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New bone met
I have a consult with radiation oncologist on Wednesday and wanted to ask if any of you have had very targeted radiation therapy to one small new spot on bone when your systemic treatment (Ibrance and Letrozole) is still working on other mets. I saw there is SBRT and IMRT. Are these appropriate options
I have a consult with radiation oncologist on Wednesday and wanted to ask if any of you have had very targeted radiation therapy to one small new spot on bone when your systemic treatment (Ibrance and Letrozole) is still working on other mets. I saw there is SBRT and IMRT. Are these appropriate options
Trissh
in
SHARE Metastatic Breast Cancer
11 months ago
HRT /anti depressants
Hi to all who are going through the peri menopause it’s awful 😞. I’ve been really struggling with my anxiety and depression that I’ve had to up my dosage of Sertraline that I’ve been on for a number of years . I thought it was helping somewhat but no yesterday I had another complete meltdown and today
Hi to all who are going through the peri menopause it’s awful 😞. I’ve been really struggling with my anxiety and depression that I’ve had to up my dosage of Sertraline that I’ve been on for a number of years . I thought it was helping somewhat but no yesterday I had another complete meltdown and today
Junkjournal1
in
Menopause and Perimenopause Support
1 year ago
I went to the neph doctor for the 1st time...ugh...a couple of questions
She said I have stage 3a chronic kidney disease...The only thing she based it off of was egfr...I am not sure if other things need to be considered? She is sending me for a ultrasound and said to come back in 6 months and didnt seem very informative or concerned...Is this normal? How often would
She said I have stage 3a chronic kidney disease...The only thing she based it off of was egfr...I am not sure if other things need to be considered? She is sending me for a ultrasound and said to come back in 6 months and didnt seem very informative or concerned...Is this normal? How often would
tresa56
in
Kidney Disease
1 year ago
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Meds and CBT
Does anyone have any stories about how meds might of helped them with anxiety and depression, I have been on and constant up and down spiral for months, one week I might be extremely positive and confident with moments of bliss, then the next I can be rock bottom feel utterly hopeles and get paranoid
Does anyone have any stories about how meds might of helped them with anxiety and depression, I have been on and constant up and down spiral for months, one week I might be extremely positive and confident with moments of bliss, then the next I can be rock bottom feel utterly hopeles and get paranoid
Talkinghelps
in
Anxiety and Depression Support
1 year ago
End of my patience really unsure what to do feel completely alone and like nobody is listening Consultant confusing me what is wrong with me
I posted once before about starting injections whilst I wait for my hysterectomy I am 42 and my periods have been an issue my whole life heavy/painful etc except for when I was pg/breastfeeding my 3 kids it was the best period free time of my life. Things got very bad after I did not go back on the pill
I posted once before about starting injections whilst I wait for my hysterectomy I am 42 and my periods have been an issue my whole life heavy/painful etc except for when I was pg/breastfeeding my 3 kids it was the best period free time of my life. Things got very bad after I did not go back on the pill
LovelyLou81
in
Endometriosis UK
1 year ago
Imaging Guidelines - Salvage IMRT Planning
I'm planning to start my post-op salvage treatment after my PSA breached 0.1 few weeks ago. I'm OK with the extent of the treatment proposed, which is 5 weeks of IMRT (VMAT) to the prostatic fossa and pelvic LNs. However, I'm not confident with the accuracy of radiation delivery to the target area. Knowing
I'm planning to start my post-op salvage treatment after my PSA breached 0.1 few weeks ago. I'm OK with the extent of the treatment proposed, which is 5 weeks of IMRT (VMAT) to the prostatic fossa and pelvic LNs. However, I'm not confident with the accuracy of radiation delivery to the target area. Knowing
Rams91
in
Prostate Cancer Network
11 months ago
If immediately stopping after two years taking Orgovyx how long before testosterone begins to rise?
