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HOLIDAY INSURANCE.
Hello everyone, I was diagnosed with CLL in August 2018 and so far have remained on watch and wait. In September 2019, I had successful surgery for colon cancer, had a stoma for 6 months and then a reversal and have been "all clear" since then. Also, as a bonus, the chemo I had for the colon cancer
Hello everyone, I was diagnosed with CLL in August 2018 and so far have remained on watch and wait. In September 2019, I had successful surgery for colon cancer, had a stoma for 6 months and then a reversal and have been "all clear" since then. Also, as a bonus, the chemo I had for the colon cancer
donevning2213
in
CLL Support
1 year ago
Niraparib ( Zejula) with an ileostomy
hi everyone , is anyone with an ileostomy taking Niraparib ( Zejula) ? I took Rucaparib but lost so much fluid through the stoma that there was very little padding through the kidneys and it caused kidney problems. I may now take Niraparib . Just wondering if anyone has experience with an ileostomy and
hi everyone , is anyone with an ileostomy taking Niraparib ( Zejula) ? I took Rucaparib but lost so much fluid through the stoma that there was very little padding through the kidneys and it caused kidney problems. I may now take Niraparib . Just wondering if anyone has experience with an ileostomy and
Lookingahead
in
My Ovacome
1 year ago
Ostomy Bag Gone Amuck
My Hollister ostomy bag pancakes on stoma and prevents bag from operating properly. Hence it blows up and comes apart in the most inopportune times. My hernia prevents me from putting the bag on properly. I need help from someone else. Does anyone have these problems?
My Hollister ostomy bag pancakes on stoma and prevents bag from operating properly. Hence it blows up and comes apart in the most inopportune times. My hernia prevents me from putting the bag on properly. I need help from someone else. Does anyone have these problems?
Redicy10
in
Colon Cancer Connected
1 year ago
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Surgery
I have just woken up properly from surgery, I’ve been out since 4pm (I think) on and off. I’m not currently on any painkillers (that I know of) and I feel fine. My surgery was a bit more complex, because of being diabetic they had be come in the day before. Not going to lie, fasting was AWFUL. I am
I have just woken up properly from surgery, I’ve been out since 4pm (I think) on and off. I’m not currently on any painkillers (that I know of) and I feel fine. My surgery was a bit more complex, because of being diabetic they had be come in the day before. Not going to lie, fasting was AWFUL. I am
Aardvarks
in
Endometriosis UK
2 years ago
Anxious about radiotherapy
Hello everyone. I’ve just come back from seeing my oncologist and am feeling flat and anxious. I was thinking that I might need a couple of sessions of radiotherapy after finishing my chemo but have just been told that I’ll have 25 sessions over 5 weeks with 2 further chemo (cisplatin) in weeks 1 and
Hello everyone. I’ve just come back from seeing my oncologist and am feeling flat and anxious. I was thinking that I might need a couple of sessions of radiotherapy after finishing my chemo but have just been told that I’ll have 25 sessions over 5 weeks with 2 further chemo (cisplatin) in weeks 1 and
OrdinarySoul
in
My Ovacome
2 years ago
What's on at Ovacome next week (commencing 14 November 2022)?
