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I have said before, my first neurologist , a world recognized doctor in the field of PD told me 20 years ago that someday what we now know as Parkinson's Disease will be 10 to 15 or more individual diseases that resemble each other but may be treated differently. I keep forgetting this and continue
I have said before, my first neurologist , a world recognized doctor in the field of PD told me 20 years ago that someday what we now know as Parkinson's Disease will be 10 to 15 or more individual diseases that resemble each other but may be treated differently. I keep forgetting this and continue
Gymsack
in
Cure Parkinson's
3 months ago
norethisterone to delay period
hi everyone! does anyone have experience with norethisterone to delay period for holidays ect? I have never used it but i have a holiday coming up that the pain of being on my period would completely ruin. For me, delaying the period pain is a main priority. Any advice or experiences would be really
hi everyone! does anyone have experience with norethisterone to delay period for holidays ect? I have never used it but i have a holiday coming up that the pain of being on my period would completely ruin. For me, delaying the period pain is a main priority. Any advice or experiences would be really
Bk27
in
Endometriosis UK
3 months ago
I'm Back....
Hi Everyone, I was on this site several months ago and since then have been in a psychiatric hospital, been seeing a psychiatrist, had EMDR and ketamine treatments, had weekly therapy sessions and am about to try a new therapist, and have tried five different anti-depressants. I'm still struggling
Hi Everyone, I was on this site several months ago and since then have been in a psychiatric hospital, been seeing a psychiatrist, had EMDR and ketamine treatments, had weekly therapy sessions and am about to try a new therapist, and have tried five different anti-depressants. I'm still struggling
Woolybluecurl
in
Anxiety and Depression Support
3 months ago
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Prostate Cancer Diet and Re-purposed Meds
I was just reading a post about Jane Mcclelland's protocol regarding her book, "How to starve cancer." She also added a second portion on a book re-released, with a Ferroptosis (death by iron) protocol. I thought the criticism to be amazing. Cancer is a baffling mystery, top scientist and great minds
I was just reading a post about Jane Mcclelland's protocol regarding her book, "How to starve cancer." She also added a second portion on a book re-released, with a Ferroptosis (death by iron) protocol. I thought the criticism to be amazing. Cancer is a baffling mystery, top scientist and great minds
PlantrichyRich
in
Advanced Prostate Cancer
3 months ago
BioMax Red Light Therapy
https://platinumtherapylights.com/products/biomax-rlt Any users of these panels on here? Can apparently improve mitochondrial health so I’m seriously considering investing. Wondered if you thought worth your hard earned cash and time. General health benefits? Any noticeable PD improvements? And
https://platinumtherapylights.com/products/biomax-rlt Any users of these panels on here? Can apparently improve mitochondrial health so I’m seriously considering investing. Wondered if you thought worth your hard earned cash and time. General health benefits? Any noticeable PD improvements? And
JCRO
in
Cure Parkinson's
7 months ago
Feeling Right
Feeling Right Feeling Right... I'm a 73yo retired physician who's struggled with OCD most of my life. While initially tic like as a child, it has evolved into obsessive thoughts (like trying to figure out what time it would be if I interchanged the hands of a clock, constantly calculating exchange
Feeling Right Feeling Right... I'm a 73yo retired physician who's struggled with OCD most of my life. While initially tic like as a child, it has evolved into obsessive thoughts (like trying to figure out what time it would be if I interchanged the hands of a clock, constantly calculating exchange
Stratocaster78
in
My OCD Community
7 months ago
why is everything I do fail bc I have a learning disorder
So growing up I got fairley bullied at picked on in school, online, ect. And have adhd and recently haven’t been taking any meds for it, and am waiting on new meds and treatment transfer for this new therapist place. I’ve been going nuts, the littlest things would just make me mad and tense up and I