I’ve heard that testosterone returns quicker if using Orgovyx compared to Lupron. But I also heard that the longer on any ADT the longer the recovery. Or maybe testosterone never recovers? What do you guys think question
I’ve heard that testosterone returns quicker if using Orgovyx compared to Lupron. But I also heard that the longer on any ADT the longer the recovery. Or maybe testosterone never recovers? What do you guys think question
SViking
in
Advanced Prostate Cancer
1 year ago
Just had Psma-pet scan... Confused
My initial Axium pet scan nearly 2 years ago showed "innumerable" mets throughout musculoskeletal system, from head to knees... Understandably, my PSA at the time was 480. After 1 year on ADT and 8 months of Xtandi another Axium showed mets in calvarial region (skull), neck and clavicle no longer present
My initial Axium pet scan nearly 2 years ago showed "innumerable" mets throughout musculoskeletal system, from head to knees... Understandably, my PSA at the time was 480. After 1 year on ADT and 8 months of Xtandi another Axium showed mets in calvarial region (skull), neck and clavicle no longer present
GSDF
in
Advanced Prostate Cancer
1 year ago
Finding Support Groups
I am 84 and diagnosed with PCa in 2014. I had a multi-specialty work up Sibley Hospital in Washington DC (Johns Hopkins staffed clinic). No mets found. I was given 1 option, External beam; 70 Gray treatment went smoothly with no SE. I was given one injection of Lupron prior to the radiation. PSA
I am 84 and diagnosed with PCa in 2014. I had a multi-specialty work up Sibley Hospital in Washington DC (Johns Hopkins staffed clinic). No mets found. I was given 1 option, External beam; 70 Gray treatment went smoothly with no SE. I was given one injection of Lupron prior to the radiation. PSA
gbpmdjd
in
Advanced Prostate Cancer
1 year ago
CLL - Next Generation Sequencing
I'm curious about Next Generation Sequencing for CLL. To my understanding, this type of test identifies resistant mutations, i.e., NOTCH1, ZAP-70, SF3B1, etc., and this can help your doctor to determine a targeted therapy that's more personalized. Not sure I have this correct so hopefully someone here
I'm curious about Next Generation Sequencing for CLL. To my understanding, this type of test identifies resistant mutations, i.e., NOTCH1, ZAP-70, SF3B1, etc., and this can help your doctor to determine a targeted therapy that's more personalized. Not sure I have this correct so hopefully someone here
Cave123
in
CLL Support
1 year ago
My Small PCa Cells Don't Produce PSA
Hi All, Anyone here have these PCa cells and experience in treating them? Bio/history summary : - Dx Gleason 8 seven years ago - Prostate tumour metastasis to seminal vesicules and pelvic lymph nodes - PSA from about 150 to undetectable after ADT, enzalutamide , and 6 x docetaxal Now - March scans
Hi All, Anyone here have these PCa cells and experience in treating them? Bio/history summary : - Dx Gleason 8 seven years ago - Prostate tumour metastasis to seminal vesicules and pelvic lymph nodes - PSA from about 150 to undetectable after ADT, enzalutamide , and 6 x docetaxal Now - March scans
Bandit99
in
Advanced Prostate Cancer
1 year ago
Help with bloods
I have an appointment today with my doctor to look at changing my HRT from Evrol Conti 50 and testosterone. I have started having bleeds (mostly dark/blood clots). They have done a scan and i've had a biopsy which is ok so they want to change my HRT. I wanted to see my levels so asked for bloods to
I have an appointment today with my doctor to look at changing my HRT from Evrol Conti 50 and testosterone. I have started having bleeds (mostly dark/blood clots). They have done a scan and i've had a biopsy which is ok so they want to change my HRT. I wanted to see my levels so asked for bloods to
WendyW1964
in
Menopause and Perimenopause Support
1 year ago
The ParkinsonNet dream
ParkinsonNet is on a mission to improve the lives and guarantee the best possible care for those people impacted by Parkinson’s disease.
We are ParkinsonNet and would love to have your country on board of our global network.
ParkinsonNet was founded in 2004 in the Netherlands, were patient centered
ParkinsonNet is on a mission to improve the lives and guarantee the best possible care for those people impacted by Parkinson’s disease.
We are ParkinsonNet and would love to have your country on board of our global network.
