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Another day
He's the same as he was, but his results aren't as good as we hoped. His swallow isn't as strong as it should be and ENT and speech therapist tried him with cuff down on the tracheotomy and holding over the opening, but he could only breathe in but not out. So they're going to arrange to put a smaller
He's the same as he was, but his results aren't as good as we hoped. His swallow isn't as strong as it should be and ENT and speech therapist tried him with cuff down on the tracheotomy and holding over the opening, but he could only breathe in but not out. So they're going to arrange to put a smaller
Castleview
in
British Heart Foundation
2 days ago
Speech production technology
Has anyone tried speech production technology, such as Stephen Hawking used, for PSP patients? Was it successful or not? Our speech therapist is asking us to consider it since we cannot understand my husband any more. Thanks
Has anyone tried speech production technology, such as Stephen Hawking used, for PSP patients? Was it successful or not? Our speech therapist is asking us to consider it since we cannot understand my husband any more. Thanks
TourEiffel
in
PSP Association
11 days ago
apathy
hi This is my first post, my husband 79 was diagnosed with PSP 18 months ago. My biggest frustration and upset is his apathy and lack of communication. We can have good and bad days and at hospital appointments he has proved he is able to communicate. It is just heartbreaking that he has no will or
hi This is my first post, my husband 79 was diagnosed with PSP 18 months ago. My biggest frustration and upset is his apathy and lack of communication. We can have good and bad days and at hospital appointments he has proved he is able to communicate. It is just heartbreaking that he has no will or
Tulipstaffie
in
PSP Association
1 month ago
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Adhd guidance
Hello everyone!! It has been 3 years since we started medication for my daughter who has adhd and we tried a lot of medications vyvanse, methylphenidate, guanfacine and the doctor was just increasing the dose but for her the first 2 weeks the medecine works and after that just stopped working. We went
Hello everyone!! It has been 3 years since we started medication for my daughter who has adhd and we tried a lot of medications vyvanse, methylphenidate, guanfacine and the doctor was just increasing the dose but for her the first 2 weeks the medecine works and after that just stopped working. We went
Purple008
in
CHADD's ADHD Parents Together
1 month ago
Update on me
Before I go to visit Ralph this morning, thought I'd write a bit about me. I rang this morning to see how his first night was, he'd vomited a little which she said was due to the stress of the move, but then he was fine and slept well. Last night was the first decent sleep I've had since his operation
Before I go to visit Ralph this morning, thought I'd write a bit about me. I rang this morning to see how his first night was, he'd vomited a little which she said was due to the stress of the move, but then he was fine and slept well. Last night was the first decent sleep I've had since his operation
Castleview
in
British Heart Foundation
1 month ago
Speech therapy
Does any one with Ataxia see a
speech
therapy
I have had Ataxia for 3 years my
speech
is slurred and some words I struggle to get out so I asked to see a
speech
therapy
went last week I had to repeat a lot of words after him which was okay as single words come out fine whole sentences are more a problem
Does any one with Ataxia see a
speech
therapy
I have had Ataxia for 3 years my
speech
is slurred and some words I struggle to get out so I asked to see a
speech
therapy
went last week I had to repeat a lot of words after him which was okay as single words come out fine whole sentences are more a problem
Elizabethtracy
in
Ataxia UK
1 year ago
What a difference
Been a good day for him so far. He said he had a rough night coughing. He was in his chair dressed when I got there. Physio told him off and said you don't need the hoist now, use the pulley to get up and in the chair.Physio and speech therapist came to put tiny camera up his nose to look down his throat
Been a good day for him so far. He said he had a rough night coughing. He was in his chair dressed when I got there. Physio told him off and said you don't need the hoist now, use the pulley to get up and in the chair.Physio and speech therapist came to put tiny camera up his nose to look down his throat
Castleview
in
British Heart Foundation
2 months ago
Possible improvement of speech in Parkinsons patients with the encouragement and implementation of a daily walking routine.
This may help improve breathing control, articulatory movements, and motor coordination involved in
speech
. The study found that rhythmic
speech
therapy
that focused on breathing control and articulation had some benefits for speech rhythm in Parkinson's patients.
This may help improve breathing control, articulatory movements, and motor coordination involved in
speech
. The study found that rhythmic
speech
therapy
that focused on breathing control and articulation had some benefits for speech rhythm in Parkinson's patients.
pdpatient
in
Cure Parkinson's
9 months ago
Anyone with PSP-PAGF
Increased his Syndopa dosage.My husband attends
speech
therapy
and karaoke classes. What other activities should he try to improve/maintain the current state and prevent further deterioration.
Increased his Syndopa dosage.My husband attends
speech
therapy
and karaoke classes. What other activities should he try to improve/maintain the current state and prevent further deterioration.
