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MCAS, but possible Masto?
Hello, I'm almost 39 and have a diagnosis of MCAS through Dr Claire Taylor in Perth. I've been treated for MCAS for just over a year, but have been symptomatic in one way or another all of my life. I take fexofenadine, montelukast, famotidine and quercetin at present for stabilisation. I have what
Hello, I'm almost 39 and have a diagnosis of MCAS through Dr Claire Taylor in Perth. I've been treated for MCAS for just over a year, but have been symptomatic in one way or another all of my life. I take fexofenadine, montelukast, famotidine and quercetin at present for stabilisation. I have what
Loulou8484
in
The UK Mastocytosis Support Group
11 months ago
Eye issues related to hypothyroidism
Hi all, I was diagnosed with hypothyroidism in January of this year and started on 50mg levothyroxine. I’m having bloods every six weeks and working on my iron, vitamin D levels, folate and selenium. I’ll add my test results at the end for info. Overall I am feeling much better but I developed eye
Hi all, I was diagnosed with hypothyroidism in January of this year and started on 50mg levothyroxine. I’m having bloods every six weeks and working on my iron, vitamin D levels, folate and selenium. I’ll add my test results at the end for info. Overall I am feeling much better but I developed eye
Phoenix_24
in
Thyroid UK
6 months ago
Newsystem23
Not posted for a while, hope everyone is managing their lupus symptoms as best they can. I did think that using 50spf sun screen and taking hydroxychloroquine would keep my skin lupus at bay. However, I'm beginning to realise it is not just the sun and artificial light that my skin is sensitive to.
Not posted for a while, hope everyone is managing their lupus symptoms as best they can. I did think that using 50spf sun screen and taking hydroxychloroquine would keep my skin lupus at bay. However, I'm beginning to realise it is not just the sun and artificial light that my skin is sensitive to.
Newsystem23
in
LUPUS UK
6 months ago
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Webinar:Do magnifying intraocular lenses work for people with macular disease?
Magnifying lenses, which are implanted are available to help those with macular disease see better. But, no trials have been done to prove how useful they are or who they are most suitable for. Dr Julie Silvestri from Royal Hospitals, Belfast, will be joining us for our first webinar of the month to
Magnifying lenses, which are implanted are available to help those with macular disease see better. But, no trials have been done to prove how useful they are or who they are most suitable for. Dr Julie Silvestri from Royal Hospitals, Belfast, will be joining us for our first webinar of the month to
Carol_MacularSociety
Partner
in
Macular Society
6 months ago
Glaucoma and macula degeneration
I've had glaucoma for nearly 30 yrs (I am 75) now diagnosed with macula degeneration in left eye . Anyone have the same ..what are the prospects ? Thank you..
I've had glaucoma for nearly 30 yrs (I am 75) now diagnosed with macula degeneration in left eye . Anyone have the same ..what are the prospects ? Thank you..
jesolo12
in
Glaucoma UK
6 months ago
covid and metratrexate for RA
morning all!! I tested positive for covid on the 24th of February and was told by the Rheumatologist nurses and the consultant to stop the metratrexate and just take painkillers which that is what I’ve been doing!I'm having a massive flur up as I haven’t had any RA meds for over a month as before the
morning all!! I tested positive for covid on the 24th of February and was told by the Rheumatologist nurses and the consultant to stop the metratrexate and just take painkillers which that is what I’ve been doing!I'm having a massive flur up as I haven’t had any RA meds for over a month as before the
Mybirthday1975
in
NRAS
6 months ago
Cavernous Tumor & Rising PSA
My husband had triple therapy with docetaxel (finished chemo in January), darolutimide, and Firmagon/Lupron. Recently he developed what seemed like a sinus infection but was really a tumor in his sinus cavity and behind his eye socket wrapped around his carotid arteries on the plate of his skull (
My husband had triple therapy with docetaxel (finished chemo in January), darolutimide, and Firmagon/Lupron. Recently he developed what seemed like a sinus infection but was really a tumor in his sinus cavity and behind his eye socket wrapped around his carotid arteries on the plate of his skull (
Izzygirl1
in
Advanced Prostate Cancer
11 months ago
Pegasys side effects
I was switched from 500 Hydroxyurea/day to 90mg Pegasys every two weeks. The pain in hips and thighs is substantial - headache also, but not as bothersome as the muscle pain. Has anyone else experience this on Pegasys. Also, has anyone tried CoQ10 for muscle pain and has it work? Thanks
I was switched from 500 Hydroxyurea/day to 90mg Pegasys every two weeks. The pain in hips and thighs is substantial - headache also, but not as bothersome as the muscle pain. Has anyone else experience this on Pegasys. Also, has anyone tried CoQ10 for muscle pain and has it work? Thanks
Dusty777
in
MPN Voice
6 months ago
Desperately need help pls
So since last writing my previous post my Son has been experiencing “cluster seizures” - whereby he goes into a trance like state, talks gibberish and he can’t remember events and has no memory of what has happened. He has had approximately 3 or 4 of these “events” between May and December. The December
So since last writing my previous post my Son has been experiencing “cluster seizures” - whereby he goes into a trance like state, talks gibberish and he can’t remember events and has no memory of what has happened. He has had approximately 3 or 4 of these “events” between May and December. The December
Lisamarsh
in
Headway
8 months ago
distortion on Amsler grid
Hi, I’m 44 years old and developed eye pain a couple of weeks ago, it was pretty intense and mostly in the outer corner of my left eye though a little in my right eye too. I thought I had an eye infection so booked an eye test with an OCT scan, my eye test was fine, OCT scan was fine too and my prescription
Hi, I’m 44 years old and developed eye pain a couple of weeks ago, it was pretty intense and mostly in the outer corner of my left eye though a little in my right eye too. I thought I had an eye infection so booked an eye test with an OCT scan, my eye test was fine, OCT scan was fine too and my prescription
Phoenix_24
in
Macular Society
6 months ago
eylea injections
Hi everyone. I have the eyelea injections in both eyes, it is often painful for 3-4 days after and i always have bloodshot eyes. My question is, when should i return to work after these injections? I work in an acute mental health unit where there is risk of aggression and violence ?
