body keeps me awake. I
Shirley0
in
My Fibro Community
2 years ago
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