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Thoughts and suggestions please
83 YO male with complex medical history detailed in previous posts including hormone abnormalities of hypothyroid, marked elevation of FSH and LH, mild elevation of PRL, markedly low free testosterone, osteopenia/osteoporosis, and statin intolerance. RARP Oct 2016 for 3+4 PCa. Gland 78 gm. SV negative
83 YO male with complex medical history detailed in previous posts including hormone abnormalities of hypothyroid, marked elevation of FSH and LH, mild elevation of PRL, markedly low free testosterone, osteopenia/osteoporosis, and statin intolerance. RARP Oct 2016 for 3+4 PCa. Gland 78 gm. SV negative
LowT
in
Advanced Prostate Cancer
27 days ago
Tinnitus and Ear Wax
HiI have had tinnitus for 6 years now still no reason why as I have no hearing loss but know it started same time as menapause so was wondering if everyone tried HRT and if it helped? It is in center of my head which I can deal with but I keep getting build of wax in my left ear so my tinnitus moves
HiI have had tinnitus for 6 years now still no reason why as I have no hearing loss but know it started same time as menapause so was wondering if everyone tried HRT and if it helped? It is in center of my head which I can deal with but I keep getting build of wax in my left ear so my tinnitus moves
FriSoph
in
Tinnitus UK
28 days ago
How long does ADT affect mood swings and anger after stopping treatment ?
Hello, Usually ok but a few outbursts recently.. anger issues upset .. but generally easy going nice person. It’s almost been 2 months since last and final shot and had irrational incident. Anybody else experience challenges after therapy and was wonder when you reached a normal feeling. I generally
Hello, Usually ok but a few outbursts recently.. anger issues upset .. but generally easy going nice person. It’s almost been 2 months since last and final shot and had irrational incident. Anybody else experience challenges after therapy and was wonder when you reached a normal feeling. I generally
Yokohama2023
in
Prostate Cancer Network
28 days ago
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*rant* Treatment Options before surgery?
Hi there, i have recently been admitted into my local hospital due to a major pain flare. After speaking with the on call Gynecology doctor, he wanted me to go onto norethisterone indefinitely and he did not want to discuss any other options. so far i have refused to take that medication. the only reason
Hi there, i have recently been admitted into my local hospital due to a major pain flare. After speaking with the on call Gynecology doctor, he wanted me to go onto norethisterone indefinitely and he did not want to discuss any other options. so far i have refused to take that medication. the only reason
L4ndoluver
in
Endometriosis UK
28 days ago
NEW BLOODS - getting there, but need advice on a few things please!
[u]
TOP LINE SUMMARY:
[/u]
Changes:
Last 9 weeks, added 12.5 Levo to land on 75 Levo/10 T3 regiment.
Symptoms:
ON AVERAGE improving, feel more stable/less volatile, but still low overall.
Results:
Free Ts and Vit D did AMAZING in my recent bloods! [u]
ALL OBSERVATIONS
[u]
TOP LINE SUMMARY:
[/u]
Changes:
Last 9 weeks, added 12.5 Levo to land on 75 Levo/10 T3 regiment.
Symptoms:
ON AVERAGE improving, feel more stable/less volatile, but still low overall.
Results:
Free Ts and Vit D did AMAZING in my recent bloods! [u]
ALL OBSERVATIONS
FallingInReverse
in
Thyroid UK
29 days ago
ADT duration for high risk with Cribriform
Hi all, Age 72. In good health. I'd like to get some advice on my case. Should I stop ADT after 12 months? https://bmcurol.biomedcentral.com/articles/10.1186/s12894-022-01145-x I just consulted with my RO. I’ve done 11 of 18 months on Eligard. He wants me to stay the course. He spoke about the possibility
Hi all, Age 72. In good health. I'd like to get some advice on my case. Should I stop ADT after 12 months? https://bmcurol.biomedcentral.com/articles/10.1186/s12894-022-01145-x I just consulted with my RO. I’ve done 11 of 18 months on Eligard. He wants me to stay the course. He spoke about the possibility
Miko710
in
Prostate Cancer Network
29 days ago
Lynparza - warning!