Good afternoon everyone This is a post to let you all know about what's taking place through Ovacome's Staying Connected programme next week - and to remind you all that you would be really welcome to join us. All these events are run online via Zoom. If anyone is unfamiliar with Zoom and would like
Good afternoon everyone This is a post to let you all know about what's taking place through Ovacome's Staying Connected programme next week - and to remind you all that you would be really welcome to join us. All these events are run online via Zoom. If anyone is unfamiliar with Zoom and would like
OvacomeSupport
My Ovacome Team
in
My Ovacome
2 years ago
Anxious - Endo and bowel surgery
Hello all! Joined this group when I discovered I had endometriosis. I’ve since had a laparoscopy which has confirmed severe endo, obliterated pouch of Douglas, adhesions to the bowel. MRI has also confirmed adenomyosis. Not great! I’ve tried dienogest which just turned me into a psycho so not keen
Hello all! Joined this group when I discovered I had endometriosis. I’ve since had a laparoscopy which has confirmed severe endo, obliterated pouch of Douglas, adhesions to the bowel. MRI has also confirmed adenomyosis. Not great! I’ve tried dienogest which just turned me into a psycho so not keen
Highlandgoat
in
Endometriosis UK
2 years ago
Panic over endo surgery
Hi there,I've been waiting for laparoscopic surgery and a cystectomy for some time to treat what has been classified as severe endo. I got a call to say they are booking me in and now I am really panicked. I have never had any kind of surgery before and, because of where the endo is, I'll also need
Hi there,I've been waiting for laparoscopic surgery and a cystectomy for some time to treat what has been classified as severe endo. I got a call to say they are booking me in and now I am really panicked. I have never had any kind of surgery before and, because of where the endo is, I'll also need
Seeingred
in
Endometriosis UK
2 years ago
4th surgery
Hernia and post Ovarian surgery. Hi everyone, I had Ovarian cancer surgery Aug 2019 which included the bowel being scraped, the tumour had attached itself to the bowel, followed by 6 rounds of chemo. Easter 2019 had a bowel blockage, it cleared with fasting and intravenous fluids. Another blockage
Hernia and post Ovarian surgery. Hi everyone, I had Ovarian cancer surgery Aug 2019 which included the bowel being scraped, the tumour had attached itself to the bowel, followed by 6 rounds of chemo. Easter 2019 had a bowel blockage, it cleared with fasting and intravenous fluids. Another blockage
StyleK
in
My Ovacome
2 years ago
stage 4 endo bowel 100pc worse after Mirena coil
Hello everyone, first time poster here I’m going to try and keep it succinct.. I’ve had endo for 15 years. Lived with the pain, had two laps 6 months in zoladax and watch what I eat. Wasn’t really monitored over covid endo got worse. In April suspected cervical cancer (thankfully negative). In august
Hello everyone, first time poster here I’m going to try and keep it succinct.. I’ve had endo for 15 years. Lived with the pain, had two laps 6 months in zoladax and watch what I eat. Wasn’t really monitored over covid endo got worse. In April suspected cervical cancer (thankfully negative). In august
Ess1982
in
Endometriosis UK
2 years ago
bleeding
5 years ago upon diagnosis of OC, I had a full Hysterectomy and a round of paclitaxol and carboplatin, 3 years later had chemo again but didn't work, been gradually getting worse until May this year I tummy blew up and quite painful can't fit my jeans on anymore thought it was ascites only to have a
5 years ago upon diagnosis of OC, I had a full Hysterectomy and a round of paclitaxol and carboplatin, 3 years later had chemo again but didn't work, been gradually getting worse until May this year I tummy blew up and quite painful can't fit my jeans on anymore thought it was ascites only to have a
Melnie
in
My Ovacome
2 years ago
Pain im old stoma site
i had my stoma reversed 18 years ago and have slwats had the occasional pain but the ladt month it has been awful. The pain last for hours and either dull or sharp (luje a needle going through to my back) ended up at the hospital lsft week. They were wondering with blood test and CT scan and lucky that
i had my stoma reversed 18 years ago and have slwats had the occasional pain but the ladt month it has been awful. The pain last for hours and either dull or sharp (luje a needle going through to my back) ended up at the hospital lsft week. They were wondering with blood test and CT scan and lucky that
Totti10
in
Living with a Stoma
2 years ago
new to all this
Hi there, I’m new to all this. This is all part of a bigger story. I already have a stoma after my gp left me for three years with bowel problems and did no investigation. My bowel burst, I ended up with septic shock and nearly died. Last year they found I had a peritoneal inclusion cyst which was
Hi there, I’m new to all this. This is all part of a bigger story. I already have a stoma after my gp left me for three years with bowel problems and did no investigation. My bowel burst, I ended up with septic shock and nearly died. Last year they found I had a peritoneal inclusion cyst which was
AndreaBabyC
in
Kidney Disease
2 years ago
Positive Laparoscopy Stories?