Sharsuk
in
PSP Association
1 year ago
Me again
Hi, here again. He's doing really well. He's out in the chair each day, still hoisted but he was trying to stand and they had to tell him no you're not strong enough yet. Monday he was in the chair when I got there and they didn't put him back to bed until I left. He was getting tired towards the end
Hi, here again. He's doing really well. He's out in the chair each day, still hoisted but he was trying to stand and they had to tell him no you're not strong enough yet. Monday he was in the chair when I got there and they didn't put him back to bed until I left. He was getting tired towards the end
Castleview
in
British Heart Foundation
2 months ago
Life Changing
We have a fantastic team from Oldham memory clinic who come to us for
speech
therapy
and to check his swallowing. They are a huge support to me too. We have a physio coming weekly, have had grab bars and a bed frame fitted to help him turn in the night.
We have a fantastic team from Oldham memory clinic who come to us for
speech
therapy
and to check his swallowing. They are a huge support to me too. We have a physio coming weekly, have had grab bars and a bed frame fitted to help him turn in the night.
Old_Hall
in
PSP Association
10 months ago
Parkinson's Nurse update
Hi all, thank you for all your previous posts, they were most helpful. Since then we have had a few medical professionals visit. The Parkinsons Nurse is coming to see my father-in-law tomorrow. Is there any questions we need to be asking? The OT and Physio visited yesterday and recommended a new commode
Hi all, thank you for all your previous posts, they were most helpful. Since then we have had a few medical professionals visit. The Parkinsons Nurse is coming to see my father-in-law tomorrow. Is there any questions we need to be asking? The OT and Physio visited yesterday and recommended a new commode
Loveispatient23
in
PSP Association
5 months ago
Struggling to make the best education choices
It started off as preschool working on language development in conjunction with his
speech
therapy
. He graduated from
speech
therapy
quickly, and we just kept up with the homeschooling. He has always been an active child with specific tendencies and very very friendly with other people.
It started off as preschool working on language development in conjunction with his
speech
therapy
. He graduated from
speech
therapy
quickly, and we just kept up with the homeschooling. He has always been an active child with specific tendencies and very very friendly with other people.
kt01513
in
CHADD's ADHD Parents Together
8 months ago
PEG Feeding
Hi....my step mum has PSP, she is bed bound and has carers come into her home 3 times a day to help my dad who is her full time carer. She is still able to eat and swallow although this is becoming a lot more difficult and time consuming and can no longer feed herself. The speech therapist spoke to my
Hi....my step mum has PSP, she is bed bound and has carers come into her home 3 times a day to help my dad who is her full time carer. She is still able to eat and swallow although this is becoming a lot more difficult and time consuming and can no longer feed herself. The speech therapist spoke to my
KingKenny73
in
PSP Association
6 months ago
voice
I had
speech
therapy
lastyear and try to do it often,but it seems my voice volume is stuck at low. I have seen voice ampliers addressed on Amazon. Has anyone used one and what kind was it?
I had
speech
therapy
lastyear and try to do it often,but it seems my voice volume is stuck at low. I have seen voice ampliers addressed on Amazon. Has anyone used one and what kind was it?
Golden13Mixed
in
PSP Association
1 year ago
Vocal chords paralysis .
I am having
speech
therapy
aswell. Can anyone associate with what I'm saying.
I am having
speech
therapy
aswell. Can anyone associate with what I'm saying.
sunflower25
in
Thyroid UK
1 year ago
Need some guidance
She has
speech
therapy
, OT and started behavior therapy recently but I really need some guidance about the medication because it is our first time to deal with a adhd and speech delay kid in our family.
She has
speech
therapy
, OT and started behavior therapy recently but I really need some guidance about the medication because it is our first time to deal with a adhd and speech delay kid in our family.
Purple008
in
CHADD's ADHD Parents Together
11 months ago
question for you all. Do you know of any insurance type policies that cover age care or long term care ?
Rehabilitation Services: Some policies include coverage for rehabilitative services, such as physical
therapy
, occupational
therapy
, or
speech
therapy
.
Rehabilitation Services: Some policies include coverage for rehabilitative services, such as physical
therapy
, occupational
therapy
, or
speech
therapy
.
LAJ12345
in
Cure Parkinson's
11 months ago
Five weeks in
Was rushed to hospital with stroke symptoms and no speach whatsoever. Spent two weeks in Warrington hospital B14 ward and was treated for brain infection with various IV antibiotics. Had various scans one at the Walton centre. Have been left with brocas aphasia and some other symptoms like drooling
Was rushed to hospital with stroke symptoms and no speach whatsoever. Spent two weeks in Warrington hospital B14 ward and was treated for brain infection with various IV antibiotics. Had various scans one at the Walton centre. Have been left with brocas aphasia and some other symptoms like drooling
Wheelchairdave
in
Headway
9 months ago
Helpful Info for Speech and Swallowing Problems
Wholistic
Speech
Therapy
Channel “The McKeon Method” Cure PSP Channel presentation by Matt McKeon, includes MSA information.
Wholistic
Speech
Therapy
Channel “The McKeon Method” Cure PSP Channel presentation by Matt McKeon, includes MSA information.
SaltyFlorist
in
Multiple System Atrophy Trust
1 year ago
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