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Post triple therapy options?
This past summer, I wrote because my husband's PSA numbers started doubling very quickly. (see quick recap below) By the time we got the PSMA PET scan a few weeks later, there were too many tumors in the bones to count. We jumped into triple therapy: Eligard, Nubeqa, and chemo. David's last chemo (6
This past summer, I wrote because my husband's PSA numbers started doubling very quickly. (see quick recap below) By the time we got the PSMA PET scan a few weeks later, there were too many tumors in the bones to count. We jumped into triple therapy: Eligard, Nubeqa, and chemo. David's last chemo (6
TK934
in
Advanced Prostate Cancer
5 months ago
My 73 year old dads stage 4 mastitic prostate cancer
Hi all My dad was diagnoised 3 years ago stage 4 with bone cancer lesions. He is on hormorne injections, and was taking chemo tablets until 18 months ago, then had to have 10 rounds of chemo which ended in septmeber 2023, since then his lost weight and his struggling to walk etc due to his lower back
Hi all My dad was diagnoised 3 years ago stage 4 with bone cancer lesions. He is on hormorne injections, and was taking chemo tablets until 18 months ago, then had to have 10 rounds of chemo which ended in septmeber 2023, since then his lost weight and his struggling to walk etc due to his lower back
Hidden
in
Advanced Prostate Cancer
5 months ago
Laxido orange...
Hi all,I'm new to the community and this is my first post. I've had bowel problems on and off for many years but found they worsened in November 2022 when I was prescribed Laxido 2 to 3 times daily. Unlike usual the symptoms returned immediately after stopping laxido but was told by my GP its safe to
Hi all,I'm new to the community and this is my first post. I've had bowel problems on and off for many years but found they worsened in November 2022 when I was prescribed Laxido 2 to 3 times daily. Unlike usual the symptoms returned immediately after stopping laxido but was told by my GP its safe to
John_70
in
IBS Network
1 year ago
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Just need to have a rant about this horrendous condition 😡
I thought this would be a good place to have a rant about my IBS. I am completely fed up of this horrendous condition completely taking control over my life. I have not slept in days due to constant nausea and pain and not being able to get in any sort of comfortable position so I can sleep. I find
I thought this would be a good place to have a rant about my IBS. I am completely fed up of this horrendous condition completely taking control over my life. I have not slept in days due to constant nausea and pain and not being able to get in any sort of comfortable position so I can sleep. I find
Floss-12
in
IBS Network
11 months ago
Help! Stomach Bug & Holiday!
For over a week I have had some sort of stomach bug with awful pains in the lower stomach, causing loose stools, feeling chilled then hot, with a recurring headache. I contacted my doctor asking for urgent stool tests, as I am due to go on holiday to Spain next Monday, just in case it is a stomach bug
For over a week I have had some sort of stomach bug with awful pains in the lower stomach, causing loose stools, feeling chilled then hot, with a recurring headache. I contacted my doctor asking for urgent stool tests, as I am due to go on holiday to Spain next Monday, just in case it is a stomach bug
laurajn087
in
IBS Network
9 months ago
calcium citrate with no artificial sugars
A minor question I hope you don’t mind. I’ve just read ‘Ultra Processed People’ book about additives in our diet. Eye opening and shocking to say the least! My calcium prescribed tablets have multiple artificial sugars which I want to avoid. Can anyone recommend a make that doesn’t have them? Preferably
A minor question I hope you don’t mind. I’ve just read ‘Ultra Processed People’ book about additives in our diet. Eye opening and shocking to say the least! My calcium prescribed tablets have multiple artificial sugars which I want to avoid. Can anyone recommend a make that doesn’t have them? Preferably
Temeraire
in
PMRGCAuk
1 year ago
Magnesium recommendations
I have used the better you sprays for a while and they are helpful, but dry my skin out over time. I tried magnesium citrate from Holland and Barrett but the pills are uncomfortable to swallow and didn't seem to help. I then tried the vita biotics brand which contains dihydroxide, and they are great
I have used the better you sprays for a while and they are helpful, but dry my skin out over time. I tried magnesium citrate from Holland and Barrett but the pills are uncomfortable to swallow and didn't seem to help. I then tried the vita biotics brand which contains dihydroxide, and they are great
JenniferW
in
Thyroid UK
1 year ago
General blood test - do I need to worry (not that it helps!)