So growing up I got fairley bullied at picked on in school, online, ect. And have adhd and recently haven’t been taking any meds for it, and am waiting on new meds and treatment transfer for this new therapist place. I’ve been going nuts, the littlest things would just make me mad and tense up and I
collin_locke
in
CHADD's Adult ADHD Support
3 months ago
I’m not sure ( I’m 19, M ) graduated high school
So growing up I got fairley bullied at picked on in school, online, ect. And have adhd and recently haven’t been taking any meds for it, and am waiting on new meds and treatment transfer for this new therapist place. I’ve been going nuts, the littlest things would just make me mad and tense up and I
So growing up I got fairley bullied at picked on in school, online, ect. And have adhd and recently haven’t been taking any meds for it, and am waiting on new meds and treatment transfer for this new therapist place. I’ve been going nuts, the littlest things would just make me mad and tense up and I
collin_locke
in
Anxiety and Depression Support
3 months ago
AAV-GAD Gene Therapy
Did anyone hear of AAV-GAD gene therapy? I have a chance to get into a phase 1/2 trial, but information is somewhat limited. The original developing company went bankrupt, and a new company bought the rights to the therapy. The trails are being held at reputable sites like Yale, Columbia , and Cornell
Did anyone hear of AAV-GAD gene therapy? I have a chance to get into a phase 1/2 trial, but information is somewhat limited. The original developing company went bankrupt, and a new company bought the rights to the therapy. The trails are being held at reputable sites like Yale, Columbia , and Cornell
JohnP65
in
Cure Parkinson's
7 months ago
Morning Horrors
I have been struggling with anxiety and depression for nearly five years now. In addition to the usual anti-anxiety and anti-depression drugs, I have tried: Lithium, Ketamine Trials, ECT and Magnetic Stimulation. My current cocktail is: Sertraline 200mg AM, Methylphenidate 36mg AM, Lorazepam 1mg AM,
I have been struggling with anxiety and depression for nearly five years now. In addition to the usual anti-anxiety and anti-depression drugs, I have tried: Lithium, Ketamine Trials, ECT and Magnetic Stimulation. My current cocktail is: Sertraline 200mg AM, Methylphenidate 36mg AM, Lorazepam 1mg AM,
PillJunkie
in
Anxiety and Depression Support
3 months ago
Nighttime or morning levothyroxine
I have been taking my levothyroxine in a morning, empty stomach, nothing to eat for a hour afterwards, I avoid caffeine , use decaff coffee, tea ect.I have been reading some studies on the best time to take levothyroxine and the findings say bedtime is the best time for levothyroxine to work so thinking
I have been taking my levothyroxine in a morning, empty stomach, nothing to eat for a hour afterwards, I avoid caffeine , use decaff coffee, tea ect.I have been reading some studies on the best time to take levothyroxine and the findings say bedtime is the best time for levothyroxine to work so thinking
Dawney63
in
Thyroid UK
3 months ago
Experience, thus far with Lupron and Abiraterone
I am 78 years old. I was diagnosed in May 2022 with PCa after my PSA was measured at 23.79. I have no other health issues. Following the determination that PCa was still within the prostrate capsule and had not spread to any other organ, I was placed on Lupron (6 monthly IM injections for 2 years). Clinically
I am 78 years old. I was diagnosed in May 2022 with PCa after my PSA was measured at 23.79. I have no other health issues. Following the determination that PCa was still within the prostrate capsule and had not spread to any other organ, I was placed on Lupron (6 monthly IM injections for 2 years). Clinically
Sanctus
in
Advanced Prostate Cancer
7 months ago
Tinituus Quite in the morning
Good Morning All I’ve had pulsating tinnitus for just over a year. I feel I was well habituating it as I don’t notice it much throughout the day with ambient noise. In the evening in a quiet room I tend to use masking noise help me sleep. over the last couple of months, I found it more noticeable
Good Morning All I’ve had pulsating tinnitus for just over a year. I feel I was well habituating it as I don’t notice it much throughout the day with ambient noise. In the evening in a quiet room I tend to use masking noise help me sleep. over the last couple of months, I found it more noticeable
Marsh3l
in
Tinnitus UK
3 months ago
Finally!
