Working on overcoming FND: Hello... - Functional Neurol...

Functional Neurological Disorder - FND Hope

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Working on overcoming FND

cgarff profile image
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Hello friends, in Dec 2008 I started having vocal issues during a cold. It has continue to come and go for the last 15 1/2 years. In addition to my voice after about 2 years, I began having myoclonic jerks, swallowing issues, dystonia, tremors, gait issues, spasms in my face. Tics, non epileptic & EPILEPTIC seizures and more. My life was completely turned upside down. I lost my job I had been at for 20 years, had to stop playing sports and missed out on so much if my kids lives. I tried multiple CBT, physical & speech therapists, and multiple neurologists. Many of which said it was all in my head. Finally I found a wonderful therapist, speech therapist and neurologist that didn't give up on me. That didn't say it was all in my head. They stuck with me. I have been so grateful to them for all their help, their non stop trying of different therapies,medications etc. I am happy to say that most of my symptoms are mostly gone. I went from 1 to 42 seizures in a day to almost making it a whole year without any. My voice lasts much longer than it used to and is so much stronger, my movements happen only here and there, not daily, and mentally I am able to control them better. Also finding the right seizure medication has helped greatly.

I am here to say, there is hope. Don't give up, keep trying. The saying is true, if at first you don't succeed, try, try again. I am still not 100 % back to where I was before this happened, I would say maybe 90 to 95% now. I can function now more often than not. I am back to work full time, and things are good. JUST KEEP TRYING!!

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cgarff
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Lady4 profile image
Lady4

Thats wonderful news, I am sorry that you missed out on so much and you didn't receive the care and support you deserved and wish you many years healthy happy years filled with love snd laughter (the best medicine) xx

AJtheCool profile image
AJtheCool

This is amazing to hear and gives me so much hope! Congratulations on all your hard work; you should be so proud of your resilience and determination. Sending thoughts your way!

Best,

AJ

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