Urea & electrolytes Serum sodium level 142 mmol/L (133.0-146.0) Serum potassium level 4.5 mmol/ (3.5-5.3) Serum urea level 6.7 mmol/L (3.5-7.2) Serum creatinine level 86 urology/L (49.0-90.0) EGFR. (F) 1.73M2 eGFR using creatinine (CKD-EPI) per 1.73 square metres 60 mL/min (60.9-200.0) …results
Urea & electrolytes Serum sodium level 142 mmol/L (133.0-146.0) Serum potassium level 4.5 mmol/ (3.5-5.3) Serum urea level 6.7 mmol/L (3.5-7.2) Serum creatinine level 86 urology/L (49.0-90.0) EGFR. (F) 1.73M2 eGFR using creatinine (CKD-EPI) per 1.73 square metres 60 mL/min (60.9-200.0) …results
Bluey-1
in
PMRGCAuk
1 year ago
Good News - Nephrologist Visit Today
I had my yearly visit with my nephrologist today and received great news (Praise God!)
My eGFR has increased nearly 20 points (74) and creatinine decreased to .83. No protein in urine and sodium, potassium, phosphorus, albumin (as well as other parameters) are all exceptional!
He
I had my yearly visit with my nephrologist today and received great news (Praise God!)
My eGFR has increased nearly 20 points (74) and creatinine decreased to .83. No protein in urine and sodium, potassium, phosphorus, albumin (as well as other parameters) are all exceptional!
He
HisLittleOne
in
Early CKD Support
1 year ago
Good News From Nephrologist Today!
I had my yearly visit with my nephrologist today and received great news (Praise God!)
My eGFR has increased nearly 20 points (74) and creatinine decreased to .83. No protein in urine and sodium, potassium, phosphorus, albumin (as well as other parameters) are all exceptional!
He
I had my yearly visit with my nephrologist today and received great news (Praise God!)
My eGFR has increased nearly 20 points (74) and creatinine decreased to .83. No protein in urine and sodium, potassium, phosphorus, albumin (as well as other parameters) are all exceptional!
He
HisLittleOne
in
Kidney Disease
1 year ago
Another consultant cancellation
My husband was due to speak to the upper GI consultant next week.It has been cancelled again 3rd time. He has been waiting 12 months now for this appointment. I am so angry. I am going to ring the Secretary tomorrow to ask if they can please reconsider. He is very poorly now. Sleeping mostly, not eating
My husband was due to speak to the upper GI consultant next week.It has been cancelled again 3rd time. He has been waiting 12 months now for this appointment. I am so angry. I am going to ring the Secretary tomorrow to ask if they can please reconsider. He is very poorly now. Sleeping mostly, not eating
Diamondbabe
in
British Liver Trust
1 year ago
Recent results feedback appreciated
Here are my recent results . I followed all guidance as recommended here prior to testing CRP. 0.43mg/L. (<3) Ferritin 52 ug/L. (30-650) Folate-serum 34.5 nmol/L. (8.83-60.8) Vitamin B 12 -active 92 pmol/L (37.5-188) * Note change of reference range 23/10/22 Vitamin D 91 nmol
Here are my recent results . I followed all guidance as recommended here prior to testing CRP. 0.43mg/L. (<3) Ferritin 52 ug/L. (30-650) Folate-serum 34.5 nmol/L. (8.83-60.8) Vitamin B 12 -active 92 pmol/L (37.5-188) * Note change of reference range 23/10/22 Vitamin D 91 nmol
Starmen
in
Thyroid UK
1 year ago
Besremi Update 15 Months
Hi Community! I titrated my Besremi to 180 from 150 over the last three doses (a bit of a story there for another time). I assumed I'd need a phlebotomy as I hadn't had a CBC for 7 weeks and my Hematocrit was already 40 but it went down 2 points! Almost never happens without phlebotomy. Everything
Hi Community! I titrated my Besremi to 180 from 150 over the last three doses (a bit of a story there for another time). I assumed I'd need a phlebotomy as I hadn't had a CBC for 7 weeks and my Hematocrit was already 40 but it went down 2 points! Almost never happens without phlebotomy. Everything
Elizka
in
MPN Voice
1 year ago
Help at last after years of chronic pain
I have osteoarthritis and osteoporosis. The arthritis I have had since the age of 50, so have had to deal with chronic pain for a long time. I had taken ibuprofen for the pain, but while it worked to help reduce the pain, I knew it wasn't good for my body. I have had insomnia for years, but the chronic
I have osteoarthritis and osteoporosis. The arthritis I have had since the age of 50, so have had to deal with chronic pain for a long time. I had taken ibuprofen for the pain, but while it worked to help reduce the pain, I knew it wasn't good for my body. I have had insomnia for years, but the chronic
paxom
in
Osteoarthritis Action
1 year ago
Don't know What's happening to me!!
