Search
Search
About
Log in
Join
Experiences with
Soma
Posts
Communities
655 public posts
Filter results
Can’t decide
I have significant stage 4 endometriosis and adenomyosis for which I’ve had multiple surgeries including two excision and removal of left ovary and both tubes. Since my last excision I’ve been in pain every day which is now much worse as the disease returns within months of surgery even when excised
I have significant stage 4 endometriosis and adenomyosis for which I’ve had multiple surgeries including two excision and removal of left ovary and both tubes. Since my last excision I’ve been in pain every day which is now much worse as the disease returns within months of surgery even when excised
Lily1986
in
Endometriosis UK
8 months ago
Graves Disease
Hi, I have type 2 diabetes, I was over-prescribed metformin which had its horrors. When I came off it I was quickly diagnosed with thyroxicosis and hypercalcemia. Saw the endocrinologist yesterday. |He sat there and said do you know what you have wrong with you, then he told me I had Graves disease
Hi, I have type 2 diabetes, I was over-prescribed metformin which had its horrors. When I came off it I was quickly diagnosed with thyroxicosis and hypercalcemia. Saw the endocrinologist yesterday. |He sat there and said do you know what you have wrong with you, then he told me I had Graves disease
Trelissa
in
Thyroid UK
8 months ago
ileostomy surgery recovery
Hi, I have had my ileostomy 3 weeks today and whilst I love having the ileostomy my digestive system has gone into meltdown I have terrible cramps I was dealing with very high out put for weeks even following the white diet etc the stoma nurses put me on Imodium which does help but it feels like my
Hi, I have had my ileostomy 3 weeks today and whilst I love having the ileostomy my digestive system has gone into meltdown I have terrible cramps I was dealing with very high out put for weeks even following the white diet etc the stoma nurses put me on Imodium which does help but it feels like my
MyStar86
in
Living with a Stoma
8 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
What's on at Ovacome next week? (week commencing 13 November 2023)
Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week.
Monday 13 November
- London ovarian cancer support group between 3:00pm – 5:00pm: https://www.ovacome.org.uk/Event/london-support-group-event
Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week.
Monday 13 November
- London ovarian cancer support group between 3:00pm – 5:00pm: https://www.ovacome.org.uk/Event/london-support-group-event
OvacomeSupport
My Ovacome Team
in
My Ovacome
9 months ago
inflammation in eyes
I have an inflammatory eye condition either episcleritis or anterior uveitis. I’ve been on steroid drops for this which have given me cataract. On top of this inhave 2 stoma bags for a perforated bowel ( which triggered the eye inflammation). It’s been a horrendous time and I’ve become very down.
I have an inflammatory eye condition either episcleritis or anterior uveitis. I’ve been on steroid drops for this which have given me cataract. On top of this inhave 2 stoma bags for a perforated bowel ( which triggered the eye inflammation). It’s been a horrendous time and I’ve become very down.
Groundhog
in
NRAS
9 months ago
My story
Hi, it all started by going into hospital for day surgery for Hemorrhoids. Within 36 hours my wife had taken me back to A & E with a high heart rate and low blood pressure. I was also in a lot of pain, which I put down to the surgery for Hemorrhoids. I was soon in majors and within a few hours I was
Hi, it all started by going into hospital for day surgery for Hemorrhoids. Within 36 hours my wife had taken me back to A & E with a high heart rate and low blood pressure. I was also in a lot of pain, which I put down to the surgery for Hemorrhoids. I was soon in majors and within a few hours I was
Hikingman
in
ICUsteps
10 months ago
horror surgery
so I’m 5 days past what was meant to be a “simple” hysterectomy. Oh no, 6 1:2 hrs and emergency surgery later to fit a stoma here I am in hospital with multiple drains etc and in agony. My head is in a mess. Has anyone had this happen!? I can’t get my head round dealing with the stoma bag cleaning and
so I’m 5 days past what was meant to be a “simple” hysterectomy. Oh no, 6 1:2 hrs and emergency surgery later to fit a stoma here I am in hospital with multiple drains etc and in agony. My head is in a mess. Has anyone had this happen!? I can’t get my head round dealing with the stoma bag cleaning and
MrsPaddingtonBear
in
Endometriosis UK
10 months ago
Severe Bowel Endo/ Adeno
Hi all, posting for the first time just for a bit of support and to see if someone has been in a similar position. I have been going back and forth to the GP since 2016 with pelvic pain, tiredness and extreme bloating. I was told I had Ibs , however the pain was always in my pelvic area, heavy periods
Hi all, posting for the first time just for a bit of support and to see if someone has been in a similar position. I have been going back and forth to the GP since 2016 with pelvic pain, tiredness and extreme bloating. I was told I had Ibs , however the pain was always in my pelvic area, heavy periods
Zb92
in
Endometriosis UK
10 months ago
Stoma patient, mucus from anus
I’m seeing mucus from my anus, just this past week. I’ve had a bowel tumour that perforated in April 2023. I’m due my scan on 4th October. I have a stoma and no chemo ? I also have a hernia behind the stoma , awful pain from constant irritation on the skin surrounding the stoma? Some backache too?