Back in July I had a response to a FOI, which I challenged. I sent out numerous emails to different NHS governing bodies. I met a brick wall. Today an email turned up out of the blue from my Health Board. It only took them five months. The complaint was that the blood testing for thyroid did not
Back in July I had a response to a FOI, which I challenged. I sent out numerous emails to different NHS governing bodies. I met a brick wall. Today an email turned up out of the blue from my Health Board. It only took them five months. The complaint was that the blood testing for thyroid did not
serenfach
in
Thyroid UK
7 months ago
Art and music therapy for kidney patients
Coping with kidney disease can be difficult. Sometimes you have to think outside the box! Have you considered music or art therapy? Listen today to hear Social Worker Melissa Fry and patient Steven Light share their experiences with using music and art as coping strategies. https://www.podbean.com/ep
Coping with kidney disease can be difficult. Sometimes you have to think outside the box! Have you considered music or art therapy? Listen today to hear Social Worker Melissa Fry and patient Steven Light share their experiences with using music and art as coping strategies. https://www.podbean.com/ep
JackieJ_NKF
Partner
in
Parents of Children with Kidney Disease
7 months ago
Must be doing something right!
Attended for my annual supplementary oxygen therapy review today and wahooooo, the prescription doesn't need to be increased! This is first time it hasn't needed to be increased year on year for the last 7 years. Very chuffed. A great Christmas gift.....Long may it last.
Attended for my annual supplementary oxygen therapy review today and wahooooo, the prescription doesn't need to be increased! This is first time it hasn't needed to be increased year on year for the last 7 years. Very chuffed. A great Christmas gift.....Long may it last.
PaulineHM
in
Lung Conditions Community Forum
7 months ago
Cold is good for you
Radio 4 currently has a series by Dr Michael Mosley, Cold Therapy. The third episode deals with exercising in the cold. One of his conclusions is that people who run reasonable distances for fun (as opposed to marathons, ultra runners, professionals) have their best performance at around 10-11C. Well
Radio 4 currently has a series by Dr Michael Mosley, Cold Therapy. The third episode deals with exercising in the cold. One of his conclusions is that people who run reasonable distances for fun (as opposed to marathons, ultra runners, professionals) have their best performance at around 10-11C. Well
Yesletsgo
Graduate10
in
Bridge to 10K
7 months ago
ECT? Keen for peoples lived experiences
I’ve been referred for ECT and keen to hear from people who’ve had the treatment or in the process and how it was/is for you. The overall result - good bad or neutral? If there’s any good or bad things you experienced. Any tips? Would you do it again if needed? Any feedback would be gratefully
I’ve been referred for ECT and keen to hear from people who’ve had the treatment or in the process and how it was/is for you. The overall result - good bad or neutral? If there’s any good or bad things you experienced. Any tips? Would you do it again if needed? Any feedback would be gratefully
Hidden
in
Major Depressive Disorder (MDD) Support
3 months ago
15y ADHD Med Trial & Error
Hi Everyone! I am new to this forum but wanted to reach out to see if any one has had some recommendations or tips.My daughter is 15 and has been diagnosed with ADHD recently. She was taking 30mg of Vyvanse which seemed to help but she was still unable to focus. After about a month it was increased to
Hi Everyone! I am new to this forum but wanted to reach out to see if any one has had some recommendations or tips.My daughter is 15 and has been diagnosed with ADHD recently. She was taking 30mg of Vyvanse which seemed to help but she was still unable to focus. After about a month it was increased to
PinkMamabear1990
in
CHADD's ADHD Parents Together
3 months ago
I have PA, all was going well, but now they're trying to mess with my b12 perscipton!!!
Hi all,I'm a long time lurker, but haven't posted myself in a while. About 8 years ago, I was fighting to save my right leg due to bone tumors. 12 surgeries later, I lost that fight. During that time, I started losing weight, tons of anxiety, palpitations ect...This would all be normal reaction to this
Hi all,I'm a long time lurker, but haven't posted myself in a while. About 8 years ago, I was fighting to save my right leg due to bone tumors. 12 surgeries later, I lost that fight. During that time, I started losing weight, tons of anxiety, palpitations ect...This would all be normal reaction to this
Wowo23
in
Pernicious Anaemia Society
3 months ago
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