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47 public communities
Anticoagulation Support
3,829 members
The Anticoagulation Support community is for anyone impacted by a health condition such as atrial fibrillation, stroke, deep vein thrombosis (DVT) and pulmonary embolism (PE), aortic heart valve replacement, antiphospholipid syndrome and thrombotic disorders. These conditions can increase the risk of blood clots or thrombosis and may require anticoagulation therapy to treat or prevent blood clots from happening. Anticoagulant therapy is sometimes described as a blood thinner and can be given for a short period of time (to prevent clots after hip and knee replacement surgery) or long term for people with thrombotic disorders to prevent recurrence of clotting episodes. Some people may be offered anticoagulation medication when they are being treated for cancer. Anyone requiring anticoagulation therapy should discuss medication options with a health care provider and be given adequate information around the duration and monitoring of the treatment provided. In the UK, there are several oral anticoagulant medications available - Apixaban, Dabigatran, Edoxaban, Rivaroxaban and Warfarin. Heparin is given by injection. Anticoagulation Support aims to help individuals engage with people who have lived experience of living with a condition and being treated with anticoagulants. The site is moderated by HealthUnlocked with input from an anticoagulation patient expert and an anticoagulation healthcare professional. For information about anticoagulation therapy and related conditions visit.... NHS website - https://www.nhs.uk/ National Institute of Health and Care Excellence(NICE) - https://www.nice.org.uk
The Children's Trust
240 members
The Children’s Trust, Tadworth is a national charity working with children with brain injury. We are based at a 24 acre site in Tadworth, Surrey but offer our services to children from across the UK. We provide expert rehabilitation, education, therapy and care to support children and their families. The Children's Trust has also developed The Brain Injury Hub which is an online information and advice service for parents and other family members and includes as well as developing an online community and includes Health Unlocked.
Arthritis Action
7,596 members
Arthritis Action is a UK charity that promotes a self-management approach to managing all types of arthritis which encompasses diet, nutrition, weight management and exercise for physical and mental well-being. We aim to give people the tools and knowledge through evidence-based research to minimise pain and live happy and fulfilling lives. For more information, visit arthritisaction.org.uk As well as a wealth of information we share with all, we also offer membership with additional benefits including two subsidised physical therapy sessions, exercise classes, priority booking on our self-management events, twice-yearly digital magazine, access our personalised pathway programme, and one-to-one healthy eating and weight management advice from our Dietitian. Visit arthritisaction.org.uk or email info@arthritisaction.org.uk for more info.
Chronic Pancreatitis Support
882 members
Welcome to the Chronic Pancreatitis Support community, here to support anyone impacted by chronic pancreatitis and related conditions, such as EPI (Exocrine Pancreatic Insufficiency). Whether you are looking for a diagnosis or currently on Pancreatic Enzyme Replacement Therapy (PERT), here you will find peers with whom you can share experiences, information and participate in research events within the community. This community is offered by Mission: Cure on the HealthUnlocked platform. We serve the patients & communities affected by recurrent acute and chronic pancreatitis. Our impact extends to disease research and healthcare, applying innovative financing models to advance new therapies and cures. Beginning with chronic pancreatitis, we are committed to advancing new therapies and accelerating a cure for debilitating and untreatable diseases—within ten years. This community has been funded in part by Aimmune Therapeutics, Inc., a Nestlé Health Science Company. Anonymous data from the content shared in this community is used to improve the understanding of this condition.
CHADD's ADHD Parents Together
23,624 members
The ADHD Parents Together community is a place to discuss the impact of ADHD on both you and your child. Talking about the challenges you face as a parent of a child with ADHD can be hard, but sometimes, there’s nothing more helpful than talking with others who are in the same boat. Our community is one where we can all have the conversations we need to, sharing our experiences and supporting each other.
CHADD's Adult ADHD Support
24,288 members
CHADD's Adult ADHD Support community is a place to discuss the impact of ADHD on you or someone you care about. Talking about the challenges you face as an adult with ADHD can be hard, but sometimes, there’s nothing more helpful than talking with others who are in the same boat. Our community is one where we can all have the conversations we need to, sharing our experiences and supporting each other.
Above & Beyond
5,455 members
Above & Beyond (previously Journeys) is a community whose sole purpose is to offer support and understanding to people affected by mental health conditions, their friends, families and carers.
Anxiety Support
53,313 members
Anxiety Support helps people with general anxiety and anxiety from health related reasons. Facilitated by Malecare, one of the world's leading patient support nonprofit organizations. Our group provides a sense of belonging with others in similar situations and to be able to chat and learn with a community of like minds. Members here have a wide range of different experiences and backgrounds. Anyone needing in-person or immediate help or support from a patient organization can choose from the list of resources in the pinned post in the right hand column on the posts/home page.
Anxiety and Depression Support
90,290 members
This community is a safe space for those affected by anxiety and depression to talk to others who truly understand. ADAA is a nonprofit dedicated to the prevention, treatment, & cure of anxiety, depression, OCD, PTSD and co-occurring disorders through education, practice, & research. www.adaa.org offers free educational resources for more than 11 million annual visitors; Find-a-Therapist database; webinars, blog posts, podcasts & videos; support groups, and more. ADAA does not provide psychiatric, psychological, or medical advice, diagnosis, or treatment. Please note: You may be contacted by one of our administrators to invite you to serve as a volunteer administrator or to share your story. If we do reach out to you, your anonymity is not compromised unless you agree to share personal contact information with us. If you do not wish to engage with us, simply do not respond.
Tenovus
589 members
We are the leading cancer charity focusing on supporting those affected by cancer. We help patients and their families get access to treatment, advice and support.
Wessex Cancer Trust
71 members
Welcome to Wessex Cancer Trust online community. Here you can openly talk to other people affected by cancer – whether you are going through your own cancer journey or supporting a family member or friend. We will support you through the highs and lows, help you prepare for surgery or treatment, and give you the confidence to talk to your loved ones about cancer. We can empower you to feel strong enough to make your own choices, whether you are moving on from cancer or making difficult decisions about a terminal diagnosis. We offer practical, emotional and physical support at a time when nothing seems to be in your control. All of our Support Centres will welcome you into a calm and non-clinical space in your local community, somewhere familiar and safe.
Youth Cancer Trust
140 members
We are an online support community for young cancer patients. Join us to share your experience, ask questions and support one another! Talking about your disease can be a powerful tool in learning to cope with it! So why not to start now? This community is run by the Youth Cancer Trust.
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