Hi everyone. I have the eyelea injections in both eyes, it is often painful for 3-4 days after and i always have bloodshot eyes. My question is, when should i return to work after these injections? I work in an acute mental health unit where there is risk of aggression and violence ?
90rach
in
Macular Society
6 months ago
Movicol
I have Ibs mixed, I took one movicol sachet on Wednesday and it has given me diarrhea. Can I now take imodium ? as I'm visiting family. I very rarely take imodium .
I have Ibs mixed, I took one movicol sachet on Wednesday and it has given me diarrhea. Can I now take imodium ? as I'm visiting family. I very rarely take imodium .
Hollings
in
IBS Network
6 months ago
Movicol
I've taken a sachet of movicol if it gives me diarrhea can I take imodium?
I've taken a sachet of movicol if it gives me diarrhea can I take imodium?
Hollings
in
IBS Network
6 months ago
Movicol
Any replies, I posted a question yesterday about taking imodium after taking movicol
Any replies, I posted a question yesterday about taking imodium after taking movicol
Hollings
in
IBS Network
6 months ago
Movicol
I take one sachet of movicol which usually is enough but sometimes it gives me diarrhea, can I take imodium to stop the diarrhea. I have Ibs mixed.
I take one sachet of movicol which usually is enough but sometimes it gives me diarrhea, can I take imodium to stop the diarrhea. I have Ibs mixed.
Hollings
in
IBS Network
6 months ago
Pain in Left Eye
Hi Kind Friends, I am currently on 12.5 mg prednisone (tapering from 60 in Oct.) and weekly Actemra injections (about 4 months) Double vision from high prednisone has resolved as I have tapered. Occasionally I feel pain in my left eye, in the outer lower corner. It will hurt when I move my eye,
Hi Kind Friends, I am currently on 12.5 mg prednisone (tapering from 60 in Oct.) and weekly Actemra injections (about 4 months) Double vision from high prednisone has resolved as I have tapered. Occasionally I feel pain in my left eye, in the outer lower corner. It will hurt when I move my eye,
Lenore58
in
PMRGCAuk
6 months ago
Another miracle cure :)
Any opinions on sodium chloro acetate. I am anxious to try an herbicide on my cancer :) but seriously if you google a bit there is some sense to the explanations as to how it might help to reduce cancer. Anyone try this
Any opinions on sodium chloro acetate. I am anxious to try an herbicide on my cancer :) but seriously if you google a bit there is some sense to the explanations as to how it might help to reduce cancer. Anyone try this
spencoid2
in
Advanced Prostate Cancer
11 months ago
First Injection of Pegasys
I FINALLY got approved for Pegasys, and am to pick it up at the pharmacy by Wednesday. My question is does the first injection happen in the Drs. office, or at home?? Were you given physical instructions for how to give the injection? I have written instructions that were sent to me with the approval
I FINALLY got approved for Pegasys, and am to pick it up at the pharmacy by Wednesday. My question is does the first injection happen in the Drs. office, or at home?? Were you given physical instructions for how to give the injection? I have written instructions that were sent to me with the approval
dogsandhorses
in
MPN Voice
6 months ago
Laser iridiridotomy
Hi all, I am a glaucoma suspect and on the list for LI. I need to make a decision whether or not to go ahead with this procedure. I was wondering if anyone (suspect) had it and what was the difference you felt post-procedure. I am suffering from dry eye and dull and occasional sharp pain at the
Hi all, I am a glaucoma suspect and on the list for LI. I need to make a decision whether or not to go ahead with this procedure. I was wondering if anyone (suspect) had it and what was the difference you felt post-procedure. I am suffering from dry eye and dull and occasional sharp pain at the
btsg09
in
Glaucoma UK
6 months ago
Does hair loss eventually stop? 😔 I'm hoping someone can tell me something positive?
I'm getting new bloods next week & hopefully an increase to 75 (lactose free teva) on my way eventually to around 100 ish as I'm 63 kilos but I'm still losing my hair? Eyebrows have all but gone, eye lashes thining, red sore eye lids, dry eyes with occasional blurring (using drops) and very puffy underneath
I'm getting new bloods next week & hopefully an increase to 75 (lactose free teva) on my way eventually to around 100 ish as I'm 63 kilos but I'm still losing my hair? Eyebrows have all but gone, eye lashes thining, red sore eye lids, dry eyes with occasional blurring (using drops) and very puffy underneath
Elle137
in
Thyroid UK
20 days ago
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