Hi everyone😊 I was diagnosed with Endo early last year (even though I’m certain I’ve had it for about 9 years). Basically they found an ovarian cyst on one of my ovaries last year, confirmed via MRI that it was an endometrioma and I was placed on the waiting list for surgery. After waiting around for
Hi everyone😊 I was diagnosed with Endo early last year (even though I’m certain I’ve had it for about 9 years). Basically they found an ovarian cyst on one of my ovaries last year, confirmed via MRI that it was an endometrioma and I was placed on the waiting list for surgery. After waiting around for
G_A_A
in
Endometriosis UK
2 years ago
late effects
rectal cancer 2008 chemo/radio.7yrs later sudden bleeding &mucous ,had 3 purastat treatments at Wythenshawe hospital.Bleeding stopped.Had tried hyperbaric no good. Also got stoma so diet won't make any diff. Radio destroys healthy tissue hence discharge. Seems to be no treatment but removal of rectum.Major
rectal cancer 2008 chemo/radio.7yrs later sudden bleeding &mucous ,had 3 purastat treatments at Wythenshawe hospital.Bleeding stopped.Had tried hyperbaric no good. Also got stoma so diet won't make any diff. Radio destroys healthy tissue hence discharge. Seems to be no treatment but removal of rectum.Major
Patience
in
Pelvic Radiation Disease Association
2 years ago
Frustrated and hopeless....
I just wanted to vent and share with people who might be going through something similar. I am nearly 35 and have been waiting for a date for my excision surgery since November. They think my endo is now stage 4 and in my bowels, bladder and ureters. Despite being at the top of this waiting list
I just wanted to vent and share with people who might be going through something similar. I am nearly 35 and have been waiting for a date for my excision surgery since November. They think my endo is now stage 4 and in my bowels, bladder and ureters. Despite being at the top of this waiting list
Hungry_armadillo
in
Endometriosis UK
2 years ago
mesh repair? [Thread contains photographs]
Am wondering if anyone has had this repair for parastomal hernia and outomes? Am considering getting this done. Saw colorectal surgeon- didn’t fill me with enthusiasm due to risk of it recurring. I am beginning to look like I have a fully inflated helium balloon lurking! I wish I had been advised on
Am wondering if anyone has had this repair for parastomal hernia and outomes? Am considering getting this done. Saw colorectal surgeon- didn’t fill me with enthusiasm due to risk of it recurring. I am beginning to look like I have a fully inflated helium balloon lurking! I wish I had been advised on
Laz66
in
My Ovacome
2 years ago
rectal cancer..
so almost a year ago I posted that i will be having a colonoscopy and later i posted that i was diagnosed with stage 3 rectal cancer. Since that day lots of things happened! I had to do fertility preservation which was not very successful probably due to all the stress i was having.. then i started
so almost a year ago I posted that i will be having a colonoscopy and later i posted that i was diagnosed with stage 3 rectal cancer. Since that day lots of things happened! I had to do fertility preservation which was not very successful probably due to all the stress i was having.. then i started
Ram9
in
Colon Cancer Connected
2 years ago
endometriosis on bowel
hi, I have had confirmed endo since 2008. Iv he’s many treatments since including 2 excisions. I am due to have another excision any time. This time tho they are wanting to do a bowel resection too. was wondering if anyone has had this too? And what the risks are etc and possibly ending up with a
hi, I have had confirmed endo since 2008. Iv he’s many treatments since including 2 excisions. I am due to have another excision any time. This time tho they are wanting to do a bowel resection too. was wondering if anyone has had this too? And what the risks are etc and possibly ending up with a
Hidden
in
Endometriosis UK
2 years ago
Feeling angry - stoma supplies and dignity
Just had a bad phone call and am feeling so angry - I need to vent. I ordered my stoma products as I have done every month for the last 18 months - through their online portal. Their system sends an email to the GP, they authorise, and the products are dispatched and arrive with me, usually not more
Just had a bad phone call and am feeling so angry - I need to vent. I ordered my stoma products as I have done every month for the last 18 months - through their online portal. Their system sends an email to the GP, they authorise, and the products are dispatched and arrive with me, usually not more
testarossa71
in
My Ovacome
2 years ago
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