ParkinsonNet was founded in 2004 in the Netherlands, were patient centered
Esperanto
in
Cure Parkinson's
1 year ago
Regulolix [Orgovyx]
I am looking for the experiences of those that are taking Regulolix [Orgovyx) with either, Xtandi , Erleada or Daralutamide. My Dr claims that Regulolix doesn't " play well with other ADT orals-guess of the "lutamide family " I listed above. I heard there are those that are taking Rugulolix with these
I am looking for the experiences of those that are taking Regulolix [Orgovyx) with either, Xtandi , Erleada or Daralutamide. My Dr claims that Regulolix doesn't " play well with other ADT orals-guess of the "lutamide family " I listed above. I heard there are those that are taking Rugulolix with these
podsart
in
Advanced Prostate Cancer
1 year ago
Tamoxifen
I have been on Tamoxifen for 5yrs I have been.having trouble with incontinence and a burning constant sensation in my vagina I.have had numerous urine tests always come back negative This went on for months with constant visits to the doctors with no.satisfaction In the end I paid to see a neurologist
I have been on Tamoxifen for 5yrs I have been.having trouble with incontinence and a burning constant sensation in my vagina I.have had numerous urine tests always come back negative This went on for months with constant visits to the doctors with no.satisfaction In the end I paid to see a neurologist
galgo
in
My Breast Cancer Community
1 year ago
I want to try SARM's-Yes or No?
currently taking Nubeqa and Orgovyx and hate the sarcopenia I'm experiencing. I asked my MO about BAT and I've had two cycles of getting a month off ADT and receiving an injection of testosterone the month off of ADT before restarting ADT. I've read some positive reviews on this site about Ostarine
currently taking Nubeqa and Orgovyx and hate the sarcopenia I'm experiencing. I asked my MO about BAT and I've had two cycles of getting a month off ADT and receiving an injection of testosterone the month off of ADT before restarting ADT. I've read some positive reviews on this site about Ostarine
AllenMarco
in
Advanced Prostate Cancer
1 year ago
Red light therapy
Hi , I’ve read up a lot about red light therapy & have held back but now considering buying one. Just interested to know if any of you have bought one, how you have got on with it, re results, plus if so any recommendations. I know I have seen posts in the past where people have mentioned they use one
Hi , I’ve read up a lot about red light therapy & have held back but now considering buying one. Just interested to know if any of you have bought one, how you have got on with it, re results, plus if so any recommendations. I know I have seen posts in the past where people have mentioned they use one
Durrell
in
NRAS
1 year ago
Can orchidectomy substitute ADT/HT?
Specially when it comes to side effects, persons having other health issues, like someone who has severe coronary artery disease (CAD). Side effetcs: Hot flashes - Fatigue - Loss of libido - Weight gain - Gynecomastia - Osteoporosis and bone density loss - Mood changes and depression - Memory and
Specially when it comes to side effects, persons having other health issues, like someone who has severe coronary artery disease (CAD). Side effetcs: Hot flashes - Fatigue - Loss of libido - Weight gain - Gynecomastia - Osteoporosis and bone density loss - Mood changes and depression - Memory and
FMOH_N
in
Prostate Cancer Network
1 year ago
Dodged Another Bullet
I was on Eligard for two years and the hormone treatment was ended in October 2022. On July 3rd 2023 I had a minor heart attack. Fortunately I recognized the symptoms straight away and went directly to the ER. I had a >90% blockage in my right coronary artery, and ended up with one stent in the artery
I was on Eligard for two years and the hormone treatment was ended in October 2022. On July 3rd 2023 I had a minor heart attack. Fortunately I recognized the symptoms straight away and went directly to the ER. I had a >90% blockage in my right coronary artery, and ended up with one stent in the artery
TottenhamMan
in
Advanced Prostate Cancer
1 year ago
ART ADT n Life Without Testosterone for Prostate Cancer Patients
ART ADT n Life Without Testosterone for Prostate Cancer Patients ADT…we have all been told about it, some have selected it in their treatment regimes, most I fear have incomplete knowledge of what it does to general health, to men’s sexual function and specifically, to their penile organ. I had no
ART ADT n Life Without Testosterone for Prostate Cancer Patients ADT…we have all been told about it, some have selected it in their treatment regimes, most I fear have incomplete knowledge of what it does to general health, to men’s sexual function and specifically, to their penile organ. I had no
RMontana
in
Active Surveillance - Prostate Cancer
1 year ago
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