Doc recommended 2 x Amytryptyline in Feb., after it was discovered I had 2 x damaged discs in my lower back. Referred me to Physio, (appt. on 22nd!)I was OK for a couple of months, then started to feel dizzy, lost my appetite and taste, everything tastes sweet!, even a roast dinner. Went to see ACP
Doc recommended 2 x Amytryptyline in Feb., after it was discovered I had 2 x damaged discs in my lower back. Referred me to Physio, (appt. on 22nd!)I was OK for a couple of months, then started to feel dizzy, lost my appetite and taste, everything tastes sweet!, even a roast dinner. Went to see ACP
JanboC
in
PMRGCAuk
1 year ago
Disimpacted 9 year old and still soiling
my 9 year old has been suffering with chronic constipation for 6 years, we are all at our wits end. It is hugely affecting my, but more importantly her, mental health. At the beginning of July we had a hospital stay for disimpaction via a NG tube. This was effective. Doctor prescribed 5 ml of sodium
my 9 year old has been suffering with chronic constipation for 6 years, we are all at our wits end. It is hugely affecting my, but more importantly her, mental health. At the beginning of July we had a hospital stay for disimpaction via a NG tube. This was effective. Doctor prescribed 5 ml of sodium
Natster90
in
ERIC
11 months ago
Normal bloods
Woopidoo! Throws hat into the air. Just checked today’s bloods and after 3 years of Pred all the critical bits are normal: urea, creatinine, potassium, sodium, liver function. MCH (part of FBC) is technically low at 26.9 when the normal range starts at 27 and RBC is 5.32 when the upper range of
Woopidoo! Throws hat into the air. Just checked today’s bloods and after 3 years of Pred all the critical bits are normal: urea, creatinine, potassium, sodium, liver function. MCH (part of FBC) is technically low at 26.9 when the normal range starts at 27 and RBC is 5.32 when the upper range of
Mayadill
in
PMRGCAuk
1 year ago
Latest blood results
Total White Cell Count69 10 9/L NR 4.0-11. Red Blood Cell Count 4.30 10 9/L NR 3.8 - 4.8 Haemoglobin Est 159 g/L NRb120-150 Abnormal Haematocrit 0.48 L/L NR 0.36-0.46;abnormal Mean Corpuscular Volume 110.4fl NR 80-100 Abnormal Mean corpusc Haemaglobin 36.9pg NR 27-34 Abnormal Mean Corpusc Hb 334 g/
Total White Cell Count69 10 9/L NR 4.0-11. Red Blood Cell Count 4.30 10 9/L NR 3.8 - 4.8 Haemoglobin Est 159 g/L NRb120-150 Abnormal Haematocrit 0.48 L/L NR 0.36-0.46;abnormal Mean Corpuscular Volume 110.4fl NR 80-100 Abnormal Mean corpusc Haemaglobin 36.9pg NR 27-34 Abnormal Mean Corpusc Hb 334 g/
Meerkat1234
in
Thyroid UK
1 year ago
Virus affecting IBS-D
I recently had a mild virus (headache, stomach pains and bad taste in mouth), which made me feel very tired. However, I was still able to go about my daily life whilst taking paracetamol to keep me going. The virus also affected my stomach causing loose bowel movements and occasional diarrhoea after
I recently had a mild virus (headache, stomach pains and bad taste in mouth), which made me feel very tired. However, I was still able to go about my daily life whilst taking paracetamol to keep me going. The virus also affected my stomach causing loose bowel movements and occasional diarrhoea after
laurajn087
in
IBS Network
10 months ago
Clinical trial: keep an eye on this
First results should be available by the first months of 2024. Radiation Medication (Radium-223 Dichloride) Versus Radium-223 Dichloride Plus Radiation Enhancing Medication (M3814) Versus Radium-223 Dichloride Plus M3814 Plus Avelumab (a Type of Immunotherapy) for Advanced Prostate Cancer Not Responsive
First results should be available by the first months of 2024. Radiation Medication (Radium-223 Dichloride) Versus Radium-223 Dichloride Plus Radiation Enhancing Medication (M3814) Versus Radium-223 Dichloride Plus M3814 Plus Avelumab (a Type of Immunotherapy) for Advanced Prostate Cancer Not Responsive
Maxone73
in
Advanced Prostate Cancer
7 months ago
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