I'm writing this in pure agony in hopes, that it might help someone in the future. My father is castrate resistant and when Xtandi stopped working, his MO put him on dexamethasone + abiraterone + Lynparza (olaparib). This combo is now registered in European Union even for men without BRCA mutation
I'm writing this in pure agony in hopes, that it might help someone in the future. My father is castrate resistant and when Xtandi stopped working, his MO put him on dexamethasone + abiraterone + Lynparza (olaparib). This combo is now registered in European Union even for men without BRCA mutation
MyDad76
in
Advanced Prostate Cancer
30 days ago
Pluvicto damaging salivary glands?
Finished 6 rounds of Pluvicto 9-1-23. Now on ADT holiday since 1-1-24, psa unmeasurable so far. During the treatment, had increasingly serious drymouth and nasal congestion and irritation with bleeding, which I attributed to radiation damage. Since then, there has been some, slow improvement, but still
Finished 6 rounds of Pluvicto 9-1-23. Now on ADT holiday since 1-1-24, psa unmeasurable so far. During the treatment, had increasingly serious drymouth and nasal congestion and irritation with bleeding, which I attributed to radiation damage. Since then, there has been some, slow improvement, but still
Kayakbob
in
Advanced Prostate Cancer
1 month ago
Rectitis caring
Diagnosed in may 2019...T3M1N0...GL 8 started ADT and had RT20 session nov 2019 Stopped ADT in march 2023....PSA < 0.02 since july 2020 In end 2020 started having stool blood ..occasionally then more frequent Consulted Gastro ...nothing to do and it will get worse he says with a smile Suggested
Diagnosed in may 2019...T3M1N0...GL 8 started ADT and had RT20 session nov 2019 Stopped ADT in march 2023....PSA < 0.02 since july 2020 In end 2020 started having stool blood ..occasionally then more frequent Consulted Gastro ...nothing to do and it will get worse he says with a smile Suggested
Karmaji
in
Advanced Prostate Cancer
1 month ago
Did you use Orgovyx with radiation, and did your Medicare Part D or Advantage plan cover it ?
I'm hoping to learn what roadblocks anyone encountered in asking to use Orgovyx instead of Lupron, etc as part of radiation treatment. Resistance from prescribing ROs? Problems with Part D drug coverage ? Advantage plans...Kaiser , etc............that would and wouldn't cover at least some of the $2700
I'm hoping to learn what roadblocks anyone encountered in asking to use Orgovyx instead of Lupron, etc as part of radiation treatment. Resistance from prescribing ROs? Problems with Part D drug coverage ? Advantage plans...Kaiser , etc............that would and wouldn't cover at least some of the $2700
maley2711
in
Prostate Cancer Network
1 month ago
Asking for my dad!!
Hi all - I am new here. My dad was diagnosed with stage 4 prostate cancer with mets in his bones and lymph nodes in February 2024. He was diagnosed with adenocarcinoma with Gleason 8. He was started on hormone therapy and had bilateral orchiectomy as well. He is in great health apart - mentally and
Hi all - I am new here. My dad was diagnosed with stage 4 prostate cancer with mets in his bones and lymph nodes in February 2024. He was diagnosed with adenocarcinoma with Gleason 8. He was started on hormone therapy and had bilateral orchiectomy as well. He is in great health apart - mentally and
Justgettingitright
in
Advanced Prostate Cancer
1 month ago
HRT Raises Rheumatoid Arthritis Risk …
I found this article last week about HRT and rheumatoid arthritis risk in my online magazine …. I know a lot of US use HRT and thought this article might be of interest. I don’t have the actual magazine its online subscription… sorry. This link might actually get you to this article! https://www.wddty.com
I found this article last week about HRT and rheumatoid arthritis risk in my online magazine …. I know a lot of US use HRT and thought this article might be of interest. I don’t have the actual magazine its online subscription… sorry. This link might actually get you to this article! https://www.wddty.com
Batty1
in
Thyroid UK
1 month ago
Thyroid UK list of practitioner recommendations please
I've just requested the above list and tbh, I don't know where to start. There's a consultant on there who I've already visited during this 'journey' who basically told me to go away and work on establishing a full dose HRT regime, referred me to a CFS clinic which never transpired and waved away low
I've just requested the above list and tbh, I don't know where to start. There's a consultant on there who I've already visited during this 'journey' who basically told me to go away and work on establishing a full dose HRT regime, referred me to a CFS clinic which never transpired and waved away low
Jamima
in
Thyroid UK
1 month ago
Thyroid question please...