I’m seeing mucus from my anus, just this past week. I’ve had a bowel tumour that perforated in April 2023. I’m due my scan on 4th October. I have a stoma and no chemo ? I also have a hernia behind the stoma , awful pain from constant irritation on the skin surrounding the stoma? Some backache too?
shmila19
in
Colon Cancer Connected
10 months ago
Ileostomy problems
Hi everyone, Just wanted to introduce myself and hope that I’m ok to be here to chat and listen to all things ostomy!! I hope that this finds you all well(ish) and happy 😀🙏 I’ve had my Ileostomy now for 16 yrs give or take 2 yrs when I had a reversal with a J-pouch formed. Unfortunately, after 18
Hi everyone, Just wanted to introduce myself and hope that I’m ok to be here to chat and listen to all things ostomy!! I hope that this finds you all well(ish) and happy 😀🙏 I’ve had my Ileostomy now for 16 yrs give or take 2 yrs when I had a reversal with a J-pouch formed. Unfortunately, after 18
SelfSoothe
in
Living with a Stoma
10 months ago
cartilage damage in knee
Have just had an MRI on my painful swollen knee and the result shows 3 separate tears in cartilage- can also feel
soma
pain starting in my other knee - I suppose it’s good that it isn’t PMR so can try reducing steroids again am on 5 mg at present
Have just had an MRI on my painful swollen knee and the result shows 3 separate tears in cartilage- can also feel
soma
pain starting in my other knee - I suppose it’s good that it isn’t PMR so can try reducing steroids again am on 5 mg at present
bakingD
in
PMRGCAuk
2 years ago
Looking for answers
Diagnosed with stage 3b Rectal Cancer in July 21. Chemo / Radiotherapy for 5 weeks in October 21 and APR with permanent colostomy on December 21. Thankfully am still NED 18 months later. One of my symptoms was lower back pain which was really painful but this eased up after the op as it was obvious
Diagnosed with stage 3b Rectal Cancer in July 21. Chemo / Radiotherapy for 5 weeks in October 21 and APR with permanent colostomy on December 21. Thankfully am still NED 18 months later. One of my symptoms was lower back pain which was really painful but this eased up after the op as it was obvious
divvykev
in
Pelvic Radiation Disease Association
11 months ago
My wonderful mum
I wanted to let you know that after almost 5 years of fighting this awful disease, my wonderful mum has passed away. Me and my family are absolutely devastated. She fought to the very end. It was a peaceful ending. my brother and I were holding each hand, repeating how much we loved her, and then she
I wanted to let you know that after almost 5 years of fighting this awful disease, my wonderful mum has passed away. Me and my family are absolutely devastated. She fought to the very end. It was a peaceful ending. my brother and I were holding each hand, repeating how much we loved her, and then she
N-A-58
in
My Ovacome
11 months ago
1st recurrence
I had my first recurrence after 4.5 years. It was a shock as I thought I was going to be ok. Two tumours appeared in the pelvic area. The surgeon did her best and managed to remove both tumours. But I had to have a bowel resection as well. For that I had to have an ilestoma for six weeks. That was very
I had my first recurrence after 4.5 years. It was a shock as I thought I was going to be ok. Two tumours appeared in the pelvic area. The surgeon did her best and managed to remove both tumours. But I had to have a bowel resection as well. For that I had to have an ilestoma for six weeks. That was very
Bluesparrow
in
My Ovacome
1 year ago
grade 5 reflux with a neurogenic bladder
my son (now 8 months old) was diagnosed with a grade 5 reflux along with a neurogenic bladder post his mcu and cystoscopy which were performed when he was almost a month old, after a life threatening episode of sepsis. The reflux situation caused urine to build up in the kidneys, so much so that one
my son (now 8 months old) was diagnosed with a grade 5 reflux along with a neurogenic bladder post his mcu and cystoscopy which were performed when he was almost a month old, after a life threatening episode of sepsis. The reflux situation caused urine to build up in the kidneys, so much so that one
Anxiousmom97
in
Parents of Children with Kidney Disease
1 year ago
stomach bug ?
I’ve been vomiting and feeling nauseous for a few days . Lots of liquid output and noises from stoma . I have no pain or cramps so I don’t think it’s a blockage. Any ideas whet I should do or take ? Thanks
I’ve been vomiting and feeling nauseous for a few days . Lots of liquid output and noises from stoma . I have no pain or cramps so I don’t think it’s a blockage. Any ideas whet I should do or take ? Thanks
Lmcn
in
Living with a Stoma
1 year ago
Can I opt for a removal of colon stump?
Now that I have a colostomy, I actually love it! Two years ago, I had a rectal prolapse. Doctor removed about a foot of my colon and I was left incontinent. Then, it prolapsed again and was sent to another doctor who fixed the prolapse through laparoscopy. I was still incontinent. I actually had
Now that I have a colostomy, I actually love it! Two years ago, I had a rectal prolapse. Doctor removed about a foot of my colon and I was left incontinent. Then, it prolapsed again and was sent to another doctor who fixed the prolapse through laparoscopy. I was still incontinent. I actually had
DesertDeuces
in
Living with a Stoma
1 year ago
The Stoma Begining
I’ve had prior Cancers like Bowell Cancer, Stage3 Testicular Cancer which are in remission and then Bladder Cancer. It was cleared but I was having Cystoscopies every 3mths to ensure the Bladder Cancer hadn’t returned. But what happened the last one which was in February my Urologist found the Bladder
I’ve had prior Cancers like Bowell Cancer, Stage3 Testicular Cancer which are in remission and then Bladder Cancer. It was cleared but I was having Cystoscopies every 3mths to ensure the Bladder Cancer hadn’t returned. But what happened the last one which was in February my Urologist found the Bladder
Clarence2
in
Living with a Stoma
1 year ago
scleroderma and faecal incontinence
morning. I’m struggling with this at the moment and it’s limiting me to what I can do. I’ve seen a surgeon recently who mentioned a stoma as a last resort but I’m not sure about it. I’m not suitable for a rectal stimulator. I’m using pads and loperamide but wondered if anyone else has a similar problem
morning. I’m struggling with this at the moment and it’s limiting me to what I can do. I’ve seen a surgeon recently who mentioned a stoma as a last resort but I’m not sure about it. I’m not suitable for a rectal stimulator. I’m using pads and loperamide but wondered if anyone else has a similar problem
anne1
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Night only output!
Hey, newly installed loop ileostomy (2 months), and having a lot of troubles with eating still. Was advised to eat small portions of soft food for a while before getting more ambitious. This was going well, fairly consistent output from the stoma after eating until it wasn’t. Now digestion seems like
Hey, newly installed loop ileostomy (2 months), and having a lot of troubles with eating still. Was advised to eat small portions of soft food for a while before getting more ambitious. This was going well, fairly consistent output from the stoma after eating until it wasn’t. Now digestion seems like
GranolaLover10
in
Living with a Stoma
1 year ago
1
2
3
4
...
33
Next page
10
20
30
Filter results
Clear filters
Posted in
All communities
My Ovacome
197 results
Endometriosis UK
128 results
Living with a Stoma
89 results
View top 10 communities
Sort by
Most Relevant
Newest