Hi everyone, I am writing to ask if you can have a sore thyroid without significant enlargement and with 'normal' bloods? I have had 'normal' bloods, it doesn't seem visually enlarged, though I feel like I am being strangled and have audible sounds when I swallow in my ears. When I move my head something
Hi everyone, I am writing to ask if you can have a sore thyroid without significant enlargement and with 'normal' bloods? I have had 'normal' bloods, it doesn't seem visually enlarged, though I feel like I am being strangled and have audible sounds when I swallow in my ears. When I move my head something
Suffering_sunny
in
Thyroid UK
1 month ago
thyroid results
Could someone please help me understand my blood results which I had done by Medichecks (home testing kit) I have had underactive thyroid for the past 25years The doctors are always changing the brands I take I hadn’t had my thyroid levels tested for nearly 5 years with my GP, it’s as if they’d
Could someone please help me understand my blood results which I had done by Medichecks (home testing kit) I have had underactive thyroid for the past 25years The doctors are always changing the brands I take I hadn’t had my thyroid levels tested for nearly 5 years with my GP, it’s as if they’d
Horsemadlindy21
in
Thyroid UK
1 month ago
non hormonal suggestions
hi! I was diagnosed with endo in 2019, avoided any hormonal treatment until last year due to past experiences of the pill. March last yr I went for a private fertility check and they said my endo looked worse and was now also adenomyosis. Suggestion was a mirena coil to stop periods. I went for
hi! I was diagnosed with endo in 2019, avoided any hormonal treatment until last year due to past experiences of the pill. March last yr I went for a private fertility check and they said my endo looked worse and was now also adenomyosis. Suggestion was a mirena coil to stop periods. I went for
Sophiealice_
in
Endometriosis UK
1 month ago
Did you use Orgovyx with radiation, and did your Medicare Part D or Advantage plan cover it ?
I'm hoping to learn what roadblocks anyone encountered in asking to use Orgovyx instead of Lupron, etc as part of radiation treatment. Resistance from prescribing ROs? Problems with Part D drug coverage ? Advantage plans...Kaiser , etc............that would and wouldn't cover at least some of the
I'm hoping to learn what roadblocks anyone encountered in asking to use Orgovyx instead of Lupron, etc as part of radiation treatment. Resistance from prescribing ROs? Problems with Part D drug coverage ? Advantage plans...Kaiser , etc............that would and wouldn't cover at least some of the
maley2711
in
Advanced Prostate Cancer
1 month ago
Saliva Cortisol results, the investigation continues...
Hi everyone 😊, Me again! My investigations continue and this is my most recent test to try to piece together what's going on. Any input most welcome please 🙏 Backstory since joining HU last November - Iron deficiency anaemia now corrected and ferritin getting close to optimal. All other vitamins
Hi everyone 😊, Me again! My investigations continue and this is my most recent test to try to piece together what's going on. Any input most welcome please 🙏 Backstory since joining HU last November - Iron deficiency anaemia now corrected and ferritin getting close to optimal. All other vitamins
Bertiepuss
in
Thyroid UK
1 month ago
Addition of an ARSI to standard ADT significantly increases the risk of fractures and falls in men with prostate cancer
Jones C, Gray S, Brown M, et al. Risk of fractures and falls in men with advanced or metastatic prostate cancer receiving androgen deprivation therapy and treated with novel androgen receptor signalling inhibitors: a systematic review and meta-analysis of randomised controlled trials. Eur Urol Oncol.
Jones C, Gray S, Brown M, et al. Risk of fractures and falls in men with advanced or metastatic prostate cancer receiving androgen deprivation therapy and treated with novel androgen receptor signalling inhibitors: a systematic review and meta-analysis of randomised controlled trials. Eur Urol Oncol.
Graham49
in
Advanced Prostate Cancer
1 month ago
Starting clinical trial of AVR-766
Today I start a clinical trial for ARV-766, an AR degrader. I'm coming in at phase 2, and they are only accepting men who have one of 4 point mutations in the AR - I have two. I've been randomized to 300 mg pill, once a day. The other dose is 100mg. I've failed ADT, chemo. Keytruda & Pluvicto. Hoping
Today I start a clinical trial for ARV-766, an AR degrader. I'm coming in at phase 2, and they are only accepting men who have one of 4 point mutations in the AR - I have two. I've been randomized to 300 mg pill, once a day. The other dose is 100mg. I've failed ADT, chemo. Keytruda & Pluvicto. Hoping
rsgdmd
in
Advanced Prostate Cancer
1 month ago
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